Self-love is the best LOVE. Hello red. ❣️❣️❣️❣️ No 2 colors this time with more red, especially nose, that I have a little more length. Probably trim next time I go, but what a DAY. 💇♀️ Who knows what 3️⃣6️⃣ will bring me, but I'm sure hoping for more progress in my life, saying NO to stagnation, protecting my happiness, and anyone and anything that is not ready to be a part of my continued journey. 💯 People will always be around to tell you you're pretty or pay other random compliments, especially on the internet... That's fine and dandy, but at the end of the day, who's there through the hardships? The REAL real? Who's NOT telling you how to feel and just... listening? It's another ballgame when it comes to backing your words with actions and staying true to the words you speak. This time of year, I'm very indifferent about my birthday due to family estrangement and my baby girl no longer being with me. I get told how I should do and feel in regards to a holiday that holds little meaning to me now... always seek to understand before preaching about family to people. Remember, relatives are blood, and family is CHOSEN. Also, when it isn't your place, well, it just isn't. I will still enjoy MY time because I've been tested and tried in more ways than most even endure in a lifetime at this age, and I know I'm not done. Illness is my best friend, my confidant... we wake up together, we go out together, go to sleep together. And I'm at peace with that. I use this space to show that I'm a real person at the end of the day. Not one who leaves out all the messy bits of life cause why bother? We have this time here, and that's it. Live it fully. As best as you can... WITH intention. ✌️ ☮️ Cheers 🍻 ♉️ #taurusseason #Taurus #bday #reflection #maybaby #birthday #thoughts #journey #life #chronicilness #health #endowarrior #chronicpain #invisibleillness #mood #vibes #igers hairdone #happybday #twitchstreamer #contentcreator #instavibes #redhair #energy #justsaying #loveyourself #truth
#ankylosingspondylitis #ankylosingspondylitisawareness #chronicillness #chronicpain #chronicillnessawareness #chronicpainawareness #invisibleillness #invisiblepain #invisibledisability #invisibledisease #endometriosis #endometriosisawareness #fibromyalgia #fibromyalgiaawareness #hidradenitissuppurativa #adenomyosis #adenomyosisawareness #hidradenitissuppurativaawareness #invisibleillnessawarness #invisiblepainawareness #invisibledisabilityawareness #invisibledisabilityawareness #spoonie #spoonielife
#lilaccity #spokanedoesntsuck #bumblebee #mindyourbeesiness #lilac #chronicpain #fibromyalgia #autoimmunedisease #ocularmigraines #chronicheadaches #interstitialcystitis #pmdd #invisibleillness #spoonie #generalizedanxietydisorder #empath #growing #trying #thriving #grateful #survivor #warrior #lifeinprogress #keeponkeepingon #eathappy #selflove #buildthelifeyouwant #bethechange #keepgrowing #practicingbuddhism
In honor of World Lupus Day, raising awareness for this chronic autoimmune disease that can cause a multitude of symptoms. Although there's no cure, early diagnosis and treatment can make a big difference. Let's support those living with Lupus and fight for a brighter future! Tags: #WorldLupusDay #LupusAwareness #AutoimmuneDisease #ChronicIllness #Support #Hope #Strength #InvisibleIllness #Healthcare #Research #TogetherWeCan
🦋💜 Today marks #WorldLupusDay, a day to raise awareness about lupus, an autoimmune disease affecting millions worldwide. Let's stand together to support those living with lupus, raise awareness about its symptoms and challenges, and advocate for better research and treatment options. When we come together, we have the power to positively impact the lives of lupus patients. #LupusAwareness #autoimmunedisease #chronicillness #lupuswarrior #lupusfighter #invisibleillness #healthawareness #kids #kidsactivities #kidseducation #playschool #playschoolactivities #playschooleducation #Hyderabad #hyderabaddiaries #hyderabadschools💪💙
The first time I have felt human in over 10 days.. getting covid sucks 🙃 #health #crohnsandcolitis #crohnsdisease #ibd #ibdawareness #invisibleillness #covid #pretty #beauty #beautiful #fitness #exercise #sport #fitnessmotivation #exercisephysiology #Perth #westernaustralia #westcoast #Westaustralia #westisbest #Westaus #Perthcity #Perthisok #autumn #perthlife #perthvibes #perthlocal #adventure #lifestyle
𝐖𝐨𝐥𝐫𝐝 𝐋𝐮𝐩𝐮𝐬 𝐃𝐚𝐲! This World Lupus Day let's strive to stand up for Lupus awareness. #WorldLupusDay #LupusAwareness #FightLupus #LupusWarrior #KnowLupus #LupusStrong #AutoimmuneDisease #LupusFighter #SupportLupus #LupusCommunity #LupusDay2024 #ChronicIllness #RaiseAwareness #InvisibleIllness #LupusAdvocacy #LivingWithLupus #LupusResearch #LupusWarrior #EmpowerPatients #HopeForLupus #specialday #healthday #trending #trendingnow #prathimafoundation #prathima #PF
Living with #fibromyalgia isn't easy, but together, we can navigate this journey. Let's raise #awareness, share #support, and #empower each other to thrive despite the challenges. #FibromyalgiaAwareness #ChronicPain #InvisibleIllness #FibroFighter #FibroWarrior #ChronicFatigue #FibromyalgiaSupport #PainManagement #FibromyalgiaLife #FibromyalgiaCommunity
"Living with fibromyalgia isn't easy, but together, we can find strength and support. Join the conversation and share your journey. #FibromyalgiaAwareness #ChronicPain #InvisibleIllness #FibroWarrior #FibroLife #ChronicFatigue #SpoonieLife #FibroFighter #FibroCommunity #PainManagement #FibromyalgiaSupport #HealthAndWellness #FibroStrong #FibromyalgiaWarrior #FibromyalgiaFighter #ChronicIllness"
Breaking the silence on chronic pain in women 💪 Let's raise awareness and support each other through our journeys. #ChronicPainWarrior #WomenInPain #PainAwareness #ChronicPainSupport #InvisibleIllness #PainManagement #HealthAndWellness #ChronicPainCommunity #StrongWomen #EndTheStigma #YouAreNotAlone #PainRelief #Empowerment #ChronicIllness #PainFreeLife #HealthAdvocacy #FightForACure #PainWarrior #SupportAndEmpowerment
