šøš»Guess what time it is? š¤ Time for a new #clinicaltrial! Donating my time & energy to advance medical research in this #TMS #medicalstudy š - This medical treatment, #transcranialmagneticstimuation is available at MGH Boston for #TreatmentResistantDepression - BUT, it may also improve: #Migraine #Insomnia #PTSD I live with #ChronicMigraine and #TMStherapy helped a lot! - I volunteer for #medicalstudies & many #clinicaltrials every yearā¦ Iām in oneā¦ Or 6 right now. š Be the change you wish to see!
I'm literally crying right now. Like a good kind. I had an awful medical test today, and am writhing in a ball of miserable pain & discomfort right now, but it was actually an incredibly game changing result! Through the gastric emptying study I was found to have moderate gastroparesis! Diagnoses are such a bittersweet thing, but ultimately you can't defeat a beast if you don't know what it is, and now I have an answer! š I was diagnosed with GERD at 16 after years of issues, if not since day 1, & in my most recent GI appt my new doc said what diagnosed me back then wouldn't diagnose me with it today. He threw this gastroparesis thing out there, and it did sound like my problems, and I knew it occurs in ppl with POTS & hypermobility, so yeah. I'm not super surprised with the results, it's just, there are different treatments and such from GERD. I just feel hopeful. Like maybe I can not be nauseous every second? Maybe I can not have constant gut discomfort? Will I be able to eat a variety of foods again? š Mum came upstairs when I opened the message from my doctor and I just was crying and so grateful. For as awful as this test was, it wasn't another test that was inconclusive or unremarkable, it got me a new diagnosis for which I finally have some solid hope that it's gonna get better. So many things are tying to this. Game changer. ššāØ Ok now I'm going to curl back into the puddle of misery pain flare & possible migraine that the test caused. So, yes extra happy this misery was worthwhile. š¬ #spoonielife #spoonie #pots #potssyndrome #chronicillness #chronicpain #chronicfatigue #chronicmigraine #fibromyalgia #gastroparesis #IntuitiveArt #ArtExperimentation #ArtForMentalHealth #ArtForChronicIllness #Artstagram #KMBeingAllArty #ArtAsTherapy
So excited! Managed to sneak a photo of the website today! I have to say - itās looking fabulous even though it isnāt quite finished! Canāt wait until it finally goes live. š Thanks Ruth @haydonpower #migraine #migraines #migrainerelief #migrainessuck #migrainehelp #migraineawareness #migrainewarrior #migrainelife #migrainesupport #migraineur #migraineproblems #migrainetreatment #migrainecommunity #migrainesufferer #migraineattack #chronicmigraine #chronicmigraines #migrainefree #migraband
I choose.. #invisibledisability #invisibleillness #chronicpain #chronicillness #chronicllyill #butyoudontlooksick #chronicfatigue #disabled #chronicmigraine #cfsme #pots #eds #cptsd #fibromyalgia #endometriosis #ibs #disabledlife #livingwithpain #livingwithchronicillness #livingwithchronicfatigue #painwarrior #chronicpainawareness #chronicillnessawareness #spoonies #spoonielife #spooniessupport #anxiety #socialanxiety #mentalhealth #mentalhealthawareness
The whole teamās hereš«šŖ . . . #migraine #migrainecheck #chronicmigraine #migrainelife #migraineawareness #avulux #axonoptics #MigraineAttacks #MigraineAttack #MigraineTips #Migraines #Lightsensitivity #MyMigraineStory
My anxiety kicks up a notch or two on these migraine injection days although the 32 Botox injections have given me the BEST overall relief. Maybe itās the dreadful I26 that no one seems to know how to follow traffic zones to include no passing zones. Maybe itās the thought of already knowing of how a literal human āpin cushionā feels. Overall, I have the best neurologist that takes his time and actually listens. #chronicmigraine #Anxiety #mentalhealthawareness
My IV buddy! Sheās so sweet. It took 3 pokes to get a vein, but Iām soaking up fluids now. This is our weekly ritual. #kokorodoki #ććć§ć #ćććć¦ć #chronicillness #disabled #chronicmigraine #fibromyalgia #menieresdisease #raynaudssyndrome #mecfs #autoimmune #eds #hsd #amplifiedpainsyndrome #anxiety #dysautonomia #pots #gastroparesis #adhd #infusionday
Mubarak Medical Complex #UAN: 0348-1112362 #Whatsapp: 0341-1109940 #PTCL:048-3220262-63-64 . . . #migraine #chronicpain #chronicillness #headache #migrainerelief #migraineawareness #migraines #migrainessuck #fibromyalgia #invisibleillness #pain #chronicmigraine #anxiety #migrainelife #migrainewarrior #spoonie #health
Hereās the link with healing migraines: The gut and the brain are connected through the gut-brain axis, a communication pathway between the central nervous system and the enteric nervous system of the gut. š§ A healthy gut microbiome and intestinal barrier function contribute to balanced neurotransmitter levels and reduced inflammation, which are important factors in migraine prevention. š§¬ Also, a healthy gut can improve nutrient absorption, ensuring that the body receives essential vitamins and minerals that support overall health, including brain function and migraine management. šš½āāļø Hopefully this provides you some relief that there are more things you can do to heal your gut and reduce the frequency and severity of your migraines šš» Follow @.the.migraine.coach for more tips on how to heal your body to heal your migraines #themigrainecoachĀ #migraineĀ #migrainerecoveryĀ #chronicmigraineĀ #migrainetriggersĀ #migrainetreatmentĀ #migrainesupportĀ #migrainereliefĀ #migrainehacksĀ #migrainenutritionĀ #holistichealthĀ #neuroplasticityĀ #migrainecommunityĀ #guthealth
