Wednesday wins! It's that time of the week when we share stories that'll make your heart smile. š Our amazing community members are crushing their health goals, and we can't wait to show you how. Join us for a dose of inspiration as we celebrate wins in our mentorship program, helping those battling chronic conditions reclaim their lives. To your recovery, @cfshealth #CFS #ChronicFatigueSyndrome #chronicillness #longcovid #mecfs #MyalgicEncephalomyelitis #cfsrecovery #MECFSrecovery
Wahnsinn, 4 Jahre Erwerbsminderungsrente sind fast um, leider dauert die Genesung lƤnger als gedacht, somit wurde diese wieder bis 2027 verlƤngert, anfangs habe ich mich schlecht und nicht wertig gefĆ¼hlt, nicht zu arbeiten versuche es aber nun als Chance zu sehen neue Wege einzuschlagen, die meiner Genesung helfen. Physio, Lymphdrainage, Osteo und spirituelle Behandlungen. Ich denke ich bin damit auf einem guten Weg, danke @aloha_auryn, dass du mich begleitest und mir den spirituellen Weg nahe gebracht hast ā¤ļøš§š¼āāļø #endometriosis #endosisters #erwerbsminderungsrente #chronischeschmerzen #chronicillness #spiritualjourney
Another inforgraphic on tourettes syndrome its I.portant to remember that tourettes and other tic dissorders effect everyone differently they wax and Wayne and can change and be influenced by many things including our emotions and environments. #tourettessyndromeawarenessmonth #wheelchairlife #adhd #tourettesawareness #neurodiversityawareness #chronicillness #chonicpain #chronicfatigue #disabledwomen #disabledlife #ticloudandproud #disabledandproud #thisistourettes #touretteshurts #ticsdisorder #tourettesacceptance #tourettesyndromeawarenessmonth #independence #tourettesyndrome #touretteslife #neurodivergent #pheripheralneuropathy #neurodiversityspectrum #autistic #edswarrior #tourettes #neurodiversity #itsnotwhatyouthink #lightitupteal
Finally! I applied for disability and the disability examiner approved it! I'm waiting for the papers to see if I also get financial support, but this already makes life easier. #disability #disabled #spoonie #cripplepunk #chronicallyill #chronicillness #MS #multiplesclerosisawareness #multiplesclerosiswarrior #art #digitalart #oc
Understand the risk factors of hypertension and take control of your health. š©ŗšŖ Learn more from Indrani Hospital and protect yourself and your loved ones. . . . š 0164-5004040, 988-807-9279 šIndrani Hospital, Namdev Road, Bathinda . . . #Hypertension #HealthAwareness #IndraniHospital #BloodPressure #HeartHealth #HealthyLifestyle #RiskFactors #PreventiveCare #WellnessJourney #MedicalAdvice #HealthTips #StayHealthy #HeartDisease #Healthcare #ChronicIllness #PublicHealth
Day 22 EDS awarness month hobbies and passions :) I have to admit I do have a few (ADHD helps with that š ) But also means I always have something no matter how I may be feeling these include - Gaming -Tennis - snowboarding (newest) - beach days outdoor time like zoos farms, anything in nature, or around animals -chilling with the dog and my partner - crafty things - Helping others (family, friends, Volenteering) - listening to music, watching films and TV series Having such variable conditions where my symptoms often fluctuate its always good to have a variety of things I enjoy doing š #myedschallenge #wheelchairlife #adhd #edsawarenessmonth #edscommunity #chronicillness #chonicpain #chronicfatigue #disabledwomen #disabledlife #zebrawarrior #disabledandproud #eds #elhersdanlossyndrome #gastrointestinalproblems #hEDS #hearingloss #independence #edsawarness #edslife #neurodivergent #pheripheralneuropathy #edswarriorlife #autistic #edswarrior #tourettes #neurodiversity #ehlersdanlos #zebrastrongš¦
The last cupcake keeping me sane today. It's been rough since I got home on Monday. Struggling with what feels like the Grand Canyon on my butt cheek and also struggling with the guilt that Mum has to change my dressings every so often. Of course my #crohns had decided to play up and give me runny bum which means we're having to change the dressings way more than normal. I'm so tired and feel so guilty that this whole thing has happened but am simultaneously also so pissed off that the NHS are so understaffed that we can't get a nurse out to do the dressings every day. I cannot wait for this wound to be healed so we don't have to do this anymore. Oh and about the fistula that caused this? Still can't find the other end so I sense imaging in my future #chronicillness #abcess #surgeryrecovery #recovery #crohnsdisease
Fear, blame, shame, and punishment can be powerful motivators.ā ā But they also leave lasting repercussions.ā ā People often use shame as a way to make sure they never repeat an offense. If they feel badly enough about themselves for "messing up", they think it will keep them from doing it again.ā ā Unfortunately, that is not the case.ā ā Practice makes perfect. If we employ shame as a motivator, we will have to keep finding reasons to "be shamed" in order to feel like we are "in check." The pain of feeling shamed makes us hypersensitive to it, which means we will be "watching out for it" all around us. ā ā But guess what, we just find MORE of the things we focus on the most.ā ā So, do we just walk around never taking responsibility for what we do wrong?ā ā No.ā ā But we let LOVE be our motivator. We hold ourselves in such high regard, that any behavior outside of that "code of ethics" will be UNLOVING to others and therefore, ourselves.ā ā So, we LOVE OURSELVES enough to change. We forgive ourselves for not loving ourselves in the best way possible and vow to love EVEN MORE next time.ā ā Those are lessons I'm ready to learn!ā ā How about you? #heal #NLP #onlinecourse #subconciousprogramming #physicalpain #MindChange #therapy #selflove #empower #traumainformed #changeyourmindchangeyourlife #mentalhealth #Wellness #follow #chronicpain #BestLife #GrowthMindset #Mindfulness #NeuroInfluencer #chronicillness #financialproblems #relationshipproblems #stress #anxiety #livefree #griefandloss #addiction #pain #trauma #MindChangeOnlineCourse