"Living with #fibromyalgia: navigating the ups and downs of chronic pain. Together, we can raise awareness and support one another on this journey. #FibromyalgiaAwareness #ChronicPain #InvisibleIllness #FibroFighter #FibroWarrior #FibroLife #FibromyalgiaSupport #FibroCommunity #PainManagement #HealthAndWellness #ChronicFatigue #FibromyalgiaWarrior #FibroStrong #FibroAwareness #YouAreNotAlone #FibroJourney"
"Empower yourself with knowledge about fibromyalgia and discover ways to manage its challenges. Together, let's raise awareness and support for those living with #fibromyalgia. #ChronicPain #InvisibleIllness #FibroFighters #HealthAwareness #PainManagement"
𝐖𝐨𝐥𝐫𝐝 𝐋𝐮𝐩𝐮𝐬 𝐃𝐚𝐲! Let's come together to raise awareness and make a positive impact. Every action counts in making Lupus visible and supporting those affected. #WorldLupusDay #LupusAwareness #FightLupus #LupusWarrior #KnowLupus #LupusStrong #AutoimmuneDisease #LupusFighter #SupportLupus #LupusCommunity #LupusDay2024 #ChronicIllness #RaiseAwareness #InvisibleIllness #LupusAdvocacy #LivingWithLupus #LupusResearch #LupusWarrior #EmpowerPatients #HopeForLupus #specialday #healthday #trending #trendingnow #prathimainstituteofmedicalsciences #prathima #PIMS
3 years since I underwent surgery to get an #aceprocedure & I’m still angry at how it was handled. My surgeons rooms forgot to refer me to the stoma nurses, meaning I underwent the op without seeing a nurse & I had little understanding of what I was doing. In my opinion he should have intervened & arranged for me to see someone before going ahead. Mental health has been a huge ongoing battle. I see ostomtes who are grateful for their stoma because it’s given them their life back/ improved their quality of life. Not to take away from the fact adjusting to stoma life isn’t a breeze for anyone of course, but as someone said to me the other day they think some people have the capacity to deal with the stress better than others. Also if it did greatly improve your life overall I think it would be easier to accept. Then there’s those of us whom it hasn’t improved quality of life for. I am not grateful, I’m filled with hate & regret. Not only has it not improved the quality of my life, it’s lessened it. Invisible to others as it’s always covered, but it rules my life & has destroyed my soul. You never know what other people are wandering around dealing with. Someone can look well or normal but be anything but. Ace procedures are not common especially not common to be done in adulthood. I’ve only discovered a few other adult women with them in the last few months. Knowing no one else in the same boat makes the journey more isolating. Support from stoma nurses has been shocking. The most helpful professionals to date have been staff at @dansac_ostomy & @hollister_incorporated helping me with products. Super efficient & genuinely seemed to care & want to help provide the best info. I am grateful for discovering stoma caps/ small ostomy pouches - one little thing that’s given me some confidence back 🦓🩶 Todays #myedschallenge the prompt was “what you see, what you don’t” #ehlersdanlos #ehlersdanlossyndrome #ehlersdanlosawarenessmonth #stoma #stomalife #ostomy #ostomate #mcas #mastcellactivationsyndrome #gastroparesis #endo #comorbidities #pots #thetrifecta #invisibleillness #butyoudontlooksick #notalldisabilitiesarevisible
𝐖𝐨𝐥𝐫𝐝 𝐋𝐮𝐩𝐮𝐬 𝐃𝐚𝐲! Let's unite to shine a light on Lupus. Awareness leads to early detection and better support for those living with this often invisible illness. #WorldLupusDay #LupusAwareness #FightLupus #LupusWarrior #KnowLupus #LupusStrong #AutoimmuneDisease #LupusFighter #SupportLupus #LupusCommunity #LupusDay2024 #ChronicIllness #RaiseAwareness #InvisibleIllness #LupusAdvocacy #LivingWithLupus #LupusResearch #LupusWarrior #EmpowerPatients #HopeForLupus #specialday #healthday #trending #trendingnow #prathimacancerinstitute #prathima #PCI
𝐖𝐨𝐥𝐫𝐝 𝐋𝐮𝐩𝐮𝐬 𝐃𝐚𝐲! Together, we can educate, support, and advocate for those affected by Lupus. #WorldLupusDay #LupusAwareness #FightLupus #LupusWarrior #KnowLupus #LupusStrong #AutoimmuneDisease #LupusFighter #SupportLupus #LupusCommunity #LupusDay2024 #ChronicIllness #RaiseAwareness #InvisibleIllness #LupusAdvocacy #LivingWithLupus #LupusResearch #LupusWarrior #EmpowerPatients #HopeForLupus #Specialday #healthday #trending #trendingnow #prathimahospitals #prathima #PH
Grab a free coaching session with me. Just message me or check out my profile. . . . #ThinkUnbroken #mentalhealth #mentalhealthawareness #mentalhealthmatters #recovery #anxiety #mentalhealthawarenessmonth #healingjourney #trauma #mentalhealthsupport #adhd #grief #resilience #mentalillness #survivor #chronicillness #ptsd #boundaries #mentalwellness #traumahealing #mentalhealthadvocate #narcissist #hsp #recoveryispossible #mentalhealthrecovery #addiction #suicideprevention #invisibleillness #traumarecovery #neurodivergent
Today is World Lupus Day. Stand up for the millions living with lupus around the world. . . . #WorldLupusDay #LupusAwareness #WorldLupusDay #LupusCommunity #LupusResearch #PutOnPurple #ChronicDisease #OPPL #API #AutoimmuneDisease #Hope #Strength #InvisibleIllness #Healthcare #OceanicPharmachem #Pharmaceuticals #Pharmachem
Today, on World Lupus Day, let's raise awareness, show support, and stand in solidarity with those battling lupus. Together, we can work towards better understanding, research, and treatment for this complex autoimmune disease. 💜 #WorldLupusDay #LupusAwareness #LupusWarrior #LupusStrong #AutoimmuneDisease #ChronicIllness #Support #Advocacy #RaiseAwareness #Hope #LupusFighter #LupusCommunity #InvisibleIllness #EndLupus #Healthcare #Empowerment #Understanding #Research #Treatment #LupusAwarenessMonth