What are your best over-the-counter treatments for migraine attacks? Dr. Paul Mathew, a professor of Neurology at Harvard Medical School, discussed this in his 2024 Migraine World Summit interview. His main takeaway is that over-the-counter (OTC) treatments are not without risks, and that migraine-specific prescriptions and holistic therapies may be more effective. He suggests preventive measures, which can lead to less reliance on medication and better overall management. For acute therapies, consider combination therapies like NSAIDs and triptans or gepants. Dr. Mathew says to start with an NSAID, and if it doesn't provide relief within 10-15 minutes, consider adding a second-line treatment like a triptan or a gepant. He warns against relying too heavily and frequently on combo medication which may include caffeine and which can lead to medication overuse headache. NSAIDs like aspirin, ibuprofen, and naproxen can cause stomach irritation, gastritis, and bleeding ulcers, and kidney issues, if taken frequently or in high doses. Acetaminophen can affect liver function over time. Discuss the potential side effects and risks of any treatment with your healthcare provider. Know that there are options which do not involve medications, including neuromodulation devices and lifestyle factors. What helps you? #MigraineWorldSummit #Migraine #Migraines #MigrƤne #MigraƱa #MigrƦne #MigraineAwareness #NeurologicalDisorder #MigraineAttack #AbdominalMigraines #HemiplegicMigraine #MenstrualMigraine #VestibularMigraine #SilentMigraine #CervicogenicHeadache #ClusterHeadache #SinusHeadache #TensionHeadache #StatusMigraine #ChronicMigraine #MigraineSufferer #MigraineCommunity #MigraineWarrior #MigraineLife #MigraineSupport #HeadPain #MigrainePain #SpoonieSisters #MigrainesSuck #NotJustAHeadache
Get ready to elevate your health leadership game! Registration is LIVE for the Social Health Connexion Conference! Join us virtually on June 26, 2024, for a day of connection, engagement, and learning from top health leaders like yourself. Don't miss your chance to participate in the premier health leadership event! Secure your spot now!
Feeling tired from being strong is a testament to your incredible resilience. Itās okay to acknowledge your fatigue and give yourself the rest you deserve. Youāre doing amazing, even on the days when you feel worn out š«¶š» . . . . . . . . . . #chronicpain #chronicillness #chronicpainwarrior #chronicpainawareness #fibromyalgia #fibromyalgiawarrior #pots #potssyndrome #chronicmigraine #chronicheadache #newdailypersistentheadache #chronicfatigue #chronicallyill #fibro #invisibleillness #invisibleillnessawareness #chronicfatiguesyndrome #spooniesupport #spoonielife #dysautonomia #spooniewarrior #chronicpainlife #chronicillnesswarrior #multiplesclerosis #longcovid #lupus #crohns #ehlersdanlossyndrome #rheumatoidarthritis #endometriosis
Does it seem like youāre not able to even go a day or two without a headache? While things like stress, poor posture, technology use, or muscle tension can be TRIGGERS for a headache, the ROOT CAUSE often stems back to an issue within the neck. š¤ When your cervical spine (yep, thatās your neck) has built up tension it can impede nervous system communication, which can create a cascade of unwelcome effects, including that stubborn headache. Chiropractic care can help ensure your cervical spine is well aligned, easing nerve irritation, improving blood flow, and allowing proper brain/body communication. Donāt let headaches keep you from enjoying lifeās moments! Give us a call š to get to the root cause of your headaches once and for all. š§” #headachessuck #headachefree #migrainerelief #chronicmigraine #chiropracticworks #getadjusted #cliveia #charitonia #dsmia #urbandaleia #wdsmia #w #waukeeia
āØWakes UpāØ Ah my muscle soreness probably isnāt too bad - I can stillā¦ āØ Starts Moving a little āØ IāVE BEEN HIT BY A TRUCK! Post by Unknown Found on @pinterest Edited by me @chronically_brave Using @acolorstory . . . . . . . . . . #ChronicPain #ChronicMigraine #ChronicIllness #FeedingTubes #Gastroparesis #ChronicIllnessLife #EhlersDanlosSyndrome #EDS #CFS #MECFS #POTS #MCAS #Exhausted #Tired #ChronicFatigue #ChronicPelvicPain #Pain #Endometriosis #Endo #Neuralgia #LightSensitive #lightsensitivity #Migraines #MigrainePain #MigraineAwareness #MigraineWarrior #ankylosingspondylitis #TrigemenialNeuralgia #OccipitalNeuralgia #MyBodyHatesMe
š± What if I told you... It was all a lie?! Okay maybe that is a bit over the top... BUT there are many misconceptions about migraine that can prevent people from seeking the support and treatment they need. Let's debunk some common myths! š” Myth 1: Migraine is just a bad headache. Fact: Migraine is a complex neurological disorder with a wide range of symptoms, including severe head pain, nausea, sensitivity to light and sound, and visual disturbances. Myth 2: Since migraine a neurological disorder, there's not much you can do beyond medication. Fact: While medication can be helpful, there are other effective approaches to managing migraines, such as (not all inclusive): ā Neuroplasticity work to rewire the brain's response to triggers and pain ā Improving gut health through nutrition and probiotics ā Addressing hormone imbalances that may contribute to migraines ...Now it's your turn! What migraine myths have you been told? What would you add to these myths and facts? Share your thoughts in the comments below! š Don't let myths and misconceptions limit your possibilities for migraine relief. A migraine coach can help you understand your unique migraine experience and develop a personalized management plan. Shoot me a message if you want to learn more. Take care of yourself first, @tame.the.migraine . . . . . . #Migraine #MigraineAttack #AbdominalMigraines #MenstrualMigraine #VestibularMigraine #ChronicMigraine #MigraineSufferer #MigraineCommunity #MigraineWarrior #MigraineLife #MigraineSupport #MigrainePain #MigrainesSuck
