The Pathway of hope Spring is here in all its flowers. While I go around and search for my powers. The nature promise for better days while my life goes by in a thick haze. Spring gives hope for better times while my life is filled with heavy climbs. Better days, better health, better news while I try to get lesser bruises. Passing some grass and flowering trees while I try to not fall on my knees. The pathway of hope is here while I walk so close and near. Written 7th of May by JC
Weitere Einblicke zu meiner Geschichte mit LongCovid… Ein paar Tage nachdem die Infektion abgeklungen war und ich wieder arbeiten ging fing es auch schon an - oder ging besser gesagt weiter - mit bleibenden Symptomen. Es war ein fließender Übergang wenn man so möchte. In der Arbeit war ich unkonzentriert, jegliche Anstrengung (egal ob körperlich oder geistig) bereitete mit Schwierigkeiten, ich konnte mich nur schwer für was motivieren und war mit allem überfordert… genauso war es auch privat. Das schlimmste Erlebnis war die erste Dusche mit Haare waschen. Während der Dusche war mir schwindlig, ich bekam Kopfschmerzen und Herzrasen und mir war brennheiß und eiskalt zur gleichen Zeit. Nachdem ich fertig war musste ich mich hinlegen. Ich wollte schon die Rettung rufen, weil ich dachte ich hätte womöglich eine Herzattacke… nach 15-20 Minuten hatte sich alles wieder halbwegs beruhigt, aber ich war komplett ausgelaugt. Dass ich mich zu diesem Zeitpunkt schon mitten im LongCovidSyndrom mit ME/CFS befand wurde mir erst viel später klar. #longcovidjourney #longcovid #postcovid #pots #pem #mecfs #mecfswarrior #covid19 #coronainfektion #corona #infektion #symptomatic #symptomatik #chronischmüde
Selbstvertrauen. 2604. #realtalk #longcovidjourney #jettedenkt
I wonder how much these figures might have increased since 2018, given the number of us now living with Long Covid and its associated conditions and autoimmune issues? Remember to take time to look after yourself, talk to other people about how you feel, and always ask for help if you need it. #mentalhealth #mentalhealthisimportant #mentalhealthandwellbeing #mentalhealthandwellness #mentalhealthsupport #mentalhealthawareness #mentalhealthmatters #longcovid #longcovid19 #longcovidmentalhealth #longcovidkids #longcovidjourney #longcovidsupport #longcovidsymptoms #longcovidawareness #longcovidsucks #longcovidrecovery #longcovidcarers #carers #carersupport #carersuk #stress #stressawareness #stressmanagement #stressrecovery #healthandstress #stressandhealth #autoimmune #autoimmuneawareness #autoimmunedisease @autoimmuneawarenessfoundation
Finished for now ✅😅 #art #drawing #longcovidcommunity #creativity #longcovidjourney
It’s often not until you experience chronic illness that you realise the true healing powers in things that you previously took for granted when your nervous system was ticking along (seemingly) ok…! I’m well on the path to recovery, but healing seems to be an active and holistic process with many bumps along the way. Discipline in the small things often makes the biggest difference. . . . #longcovidjourney #chonicillnesswarrior #healingjourney #nervoussystemregulation #remindertoself
If I hear one more healthy person say "I get tired too" I'm going to lose it 😤 Healthy persons tiredness has absolutely nothing to do with Long Covid/ME/CFS fatigue, let alone PEM crash. You have no idea what it's like unless you've experienced it yourself. So please, stop diminishing my experience. For me it's like running a marathon while simultaneously taking a uni level math exam, having a hangover and flu and zero sleep. Quite far from tiredness. Right? #longcovid #postcovidsyndrome #postexertionalmalaise #fatigue #mecfs #longcovidawareness #longcovidjourney #chronicillnessawareness
Copying some of Bada Shanren's beautiful work in ink. Giving each stroke an intention and not fussing over detail is perfect for those days when my mind feels scrambled but I have the spoons to get out some brushes. These are three out of dozens of pages various scribbles done in just half an hour. #badashanren #inkpainting #longcovidjourney #unfinishedart
It has been a hard few weeks but had a glimmer today. I found out about the spotlight technique for attention and it really helped. #longcovid #longcovidjourney #longcovidrecovery
My less than perfect but just too tired to try again photo of the theme I was feeling when I woke up to start this Wednesday. And the day was even worse and more exhausting than I was expecting. Boo and poop. #longcovidjourney #broochaddict #acrylicjewellery #alwaystired