"On World Lupus Day, let's raise our voices, spread awareness, and show support for all those battling lupus." . . . . . . . . . . #chronicillness #lupuswarrior #fibromyalgia #autoimmunedisease #lupusawareness #chronicpain #spoonie #diabetes #cancer #invisibleillness #sle #rheumatoidarthritis #autoimmune #herpes #lupusfighter #fibromialgia #lupuslife #spoonielife #arthritis #lupusflare #lupussucks #butyoudontlooksick #hiv #reumatologia #chronicillnesswarrior #drsebi #love #lupussupport #lupusproblems
"On World Lupus Day, let's raise our voices, spread awareness, and show support for all those battling lupus." . . . . . . . . . . #chronicillness #lupuswarrior #fibromyalgia #autoimmunedisease #lupusawareness #chronicpain #spoonie #diabetes #cancer #invisibleillness #sle #rheumatoidarthritis #autoimmune #herpes #lupusfighter #fibromialgia #lupuslife #spoonielife #arthritis #lupusflare #lupussucks #butyoudontlooksick #hiv #reumatologia #chronicillnesswarrior #drsebi #love #lupussupport #lupusproblems
"On World Lupus Day, let's raise our voices, spread awareness, and show support for all those battling lupus." . . . . . . . . . . #chronicillness #lupuswarrior #fibromyalgia #autoimmunedisease #lupusawareness #chronicpain #spoonie #diabetes #cancer #invisibleillness #sle #rheumatoidarthritis #autoimmune #herpes #lupusfighter #fibromialgia #lupuslife #spoonielife #arthritis #lupusflare #lupussucks #butyoudontlooksick #hiv #reumatologia #chronicillnesswarrior #drsebi #love #lupussupport #lupusproblems
"On World Lupus Day, let's raise our voices, spread awareness, and show support for all those battling lupus." . . . . . . . . . . #chronicillness #lupuswarrior #fibromyalgia #autoimmunedisease #lupusawareness #chronicpain #spoonie #diabetes #cancer #invisibleillness #sle #rheumatoidarthritis #autoimmune #herpes #lupusfighter #fibromialgia #lupuslife #spoonielife #arthritis #lupusflare #lupussucks #butyoudontlooksick #hiv #reumatologia #chronicillnesswarrior #drsebi #love #lupussupport #lupusproblems
"On World Lupus Day, let's raise our voices, spread awareness, and show support for all those battling lupus." . . . . . . . . . . #chronicillness #lupuswarrior #fibromyalgia #autoimmunedisease #lupusawareness #chronicpain #spoonie #diabetes #cancer #invisibleillness #sle #rheumatoidarthritis #autoimmune #herpes #lupusfighter #fibromialgia #lupuslife #spoonielife #arthritis #lupusflare #lupussucks #butyoudontlooksick #hiv #reumatologia #chronicillnesswarrior #drsebi #love #lupussupport #lupusproblems
"On World Lupus Day, let's raise our voices, spread awareness, and show support for all those battling lupus." . . . . . . . . . . #chronicillness #lupuswarrior #fibromyalgia #autoimmunedisease #lupusawareness #chronicpain #spoonie #diabetes #cancer #invisibleillness #sle #rheumatoidarthritis #autoimmune #herpes #lupusfighter #fibromialgia #lupuslife #spoonielife #arthritis #lupusflare #lupussucks #butyoudontlooksick #hiv #reumatologia #chronicillnesswarrior #drsebi #love #lupussupport #lupusproblems
"On World Lupus Day, let's raise our voices, spread awareness, and show support for all those battling lupus." . . . . . . . . . . #chronicillness #lupuswarrior #fibromyalgia #autoimmunedisease #lupusawareness #chronicpain #spoonie #diabetes #cancer #invisibleillness #sle #rheumatoidarthritis #autoimmune #herpes #lupusfighter #fibromialgia #lupuslife #spoonielife #arthritis #lupusflare #lupussucks #butyoudontlooksick #hiv #reumatologia #chronicillnesswarrior #drsebi #love #lupussupport #lupusproblems
There is so much more to you than your illness ✨ Although it may seem like your illness consumes you and sometimes it’s your entire being, remember that underneath it all is an amazing human, strong as hell, with all the characteristics that people love you for, that have nothing to do with your illness. I know it can be incredibly hard some days to find that person behind all the pain and suffering but trust me they’re still there and they are fighting each and every day to come back to the surface. It might be hard as hell but one day soon they will reappear, just keep fighting, stay as positive as you can and take joy in all the happy moments no matter how small. ♡𝐵𝑒𝒸𝓈 • • • #endometriosis #healing #chronicillness #endowarrior #myendostory #invisibleillness #empowerment #selflove #selfacceptance #livingwithendometriosis #pain #disease #awareness #chronicpain #infertility #endojourney #iam1in10 #support #healing #strength #womenshealth #healthandwellness #myjourney #advocate #mentalhealth #wellbeing
“Made of: meds, anxiety, m dry shampoo, chronic pain and nausea too.” My neck is so swollen and it’s super painful. Still don’t know why or what’s going on to cause it. Post by @asecretspoonielife Edited by me @chronically_brave Using @acolorstory
MOTHER’S DAY GIVEAWAY!!!!! 🧡 MS community and book community, this is for you! Enter to win this new picture book about MS and invisible illnesses. (Canada & US only) How to enter: 1. Like this post 2. Tag a friend in the comments. Bonus Points if you share to your Instagram Stories. The draw will be done at 7pm on Sunday, May 12th (Mountain Standard Time). A little girl whose mother has Multiple Sclerosis discovers that some superheroes are fighting invisible battles. With the help of her cat and some X-ray glasses, she learns just how strong her mom is and how she can help her. . . . . @dceducation @daniaelkhatib @picturebookseh @pbbuds24 #giveaway #picturebookgiveaway #msawarenessmonth #msawarenessmonth🎗 #multiplesclerosis #ms #curems #msawareness #multiplesclerosisawareness #weneeddiversebooks #ChronicIllness #mswarrior #multiplesclerosiswarrior #invisibleillness #mssociety #msfighter #spoonie #invisibleillness #chronicallyill #mssocietyofcanada