āØāØāØāØāØāØ 30k Strong! āØāØāØāØāØāØ We canāt begin to express how much appreciation we have for this numberā¦ 30K! To EACH of you, we are so grateful you are here! Growth milestones are not simply follows, but mark a visible difference we are making in the world to raise migraine awareness, inspiring hope in those who are suffering and in ending migraine stigma. Your comments and responses are a joy to see and your interactions with each other inspire us to be our best everyday. Migraine Strong is a special little piece of social media free from toxic disputes because of you! We are 30,000 people who create a community of support helping each of us feel less alone & stronger together as we share migraine awareness and help each other endure migraine disease. Thank you for your comments, tags, messages, shares, for participating in our stories, and on our lives, and for reading so many of our articles. Every single small action has added up to an inspiring amount of support. You will never know how much it means to us to get to witness the way you all help each other here every day. We donāt do this as our full-time job. We do this in our free time because we love it and we love you! And because when youāre lucky enough to do well & to pull yourself out of chronic migraine, itās your responsibility to send the elevator back down. Migraine Strong would not be what it is without you! Thank you so much for being here with us and for inspiring us each other to try new strategies, to change the image of what migraine is and to never give up on doing everything we can to feel our best as we navigate our way through migraine disease. We are 30k Migraine Strong! šŖšŖšŖ āāāāāāāāāā #migrainestrongĀ #migrainelifeĀ #migraineurĀ #chronicmigraineĀ #migraineĀ #migrainereliefĀ #migrainessuckĀ #migraineawarenessĀ #migrainewarriorĀ #migrainesupportĀ #chronicmigrainesĀ #migrainesĀ #chronicillnessĀ #chronicpainĀ #chronicillnessawarenessĀ #chronicillnesswarriorĀ #migrainessuckĀ #headacheĀ #migrainesuffererĀ #health #communityofsupport #migrainecommunity #migrainestigma #neurologicaldisorder #headachesĀ #hemiplegicmigraine #brainhealth #vestibularmigraine #strong #support #community
Itās that time againā¦my quarterly Vyepti infusion is happeningā¦just thankful this can be done from the comfort of my own home instead of going to a center somewhere. #chronicmigraine #chronicmigraineawareness #vyepti #vyeptiinfusion
I recently shared my journey on The Wellness Creator Podcast, diving into how I use yoga to alleviate migraine. If you're curious about how yoga can help relieve migraine and want to learn more about my journey in the wellness world, this episode is a must-listen! Head to my story to tune in to this podcast episode.š§ #beyondmigraine #positivechange #migrainerelief #migraineawareness #migrainewarrior #migrainesuck #migrainecommunity #migrainesupport #healthcoach #migrainessuck #migraines #chronicillness #chronicpain #migraineawareness #migrainelife #migrainesufferer #chronicmigraine #migrainecommunity #yogaforhealth #healthandwellness #podcast
Autoimmune diseases are so common yet rarely talked about or even understood š¶ I know I have personally spent A LOT of time explaining what autoimmune disease is to people, it wasnāt easy to explain at 19 years old when I was diagnosed with hypothyroidism and didnāt understand it myself! š¤·š¼āāļø Now Iāve perfected my explanation to a two word answer: google it. š¤£ well.. not really but itās tempting sometimes! #cidpuk #neuropathy #rareautoimmunedisease #livingwithcidp #livingwithautoimmunedisease #guillianbarresyndrome #chronicillnesshumour #cidp #autoimmunediseaselife #chronicmigraine #chronicillnessawareness #chronicinflammatorydemyelinatingpolyneuropathy #cidpawarenessmonth #gbsawarenessmonth #chronicillness #chronicillnesscommunity
Intravenous infusions (IV therapy) can relieve migraines in several ways. They deliver hydration, electrolytes, and vitamins directly into the bloodstream, which means faster and more effective relief than taking oral medications. #migraine #chronicpain #chronicillness #headache #migrainerelief #migraineawareness #migraines #migrainessuck #fibromyalgia #invisibleillness #pain #chronicmigraine #anxiety #migrainelife #migrainewarrior #spoonie #health #migrainesupport #headaches #vestibularmigraine #vertigo #headacherelief #neckpain #wellness #depression #migraineproblems #stress #migraineur #backpain #painrelief
What a fab last couple of days š Out on the bikes Tuesday, and an evening dip in the sea last night! Water is warming up, and I even managed to get a bit of head down swimming in too! Super proud of @bazbbike_n_hike for getting back in the water tonight, and staying in for over 10 minutes! Went to bed with a fuzzy head and this morning my migraine has kicked in so I'm hiding from the sunshine indoors today. It's a balancing act with managing migraine attacks. Too much exercise, too much sun, possibly too much cold water especially on the head, and the arrival of a menstrual migraine all combine to floor me today. On the plus side, the Botox has kicked in and it was a good 9 days between migraine attacks which is amazing!! I know I'll never be migraine free, but it's nice to have 9 days between attacks instead of a 9 day migraine!! #mtb #mtblife #migraine #chronicmigraine #chronicmigrainesufferer #chilldip #chillswim #dipping #dips #dipsnotdistance #pembrokeshire #pembrokeshirecoast #coupleadventures