COVID/Long COVID has affected me in several of these ways. Many people feel that the cognitive and psychological impact of COVID is one of the hardest things to cope with. Which of these have you experienced? #longcovidmentalhealth #longcovid19 #longcovidsupport #longcovidsymptoms #longcovid #longcovidawareness #longcovidsucks #longcovidrecovery #brainfog #stress #depression #anxiety #ptsd #memoryproblems #concentrationproblems #longcovidheadaches #insomnia #moodproblems #longcovidkids #longcovidjourney #postcovid19 #postcovid @autoimmuneawarenessfoundation
#tree #awe #radiant #oak #baby #leaves #spring Our Oak tree out back is just crazy amazing right now. This pic just seconds ago captured the light of #sunset in a #amazing #frame of colors. #vernonfilleyartmuseum is about to install my corridor show #rootsthatgodeep So excited to share this work with you all. All photos were taken before I became ill with #longcovidjourney #fatigue and #headache have been the biggest hurdle to get this ready for the public. #onedayatatime But I thank God for helping calm me and giving me the creative brain that I have. #brainfog is tough to push though to that creative side. More pics to come if the show. Hope you can attend the opening. Blessings, Penny
#workinprogress #notfinishedyet There’s something very calming about drawing 😌 It comes very close to being a pretty good substitute for playing the piano 🎹 🎶 #drawing #japan #cherryblossom #longcovidcommunity #creativity #art #longcovidjourney
We still provide assistance to people with long-term COVID-19. Following sessions of hyperbaric oxygen therapy, several of them have seen significant improvements in their symptoms. If you have similar symptoms, contact us and find out more about how hyperbaric oxygenation may help. 📢Contact us to unlock the healing potential of HBOT today! #LongCOVIDRecovery #HBOTforLongCOVID #LongCOVIDHealing #HyperbaricTherapy #LongHaulerHBOT #ChronicCOVIDRecovery #HBOTSupport #LongCOVIDJourney #HBOTHope #HBOTTreatment #LongHaulRecovery #chambers #subzerocryotherapycork #recovery #injury
Trying to use up my yarn scraps, one little square at a time! This is great for little wins and you can pick it back up whenever you have the spoons. I enjoy choosing a colour and doing a square in one sitting. Adapted from the #miteredsquaresblanket by @purlsoho. #longcovidjourney #knitting #wasteyarnproject
I started a new project this week.. my aim is to try and paint all of 1 number each day for a whole week until it’s complete 🥰 I’m really enjoying it and finding it very relaxing, but it’s bizarrely tiring too! #paintbynumbers #paintbynumbersforadults #longcovid #longcovidrecovery #longcovidtips #mylongcoviddetour #longcovidawareness #longcovidcommunity #longcovidteens #longcovidteenagers #longcovidrecoverytips #longcovidfighter #longcovidjourney #longcovidrecoveryjourney #longcovidwarrior #longhauler #chronicillness #health
I’ve been quiet for the past week as I’ve been on a lovely restorative Easter Holiday in France with my family! I’ve come home feeling really rested and feeling like I’ve turned a corner 🤞🏼 Took this gorgeous photo as we were coming back into Manchester. We travelled with a wheelchair for the first time and I’ll share my experience with that later this week 🦽 #longcovid #longcovidrecovery #mylongcoviddetour #longcovidawareness #longcovidcommunity #longcovidteens #longcovidteenagers #longcovidrecoverytips #longcovidfighter #longcovidjourney #longcovidrecoveryjourney #longcovidwarrior #longhauler #chronicillness #health
Healing the gut and nutrition can be a big factor in recovery for some individuals (myself included). Is there one size fits all? Like everything else, I don’t think so. It’s down to each individual, their own unique microbiome and preferred way of eating. If you think there could be something underlying going on in your gut then it might be worth working with a qualified nutritional specialist. I spent months and quite a lot of money on testing (finding out I am allergic to green beans, Brazil nuts and a few other random foods) and working with nutritionists to heal a lifetime of IBS which is now WAY better than it was a few years ago!🤩 . But, if you’re curious to see if changing the way you eat and drink will help you and your healing then my basic suggestions would be to keep it simple and keep trying different things until you figure out what works best for you! Baring in mind foods such as sugar, gluten, dairy, alcohol, caffeine and some seed oils can cause inflammation which might lead to symptoms! 🥴 . A good way figure out if foods are effecting your symptoms would be to keep a food journal for a couple of weeks. Tracking everything you eat and drink and becoming aware of how you feel in the hours after. Then it’s your decision if you want to carry on consuming them or not but if you are getting symptoms …. it might be time to re evaluate.💡 . Cutting out sugar, gluten, dairy and alcohol were huge for me! I still have treats now again (dark chocolate is my nemesis) and Its is quite noticeable how I feel after BUT I am human and I enjoy it (which is also important). It’s about balance right, the 80/20 rule. 80% should be things that will nourish you and the other 20% things you enjoy.🍫 . Continued in comments…VVV