Sending strength and support to all the lupus warriors out there! You're #lupusfighter 📢Surabhi IVF has Uttarakhand's 1st Artificial Intelligence (AI) based Complete Semen Analysis Technology. #WorldLupusDay #lupusfighter #LupusAwareness #KnowLupus #LupusFighter #LupusStrong #InvisibleIllness #ChronicPain #WeFightTogether #LupusSupport #LupusWarriors Website : www.surabhihospital.in Instagram : @surabhi_ivf_centre Facebook Page : Surabhi Hospital & Test Tube Baby Center Rudrapur / Haldwani
Inviting all People With Disabilities to 𝐈𝐧𝐝𝐢𝐚'𝐬 𝐃𝐢𝐯𝐞𝐫𝐬𝐢𝐭𝐲 𝐉𝐨𝐛 𝐅𝐚𝐢𝐫 𝟐𝟎𝟐𝟒 - 𝐁𝐲 𝐕𝐢𝐯𝐢𝐝𝐡𝐚𝐭𝐚𝐚 𝐢𝐬 𝐁𝐚𝐜𝐤!!! 𝐃𝐚𝐭𝐞: 𝟐𝟐𝐧𝐝 𝐌𝐚𝐲, 𝟐𝟎𝟐𝟒 𝐕𝐞𝐧𝐮𝐞: 𝐓𝐡𝐞 𝐂𝐥𝐮𝐛 𝐉𝐮𝐡𝐮, 𝐌𝐮𝐦𝐛𝐚𝐢 𝐓𝐢𝐦𝐢𝐧𝐠𝐬: 𝟗 𝐚𝐦 - 𝟓 𝐩𝐦 𝐑𝐞𝐠𝐢𝐬𝐭𝐞𝐫 𝐨𝐧: Linktr.ee/Vividhataa 𝐈𝐧𝐯𝐢𝐭𝐢𝐧𝐠 𝐀𝐥𝐥 𝐉𝐨𝐛𝐬𝐞𝐞𝐤𝐞𝐫𝐬 🔅Womxn 🔅People With Disabilities 🔅People From LGBTQIA+ Community 🔅Womxn On Career Break 🔅Veterans / Ex - Defence 🔅EWS / BPL and Marginalised Communities Jobseekers - Present your own Elevator Pitch and impress the Inclusive Employers on a Virtual LIVE Platform. 𝐄𝐦𝐩𝐥𝐨𝐲𝐞𝐫𝐬 𝐒𝐞𝐧𝐝 𝐚𝐧 𝐄𝐧𝐪𝐮𝐢𝐫𝐲 on [email protected] or Call on +91-8390418793 to 𝐁𝐨𝐨𝐤 𝐲𝐨𝐮𝐫 𝐈𝐧𝐜𝐥𝐮𝐬𝐢𝐯𝐞 𝐇𝐢𝐫𝐢𝐧𝐠 𝐒𝐥𝐨𝐭𝐬 To get regular updates, follow our website & social media pages. We look forward to having you there! 𝐑𝐞𝐠𝐚𝐫𝐝𝐬, 𝐓𝐞𝐚𝐦 𝐕𝐢𝐯𝐢𝐝𝐡𝐚𝐭𝐚𝐚 www.vividhataa.com #disability #disabilityawareness #disabled #wheelchair #inclusion #autism #chronicillness #wheelchairlife #specialneeds #accessibility #love #chronicpain #invisibleillness #spoonie #autismawareness #disabilityadvocate #mentalhealth #cerebralpalsy #disabilityrights #disabilityinclusion #spinalcordinjury #downsyndrome #disabilities #disabilitypride #abilitynotdisability #disabilitylife #handicap #diversity #amputee #asd
💜💜 #ulcerativeColitis #crohnsdisease #IBD #Invisibleillness #chronicillness #ITP #autoimmunedisease #colitiswarrior 💜💜
Lost in the shadows, yet searching for the light. A poem of quiet strength and a yearning for a brighter tomorrow. #hopeendures #mentalhealthmatters #poetry #poet #poetsociety #burnout #chronicillnesswarrior #silentstruggles #yearningforbetter #findinglightindarkness #poetrycommunity #mentalhealthpoet #wordsofencouragement #selflovejourney #mentalhealth #mentalhealthawareness #mentalhealthmatters #depression #anxiety #chronicpain #invisibleillness #loneliness #hope #resilience #strength #nevergiveup #youarenotalone
Hey y'all 👋🏾 I get sooooo many inboxes asking me about my journey to receiving my ostomy bag. Welp, THIS IS THE REASON -- Ozempic (for weight loss). I increased to 2.4 Saturday; went to work Monday; got sick Monday night; was in the hospital Tuesday. My PT came today. She said she looked at my medical records and was in shock. All she could say was "I'm surprised you're not dead." I won't tell you not to take Ozempic, but I will say be careful. #ozempic #ozempicweightloss #becareful #ostomatestrong #megantheestoma #megtheestoma #hotgirlmeg #mtg #realstomagirlshit #realhotgirlshit #ostomybaddie #invisibleillness #invisibleillnessbae #ostomy #ostomatestrong #ost #ostomyAF #ostomyawareness #ostobaes #newbieostomate #nothingbutaGIthang #diverticulosis #diverticulitis #ostomylife #ostomatestrong #beencouraged #insta #instagood #proudostomate
♿️ VENDOR SPOTLIGHT ♿️ Please welcome @rachelsenchantedisland ! Rachels Enchanted Island sells Funko, Vinyl, Comics Squishmallows. We hear from Rachel about her life, experiences, her children and her business. Rachel: “Hi, my name is Rachel and I own “Rachel’s Enchanted Island”. I have a Heavenly daughter who was diagnosed with Turner Syndrome and had many birth defects, she was born sleeping 04/21/21. I have a brilliant Autistic son who is 5 years old and continues to teach me how different the world looks in his eyes. My mother is a “Cyborg”.. not really lol. He back is held in place with many rods and screws, she also deals with coronary artery disease which is actually a new adventure for us. I’ve struggled with Mental Health issues since a very young age but I’m finding my way through today. Rachel’s Enchanted Island was initially created to make ends meet as we were seeing many specialists for our “spicy” family and still are to this day, however today this small business means much more to me, it’s to spread awareness, it’s a healthy way for me to cope with the struggles of day to day life, and it’s how I can let my light shine.” The May Spinny Brand: Gifted & Disabled Summer Bash is on Saturday, May 18, at Four Corners Brewing Co! We are happy to announce our May guest for the Spinny Brand Market, Voice Actors Meredith McCoy, Chuck Huber, Kent Williams, and Jeremy Inman, the Androids will be reuniting for one day only!! You do not want to miss the opportunity to get all their autographs in one place! Check @spinnybrandco for updates. #disability #disabilityawareness #disabled #wheelchair #inclusion #autism #chronicillness #wheelchairlife #specialneeds #accessibility #love #chronicpain #invisibleillness #spoonie #autismawareness #disabilityadvocate #mentalhealth #cerebralpalsy #disabilityrights #disabilityinclusion #cancersurvivor #downsyndrome #disabilities #disabilitypride #abilitynotdisability #disabilitylife #handicap #diversity #amputee #asd
#Repost @lupuscolorado with @use.repost ・・・ We look forward to seeing your photos on Friday! Tag us @lupuscolorado. #worldlupusday #makelupusvisible #lupusawareness #chronicillness #invisibleillness #autoimmune
When you’re craving something light: shrimp kabobs and grilled zucchini squash. It’s also giving summertime 🌞 #GlutenFree #GlutenFreeLiving #GlutenFreeLife #LifeWithAutoimmuneDisease #AutoimmuneLife #Celiac #CeliacLife #CeliacLiving #Celiaca #VidaCeliaca #GlutenFreeRecipes #AutoimmuneWarrior #AutoimmuneSister #GlutenFreeInLA #SansGluten #SinGluten #ChronicIllness #InvisibleIllness #KissTheGlutenFreeChef #CeliacsSupportingCeliacs #CeliacTips