People with migraine are constantly denied access to a certain level of care that it feels ānormalā to not be believed or not have support or not have a doctor give you time to even hear you out completely. While we may be in denial about the condition itself, weāve accepted how weāre treated in a clinical setting where we book a 15-20 min appointment but are shoved out the door in 3. We canāt get in touch with our doctors between appointments. We wait ages to book an appointment and we are dismissed when we say something isnāt helping with our pain and our symptoms arenāt manageable. Lately, Iāve been exploring our initial reactions when we do find someone to validate us. When we do get that level of care which should be standard but feels like a luxury, almost undeserving or sometimes too good to be true. In my conversations with several others in the community this past few weeks, Iāve seen that weāve had a similar reactions like āWhatās the catch?ā āNa, this canāt be!ā āMaybe theyāre not an experienced enough doctorā āLike you only treat patients with migraine? So you may not know much about the brain, eh?ā āIs this a scam?ā And so on. I experienced this a few times. First when I spoke to @themigrainepharmacist at my lowest point in life and she was on the phone with me for close to an hour (or more), validating, educating, listening, supporting! And after that call I felt unsettled for a long time before relief set in. If you are in Canada, Iād suggest booking a consult with her. Then came my neurologist from India who I hadnāt met since I was diagnosed. And the way she validated my brain fog, difficulty with articulation, etc., felt like I must have been dreaming. Then @neurahealth (which I think is what inspired this comic), which is accessible to everyone who needs a specialist. Without the long wait time. Without the drama. Without effort. And the providers, so compassionate like @thomas.berk whose words saved me when I was drowning. That level of care must be default. Shouldnāt feel like itās too good to be true. Shouldnāt feel undeserving. #ChronicMigraine #migrainelife
#chronicillnessawareness #chronicillness #chronicillnesssupport #chronicillnesswarrior #chronicallyill #dysautonomia #ourchronicillnesstribe #dysautonomiaawareness #dysautonomiawarrior #chronicfatigue #chronicfatiguesyndrome #cfs #mecfs #mecfsawareness #chronicmigraine #migraineawareness #chronicillnesslife #invisibleillness #invisibledisability #invisibleillnessawareness #autoimmunedisease #disabilitypride #disabled #chronicillnesslife #migrainelife #dysautonomialife #pots #posturalorthostatictachycardiasyndrome #potsawareness
šøšÆ ā¢ svimmelhet kan oppleves forskjellig. Hvordan opplever du din svimmelhet? šØš¦ ā¢ Dizziness can be experienced in different ways. How do you experience dizziness? #migrƦne #migrene #migraine #chronicillness #chronicmigraine #vestibularmigraine #vestibulƦrmigrene #hodepine #kroniskmigrene #dizziness #svimmelhet #vertigo #spinning
May is Ehlers-Danlos Syndrome Awareness Month! @rarevisibility posted this last year, and I saved it and then highlighted those issues that affect me. [Poster with the title Ehlers-Danlos Syndrome Affects the Whole Body. Issues are listed on either side of a zebra drawing. Easy bruising,* easy bleeding, chronic pain,* dislocations,* subluxations,* dysautonomia,* myalgia,* organ prolapse,* chronic fatigue,* mitral valve prolapse, stretchy skin,* velvety skin,* hip dysplasia, vascular compressions, mental health issues,* migraines and headaches,* preterm labor,* muscle spasms,* gastroparesis,* MCAS & allergies,* Chiari malformation, osteoporosis,* osteoarthritis,* peridontitis, hernias,* vision issues,* aneurysms, gastritis,* scoliosis, cervical instability,* arthritis,* organ rupture, dental issues,* surgical complications,* & so much more.*] * items that affect me #connectivetissuedisease #ehlersdanlosĀ #ehlersdanlossyndromeĀ #ehlersdanlossyndromes #hypermobile #hypermobileehlersdanlossyndrome #hypermobileedsĀ #ehlersdanlossyndromeawareness #mastcellactivationsyndrome #dysautonomia #neurocardiogenicsyncope #gastroparesis #chronicmigraine #eustachiantubedysfunction #degenerativediscdisease #cervicalradiculopathy #craniocervicalinstability #osteopenia #psoriasis #celiacdisease #iritis #reynauds #rosacea #autistic #neurospicy #neurosparkly #OCD #obsessivecompulsivedisorder #spoonie #notalldisabilitiesarevisible
Day 9 of my 100 miles of walking in May challenge in aid of @migrainetrust . Today was a funcational walk to post a Vinted parcel and to be honest I was contemplating not walking today because Iām still migraine hanging from yesterday (I didnāt manage a second walk) but I thought Iād kill two birds with one stone. The support Iām getting is keeping me going Thereās still time to sponsor me https://www.justgiving.com/page/claire-smith-1711986707718 #walking #walkingchallenge #teammigraine #themigrainetrust #vinted #Vinted #vintedseller #vinteduk #migraine #migraines #migraineawareness #migrainewarrior #migrainesupport #migrainelife #migrainecommunity #migraineproblems #chronic #migraine #chronicmigraine #chronicmigraineawareness #chronicmigrainewarrior #chronicmigraines #chronicmigrainessufferer #chronicmigrainesufferer #chronicmigrainessuck
Day 9 of my 100 miles of walking in May challenge in aid of The Migraine Trust. Today was a funcational walk to post a Vinted parcel and to be honest I was contemplating not walking today because Iām still migraine hanging from yesterday (I didnāt manage a second walk) but I thought Iād kill two birds with one stone. The support Iām getting is keeping me going Thereās still time to sponsor me https://www.justgiving.com/page/claire-smith-1711986707718 #walking #walkingchallenge #teammigraine #themigrainetrust #vinted #Vinted #vintedseller #vinteduk #migraine #migraines #migraineawareness #migrainewarrior #migrainesupport #migrainelife #migrainecommunity #migraineproblems #chronic #migraine #chronicmigraine #chronicmigraineawareness #chronicmigrainewarrior #chronicmigraines #chronicmigrainessufferer #chronicmigrainesufferer #chronicmigrainessuck