Check out this clever piece of engineering. The lovely Dorothy designed the pattern for the Gabriella Tee, which I was very keen to try out. A new top to make, ideal for the lovely weather ahead. I never thought I would try this, but I am so pleased with the new technique, the concept and the result. I have to pay attention because it's easy to make a mistake. But this doesn't botter me. Occasionally I need brainteasers to distract this head. . #adorable_gabriellatee #adorable_gabriellakal #tee #magKNITicent #therapy #therapie #knitting #lace #chronicillness #adhd #breinbrekers #brainteaser #knittersofinstagram
This post isnāt normally stuff I like to post but since itās been over a year now Iāve been dealing with this, I wanna show to anyone else going through anything! it does get better I promise! Ur never alone, me DMs are always open to anyone struggling š This doesnāt rlly touch the surface of how bad things got ! But we still are getting better! Itās so hard to show just using pictures of how hard things got physically and mentally. I lost a lot of me in this, I felt so scared and lost at this time of my life. I was so scared I wouldnāt be able to basic things again like go food shopping, walk for longer than like 5 mins, help my mum out with house work, go out with my friends again, watch the sunset. It was so scary. Watching others get on with their life whilst you are stuck at a stand still was so incredibly hard. Felt like I let a lot of people down at times due to the fact I had to cancel plans due to flare ups (I lost a lot of frens sadly) but I also discovered who my true frens are and for that Iām so incredibly greatful š But was still hitting goals in my career that I never thought I could do :,) and was so unbelievably proud of myself for pushing myself to do things I only dreamt about once. Even tho they still donāt know whatās going on I sadly feel like Iām not getting enough support from the doctors :( been on a waiting list for over a year now to see a specialist. With my symptoms improving a lot in one hand is amazing! But now have new symptoms which is just as hard at times, itās a lot to take in! Sadly doctors just donāt care if itās not effecting there lifeās.. I had to push to get seen serval times from doctors who thought I was ājokingā or āmaking it upā It was horrible. But Iām now able to walk longer than 5 mins and help my mum and watch the sunset and go food shopping!! Even tho at times I rlly struggle they are less often now :,) and are no longer bed ridden š Plz remember to never judge someoneās life through social media coz even tho I looked okie I rlly wasnāt! Plz remember to never compare with someone on the internet š #illness #chronicillness #vertigo #chronicillnessawareness
Endometriosis pain doesnāt always look the same for each person that suffers. Endo pain can look like; Fatigue Migraines Leg pain Chest pain Gut issues Nausea Anxiety Endometriosis is a very individual experience, just because some suffer with typical signs, doesnāt mean that if you suffer with other symptoms that they arenāt real or made up. #endouk #endometriosis #endometriosisawareness #chronicillness #womenshealth #dynamicdisabilites #invisibleillness #chronicallyawesome #disabled #butyoudontlooksick #disabledpinup #commisionmyart #pinup #pinupart #disabledpinup #endometriosisistrauma
Please share this post to help create awareness for the #Millionsmissing who will stay in #lockdown when the rest of the world returns to normal after Covid 19. #MEWishes #Ajourneythroughthefog pwME #MyalgicE #chronicIllness #disabled #Coronavirus #COVID19 #ME #MEcfs #DisabilityRights #spoonie #advocacy #activism
Having a long-term condition can be lonely and isolating, join our course to connect with others going through it and know you aren't alone in your sufferingš« #LongTermCondition #ChronicCondition #ChronicIllness #LivingWithALongTermCondition #Coventry #Warickshire
Iām honored to share Stephanieās @steffany powerful journey from the @iamnotmypainpod podcast with host Melissa Adams. After a life-altering dental procedure in April 2021, Stephanie was diagnosed with Trigeminal Neuralgia, a condition that abruptly ended her singing career and significantly changed her life. Stephanieās story is one of incredible resilience and adaptation. Despite the daily challenges and pain, she has forged a new path as a successful Life and Voice Coach. Her journey emphasises the importance of acknowledging and accepting our struggles, as well as practicing self-compassion. Whether youāre dealing with similar struggles or know someone who is, Stephanieās story is a testament to the strength and perseverance of those facing chronic illness. Listen to her inspiring story by copying and pasting this link into your browser: https://podcasters.spotify.com/pod/show/notmypain/episodes/S4E14-Learning-to-Be-Okay-with-Not-Being-OkayāPart-One-e2ie9ja #TrigeminalNeuralgia #ChronicIllness #ChronicPain #MentalHealth #Awareness #Support #TrigeminalNeuralgiaAwarebess
"The doctor's words, "you have lupus," hung in the air like a storm cloud. I had only heard of lupus in passing. But, my mind raced, filled with images of pale faces, constant fatigue, and a life forever confined to the shadows. But amidst the initial panic, I realized I wouldn't let lupus define me, and that meant confronting the myths that shrouded it." Tap the link in bio to dispel common lupus myths.
š¦ Be kind to yourself, fellow chronically ill folks. You deserve it ! #kuromi #funnymeme #cutememe #kuromimeme #chronicillness #chronicpain #autoimmune #Hashimotos #hypothyroidism #thyroid #chronicallyill #takecare #bekindtoyourself #alwaystired
friendly reminder: itās okay to slow down š«¶š¾ today, my doctor had to remind me that most people arenāt walking around in constant pain & itās okay for me to SLOW DOWN š who wouldāve thought it was possible to literally normalise your illness flaring & accidentally ignore your body telling you to chill out?