Doing everything 'right' 🍀🥦💊 sometimes isn't enough to keep a flare-up at bay. It's frustrating when your body doesn't cooperate, despite your best efforts. But hey, it's a reminder that we're warriors, not robots! 🤖❌ If you're in the middle of a flare, hang in there. You're not alone and your resilience is incredible. 💪 #ArthritisSolutions #ChronicPainRelief #InnovativeHealth #ArthritisManagement #ArthritisSupport #SelfCareForArthritis #PainManagement #chronicillness #invisibleillness #spoonie #disability #pain #inflammation #chronicpain
Lately, God has been giving me a lot of signs and reminders of how good life is! It’s inspiring me to change my attitude and shift my focus on the positive as much as possible. My greatest struggle right now is being way too hard on myself and it only adds to my pain. I'm also guilty letting the of negativity that comes from chronic pain bring me down and I need to do better for myself. Life is beautiful and too short to not focus on the good, be good to others and myself as well. Really trying to keep that attitude in mind and focus on the good, positivity, and growth no matter what challenges I may face 😘 #thisisendometriosis #blessed #disabledartist #adenomyosis #hysterectomyrecovery #hysterectomy #pmdd #infertility #godisgood #grateful #changeyourmindset #focusonthegood #lifeisgood #endometriosis #invisibleillness
Come to Sensory Project Day this Saturday at our headquarters. Please RSVP with your license plate for free parking. https://changecoalition.ca/rsvp-events-1 #stigma #invisibleillness #invisibledisabilityweek #invisibledisabilityadvocate #DepressionAndAnxietyAwareness #depressionisnojoke #DepressionIsNotAJoke #DementiaAware #nonprofitorganization #sociallyresponsible #anxiety
World Lupus Day "On World Lupus Day, let's spread awareness, support, and understanding for those battling this complex autoimmune disease. Together, we can strive for better treatments and a brighter future for everyone affected by lupus." #WorldLupusDay #LupusAwareness #LupusWarrior #FightLupus #LupusSupport #AutoimmuneDisease #HealthAwareness #InvisibleIllness #ChronicIllness #EndLupus #VivekanandhaTechForWomen #TiruchengodeCollege #NamakkalEducation #EmpoweringWomenInTech #VCTW #WomenInSTEM #VivekanandhaCollege #InnovationInEducation #TiruchengodeCampus #NamakkalTechInstitute
• Hi everyone. April was a really hard month for me so I haven’t been posting but am hoping to get back soon so I can keep spreading awareness and continue to connect with all the wonderful people I have met on this journey! Swipe to read more #relapsingpolychondritisawareness #relapsingpolychondritis #raceforrp #chronicillness #chronicillnessawareness #autoimmunedisease #pots #potsawareness #rheumatoidearthritis #longcovid #world #RA #mitochondrialdisease #raredisease #chronicpainwarrior #dysautonomiaawareness #invisibleillness #eds #ehlersdanlossyndrome #slippingribsyndrome #hashimotosdisease #autoimmuneawareness #arthritis #mctd #uctd #rarediseaseday #mobilityaid #chronicpainawareness #invisibleillness #connectivetissuedisorder #lupus
𝐇𝐚𝐩𝐩𝐲 𝐖𝐨𝐫𝐥𝐝 𝐋𝐮𝐩𝐮𝐬 𝐃𝐚𝐲✨ Let's come together to support and encourage lupus fighters #WorldLupusDay #LupusAdvocacy #LupusFighter #LupusFighter #LupusResearch #HopeForLupus #LupusSupport #InvisibleIllness #ChronicDisease #StrongerThanLupus
This is my tile for the @metalmuseum Enameled Community Quilt Project honoring wonderful enamelist, Martha Banyas. The quilt project asked artists to "express their own perspectives or experiences related to health, spirituality, and the body." Ironically I had a similar image sketched before making the tile, as it is part of a new, future piece, but I thought it fit here as well. The title is "Tell Me When it Goes Full Black", a quote from an optometrist when I told them vision in my eye was randomly blurring and darkening, making it impossible to see out of that eye at night should it happen. I was told to come back to her when the vision went completely, and sent home. The first and only time I ever saw Martha Banyas speak in person she discussed materials she used including luster and painting enamels, so I wished for this piece to contain both, down to the Arrow Springs Pixie Dust luster I first took note of during her talk. She is very missed in her communities, but it is heartwarming to hear how her legacy continues through all who knew her through her work and instruction. . . . . . . . #snagmember #enamelist #metalsmith #selfportrait #illustrator #enamel #metal #illustration #art #tile #overglaze #pattern #luster #cute #green #patterns #invisibleillness #artobject #markmaking
Here are my top ten favourite photos from my social media hiatus. I’ve been pouring into my cup, showing grace and compassion to myself and others, making time for things that spark joy like hiking, time with my dog, eating good food, self-care, and creating. Today I went on a 9.4 km hike. Having chronic pain makes hiking really challenging, but I love the forest so much. As soon as the leaves on the trees started to grow, I was ready to go hiking. It’s something I’ve always enjoyed. 🥰 I’m going to be exhausted from all the hiking I did and be in more pain tomorrow, but it’s been such a blast using my camera and camera phone to take photos. It was a great little break from the chaos. I have such a long way to go to get where I’d love to be, but it will take time. I still have lots of medical appointments this month, June, and July. However, a fun little adventure will be had to make my appointments suck less in June. 😁 At times, I find myself feeling alone at my medical appointments, as I go alone, it can be overwhelming. I remind myself that I’m not alone at all. I have guardian angels, family, friends, and even community members who look out for me. Thank you to everyone for reminding me I’m capable of enduring all that I do and that even when I’m alone, I’m never actually alone. 🥰 #selfcare #hiking #chronicpain #community #gratitude #dowhatmakesyouhappy #nevergiveup #invisibleillness #chronicillness #butyoudontlooksick #chiarimalformation #syringomyelia