š§ When risk factors for vertigo converge, they create a perfect storm of instability, challenging our sense of orientation and equilibrium. #Vertigo š©ŗ Dr. Sumant N Biyani (Neurologist) š Biyani Neurocare Clinic, Mumbai Naka, Nashik. š Mobile No: +91 7030074740 š© E-mail: [email protected] šŖ© Website: https://www.biyanineuro.com . . #NeurologyAwareness #drsumantbiyani #NeurologicalWellness #drsumantbiyani #MigraineRelief #Headache #ChronicMigraine #MigraineAttack #MigraineWarrior #MigraineSupport #MigraineLife #MigraineManagement #MigrainePrevention #brain #braintumor #brainhealth #brainteaser #brainfood #braincancer
Chicken strips & crinkle cut fries; sometimes itās just about comfort food and nostalgia and sometimes itās about what doesnāt make you nauseous when your body decides it hates you for the day (or multiple days). Most people donāt know or understand our daily life. As someone who deals with multiple autoimmune diseases and other chronic health conditions daily I understand how lucky I am to have a wife that will try to do anything to make me as comfortable as possible on these days! #autoimmunedisease #chronicillness #psoriasis #psoriaticarthritis #thyroiddisease #connectivetissuedisorder #chronicmigraine #immunosuppressed #maintenancemedication #accutemedication #boxerdogapproved #thetwomrssmiths
These migraine home remedies combat what most would agree is the most misery-inducing aspect of our condition ā the pain. https://theabilitytoolbox.com/migraine-relief-home-remedies/ #Migraine #ChronicMigraine
Today marks TWO WEEKS since I was admitted, and there have been a lot of ups and downs over the last couple days. Sunday night was REALLY really rough. About an hour after dinner I started to develop severe abdominal pain that just continued to escalate and get worse. I ended up spending the majority of the night in excruciating pain, repeatedly vomiting, with really frequent watery bowel movements, and shivering so bad I had to have them crank up the heat in my room for several hours. I've had bowel obstructions in the past, and that's exactly what this felt like. Also, my labs on Monday were highly abnormal, white blood cell, inflammation markers, and lactic acid levels were all elevated, which can all be signs of going septic. Discharge plans were pretty much immediately taken off the table and they ordered a bunch of blood cultures, an X-ray, a CT, an Ultrasound, gave me lots of fluids, and kept rechecking my lactic acid levels regularly (which decreased).... But no real definitive answers from any of those test. Monday night and yesterday ended up being so MUCH better than the night before. I was actually able to get some quality sleep, which was a win. And the doctors decided that even though they normally just monitor patients with E.Coli, I'm me, so they decided to be cautious and treat it with antibiotics for the next three days (tomorrow/Thursday being the last day). Today my blood work has normalized close to my baseline, my pain has greatly improved, and my GI docs think it probably was some kind of acute partial bowel obstruction. Because there's been such a big improvement all my Teams (GI, Internal Medicine, and Infectious Disease) have started talking about transitioning me for discharge. Hopefully before the weekend. The feeling from all the doctors is that all the symptoms I was experiencing before coming to the hospital were caused by the CMV, which caused my Crohn's to flare, and the bleeding with my bowel movements to increase, and that the addition of E.Coli and potential partial bowel obstruction in the hospital clearly complicated things and drew out my hospital stay. (Con't in comments)
āWe live in a world where stress is so constant and abundant that we consider it the norm. Our nervous systems are so over-stimulated that sense of calm can feel abnormal. It takes effort and re-programming to consciously step away from the stress and into peace.ā Quote by Kathy Overman Post found on @pinterest Edited by me @chronically_brave Using @acolorstory . . . . . . . . . . . . #ChronicPain #ChronicMigraine #ChronicIllness #FeedingTubes #EDS #ConnectiveTissueDisorder #Pain #Gastroparesis #EhlersDanlosSyndrome #Endometriosis #Hysterectomy #Migraine #Migraine #Disabled #SurvivalMode #FightOrFlight #InvisibleIllness #MedicalPTSD #ComplexPTSD #CPTSD #PostTraumaticStressDisorder #CFS #ChronicFatigueSyndrome #Anxiety #WiseWords #Burnout #Overwhelmed #Overwhelming #Stress #StressedOut #OverStimulated
Incredible post from the European Headache Federation and the European Academy of Neurology. This will answer many if your questions as to what a treatment plan looks like and if you have been diagnosed with migraines, the types of medication they put you on. This is JUST for the migraien part, if you have PPPD then long term it will also include things like CBT and vestibular therapy etc. #vestibularmigraine #vestibularmigraines #chronicillness #vertigo #spoonie #chronicillnesswarrior #chronicfatigue #vestibulardisorder #vestibulardisorder #pppd #migraines #migraine #chronicpain #chronicillness #migrainerelief #migraineawareness #migrainessuck #anxiety #migrainewarrior #migrainelife #invisibleillness #migrainesupport #mentalhealth #spoonie #migrainecommunity #chronicmigraine #migrainesufferer #migraineproblems
Please comment or DM with any of your thoughts or experiences! Theyād be greatly appreciated! š§ š #migraine #notjustaheadache #vestibularmigraine #chronicillness #migrainewarrior #migrainehope #migraines #chronicmigraine #invisibleillness #dynamicdisability #migrainelife #migrainecommunity #migraineawareness #migraineproblems #migrainesupport #migrainesufferer #migraineattack #migrainetreatment