⛅️ Couch Chronicles: A Year in Sky Reflections ⛅️ 87/366 As I dropped something off at a friend's house this evening, I was reminded of a time when leaving my home during daylight hours felt overwhelming. The thought of interacting with others or facing the brightness of the sun seemed daunting. So, I found solace in the quiet of late nights, when the world was still and the streets were empty. It's hard to believe that just a year ago, these late-night walks were my way of gradually expanding my comfort zone, reclaiming a sense of agency in a world that felt too vast and overwhelming. After almost a year of being mostly confined to my home, my world had shrunk significantly, and those late-night excursions were a lifeline to the outside world. How have small steps outside your comfort zone contributed to your personal growth journey? #CouchChronicles #PersonalGrowth #Courage #NightWalks #Reflections #LongCovidJourney #switzerland
Felhő szeretnék lenni Puha takarót képeznék testem égboltján Esőcsepekkel itatnám át sajgó részeim, melyek megfáradtak az állandó viszályban Tegnapi imáimat használom fel, hogy csillapítsam a káoszt, melyről szemnek láthatatlan sebek árulkodnak Csak az értheti Kit sújtott már égi háború s biztos alapokon álló vázát egy szempillantás alatt nyelte el a tornádó Szükség volna esernyőre, hisz az ég ismét leszakad Lágy felhőtakarók helyett újra zord égi jelenségek tűnnek fel az égen Ismét elérte a tikkadt talajt az özönvíz, de ne feledd a körforgást Hamarosan újra fürdőzhetsz a napsütésben. E.V #chronicillnessawareness #lymewarrior #longcovidjourney #healingisnotlinear #healingisontheway #healingispossible #healthisyourwealth
Reflecting on this time four years ago when we had recently gone into lockdown and i was already ill with what later was diagnosed as Long Covid. I was one of the lucky ones after making a recovery within 18 months. Others who i know are still suffering four years on and my thoughts are with them at this time. Getting such a debilitating illness was hugely challenging however there are silver linings...with my career as an artist being born out of this time...having returned to painting as therapy after a 25 year pause. For this i will be forever grateful and particularly to @suzy.bolt @360mindbodysoul who supported me and thousands of others across the world during those scary times. Without Suzy and the community she created of fellow long haulers i don't think I'd be where i am today..in a blessed happy healthy place with my art and our new addition to our family. Thankyou also to all the wonderful creative friends I've made these last years for your support and encouragement 🥰 Thankyou @monica_chrys for the photograph 💖 . . . . . . #longcovidjourney #longcovid #londonartist #londonart #katehebdenbrittainart #lovewhatyoudo #storytellingthroughart #womenartists #supportartists
Hoy, 26 de marzo, por primera vez estoy feliz de celebrar mi cumpleaños. En todos mis años anteriores, sentía mucha ansiedad, angustia y solía tener un mini episodio depresivo al pensar en el pasado y en el futuro. Solía pensar que nunca era suficiente: yo no era suficiente y todo lo que hacía, todos mis esfuerzos, no eran suficientes. Entraba en pánico pensando en todo lo que me faltaba estudiar académicamente para poder llegar a "ser alguien", para poder calzar en la sociedad y para poder tener un "estatus razonable". Me culpaba por todo lo que me ocurría y me había ocurrido en el pasado. Mi mente era mi peor enemiga, mi cuerpo jamás me acompañaba y estaba totalmente desconectada de mi alma. Ha sido un larguísimo camino y resulta impactante que, a diferencia de todos los años anteriores, este año me siento en paz y agradecida de la vida. Es verdad que sigo con síntomas y sé que tengo un largo camino por recorrer, sin embargo, estoy segura de que estoy en el camino correcto. Mis síntomas han ido mejorando y creo firmemente que la mejora se basa en la auto-compasión, en la conexión con mi alma y mi propósito, en reconectar con mi instinto, en trabajar activamente en todos mis traumas y en mejorar mi autoconsciencia. Agradezco a quienes han sido parte del proceso y, sobre todo, me agradezco a mí misma por resistir, por actuar en pos de mi bienestar incluso cuando era difícil discernir y por jamás rendirme. Por primera vez, respeto y quiero mucho a la persona en la que me he convertido. No siempre fue así, ha sido duro y, por lo mismo, es mi mayor logro. Gracias, gracias, gracias 🙏🏻💖 #longcovidjourney #birthday #selflove #selfcompassion #enfermedadcronica #graciasgraciasgracias