Repost from @allystar717 ā¢ Posted @withregram ā¢ hope4pwme Like Author Sarah Myhill says in her book, āDiagnosis and Treatment of Chronic Fatigue Syndrome and Myalgic Encephalitis: Itās Mitochondria, Not Hypochondriaā Imagine if you had a severe break to your right leg. You go to the emergency room and they accuse you of drug seeking, have you evaluated for suicidal intent, and then recommend Cognitive Behavioral Therapy and Exercise. They do not set or cast your leg. They give you no medication to treat the pain or inflammation. They offer no antibiotics to ward off infection. Unfortunately, that is how so many of us with chronic illness are treated. Especially those of us with ME/CFS. The majority of chronic illness is invisible. As in, there are no obvious outward signs the individual is suffering from chronic illness. Itās past time to consider how we are treating patients with invisible illness and change the level of care. ID: If I could tell you 1 thing. NO! ME/CFS is not a mental health disorder nor is it a functional disorder. YES! ME/CFS is a multi-system disease that causes dysfunction of the neurological, immune, endocrine, energy and metabolism systems. #invisibleillness #invisibleDisease #invisiblegirl #mecfs #myalgicE #cfs #chronicfatiguesyndrome #longcovid #postcovidsyndrome #believeInME #spoonielife #ChronicFatigue #ChronicIllness #MECFSAwareness #millionsmissing
EPISODE 255 PODCAST LINK: https://www.wattsinvolved.com/255 YOUTUBE LINK: https://youtu.be/o6thhqlrP5w #AutoimmuneAwareness #ChronicIllness #MyastheniaGravis #HealthJourney #WellnessJourney #HealthcarePodcast #RecoveryRoad #AutoimmuneWarrior #ChronicPain #AutoimmuneLife #FightMG #CIDP #DavidWatts #WattsInvolved
1. Stay Hydrated: Water is crucial for recovery. Aim to drink plenty. 2. Eliminate Inflammatory Foods: Consider an anti-inflammatory diet to reduce inflammation in your body. This may involve eliminating processed foods, sugars, dairy, eggs, legumes, nuts, seeds and grains. Also cut off nightshade vegetables (potatoes, tomatoes, eggplants, peppers). 3. Boost Your Vitamin D: Vitamin D calms autoimmunity. Get sunshine (20-60 minutes daily), eat fatty fish (salmon, mackerel, tuna & sardines) and consider a supplement. 4. Glutathione High Doses: This āmaster antioxidantā helps fight inflammation. 5. Turmeric or Resveratrol: Curcumin, found in turmeric, is a powerful anti-inflammatory. If you canāt tolerate turmeric, try resveratrol, another natural anti-inflammatory compound. 6. Infrared Sauna: Infrared saunas help eliminate toxins, improve circulation, and reduce inflammation and pain. 7. Stress management: Stress can be a trigger for flare-ups, so finding healthy ways to manage stress is crucial. Spending time in nature can be beneficial. 8. Rest and relaxation: This might seem obvious, but during a flare-up, your body needs all its energy to heal. Prioritize sleep and listen to your bodyās cues. Take breaks throughout the day and delegate tasks and errands. References: Moling, O. & Gandini L.(2019). Sugar and the mosaic of autoimmunity. Am j case rep. 15;20:1364-1368. Murdaca, G., Tonacci, A., Negrini, S., Greco, M., Borro, M., Puppo, F. & Gangemi, S.(2019). Emerging role of vitamin D in autoimmune diseases: An update on evidence and therapeutic implications. Autoimmun rev. 18(9):102350. Rosen, Y., Daich, J., Soliman, I., Brathwaite, E. & Shoenfeld, Y(2016). Vitamin D and autoimmunity. Scand j rheumatol; 45(6):439-447. #chronicillness #autoimmunedisease #health #healthylifestyle #healthiswealth #healthnuggetsbyzina #publichealth #preventivemedicine #lifestylemedicine #functionalmedicine #invisibleillness #motivation
I felt like I was an actual pompourin today. The dress was thrifted by my friend itās from the 70s she gave it to me when I was breastfeeding my youngest so that was 8 years ago. Ha. The tights are from snagtights and I love the flowers that cover it. Unfortunately with it being so cold here in Oregon Iām still layering everything. #pompompurin @snagtights #sanrio #sanriocore #chronicillness #chronicallyfabulous #chronicandiconic #mypancreassucks
I remember the times, where all I needed when I left the house was my phone, credit card, ID, keys and a bit cash. I didn't like big handbags - or wearing handbags at all. I love backpacking, to travel just with handluggage, was proud to say how adaptable I am and how easy to please. Now I need forever to get out of bed and get ready. I never know with clothes are that day ok on my skin, if I'm not randomly sweating or freezing; so I might have to change several times. I need to know in advance how illuminated, loud and crowded the place will be, if they serve food (if yes what kind of), where the next toilets are, if I can leave from there alone... What are the essentiels in your bag? . . . . . . . #ChronicPainWarrior #chronicallyawesome #chronicillness #pain #chronic #chronicpain #chronicpainsucks #chronischesschmerzen #chronicallysick #chronicpaintravel #tmj #chronicfatigue #ChronicPainLife #chronischesschmerzen #Schmerzen #schmerz #spooniewarrior #SpoonieLife #jointpain #joint #backpain #headaches #migraine #jaw #athritis #nervepain #fibromyalgiawarrior #mcas #JawSurgery
*not sponsored #pacing #mecfs #chronicillnessawareness #fatigue #chronicillness #healthawareness #longcovid
āØšøš . . . . . . . . #photographey #photographer #photooftheday #love #photo #instagood #photography #happy #instagram #instadaily #nikon #wellness #purpose #causes #inspireothers #nonprofit #nature #healthhearts #chronicillness #inspire #helpinghands #portrait #invisibleillness #picoftheday #india #naturephotography #photographylovers #smile #fashion #art