April showers bring May flowers, but for those with migraine, that can come with an increase in migraine attack frequency and/ or intensity. According to the American Migraine Foundation, one study found that migraine occurred in 34% of people who have allergies, compared to 4% of people who do not have allergies. Additional research showed that migraine occurred 14% to 28% more frequently in those with migraine and allergies than in those with migraine alone. Allergies also cause people with episodic migraines (occurring fewer than 15 days a month) to be more than twice as likely to develop chronic migraines (occurring more than 15 days per month). Do your migraine symptoms get worse during allergy season? Let us know your experience below. š āāāāāāāāāā #migrainestrongĀ #migrainelifeĀ #migraineurĀ #chronicmigraineĀ #migraineĀ #migrainereliefĀ #migrainessuckĀ #migraineawarenessĀ #migrainewarriorĀ #migrainesupportĀ #chronicmigrainesĀ #migrainesĀ #chronicillnessĀ #chronicpainĀ #chronicillnessawarenessĀ #chronicillnesswarriorĀ #migrainessuckĀ #headacheĀ #migrainesuffererĀ #vestibulardisorderĀ #vestibulardiseaseĀ #spoonielifeĀ #ahchoo #aprilshowersbringmayflowers #headachesĀ #pollen #brainhealth #vestibularmigraine #headacherelief #allergyseason #allergies
š¤ But what does it really mean? š¤ If you're a chronic migraine sufferer, you may have heard the term "CENTRAL SENSITIZATION" thrown around. In a nutshell, central sensitization is when your nervous system gets stuck in a vicious cycle of pain signaling, even when there's no actual threat or damage. It's like your brain's "danger alarm" is permanently set to high alert, amplifying every little sensation. Sounds exhausting, right? Well, the good news is that just as your nervous system learned to repeat this dysfunctional pattern, it can also learn to adopt healthier ones! Enter neuroplasticity - your brain's amazing ability to rewire itself and create new neural pathways. With the right techniques and mindset shifts, you can literally train your brain away from central sensitization and towards a calmer, more resilient state. Think of it like being an actor who's memorized the wrong lines. Sure, you've gotten really good at reciting that unhelpful script. But with practice, you can become even more exceptional at embodying a new character - one who responds to migraine triggers with ease and adaptability. It's time to flip the script on central sensitization and harness the incredible power of neuroplasticity. Your nervous system is ready for a new role! Want to discover your unique neuroplastic potential and start rewriting your migraine story? Comment "NEUROPLASTICITY" below to take my free Neuroplasticity Headache quiz! š§ āØ take care of yourself, @tame.the.migraine . . . . . . #Migraine #MigraineAttack #AbdominalMigraines #MenstrualMigraine #VestibularMigraine #ChronicMigraine #MigraineSufferer #MigraineCommunity #MigraineWarrior #MigraineLife #MigraineSupport #MigrainePain #MigrainesSuck
Well feel well on Wellness Wednesday. I have been searching for something that helps & hopefully cures me of migraines. I started with a new company focusing on natural supplements and fixing menopause symptoms BUT then I met another leader who shared this fantastic side affect of these supplements I started. She told me this ~ āYou actually DONāT have to suffer with migrainesā!!! Migraines were part of my life for over 40 years. YUK š¤¢ ā¢ 1 to 2 every month ā¢ Usually before a weather change ā¢ Not getting enough sleep ā¢ Stuffed sinuses or allergies ā¢ Too much time in fluorescent lights ā¢ Certain strong scents or smoke My daughtersā both started getting migraines when they were pretty young too. Especially severe during hormonal or preteen years. Iāve talked with doctors, allergists, naturopaths, dentists & eye doctors as well as had several tests done around the age of 12 but still coming up empty-handed. I had horrible combination migraines that made me severely ill š¤® I stopped looking for solutions, because there didnāt seem to be any. Just recently I levelled up my network marketing business and changed companies. I said Iād try their products because I was going through a stressful time and a friend thought they might help my mood & anxiety levels. WELL- who would have known that the products I said Iād ātryā could BE THE ANSWER to our migraines. Iām no longer trying out migraine meds (which arenāt cheap btw) ā I donāt need to feel even worse worrying about the next sick day or getting FOMO because I couldnāt function going out with friends or missing family activities. I just had to try to sleep, avoid noises, bright lights, too much sun or heat & scents that would make me & my girls get seriously sick more times than I can count. If you have migraines that seem hopeless, Iām telling you to try what I did. I hope it changes your world, like it is doing for mine! Comment āMIGRAINEā for what I have been taking. What if itās your answer too!? #MigraineWarrior #ChronicMigraine #MigraineLife #MigraineAwareness #HeadacheSufferer #MigraineSupport
šComment below if you've been asked thisš . . . #migraine #migrainecheck #chronicmigraine #migrainelife #migraineawareness #avulux #axonoptics #MigraineAttacks #MigraineAttack #MigraineTips #Migraines #Lightsensitivity
There have been a LOT of lows and a lot of highs during the last several months of this pregnancy that have made me hesitant to share this exciting news earlier. First off my anxiety was extremely elevated (especially in the beginning) so sharing anything on social media felt daunting, scary and something I kept putting off. Iāll be going into more detail now that the news is out there of what Iāve been going through and what my life has looked like with managing multiple chronic illnesses and a pregnancy. Itās all been a big adjustment and letās just say thereās been a huge learning curve about what works and doesnāt. Iāll go in to more detail in the upcoming posts but letās just say this hasnāt been the easiest journey. POTS with pregnancy is on a whole other level š«