Feeling like I am finally getting some strategies, keeping super hydrated and breaking tasks into smaller tasks that I thought I needed are really helping. Today, I am grateful for: 1. Sitting outside in the sun with my camomile tea. 2. Realising I needed to rest this afternoon and actually stopping. 3. My rest this afternoon, meaning I am more present for my kids getting home from school. 4. Drinking a pint of water before getting up. #longcovid #longcovidjourney #longcovidrecovery
Hoy siendo lunes, me animé a sacar cartitas del #OráculoDeLosArtesanosDeLaLuz, una belleza de oráculo de #AlanaFairchild, todo esto solicitando guía para mi mejor accionar para esta semana en beneficio mío y de los demás. Usé mi aceite #frankincense de #doterra para facilitar mi conexión con lo divino. Me respondió con tres bellezas: - Sabiduría de lo divino femenino: "El universo apoya tu destino divino y te está ayudando a que te conviertas en lo que estás destinado a ser". Esta carta te empodera a crecer en tu visión, sueños y el cumplimiento de tu propósito vital. Te recuerda que puedes experimentar los sueños más extraordinarios como realidad si estás dispuesto a crecer hacia lo que deseas, hacia convertirte en lo que buscas. También invita a dejar los planes de cómo manifestar mejor tus sueños y permitirle a la vida guiarte y nutrirte a través de tus experiencias cotidianas. - Niña estrella: "La luz de las estrellas existe en ti. La Tierra quiere que compartas esa luz con la humanidad". Esta carta te pide entender que estás destinado a estar aquí, que tienes un trabajo espiritual a alcanzar. Invita a dejar que la luz de las estrellas de tu ser interior brille aquí en la tierra, donde puede hacer una diferencia positiva en el mundo. Invita además a enamorarse de la belleza de la Tierra, con lo cual ésta te apoyará de todas maneras. - Limpieza kármica: "Es tiempo de que una vieja herida se libere de una vez por todas". Esta carta muestra que estas creciendo a un nivel de consciencia al cual están unidas heridas, temas y luchas particulares. Indica también que a medida que superes esa consciencia, esos temas te liberarán. Además, te transmite que se está produciendo la limpieza kármica a través de una combinación entre tus esfuerzos y la gracia espiritual desde el corazón de lo Divino. Dado que soy humana, a veces dudo si estoy en el camino correcto y si realmente puedo ayudarme y ayudar. Sin embargo, las herramientas que he ido aprendiendo me muestran una y otra vez que voy en el camino correcto. Gracias, gracias, gracias 🙏🏻💖 Un genuino abrazo lleno de luz y amor para tod@s ustedes #lightworkeroracle #lightworker #longcovidjourney #bienestarcronico
I did some painting and drawing earlier! 🎨 I’m also making some #palworld trading cards hehe just for fun! Definitely had a major crash afterwards and am resting now - while doing this, my heart rate was sitting around 125 😅 Overall, I’m just super grateful to have gotten out of bed today! 🩷 #longcovid #longcovidrecovery #longcovidtips #mylongcoviddetour #longcovidawareness #longcovidcommunity #longcovidteens #longcovidteenagers #longcovidrecoverytips #longcovidfighter #longcovidjourney #longcovidrecoveryjourney #longcovidwarrior #longhauler #chronicillness #health
Today I am thankful for: 1. Being able to get out in nature despite the rain 2. Having tried drinking electrolytes before getting out of bed, my heart so appreciated it 3. Breaking tasks up even more my @visible.health band showed what a difference this made. 4. Sticking to no sugar and switching to camomile tea, far fewer heart spikes. 5. These beautiful flowers on the gorse bush, spring is coming. #longcovid #longcovidjourney #longcovidrecovery
Spent the weekend enjoying and appreciating the simple things and even spent sometime chilling with a bee #enjoyinglife #enjoyingthemoment #enjoyingthesimplethings #appreciatingthelittlethings #summeriscoming #betterdaysarecoming #19stepsmilliebobbybrown #19steps #chillingbee #springisintheair #timetoslowdown #timetoliveslowly #longcovid #longcovidjourney
I’m going on a restful holiday with my family for 10 days later this week ✈️ so we’ve prepped my morning & night medication for 2 weeks so I don’t have to take all my boxes and bottles with me 😁 I could never keep track of what to take and when until we got these pill boxes! 💊 (I’m turning off comments for this topic tip, as I can’t give medical advice… I get mine from my private Long Covid doctor 🌟) #longcovid #longcovidrecovery #longcovidtips #mylongcoviddetour #longcovidawareness #longcovidcommunity #longcovidteens #longcovidteenagers #longcovidrecoverytips #longcovidfighter #longcovidjourney #longcovidrecoveryjourney #longcovidwarrior #longhauler #chronicillness #health