Aus der Rubrik: āUnnƶtige & nicht hilfreiche Kommentareā Nein Hans-Dietrich, nur weil du mich paar mal mit dem Taxi in die Therapie gefahren hast, bedeutet das nicht, dass du auch nur die geringste Ahnung hast, wie es mir geht. Bei solchen Aussagen werde ich mittlerweile echt wĆ¼tend. Mir ist klar, dass viel Unsicherheit herrscht und ja, was willst nem jungen MƤdel auch sagen, die ein Schatten ihrer Selbst ist. Aber ich empfinde diese Aussage inzwischen einfach nur noch als Ć¼bergriffig. Das sind leere WorthĆ¼lsen, die mir nur noch mehr ein schlechtes Gewissen geben, dass es āimmer noch nicht besser istā und es ist einfach ein Fak, dass uns niemand sagen kann, ob es je wieder besser werden wird. Solche Aussagen sind einfach absolut NICHT hilfereich. Hier nur ein paar Beispiele, die zumindest bisschen besser sind š£ļø āļø Ich wĆ¼nsche dir viel Kraft. āļø Das klingt wirklich alles sehr doof. āļø Alles Gute weiterhin. #longcovid #chronicillness #mecfs #covid #longcovidrecovery #spoonie #chronicpain #pots #chronicfatigue #chronicfatiguesyndrome #potssyndrome #fibromyalgia #postcovid #invisibleillness #longcovidawareness #dysautonomia #millionsmissing #spoonielife #brainfog #longcovidsymptoms #cfs #chronicillnesswarrior #me #fatigue #longhaulers
Well the weather's horrible. The only thing to do is to sit on the sofa with a very cuddly chap. He's laid as close to me as he possibly can. Much needed on both sides ā¤ļøš¾ Also showing my age with #anklesocks š¤ #invisibleillness #girlsgotguts #girlsbestfriend #jackrussellsofinstagram #chronicillness #fatigue
CLIENT LOVEā ā Here at @thepaediatricnaturopath, we work as a team. Each practitioner has unique skills and there may be times on your child's health journey where they benefit from seeing different practitioners on the team. That was the case with this client, where they have seen both Summer and Lisa on their health journey.ā ā Another great example is when a child with epilepsy might have an appointment with Sonya to discuss dietary strategies to reduce seizures. Many children will struggle with making big dietary changes. Thats when Sonya would collaborate with one of the team's feeding therapists. So we don't just prescribe diets but we literally hold your hand as you make the transition.ā ā DM for more info.ā ā ā #modifiedatkins #ketogenicdiet #paediatricnaturopath #paediatricnutritionist #epilepsy #epilepsyawareness #epilepsywarrior #seizures #epilepsyfighter #epilepsysucks #autism #cerebralpalsy #epilepsysupport #epilepsystrong #epilepsyadvocate #chronicillness #epileptic #seizure #endepilepsy #seizuressuck #invisibleillness #epilepsylife #mentalhealth #repost #cureepilepsy #anxiety #disability #seizureawareness #seizuredisorder #disabilityawareness
Du bist wirklich krank, auch wennā¦ āØ Die einzige Person vor der du dich rechtfertigen musst bist du selber und deine Ćrzte. Alle anderen Menschen egal ob auf Social Media oder im echten Leben sollten nur eine Reaktion darauf haben wenn sie erfahren dass du krank bist: Sie sollten dir glauben. Bedingungslos. Denn du bist die einzige Person die weiĆ wie es wirklich in dir aussieht, die fĆ¼hlt wie es dir wirklich geht. Und wenn du sagst und denkst dass du schwer krank bist dann bist du schwer krank und ich glaube dir, egal wie du aussiehst oder was du noch leisten kannst. Denn jede Krankheit ist anders und jeder fĆ¼hlt sich anders beim krank sein. Momente, in denen der Eine schon nicht mehr das Haus verlassen wĆ¼rde vor Schmerzen und sagen wĆ¼rde ihm geht es so schlecht wie nie sind vielleicht Momente in den ein anderer noch zu IKEA fahren wĆ¼rden und sagen wĆ¼rden er hƤtte heute einen guten Tag. Und das ist auch okay, denn Empfindung von Schmerz und EinschƤtzung von ZustƤnden ist im Ende etwas subjektives und sollte nicht miteinander verglichen werden. š«¶š» #pots #spoonie #potssyndromeawareness #potssymptoms #chronischkrank #potsie #potswarrior #potsiesproblems #potssyndrome #potsawareness #posturalorthostatictachycardiasyndrome #chronicillness #illness #trachykardie #herzerkrankung #dysautonomia #dysautonomie #medicalgaslighting #medizinischesgaslighting #medicalgaslightingawareness #medicalgaslightingneedstostop #dusiehstgarnichtkrankaus #dysautonomiaawarenessmonth #fatigue #mecfs #mecfsawareness #erschƶpft
Tag someone who needs to see this.š„° - šø Via š·: Unknown, tag to credit! ā¢ (Dm for credit or removal / All rightsĀ® are reserved & belong to their respective owners) ā¢ šCheck out our store in the bioš ā¢ ā¢ ā¢ ā¢ #patientadvocate #invisibledisease #patientadvocacy #notalldisabilitiesarevisible #chronicpainwarrior #invisibleillnesswarrior #jointhealth #disability #disabilityblogger #psoriaticarthritis #arthritisawareness #chronicillness #jointpainrelief #rheumaesgibtkeinzujung #arthritispain
Stay hydrated,Mates! #stayhydrated #stayhydratedmyfriends #illustration #scleroderma #dailylifewithscleroderma #chronicillness #chronicpain #invisibleillness #autoimmunedisease
Irs a fine line living with chronic illness š¤ A fine line, none of us would choose X Having chronic illnesses was never a plan or a choice for any of us. It happened, and we stepped up and dealt with the fallout daily. That's why we are Warriors. X #cfs #chronicpain #warriorsofchronicillness #fibrofighter #fibrowarrior #chronicillness #hashimotosdisease #siccasyndrome #tinnitus #ibs #burningmouthsyndrome