Finished this weeks ago but, for unknown reasons, I was unable to share until now. Maybe it was anxiety from the centers being copper and wanting to make sure that I photographed properly. Ironically today I took this pic while having a POTS attack which feels like a dizzy anxiety attack. It just couldn't care less about a good photo. š¤·āāļø In bed now, chugged my very salty electrolytes, and had a few cookies. Feeling somewhat better now. Finding out that these simple steps can lessen what I always thought was anxiety/panic, but adrenaline surging from need of salt & horizontal positioning, it was wild. It doesn't always work, but it's a good place to start! My pulse was down to 55 for a while, which I think is strange for this feeling, usually it's really high like 140 or something. Maybe blood pressure spiked? Idk. Feeling better some and pulse is 60+, it's ok. Tomorrow I have a 4+ hr belly test at the hospital, should be interesting. By interesting I mean I wonder how much not eating or drinking for 4 hrs before, the test starts at 930, is going to effect me. They'll feed me radioactive food & test how it gets out of my belly 1, 2, & 4hrs after. I eat pretty frequently and constantly drink water both to help keep the POTS away, but tomorrow, I'm definitely worried. Gotta get through today first. āļø #Zentangle #Watercolor #ArtExperimentation #ArtForMentalHealth #ArtForChronicIllness #Artstagram #KMBeingAllArty #IntuitiveArt #spoonielife #spoonie #pots #potssyndrome #chronicillness #chronicpain #chronicfatigue #chronicmigraine #fibromyalgia
I can't paint my #nails anymore but I love me some cute #nailstickers š„° . . . #accessible #anxiety #art #access #arttherapy #autoimmune #arthritis #arthritisawareness #bestdisabledlife #chronicillness #chronicpainawareness #clusterheadache #childfriendly #chronicpain #chronic #coping #chronicallyill #chronicillnesswarrior #chronicillnessawareness #chronicfatiguesyndrome #chronicfatigue #copingstrategies #chronicpainwarrior #chronicmigraine #disabilityawareness #disability #disabilitylife #disabled
Oh, weāre excited about this one š¤© Say hello to Migrastilās Stress Relief Inhaler, an aromatherapy inhaler we created to help promote instant relaxation with help from our blend of calming essential oils and vanilla CO2 extract š± Take a deep breath and experience all-natural relief with Migrastil today! š in bio. #relaxation #calm #migraineproblems #migrainesupport #migrainesymptoms #migraines #headache #chronicmigraine #migraineattack #migrainerelief #migrastil #health #wellness #grateful #healthyliving
*New Work* 9"Ć12" This is a sinus migraine. I've been working on these small pieces and very large canvasses (5'x4') and I find the dichotomy to be creative fertilizer. All works available unless otherwise noted. #aimeebungardart #womenartistsofinstagram #womenartistsofpittsburgh #pittsburghartist #appalachianartist #womenwhodraw #aap #neurodivergentartist #migraineart #birthworker #womencenteredart #femininemysteries #chronicmigraine #motherartist #emergingartist #migraineaura
3rd Diagnosis! Getting treatment during CO #ID was really difficult. Because I was med sensitive they would have to refer me again to a neurologist and it would be the one that could see me the soonest at times as I was so dizzy and even then it would take 5 months plus. The list of consultants is mad when I read back how much I was moved around but I KEPT going back when a treatment did not work. I was determined it would not beat me! At the end of it all, I was given flunarizine for about 4 months that massively took away the dizziness, I only had to come off it due to very low moods, but by then, my vestibulay system had settled greatly and the dizziness was a lot better. I then went on to have vestibulat therapy for 6 weeks at St Mary's hospital in London. I really do appreciate the NHS and feel verey grateful I have these optiosn and feel for so many that don't. #vestibularmigraine #vestibularmigraines #chronicillness #vertigo #spoonie #chronicillnesswarrior #chronicfatigue #vestibulardisorder #vestibulardisorder #pppd #migraines #migraine #chronicpain #chronicillness #migrainerelief #migraineawareness #migrainessuck #anxiety #migrainewarrior #migrainelife #invisibleillness #migrainesupport #mentalhealth #spoonie #migrainecommunity #chronicmigraine #migrainesufferer #migraineproblems
Neurologist number 2 - 2020 I hope this info may help others trying to get diagnosed and the symptoms I had. #vestibularmigraine #vestibularmigraines #chronicillness #vertigo #spoonie #chronicillnesswarrior #chronicfatigue #vestibulardisorder #vestibulardisorder #pppd #migraines #migraine #chronicpain #chronicillness #migrainerelief #migraineawareness #migrainessuck #anxiety #migrainewarrior #migrainelife #invisibleillness #migrainesupport #mentalhealth #spoonie #migrainecommunity #chronicmigraine #migrainesufferer #migraineproblems
27/06/2016 - My diagnosis. Really interesting to look back and see that I said head pressure - silent migraines. #vestibularmigraine #vestibularmigraines #chronicillness #vertigo #spoonie #chronicillnesswarrior #chronicfatigue #vestibulardisorder #vestibulardisorder #pppd #migraines #migraine #chronicpain #chronicillness #migrainerelief #migraineawareness #migrainessuck #anxiety #migrainewarrior #migrainelife #invisibleillness #migrainesupport #mentalhealth #spoonie #migrainecommunity #chronicmigraine #migrainesufferer #migraineproblems