Today I am thankful for 1. My kids spotting this robin on our dog walk, we spent 5 minutes watching it 2. My heart rate being lower than yesterday after I realised the link between what I eat and what happens an hour later. 3. Being able to slowly walk slightly further today. It took more pace points but was 100% worth it. 4. Rediscovering camomile tea, it has always been relaxing for me. 5. The sunshine, what a beautiful day. #longcovid #longcovidrecovery #longcovidjourney #chronicfatigue
For the past 3 weeks, I’ve been trying an activity increase once a week Before, I’d used Saturdays & Sundays for rest with minor chores/errands. I’d occasionally do more, but was cautious about overdoing it because I didn’t want to have a post-exertional malaise (PEM) crash. I try to pace myself enough that I don’t have PEM crashes often because I can’t work or do much of anything until it passes in 1-3 days. Additionally I’d avoided any exercise, as the exertion & attempt to rebuild muscles would cause a PEM crash too But I noticed something promising after my Broadway Staycation last month. I got a hotel room in the theater district, & saw a matinee & an evening show. While in Manhattan, I was more active than I normal. I tried to minimize exertion, but it was inevitable that I’d do more than normal. I walked more, sat upright for longer, had my feet angled down because of the slope of the theater floors, & rested less. I was prepared for a PEM crash afterwards When I got home the next day, I was exhausted. Also I unexpectedly developed shin splints from my feet angling down during the shows. I rested & napped a lot for the following few days. Surprisingly I didn’t have a PEM crash as expected, even with the shin splints clearly indicating muscle overexertion And so, based on my body’s reaction to that experience, I decided to try something new. I’ve been having “Active Saturdays”, where I walk, climb stairs, and do yoga all in one day with rest in between. Then for the following few days, I rest & nap more to counterbalance Today is my 3rd Active Saturday & it seems to be going well. I finally might be at a point in my long-covid recovery where I can start to rebuild some of the strength that I’ve lost in the past 27 months There’s still a possibility this will lead to a PEM crash. Sometimes it takes awhile for the accumulation of activities to cause a crash. Those crashes can be particularly hard because of the hope of actually getting better. I’m trying not to get my hopes up too high, but it still feels promising 🤞🏻🤞🏻 I’ve been posting stories daily with my activities, accomplishments, & setbacks. Check out my daily journey in my stories! 😊
Last night was the worst crash for weeks. My resting heart rate has been a lot higher since two good days last weekend. Yesterday everything I did caused a pacing alert. Today my heart rate has come down thankfully. #longcovid #longcovidjourney #longcovidrecovery
(Clickable link in bio) I have seen quite a lot of praise for this including most recently by a parent of two young adults with ME: The Long COVID Survival Guide https://theexperimentpublishing.com/catalogs/fall-2022/long-covid-survival-guide (Clickable link in bio)
Exciting news! In January, our ambassador @oonagh_cousins started a new role as a visiting research fellow at Oxford University, collaborating with Professor Beth Greenhough and Dr Maaret Jokela-Pansini on a social science research project focusing on Long Covid. We are delighted that researchers see the value in this participatory research style, where patients are engaged as equal partners. Check out their recently launched website to learn more about this project and read Oonagh's blog post discussing the advantages of participatory research. Link in bio! #LongCovidResearch #LongCovid #longCovidRecovery #LongCovidAwareness #LongCovidSymptoms #LongCovidCommunity #LongCovidJourney
Esperando con emoción el nuevo ciclo #esencialmentetú de la @escuelandalusi que arranca con #aries, mi maravilloso signo solar y lunar. Justo me había comprado la pirámide de aries y me acaba de llegar la base que la ilumina. Nada es casualidad 🙏🏻 Gracias, gracias, gracias universo por tanta sincronicidad y por poner en mi camino a personas maravillosas. Estoy segura de que este viaje con @aromaterapiaevolutiva será fantástico, lleno de amor, compasión, autoconocimiento y de mucho crecimiento. Gracias, gracias, gracias 🙏🏻 por permitirme participar en condiciones poco habituales. Por cierto, me acompaña no solo mi pirámide, sino que mi cuadernito listo para estar dedicado a esta grandiosa aventura, mi aceite de #manzanillaromana de @doterra (gracias @esencialevolucion por ofrendarme unas gotitas para comenzar), y mis #floresdebach, específicamente #impatiens. Además, puse todo sobre una toalla de papel que me regaló una señora ayer como muestra de agradecimiento por una pequeña ayuda que le di. Insistí mucho en que no buscaba nada en retorno, me terminó invitando a su casa y finalmente le acepté la toalla porque me dijo "mire, es muy linda, tiene flores". Decidí tomar su agradecimiento con agradecimiento, así que dado que sé que está llena de amor, la puse para empaparme de esa energía tan bonita en este nuevo ciclo que deseo me acerque a mi #bienestarcronico. ¡Abrazos de amor y luz para todos! 🙏🏻💖 #longcovid #longcovidjourney #enfermedadcronica #doterra