Discover the Healing Power of PRP at Divya Nursing Home! š š¦µ PRP for Knee Osteoarthritis šāāļø PRP for Knee Ligament Tears Experience advanced care and rejuvenation for your joints. For Any Queries Or Consultations:- šCall Us: +91 905-0477-025 šWebsite: www.divyanursinghome.in šAddress: SB-18, SHASTRI NAGAR, GHAZIABAD -201002. #osteoarthritis #arthritis #kneepain #chronicpain #osteoporosis #jointpain #rheumatoidarthritis #backpain #fibromyalgia #pain #chronicillness #physiotherapy #painrelief #neckpain #shoulderpain #diabetes #arthritisrelief #anxiety #physicaltherapy #painmanagement #knee #lupus #arthritiswarrior #wellness
First symptoms were at age 16. Was diagnosed at 27. . . . . . #endometriosis #endometriosisawareness #endometriosis #endometriosisflare #flare #chronicillness #endowarrior #disability #adenomyosis #adeno #endobelly #endolaparascopy #endometriosissymptoms #endowarriorstrong #endowarrior #endosisters #endobattle #myendojourney #womensupportingwomen #endoflareup #endometriosischeck #endometriosiswarrior #endometriosisawarenessmonth #endometriosispain #endometriosisisnotjustperiodpain #endosisters #endosisterhood #endocommunity #endofacts #endometriosisfacts #thatendolife
So far so good (and so cute too!). And how cute are the lil guys in the second pic? They will look adorable as keychains! (Gorgeous pattern by @colorfully.sarah , with the cutest patterns at the most affordable prices! If you buy a few you can get up to 40% off! Treat yo self!) #crossstitch #crossstitching #crossstitchersofinstagram #crossstitcher #crossstitchaddict #crossstitchlove #craftersgonnacraft #cosyvibes #kirby #kirbykirbykirby #kirbyfanart #videogames #fowlerssyndrome #ostomate #ostomyblogger #ostomylife #ostomyawareness #ostomy #urostomy #stoma #stomabag #stomalife #invisibleillness #invisibledisability #invisibleillnessawareness #chronicillness #chronicpain #chronicpainwarrior #chronicpainawareness
Hallo meine Lieben, Ich mƶchte heute ein Thema ansprechen, das mir am ā„ļø liegt. Bei uns hat sich unser Leben nun vor ca 2 Jahren radikal verƤndert. Anstatt das es langsam besser wurde wird es leider stƤttig und Gott sei dank langsam schlechter. FĆ¼r meine Familie heisst das viel Stress und Herausforderung( Emotional und auch Organisatorisch). Meine Familie heisst vor allem mein wundervoller Mannšš„°šder jeden Tag in seinem Job šÆ gibt und anschliessend noch fĆ¼r mich šÆ da ist š„°š„°. Ausserdem ist da noch mein 20 jƤhriger Sohn, der zur Zeit einSabatjahr macht und auch fĆ¼r mich viele Organisatorische Aufgaben erledigt š. Sie sind oft Ć¼berfordert und mein , verstƤndlicherweise genervt. Ich danke Euch fĆ¼r Eure Hilfe, Liebe,Geduld und UnterstĆ¼tzung. ššššššššššš NƤchste Woche beginnt nun die neue B-Zell Therapie, in die wir alle grosse Hoffnung setzen. Ich hoffe, das es Besserung bewirkt. Aber auch sonst weiss ich, das ich mit euch und meinen Freunden das Beste Team an meiner Seite habe ššš #danke #family #ehemann #sohn #liebe #energy #energiapositiva #energiequelle #kraft #hilfe #chronicillness #chronicpain #sjorge #sjƶrgensyndrome #sjƶrgen #psoriasis #psoriasisarthritis #vaskulitis #neuropathy #fighter
With under a week until I take part in the MS Walk, Run and Roll I am reaching out to my community for support in helping raise awareness and funds for the 33000 + people living with Multiple Sclerosis in Australia. To donate please follow the link: https://www.mswalk.org.au/fundraisers/hannahspradley/sydney (link in bio) As always, donations of $2 or more are tax deductible #multiplesclerosis #multiplesclerosisawareness #multiplesclerosiswarrior #multiplesclerosisfighter #msplus #mswalkrunroll #ms #msheart #mssisterhood #chronicillness #chronicillnessawareness #newcastlensw
Kilka sÅĆ³w do mÅodszej mnie o przyszÅoÅci. #chronicillness #cmtsord #charcotmarietooth #support #chronicillnessawareness
Let's Pedal for Life & Save Lives! ā¤ļø Join us for the biggest cyclothon of the year - **PEDAL FOR HUMANITY - ORGAN DONATION AWARENESS RIDE**! **ļø Sunday, June 2nd, 2024** **Here's the Schedule:** * āāļø Reporting: 5:00 AM * T-shirt Distribution: 5:30 AM * Ride Start: 6:00 AM * Certificate Distribution: 7:00 AM * Delicious Refreshments: 7:00 AM ** Plus, a Big Lucky Draw for Cycles at 7:30 AM!** **Important Notes:** * Registration, reporting, and participating in the ride are **mandatory** to be eligible for the lucky draw. * Bring a valid ID proof. Winners will be verified based on their registered name and ID. **Let's pedal for a healthier community and raise awareness about organ donation!** Share this post and spread the word! #organdonation #donatelife #organdonationawareness #kidneytransplant #kidneydisease #organdonationsaveslives #transplant #organdonor #giftoflife #dialysis #kidneyfailure #kidney #organtransplant #kidneydonor #lungtransplant #hearttransplant #health #kidneystones #kidneyhealth #ckd #livertransplant #savelives #organdonors #love #savealife #transplantsurvivor #organdonorssavelives #kidneys #donation #chronicillness
May is Ehlers Danlos Syndrome Awareness monthā¦. This diagnosis is often misunderstood, as it presents so differently between people. #ehlersdanlossyndrome #awareness #may #chronicillness #chronicpain #livingwithdisabilities #disability
šØš»āāļøš©š½āāļøš„ #ibd #ced #morbuscrohn #crohnsdisease #ulcerativecolitis #colitisulcerosa #chronicillness #chronischkrank #chronicpain #memes #meme #stoma #ileostomy