A successful non-profit organization will have an excellent board of directors. they make the decisions and guide the direction of the organization. Meet our board of directors. See why we are special. https://changecoalition.ca/board-of-directors #invisibleillness #stigma #mentalhealthsupport #invisibledisabilityadvocate #invisibledisabilityweek #depressionisnojoke #DepressionAndAnxietyAwareness #DepressionIsNotAJoke #nonprofitorganization #sociallyresponsible #ottawamentalhealthsupport #ottawamentalhealth
One Day Away!! It will be my Graduation Day!!! Life has a way of making you laugh. Growing up I would always say i’m NEVER going to be like my mama and become a nurse! The giggles were on me because I just knew I would be on CNN reporting the news!! Life definitely gave me many curveballs when I was diagnosed with Lupus! I remember my rheumatologist telling me you will hurt for the rest of your life, either you will be let it get you or you will fight against it! I cried when he said that because I was like sir this pain is unbearable!! 6 months later I decided I was going to fight through my pain and tears and not let it run my life! I took my life back and although some days I feel like a truck has ran me clean over I still go through the day with a SMILE for most of it! I thought I would never be able to work in my field but I was able to find a specialty that I fell in love with and was able to work and keep my illness under reasonable standards for myself. When I found out I was accepted into my program I was nervous and happy at the same time!! I completed my program in 10 months under intense STRESS!! If you know then you know Stress is the #1 no, no!! I had my flare ups but continued to STILL STUDY, Go To CLASS and CLINICALS and pretend like nothing was wrong until I was in my car!! I thank God everyday I have a village of family and friends that always check on me but blessed to have 3 classmates that turned into my sisters that always had my back and motivated me to remember what May 10th would bring and always make sure I was straight through the program! I Graduate on tomorrow which also happens to be World Lupus Day!! The stars definitely was in alignment and I know that all the storms I have weathered served a purpose! No matter what life may throw your way just remember that through every storm there is a rainbow at the end!! 💜🦋. Jeremiah 29:11 #May10 #LPNtoRN #LupusWarrior #RN #WeatheredTheStorm #InvisibleIllness #IMadeIt #RegisteredNurse #LSCO #NurseLife
Be kind to yourself. You're allowed to emotional. You're allowed to have needs. You're allowed to need space. You're allowed to crave closeness. You deserve to be happy. You deserve rest. You deserve to take up space in this world. You deserve a support system that makes you feel all of these and more. Find your people and remind them today how much you appreciate them.
DAVEEEEEEOOOOOO. I love this man! Another treasured client is up and off! Dave has improved his energy, and is down 10kg and was able to get rid of the bloat in his abdomen. Working with Anthony Smit has bought me SO MUCH happiness, and I’m so amazingly proud of you. Our sessions were ALWAYS so much fun. And despite your kicking and screaming, you always did what was required and did it well. I’m so excited to now have a new friend to ride with and laugh with! Thank you and your beautiful wife Des, for choosing me to be the one to support you to reach your goals! WELL DONE DAVE! Corinne. X #anxiety #chronicillness #chronicillnesswarrior #chronicmigraine #chronicpain #endometriosis #fibromyalgia #headache #invisibleillness #invisibleillnessawareness #migraine #migraineattack #migraineawareness #migraineawarenessmonth #migrainecommunity #migrainefree #migraineheadache #migrainelife #migrainemanagement #migrainepain #migraineproblems #migraines #migrainessuck #migrainesufferer #migrainesupport #migrainetreatment #migrainewarrior #migrainewellness #pain #ibs
Sunflowers are used to represent hidden or invisible disabilities. #sunflower #disabilityawareness #disability #hiddendisability #invisibleillness #chronicillness #chronicpain #flowers
One of the many things I do is crochet. It is really good to keep my hands nimble. That’s a major thing to keep muscle from locking up. I have been working on this for months. Obviously it’s not done yet. I still have strings to sew into the blanket to solidify it all. This will be up for sale soon. I didn’t learn to crochet until 2020 via YouTube. I was 49 when I learned. Remember, you are never too old to learn something new. #crochet #spoonie #nevertoooldtolearn #dermatomyositis #RareDisease #invisibleillness #myositis #crochetblanket
. #chronicpain #chronicillness #chronicpainwarrior #chronicpainawareness #fibromyalgia #fibromyalgiawarrior #pots #potssyndrome #chronicmigraine #chronicheadache #newdailypersistentheadache #chronicfatigue #chronicallyill #fibro #invisibleillness #invisibleillnessawareness #chronicfatiguesyndrome #spooniesupport #spoonielife #dysautonomia #spooniewarrior #chronicpainlife #chronicillnesswarrior #multiplesclerosis #longcovid #lupus #crohns
ATL it's been real. Had a great time in Atlanta attending @swaayhealth Conference and gained valuable insights into the health marketing industry. Learning about the importance of the patient experience, human interaction, and the value of in-person conferences was eye-opening. Virtual events just don't compare. Grateful for the opportunity to participate and network with others. * * * * * * * * #swaay #swaaymedia #swaayhealth #patientadvocacy #patientadvocate #patient #healthconference #health #marketing #conference #atl #atlanta #lupusawareness #speaker #invisibleillness #raredisease