Elle had a really great day. She talked and laughed and ate and watched tv. It was good to see her smiling! This is probably the best “day” she’s had since the beginning of February. It’s hard to believe that she’s been sick for almost two full months. A good day is what she needed. Unfortunately, nights are hard for her. She gets jittery and agitated. Once again, we’re doing what awe can to make her comfortable in the evenings so she’s able to stay calm and let herself relax. Due to the long covid, she’s developed tremors in her arms/hands/legs sometimes her whole body shakes and she just can’t stop which upsets her even more. She had an eval from pt and ot and she’ll have home health for skilled nursing in addition to OT/PT when we head home. I’m not sure when that will be, but we’re hoping it will be by the weekend. We’re also working on getting her in to the long Covid clinic and Vanderbilt. Please keep sending her your good vibes, keeping her in your prayers and sending her love, it’s working and we’re so thankful. #elle #facesoflongcovid #upsyndromelife #secondcovidhospitalization #medicallyfragile #downsyndrome #upsyndromelife #trex #burritoblanket #covidhospitalizations #longcovid #longcovidrecovery #longcovidjourney #sweetgirl #respiratorytherapy #physicaltherapy #occupationaltherapy #dvtsurvivor #covidrelatedpneumonia #pneumonia #kidneyinjury #lunginjury
Often when I’m fatigued I find it tricky to know what to do with myself. Today, me and my Mum made these tables so that at a glance I can easily pick something to do. The grid format is easier for me than trying to read a list and we’ve separated them into 3 categories of ´Home Days’, ‘Tired/Painful Days’ and ´Time With The Family’. These are now on the back of my bedroom door and it is helping me not to feel so overwhelmed or lost when I’m trying to fill my day 👍 #longcovid #longcovidrecovery #longcovidtips #mylongcoviddetour #longcovidawareness #longcovidcommunity #longcovidteens #longcovidteenagers #longcovidrecoverytips #longcovidfighter #longcovidjourney #longcovidrecoveryjourney #longcovidwarrior #longhauler #chronicillness #health
A little hello from our girl. She’s a little uncomfortable and agitated due to body aches but we’re working on making a peaceful and comfortable cocoon for her tonight. We just want her to get rest, feel peace and heal. #elle #facesoflongcovid #upsyndromelife #secondcovidhospitalization #medicallyfragile #downsyndrome #upsyndromelife #trex #burritoblanket #covidhospitalizations #longcovid #longcovidrecovery #longcovidjourney #sweetgirl #respiratorytherapy #physicaltherapy #occupationaltherapy #dvtsurvivor
In order to raise awareness about the effects of Long Covid on different parts of the body - immense ear pressure (combined with tinnitus), something I did not experience before LC, caused a rather large perforation in my right eardrum back in April 2023. For almost a year I walked around with this hole. It caused pain, extra tinnitus and hearing loss - all on a daily basis. It also caused cells to migrate into my middle ear and for the tympanic membrane to grow under the malleus (one of the hearing bones). Last week they finally operated - I had two pre op assessments during which we talked through all my LC symptoms which include of course the cardiovascular diseases, ME/CFS as well as POTS, Dysautonomia, MCAS and PTSD reaction to stress (the latter 4 now causing mild symptoms for me). The operation went as well as it could have gone regarding my LC - they used adjusted anaesthetic drugs and gave me plenty of time to recover afterwards in the hospital. They were very kind and supportive and I feel very lucky to have had this kind of support as I’m aware this isn’t always the case for LC patients. My recovery is made more bearable by being able to drink tea using my #longcovidawareness mug from @longcovid ❤️😊 #longcovid #lomgcovidawareness #longcovidsymptoms #longcovidjourney #majorsurgery #longcovidcommunity #tinnitusawareness #hearingloss #cholesteatomaawareness #tympanicmembrane