Sometimes you just gotta cancel your plans, put pjs on after school and watch movies. A failed Dexcom and 2 failed/knocked out pumps today. Blood sugar has been everywhere from 2 to 20. Couple of rushes to school before a teary boy fell into my arms at pick up. Canceled swimming and drum lessons, ate some cheerios and now watching a movie with lots of cuddles. Smiles hide his tears and my sadness. Itās been a day š«¶ Back on the hamster wheel tomorrow xx
Step into each day with unwavering strength in this empowering women's hoodie that echoes the powerful message, "Don't Cry. https://www.latostadora.com/web/dont_cry/16597176?shop_trk #awareness #chronicillness #life #naturelover #fibromyalgia #handdrawn #cuteanimals #chronicpain #artist #design #illustration #sticker #funny #cute #FcukFibromyalgia
Lupus Awareness Month Ironic as it can get! My birthday š comes in May which is also the Lupus Awareness Month! Yes, birthday each year reminds me that I fought lupus like a warrior to celebrate one more birthday... I have always loved my birthday! Maybe because it means i have overpowered lupus to reach here Well, the heat hampers and I feel fatigued as it's summer šā±ļø scroaching heat.. but can't complain . Enjoyment is different for all.. For me it's all about relaxing and rejuvenate with loved ones and enjoy my coffee ā Lupus wa warriors will definitely understand what I mean when I say, "Happy to conquer the invisible enemy inside me! For one more year" Been way too sick since last one week but happy to reach this far in life and I couldn't miss the opportunity to convey this thought... #birthdaygirl #newpost #lupusawerenessmonth #lupusawareness #lupus #lupuswarrior #celiacwarrior #gastroparesiswarrior #autoimmunewarrior #autoimmunedisease #chronicillness
2022 sagte ich noch. āIch will dieses Virus nicht bekommen. Ich habe schon genug Mist mit dem ich mich rumschlage.ā Bis 2023 ging alles gut. Dann 2 Infektionen innerhalb von 6 Monaten einige Symptome gingen, andere blieben. Ende Dezember 2023 ging es mir zunehmend schlechter, Muskelschmerzen, starke Gelenkschmerzen besonders in den HƤnden und eine bleierne MĆ¼digkeit. Ich dachte noch, dass ich bloss etwas viel gearbeitet hatte und etwas Ruhe schon helfen werde. Mit dem Jahreswechsel kam der 1. Arztbesuch und die ArbeitsunfƤhigkeit, vielleicht ja was rheumatisches. Diagnostik negativ. Statt besser ging es mir schlechter. MuskelschwƤche: meine Muskulatur erschƶpft unter Anstrengung sehr schnell, ich habe Schwierigkeiten mich den ganzen Tag aufrecht zu halten und muss ab dem frĆ¼hen Abend liegen, Treppen werden zur Qual, SpaziergƤnge zum Marathon. Schmerzen ein stƤndiger Begleiter. Gefangen im Kƶrper einer alten Frau. Fatigue, subfebrile Temperaturen, hohe Herzfrequenzen, SensibilitƤtsstƶrungen, Doppelbilder bei Erschƶpfung, Schlafstƶrungen. Bei Ćberlastung, wobei die Baseline schwankend ist, verstƤrken sich die vorhandenen Symptome weiter. Seit Mai heiĆt das Mistding nun nach langer differential Diagnostik offiziell Post Covid. Heute sind es 140 Tage in der AU, 140 Tage nicht so kƶnnen wie ich gerne mƶchte. Viele dieser Tage bestehen nur aus existieren und warten auf Besserung, weil eben nicht viel mehr geht. #postcovid #longcovid #longcovidrecovery #chronicillness #chronicfatigue
The Sick Times: Ten new books about Long Covid, chronic illness, and disability šGreat selection from @thesicktimes Thank you š Check out their website and this list of books š in bio #longcovid #chronicillness #me #disability #books #reading #thesicktimes
Dialysis technician #dialysis #kidneydisease #kidneytransplant #kidneyfailure #kidney #kidneyhealth #ckd #health #kidneystones #donatelife #organdonation #kidneys #nephrology #transplant #kidneywarrior #diabetes #chronickidneydisease #kidneydonor #kidneystrong #dialysislife #giftoflife #medical #kidneycancer #kidneydiseaseawareness #chronicillness #kidneyawareness #hemodialysis #dialysispatient #hospital #renal
Goed voorbereid naar de neuroloog, heb maar 10 minuten de tijd. Na terugkomst vakantie overvallen door neuropathische pijnen in voeten/tenen en af en toe handen/vingers. Erg benieuwd of dit te behandelen is en vooral hoe? #endometriose #endowarrior #endometrioseeeu #endolife #endostrong #chronischepijn #chronischziek #chronicpain #chronicillness #chronicpainawareness #chronicillnessawareness #chronicpainwarrior #pijn
Speech and language therapists (SaLT) can help people with multiple sclerosis with communication or swallowing problems. The most common form of speech problem experienced by people with MS is slurring or slowing of speech. People with MS may also develop swallowing problems that can lead to drooling, coughing or choking whilst eating or drinking Head to the link in our bio to learn more about how speech and language therapists support people with MS. #MS #MultipleSclerosis #MSAwareness #MultipleSclerosisAwareness #InvisibleIllness #ChronicIllness #Health #AutoImmune #AutoImmuneCondition #MSTrust #ThisIsMS #MSAndMe #MyMS #MSCommunity
#chronicillness #chronicpain #invisibleillness #spoonie #fibromyalgia #autoimmunedisease #spoonielife #chronicfatigue #chronicillnesswarrior #mentalhealth #anxiety #butyoudontlooksick #endometriosis #chronicpainwarrior #health #chronicallyill #disability #chronicillnessawareness #pain #pots #ehlersdanlossyndrome #eds #depression #dysautonomia #diabetes #lupus #autoimmune #t #gastroparesis #chronicfatiguesyndrome
#disabilityawareness #disabled #migraine #ibs #invisibledisability #spoonies #fatigue #potssyndrome #spooniesupport #chronicillness #chronicpain #invisibleillness #spoonie #fibromyalgia #spoonielife #chronicfatigue #mentalhealth #anxiety #butyoudontlooksick #disability #chronicillnessawareness #pain #pots #ehlersdanlossyndrome #eds #depression #dysautonomia