Yes...... after being diagnosed by one of the top neurologists in London, my GP said it was not migraine related and would not give me the neccesary treatment! I had wait months to see another older male specialist and because I cried in front of him, he said maybe I was just anxious, womens problems etc. Thank god I did NOT stop fighting to get the treatment I deserved! It would have even very easy to give up and just live with it! My mum has been feeling dizzy like this on and off for 30 plus years. I changed doctors and in one private appointment, got the treatment I needed. I was brought up to believe the doctor knows best, and it was seen as rude to question their expertise etc. I want to add I have seen some increidble doctors too! Don't let one or two bad experiences put you off from getting the answers you need to start youyr treatment! NHS doctors especially in London are over-whelmed. #vestibularmigraine #vestibularmigraines #chronicillness #vertigo #spoonie #chronicillnesswarrior #chronicfatigue #vestibulardisorder #vestibulardisorder #pppd #migraines #migraine #chronicpain #chronicillness #migrainerelief #migraineawareness #migrainessuck #anxiety #migrainewarrior #migrainelife #invisibleillness #migrainesupport #mentalhealth #spoonie #migrainecommunity #chronicmigraine #migrainesufferer #migraineproblems
Migraine is tough enough as it is. But what about when #migraine just doesn't stop? Or when a flare doesn't properly respond to medication? ā ā Let's dive into the world of Status Migrainosus and Refractory Migraine, two migraine complications that can make treatment more challenging. Often used interchangeably, Status Migrainosus and Refractory Migraine are two separate complications: the first being an aggressive attack that exceeds 72 hours and the second being a pattern of attacks that is resistant to standard treatments. ā ā It's important to note that more frequent Status M attacks can precipitate and lead to Refractory Migraine due to the nature of central sensitization and other factors (like medication underuse, comorbidities & more). This is why it's important to appropriately treat every migraine attack at the very beginning.ā ā So flip through and save this incredibly helpful carousel. Not only does it outline the difference between Status Migrainosus and Refractory Migraine, but it also highlights the steps needed to treat both complications. ā ā If you think you may have Refractory Migraine or if you're in a Status Migrainosus torture hole, seek care as quickly as possible. The longer you wait to treat, the more difficult it can be to crawl out of the central sensitization labyrinth. If you need an urgent appointment but your provider cannot see you, remember that you can see one of our providers in just a few days. ā ā #MigraineRelief #MigraineAwareness #MigraineLife #ChronicMigraine #InvisibleIllness
Being in pain 24/7 with no break is soul sucking & exhausting. Post by @thechronicbabeclub Found on @pinterest Edited by me @chronically_brave Using @acolorstory . . . . . . . . . . . #ChronicPain #ChronicMigraine #ChronicIllness #FeedingTubes #EDS #ConnectiveTissueDisorder #Pain #Gastroparesis #EhlersDanlosSyndrome #Endometriosis #Migraine #Disabled #SurvivalMode #FightOrFlight #InvisibleIllness #MedicalPTSD #ComplexPTSD #CPTSD #PostTraumaticStressDisorder #CFS #ChronicFatigueSyndrome #Anxiety #Depression #MentalHealthAwareness #Tired #Exhausted #EmotionallyDrained #Drained #Burnout #BurnedOut
My love hate relationship with prednisone is alive and well. Thankful for the benefits but, oh, those side effects. #autoimmunedisease #psoriasis #psoriaticarthritis #colitis #invisibleillness #dysautonomia #fibromyalgia #chronicmigraine #venousinsufficency #spoonie #prednisone
ā Did you know... Migraine attacks can be triggered by so many things? š½ļø Food š Scents š” Lighting š“ Poor sleep āļø Weather For me, I find lack of sleep and stress play a big part in my migraine attacks - oh, and not drinking enough water. I think a lot of us are guilty of that! What are your triggers? #migraine #migraines #migrainerelief #migrainessuck #migrainehelp #migraineawareness #migrainewarrior #migrainelife #migrainesupport #migraineur #migraineproblems #migrainetreatment #migrainecommunity #migrainesufferer #migraineattack #chronicmigraine #chronicmigraines #migrainefree #migraband
š Bedtime Routine: RELAXATION š Take a moment to unwind with a little snack, some light stretching, and a cozy Netflix session by lamplight. Create a low sensory environment to relax, even if you don't feel the immediate need. Dim those lights and treat yourself like the migraine person you are, as a relaxed setting can make a significant difference. Discover more relaxation tips in this video! https://youtu.be/3ne3s-H_kqU?si=aj--Lw3X1XikTN0V #chronicmigraine #Migraine #BedTime #Routine #Relax #snack
What makes holistic approaches truly powerful is the emphasis on personalized care. By embracing this approach to migraine management, we take control of our health, addressing not only symptoms but also root causes, nurturing our bodies, minds, and spirits along the way. Ready to dive into this holistic journey? Join a vibrant community of Migraine Warriors in the Yoga for Migraine Facebook Group. Comment āI AM A WARRIORā to join. šāāļø #beyondmigraine #positivechange #migrainerelief #migraineawareness #migrainewarrior #migrainesuck #migrainecommunity #migrainesupport #healthcoach #migrainessuck #migraines #chronicillness #chronicpain #migraineawareness #migrainelife #migrainesufferer #chronicmigraine #migrainecommunity #yogaforhealth
It's EDS awareness month! š¦š§” Comment your type! It's eye health awareness month! Comment if you plan to see your eye specialist or have a dx!šļø It's mental health awareness month! Let's support our community! There is so much cross over.š Comment if you know another dx that should be highlighted! āļø We help each other with info, experiences, smiles, and tips. Thank you all for what you do on social media. š #chronicillness #chromicfatigue #chronicmigraine #chronicpain #sjogrens #sjogrenssyndrome #cfs #hs #heds #eds #migraine #brainfog #hidradenitissuppurativa #ehlersdanlossyndrome #hypothyroidism #hypermobility #tmj #tmjdisorder #myhairhurts #mystomach #myfeethurt #myelbowshurt