Long COVID The Long COVID, also referred to as post COVID-19 condition or post-acute sequelae of COVID-19, is a multisystemic condition that impacts at least 10% of individuals infected with the severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) and is characterised by over 200 variable systemic symptoms. The most common symptoms include chronic fatigue, cognitive dysfunction (including “brain fog”), and shortness of breath. The current prevalence of Long COVID in Australia is estimated to be between 5% and 10%. While globally, it is estimated that 30% to 80% of individuals recovering from COVID-19 may experience prolonged symptoms. Despite the substantial impact, evidence-based medical treatments for long COVID are presently limited. References: DOI: 10.1038/s41579-022-00846-2 DOI: 10.3389/fpubh.2022.937100 DOI: 10.1007/s10787-023-01194-0 DOI: 10.4103/2211-5056.354536 https://www.aihw.gov.au/reports/covid-19/long-covid-in-australia-a-review-of-the-literature/summary #LongCOVIDWarriors #COVIDSurvivor #PostCOVID #LongCOVIDJourney #HealthAwareness #ChronicFatigue #BrainFog #StayInformedStaySafe #COVIDRecovery #LongHaulers #HealthResearch #COVIDSupport #LongTermEffects #NeverGiveUp #GlobalHealth #WellnessCommunity #SpreadAwareness
@longcovidchoir and @long_covid_kids choir recent collaboration resulted in the recording of Jill Gallina’s beautiful song ‘A home within our heart’. They recorded this for #longcovidawarenessday2024. Please share this video with as many people as you can so that we keep raising awareness about #LongCovid #LongCovidKids https://www.youtube.com/watch?v=VkK-oX61Pwk #longcovidawareness #longcovidawarenessday #longcovidcommunity #postcovid19 #longcovidawarenessmonth #longcovidrecover #longcovidjourney #longcovidnederland #longcoviddeutschland #childrenawareness #covid #singing #health #choir #together #support
Feeling like I am finally starting to understand what my body is trying to tell me. Rest day today. #longcovid #longcovidjourney #longcovidrecovery
It felt so good to have a good day, still nothing near to pre covid but a step in the right direction. #longcovid #longcovidjourney #longcovidrecovery
Embracing resilience and cherishing small joys in a post-pandemic world 🧼👍🏽 - The Covid-19 pandemic has brought lasting changes to many Americans’ lives, including long-term health effects like long Covid, shifts in social interactions and trust, and a reevaluation of priorities. Personal stories highlight the enduring impact on emotional well-being, lifestyle adjustments, and societal behaviors, emphasizing a reshaped outlook on life post-pandemic. - #AdaptAndThrive #LongCovidJourney #NewPerspectives @nytimes
I’ve posted maybe once or twice about my story. But I never feel like it goes over great. But in honor of #longcovidawarenessday, I wanted to share my story of LC. This is just a very abbreviated version of my story. If you’re interested in hearing more about my symptoms, the doctors I’ve seen, etc. Then lmk in the comments, and I’ll share what I feel comfortable sharing. In the past, I’ve been questioned that this isn’t the origin of my LC, or that this means I don’t have LC at all. So I’ve kind of always felt alienated from the LC community tbh. I’ve never really known where I belong. Will the LC community accept me given I’ve never actually had a known case of C0V*D? I have always felt so afraid of talking about this. I am not anti-vax in the least! And I worry that’s how this will come across. But I am sick from this specific one. And my life has been destroyed. I am not the person I was pre-November-2021. And my future isn’t going to be what I had planned for it to be. My life now consists of fighting symptoms. Treating symptoms. Experiencing symptoms. Doing interventions for symptoms. Doing ANS regulation techniques. Doing my Dysautonomia protocol. Resting. A lot. Getting fatigued by doing barely anything. Getting symptoms from doing barely anything. I wish people took C0V*D more seriously. Maybe you’ll be lucky and be asymptomatic or it’ll be “just a cold” and you won’t develop LC. I pray that’s the case. But anybody can develop LC be it your first infection or your tenth infection and even if you have a very mild case. And LC isn’t a joke. It is a destroyer of lives. it is horrible. I’d never wish LC on anybody. . . . #longcovid #longcovidawareness #longcovidsymptoms #longcovidrecovery #longcovidresearch #longcovidcommunity #longcovidrecoverytips #longcovidtreatment #longcovidjourney #chronicillnessjourney #chronicillness #chronicillnessawareness #dysautonomia #dysautonomiaawareness #dysautonomiawarrior @longcovidsos @longcovid
Remember to take your health and LIFE seriously by taking time to heal from Covid AND ALL ILLNESS. Pressure lawmakers to fund research for a cure! Be allies to ME/CFS warriors. #longcovidrecovery #longcovidawareness #myalgicencephelomyelitis #cfs #me #postviral #longcovidsymptoms #me/CFSwarriors #longcovidresearch #longcovid19 #longcovidjourney #fundmecfsresearch #mecfs #curemecfs #brainfog #endcovid19
Today is longcovid awareness day. It's been four years now since I got covid. The initial disease was like a mild flu. I remember thinking I was lucky... But I wasn't lucky because after two weeks I was still sick. A rollercoaster of weird symptoms and fatigue started and hasn't stopped since. I learned new words like PEM and exercise intolerance. At my worst I barely had the energy to eat. I wouldn't have made it without my partner and good friends. I've had some ups and downs. I'm better than I was then but I'm still too sick to sit upright for long. #longcovidawarenessday #confrontlongcovid #notrecovered #longcovidjourney