As per my period tracker Iām one day away from starting my period, and Iām having all of the above symptoms. Pre period symptoms are not fun, itās exhausting and then you have the dread of your actual period starting. I dread the pain more than the bleeding. I am praying that this one does arrive on time and that itās manageable and not like last month. . . . #adenomyosis #adenomyosisawareness #adenomyosiswarrior #chronicillness #chronicpain #pelvicpain #periods #womenshealth #endometriosis #endometriosisawareness #pcosawareness #adenomyosisadvocate #pcos #painmanagement #myjourney #workplace #painrelief #perimenopausehealth #fatigue #advocate #perimenopausesupport #adenomyosisadvocate #endometriosisadvocate #perimenopausesucks #1in10 #mentalhealth
Mold can cause leaky gut, š§ļø Then enter our blood. š Once in our blood, Spores can scavenge iron. š§² So, anemia is common in mold illness. š And mold is a vampire. š¦ #mold #mycotoxins #iron #anemia #vampire #infection #fatigue #gut #leakygut #digestion #chronicillness #environment #naturopathy #functionalmedicine #holistic #autoimmune
Hello..š Some days are great days, Iāve had a few of those recently, until ive been in a flare, some are just good days where I just get on with day to day things and some days are not so good days! Today is a not so good days, On these days I need to remember to remind myself how far Iāve come. I need to remember to tell myself itās ok to cry and itās ok to feel sad, I need to remind myself that Iāve managed harder days and that this will pass! Tomorrow is a new day, a new start. Tomorrow Iāll smile and laugh as I do and this day will be forgotten! To anyone who needs a hug, hereās one from me ! Xx š« #ms #progressive #disease #msfamily #inittogether #itsabaddaynotabadlife #MultipleSclerosis #multiplesclerosisawareness #multiplesclerosiswarrior #msflare #mssteriods #mswarrior #chronicillness #chronicpain #autoimmunedisease #autoimmunewarrior #msfatigue #mymsmovement #mymsjourney #msadvocate #mymsblog
#chronicillness #chronicpain #invisibleillness #spoonie #fibromyalgia #autoimmunedisease #spoonielife #chronicfatigue #chronicillnesswarrior #mentalhealth #anxiety #butyoudontlooksick #endometriosis #chronicpainwarrior #health #chronicallyill #disability #chronicillnessawareness #pain #pots #ehlersdanlossyndrome #eds #depression #dysautonomia #diabetes #lupus #autoimmune #t #gastroparesis #chronicfatiguesyndrome
#chronicillness #chronicpain #invisibleillness #spoonie #fibromyalgia #autoimmunedisease #spoonielife #chronicfatigue #chronicillnesswarrior #mentalhealth #anxiety #butyoudontlooksick #endometriosis #chronicpainwarrior #health #chronicallyill #disability #chronicillnessawareness #pain #pots #ehlersdanlossyndrome #eds #depression #dysautonomia #diabetes #lupus #autoimmune #t #gastroparesis #chronicfatiguesyndrome
We'd like to congratulate Charmaine Payne, who completed the Hackney Half Marathon over the weekend. Charmaine felt passionate about representing SRUK in the Hackney Half after recently discovering that her beloved son has Raynaud's. She said: "I was the only runner for SRUK, but I'm absolutely honoured. My son is sooo proud of me, and I'm proud of myself! It was hard finding out my son had Raynaud's, he's still waiting get a diagnosis for scleroderma, he's still young and I can only hope it's doesn't affect him too much in future, either way I'll always have his back! Prior to this we've never heard of scleroderma before! So, I hope more is done to bring attention as for some it is tough to live with! The run was tough but I'm tougher.'' . . . . . . #raynauds #autoimmune #autoimmunecommunity #autoimmunedisease #autoimmuneillness #chronicdisease #chroniccondition #chronicillness #rareillness #rarecondition #charity #awareness #raiseawareness #raynaudsreality #knowraynauds #raynaudsawareness #BSSA #raynaudssyndrome #fundraising #HackneyHalfMarathon
#chronicillness #chronicpain #invisibleillness #spoonie #fibromyalgia #autoimmunedisease #spoonielife #chronicfatigue #chronicillnesswarrior #mentalhealth #anxiety #butyoudontlooksick #endometriosis #chronicpainwarrior #health #chronicallyill #disability #chronicillnessawareness #pain #pots #ehlersdanlossyndrome #eds #depression #dysautonomia #diabetes #lupus #autoimmune #t #gastroparesis #chronicfatiguesyndrome
"But you don't look sick" - - - Credit @the__endo__space - #ChronicIllness #ChronicPain #ChronicIllnessWarrior #ChronicPainWarrior #InvisibleIllness #Spoonie #SpoonieWarrior #SpoonieLife #ButYouDontLookSick #Endometriosis #EndoWarrior #EndometriosisAwareness #POTS #Gastroparesis #PCOSAwareness #PCOSStrong #PCOSAwareness #Migraine #PsoriaticArthritisWarrior #PsoriaticArthritis #ArthritisSucks #LoveYourself #BreakTheStigma #MentalHealth #Advocate #Accessibility #AmbulatoryWheelchairUser
Sometimes I really worry what's in store for me in my 30s,40s,50s... I have three chronic illnesses and sometimes I'm really scared. I just wanted to share that with you. I'm positive most of the time but the truth is I'm scared too sometimes. What if my MS progresses? It's going to get worse for sure. What if I experience psychosis again with BPD? What if I tempt my own life again? What if I start self harming again? What if my depression doesn't respond to medications anymore? There are so many unknown questions... #multplesclerosis #multiplesclerosisawareness #chronicillness #chronicillnessawareness #disabilities #disabilityawareness #disability #disabled #autoimmunedisease #spoonie #spoon #depression #depressionhelp #borderlinepersonalitydisorder