#chronicpainawareness #chronicillness #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #painproccessing #invisibleillness #invisibledisease #constantsymptoms #constantpain #chronicillness #chronicillnesscommunity #spooniewarrior #spooniesupport #spooniecommunity #spoonillicious #sickpeopleproblems #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #painproccessing #nervepain #allodyniaawareness #allodynia #hyperalgesia #constantsymptoms #constantpain #chronicillness #chronicillnesscommunity #spooniewarrior #spooniesupport #spooniecommunity #spoonillicious #sickpeopleproblems #chronicpain #chronicpainawareness #chronicillness #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #painproccessing #nervepain #allodyniaawareness #allodynia #hyperalgesia #constantsymptoms #constantpain #chronicillness #chronicillnesscommunity #spooniewarrior #spooniesupport #spooniecommunity #spoonillicious #sickpeopleproblems #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #mecfslife #colonicdysmotility #idiopathichypersomnia #oslerweberrendu
honest opinions on the diabetes representation in “turning red”?? - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -posted by @trashyqueen_ made by its_daliceus -- #diabetes #t1d #type1diabetes #diabetesmemes #t1dmemes #omnipod #tandem #tslim #invisibleillness #insulinforall #t1dawareness #t1dlookslikeme #t1dwarrior #type1diabeticproblems #diabetesmeme #t1dmeme #diabeticmemes #diabetesstories #typeonediabetes #dt1 #dexcom #dexcomg6 #dexcomwarrior #tandemtslim #tandemtslimx2 #chronicillness #pumpsite #insulin #insulinpump #Repost @type1diabeticproblems
💜Lupus Awareness Month:The Battle Within💜 Lupus isn’t always visible from the outside. Many of us with lupus might look okay, but we’re often fighting intense battles within. This autoimmune disease can cause extreme fatigue, joint pain, skin rashes, and even more severe complications. It affects each person differently, and that’s part of what makes it so challenging to live with and understand. May is Lupus Awareness Month, help us spread awareness of our invisible illness. “You don’t look sick” and I’m sharing my story to help you understand what it’s like to live with this condition. Some days, it’s a struggle to get out of bed, and other days, I might be able to function almost normally. It’s a constant roller coaster, never knowing how I’ll feel from one day to the next. If you see me out and about, please know that it can take a lot of effort just to be there. While I might look okay on the outside, there’s a battle going on inside. I’m not alone—many people with lupus face the same struggle. We’re resilient, but we also need support and understanding. Here’s what you can do to help: • Be Patient and Understanding: If I need to cancel plans or take a break, it’s not because I don’t want to be there. It’s because my body needs rest. • Learn About Lupus: Understanding what we’re going through can help you be a better ally and support system. • Support Lupus Organizations: Your donations and advocacy can help fund research and provide resources for those of us living with lupus. Thank you for taking the time to read this and for being patient with me and others who battle lupus. Your support means more than you know. This is how you SEE ME but this is really what I FEEL inside. It is like a battlefield. Join us in this advocacy. Support our 2nd Lupus Fun Run for our Lupus Community and PWDs. Run for Lupus Warriors 💜💜💜 #LupusAwarenessMonth #InvisibleIllness #LupusWarrior
As someone who uses mobility aids, I’m picky about my doors. This is my favorite set up. It’s at my doctor’s office. #dynamicallydisabled 🦓 🦓 🦓 #ehlersdanlossyndrome #ehlersdanlos #ehlersdanlosgrrrls #invisibleillness #hypermobile #zebra #spoonie #chronicillness #disabled #chroniclife #chronicpain
Did you know the SA government offers an energy bill concession for people on low or fixed incomes? To apply you must: ✅ live at the property ✅ have an energy account in your name and be listed first on your energy bill ✅ hold an eligible concession card or receive an eligible Centrelink payment ✅ not be living with anyone who has an income of more than $3,000 per year, unless they either: - get an allowance from Centrelink or the Department of Veterans' Affairs (DVA) - are your spouse, domestic partner or dependent. #KYDX #KydxAus #OneBigWorld #DisabilitySupport #Inclusion #WheelchairLife #SpecialNeeds #Accessibility #InvisibleIllness #DisabilityAdvocate #AbilityNotDisability #DisabilityInclusion
Worrying non stop
It NEVER ends. Chronic Illness never ends. I've been fighting to clear the highest of hurdles - allowing God to do all the work - to get the surgery I need. He has moved mountains and made a way. Tuesday I went for my pre-op appointment, and it made everything feel real. This thyroid nodule is going to be gone soon, and I'll be breathing easy in just a few more weeks. However, the pharmacist I met with said they would have to double check with my Rheumatologist about my Xeljanz. He said it's usually 3-5 days, but he wanted to confirm and would put in a call and let me know. I told him I was hoping for the 3 days because the one time I had to pause it, I was feeling it by day 2 and by day 3 had to restart to relieve my pain. Well, today, they left me a message saying I have to be off of it for 2 WEEKS prior to surgery. 🤯😳😭 I mean...I don't even know what I'm going to do. I have jobs scheduled in those 2 weeks. Yet now...now I might be bedridden and unable to do them. I'm self-employed and the only employee. I have no backup. This will be really bad to cancel on my clients. It will put them in a big bind and make me look bad. I'm scared, but I'm trying to stay calm. I'm doing my best to trust God through all the medical anxiety that is welling up in me. I went ahead and put my own call into my Rheumatologist to see if 2 weeks is absolutely necessary or if there is any room to reduce that time. I understand the science behind being off it leading to surgery. I just fear how bad I'll get without it for so long. Praying for strength.