Be kind to others š«¶š» chronic illnesses are no joke #chronicillness #chronicmigraineawareness #bekind #onedayatatime
I really wish our Flemish Government, and the Federal Govdernment per extension, were able to show more understanding, or better, were able to be more willing to show understanding... The one-sided view on chronical illness that rules the current political climate, namely that all chronically ill are unwilling to work and rather sit at home and even get paid for that, has been uncomfortable for decades now, to say the least. The more politically rightwinged the governments got, the more that take on the daily affairs of chronically ill folks hardened, so much that nowadays most healthy folks consider us all abusers of the system. I cannot emphasize enough how the system has failed me and is still failing me. Numerous tilmes I have tried to get back to my former job, until in the end, wiothout notice, I got fired. On my birthday. I was a psychologist in Special Youth Care, and I worked for the government, after 3 years of desperately trying to find a job that I had spent 7 years in Uni for. I had te re-invent myself, became a writer and an artist, until the Law on Permitted Work During Illness got changed by a Blue Rightwinged politician. So much has been theorized on re-integration of chonically ill and/or disabled people, but the reality is much sadder and lonelier. This year marks the 18th year of me being left to my own devices, at home, without any follow-up because no one with a medical degree either is able or willing to help me deal with my daily struggles. When someone sees me, they are amazed at me smiling the whole time, me showing happiness and talk sociably. I feel guilty every time I go hiking in the woods, because I am "supposed to be in agony at home". They do not see the agony I am in when walking, nor that walking is essential for my keeping as healthy as I can (just to clarify). I am grateful to the Christian Mutuality ( #cm #christelijkemutualiteit) for putting this awareness up again, and for the interview on @radio1.be this morning, while no political party seems to consider it even worthwhile to address it. #vlaamsegezondheidszorg #vlaamseregering #solidaris #socialistischemutualiteit #fibromyalgia #chronicillness #socialoutcast
I sidste uge var jeg pĆ„ Kommunikationscentret i Ballerup for at blive udredt ift. blandt andet min samsynsproblematik efter hjernerystelserne. Jeg blev undersĆøgt meget grundigt af en neurooptometrist og bedt om at bestille tid ved en ĆøjenlƦge grundet mistanke om en skjult langsynethedš©š¼āāļø Jeg var umanerlig heldig og fik en ĆøjenlƦgetid allerede dagen efter, hvor det viste sig, at der ikke er en finger at sƦtte pĆ„ mit synš Mine Ćøjne er ādesvƦrreā for gode til, at det vil give mening med samsynstrƦning mm. Hvilket jo i og for sig er en god ting, jeg havde nok bare hĆ„bet, at der var et eller andet, de kunne gĆøre hovedpine-wise. Men nu er den dĆør Ć„bnet (og lukket igen), og jeg kan sĆøge i en anden retning behandlingsmƦssigt, nĆ„r/hvis jeg har mod pĆ„ detšš¼
Wondering what the Relaxation and visualisation is about? Have a look at this month's group topic below. To see our meeting locations and to sign up click the link in our bio. You can also contact the office by emailing [email protected] #Wonderwednesday #Selfmanagement #Chronicpain #Relaxation #Visualisation #Chronicillness #ChronicFatigue #endometriosis #fibromyalgia
And you have to weigh the risks of taking that chance... - - - Credit @fibrostrong - #ChronicIllness #ChronicPain #ChronicIllnessWarrior #ChronicPainWarrior #InvisibleIllness #Spoonie #SpoonieWarrior #SpoonieLife #ButYouDontLookSick #Endometriosis #EndoWarrior #EndometriosisAwareness #POTS #Gastroparesis #PCOSAwareness #PCOSStrong #PCOSAwareness #Migraine #PsoriaticArthritisWarrior #PsoriaticArthritis #ArthritisSucks #LoveYourself #BreakTheStigma #MentalHealth #Advocate #Accessibility #AmbulatoryWheelchairUser
Iām thrilled to introduce the Migraine Tracker I created based on my own personal tracker! Plus, I had to make it look pretty ! Designed to provide a more in-depth look at tracking through migraine phases, this tracker is perfect for anyone seeking better migraine management & tracking! āØ Whatās Inside: ā¢ 3 Beautiful Themes (Purple Pastel, Chic Tangerine, Cool Grey) ā¢ 15 Pages of Migraine Tracker Logs (5 pages per theme) ā¢ 11 Additional Pages for Migraine Phase Tracking Whether youāre dealing with hemiplegic migraines or other types, this tracker is designed with you in mind. Available now as a digital download! File as PDF -> edit in your favorite notes editing app OR print (cool grey theme optimized for printing ) šin bio - Etsy Migraine Store #migraine #migrainemanagement #migraine-tracker #hemiplegicmigraine #migrainesymptoms #epilepsy #digitaltracker #chronicillness #migrainerelief #migrainephases #hemiplegicmigraineawareness #chronicmigraine
Oh yes! #MKMS #MS #MultipleSclerosis #chronicillness #mssociety ID: You ever wake up in the morning ā¦. Look in the mirror and say āthat canāt be right!ā
The mostly invisible struggles of Endometriosis šļø Just because I might not ālookā sick, doesnāt mean my pain isnāt real or there. Endo warriors suffer in silence, masking our symptoms and emotions because people donāt take our pain seriously enough or the years of medical trauma most of us experience due to this disease š©·