As if living with diabetes wasn't enough❓ Take care of mental health, mental health will take care of your entire health ✔️ ** How to control blood sugar And how to reverse it? Without medication or insulin ⏭️⏭️⏭️If You Start Today, Then Less Than 1 Month From Today You Could Be Free To Enjoy Life, Free From Worries About Heart Attacks, Strokes, Alzheimer’s Disease, And Blindness… 👉 Click the link in bio🔝🔝🔝🔝🔝 to discover NOW. . . . . #diabeteseducation #diabeteswarrior #diabetescare #type1diabetic #insulinpump #bluenovember #diabetes #type1diabetes #chronicillnessawareness #type1strong #insulindependent #type1life #type1 #diabetes2 #diabetic #t1dlookslikeme #mody #chronicillnessmemes #t1d #t1dmemes #omnipod #tandem #tslim #invisibleillness #insulinforall #insulin4all #t1dawareness #instagood #diabetestype1 #diabetesawarenessy
This is what a year of journaling almost everyday looks like. These journals are filled with emotions, intentions and actions, people and inspiration. Change. Intentional change. Journaling has definitely changed my life by asking me to be more honest and vulnerable about what I want and who I want to be, and how I want to show up, where and for whom. Building self-esteem by looking back at real, measurable progress. Feeling progress. Recognizing, acknowledging, and letting go. It hasn't been all sunshine and rainbows. It can be really hard to write down an ugly, honest truth. It can also bring an incredible amount of self-compassion and self-love, and relief. One thing I want to share, which wrote down and have written repeatedly in various forms, "I deserve kindness, respect, love, reciprocity and grace." I now use these 5 things to understand if a person or situation is right for me. If those are not apparent then I know a thing isn't in alignment with my world and that I can step back. If those things are present, well, then I don't get to hide -- time to show up. This project is by no means done. I'm grateful to you @mbodied.life for getting me started. 🙏🏼💖 #runwithms #runningwithms #running #ultrarunning #multiplesclerosis #ms #msstrong #mswarrior #autoimmunedisease #autoimmune #chronicillness #invisibleillness #womenwhorun #womenrunning
You have to show up. Just get up, get out, and show up authentically and enthusiastically. 🤘🏼Today I decided to do day of registration at the @gobeyondracing Wood You Rather? race. And I landed the🥇solo female! In this very, very rainy weather! My climbing class got canceled today and I was free... So, why not? And, of course, it was sooooo fun! Thanks @laurawestmeyer for the post-Holman aid station hug and smiles ☺️ Helped me with that final push! It was so fun to see and meet so many folks in the community today too! 💖 Love the trail running community! 💖 In this race, we got to decide our route to get to checkpoints... I decided to go UP Holman, rather than down. Because why not? Why not choose the thing that challenges me🤘🏼 plus that route meant I got to bomb down Wildwood for a good spell🏃🏻♀️🔥 Thanks, Go Beyond! And big thanks to all the volunteers who stood in the rain at the 10 checkpoints!! 🙏🏻 #runwithms #runningwithms #running #ultrarunning #multiplesclerosis #ms #msstrong #mswarrior #autoimmunedisease #autoimmune #chronicillness #invisibleillness #womenwhorun #womenrunning
Just me and the wildflowers and the mountain☺️💐🏔️ Wow... Found out my body's level of iron is quite low! The test they use says it's 8 and normal is 50-70. Whoops. I felt a bit guilty for letting this happen. My choice to eat a vegan diet plays a role, and probably also the athletics - I was vaguely aware of this issue. I felt bad for letting this happen to my body. I try to look after myself and this definitely slipped through the cracks. But, what's done is done. And hey, good news is that perhaps that bad fatigue I had last month might not be MS-related! I'm optimistic that we will get this sorted out and that getting the levels of iron up will get me even more energized! #runwithms #runningwithms #running #ultrarunning #multiplesclerosis #ms #msstrong #mswarrior #autoimmunedisease #autoimmune #chronicillness #invisibleillness #womenwhorun #womenrunning
On Wednesday at the trail race I had so much fun running soooo hard with my friends (pic 1)! I also had my butt kicked by a steep hill called Holman tho! (I've been training for that flat fast ultra and now I'm switching to vert training mode). That simple Holman hill **humbled** me. So today I went back and I did two loops going up Holman (pic 2). I try to lean into challenges and difficulty and do what's hard for me to do. If something challenges me I try to challenge it right back. If something scares me, I try to explore that fear. There's always space to improve mentally and physically. And choosing to do challenging and hard things prepares you to handle the unexpected challenges in life. (Like the challenges from MS!) #runwithms #runningwithms #running #ultrarunning #multiplesclerosis #ms #msstrong #mswarrior #autoimmunedisease #autoimmune #chronicillness #invisibleillness #womenwhorun #womenrunning
People with MS can climb mountains! Today was our climb/hike up the Palmer snow field for the Basic Climbing Education Program course that I am taking through the @mazamas1894! My team climbed ~2.5 miles up Wy'east (Mt Hood)! It was a fantastic and beautiful day to be up there with an amazing team and excellent instructors! Go Team 5! So proud of everybody! ~~~ You are capable of so much more than you think you are. You can do and become so much more than you even know. I could tell you the amazing things you will do in a couple years and if you put your mind to it now. You wouldn't believe me. But you could get there. So. Question your perceived limits. Follow your heart to what brings you joy. And if those things are on the other side of your limits, question everything. ~~~ #runwithms #runningwithms #running #ultrarunning #multiplesclerosis #ms #msstrong #mswarrior #autoimmunedisease #autoimmune #chronicillness #invisibleillness #womenwhorun #womenrunning #womenwhoclimb #mountaineering #bcep #mazamas #mountains #mountainwoman
When I finished Peterson Ridge 40 mile race today I collapsed onto the grass and started crying... I was crying because I felt joyful about this accomplishment running with MS *AND* I felt immense gratitude for all of my amazing trail running friends who ran with me while I trained for this race. You are all amazing people! When things got hard today, I thought about all of our training runs and they carried me along! 🥹 Thank you! 💖 I finished in just under 7 hours... That was a goal time I didn't share with anyone but had in my head. I thought I could do it if I pushed hard... So I pushed harder than I have before in a race.🌈 #runwithms #runningwithms #running #ultrarunning #multiplesclerosis #ms #msstrong #mswarrior #autoimmunedisease #autoimmune #chronicillness #invisibleillness #womenwhorun #womenrunning