ALLES IST ANDERS....seit 537 Tagen.... 🚁 Heute am #longcovidawarenessday 2024 sind 537 Tage meines Lebens NICHTmehr wie DAVOR! Das sind 1 Jahr, 5 Monate, 19 Tage, oder 17 Monate, 19 Tage mit anderen Worten... • 46 396 800 Sekunden • 773 280 Minuten • 12 888 Stunden • 76 Wochen und 5 Tage • 147,12% von Gemeinjahr !!! Auch nach asymptomatischen, milden und moderaten Infektionen wird bei statistisch als genesen bezeichneten Personen die Diagnose ME/CSF gestellt. Laut der klinischen Falldefinition der Weltgesundheitsorganisation (WHO) handelt es sich dabei um ein Vielzahl an Symptomen, die unterschiedliche Organe betreffen können. Neben den drei Hauptsymptomen – postvirale Fatigue (unter anderem krankhafte Erschöpfung), Atemnot und neurokognitive Störungen (Konzentrations-, Wortfindungs-, und Gedächtnisstörungen) – handelt es sich der WHO-Definition nach bei Long COVID vor allem auch um einen Krankheitszustand, der von ausgeprägter physischer und kognitiver Belastungsintoleranz (sogenannte Post-Exertionelle Malaise) gekennzeichnet ist. Menschen die unter Long COVID leiden sind oft nicht mehr in der Lage in gewohntem Umfang ihren Berufs- und Alltagstätigkeiten nachzugehen, ohne das sich ihr Gesundheitszustand dadurch langfristig verschlechtert. #millionmissing Aktuelle Studien und Erkenntnisse aus der klinischen Forschung weisen auf eine Reihe möglicher, oft wechselwirksam agierender, Ursachen für die Long COVID-Beschwerden hin: • Entzündungen • Immundysregulation • Gerinnungsstörungen • Viruspersistenz • Autonome Störungen des Nervensystems • Hormonelle Veränderungen/Störung des Stoffwechsels Aktuell wird davon ausgegangen, dass etwa 1-2% aller SARS-CoV-2-Infizierten eine schwere Form von Long COVID entwickeln, bei der nach mindestens 6 Monaten die Diagnosekriterien für Myalgische Enzephalomyelitis/Chronisches Fatigue-Syndrom (ME/CFS) erfüllt werden. #longcovidcommunity #notrecovered #longcoviddeutschland #longcovidsymptons #longcovidawareness #longcovidawarenessday2024 #longcovid #longcovidresearch #mecsf #mecsfawareness #mecsfwarrior #mecfs #longcovidmoonshot #nichtgenesen #confrontlongcovid
I was already decades into dealing with chronic illness when I caught COVID in July 2023, and my worst fears became reality. I struggled to maintain a “normal” life, but I couldn’t keep up. All of my sub-clinical syndromes related to my chronic illness flared up to a level I could no longer manage, and I’m still struggling to take care of myself, work, and have a semblance of a life. This virus disabled me, but yet my doctors brush off any mention of Long COVID. We need our doctors to recognize and treat our conditions, and we need our communities to value the lives and health of others enough to mask and take precautions. . . . #longcovid #longcovidawareness #longcovidexperience #longcovidawarenessday #longcovidadvocate #advocacy #longcovidcommunity #longcovidjourney #longcovidawarenessday2024 @longcovid @longcovidsos
Todays event… baking!! 🧁 I started off strong and managed to get as far as putting jam in the middle but crashed before I could make the icing (sorry family!) 🙈 I sat down the entire time and didn’t use the electric whisk as to not hurt my arms ❤️ A slow pace is good and it’s important not to create PEM where possible Extremely happy though as I like when I can do an activity that keeps me off my phone as on my bad days, I can end up doomscrolling the day away 😅 Did you know it’s the International Long Covid Awareness Day tomorrow? (15th March) 👀 #longcovid #longcovidrecovery #longcovidtips #mylongcoviddetour #longcovidawareness #longcovidcommunity #longcovidteens #longcovidteenagers #longcovidrecoverytips #longcovidfighter #longcovidjourney #longcovidrecoveryjourney #longcovidwarrior #longhauler #chronicillness #health
The 15th March is #longcovidawarenessday On the 2nd September 2023 I was diagnosed with long Covid, and signed off work. Since then I have been officially medically retired as I am unable to carry out even simple tasks around the house without experiencing debilitating fatigue, headaches, nausea, blurry vision, sore throat, racing heart, trouble regulating body temperature, swelling, insomnia, pain and much much more. #confrontlongcovid #millionsmissingvoice #longcovidsymptoms #longcovid #longcovidjourney #longcovidnewzealand
Another slow day, I just can’t pick up any energy at the moment! I did add these super cute #lego succulents to my collection though 🤩 #longcovid #longcovidrecovery #longcovidtips #mylongcoviddetour #longcovidawareness #longcovidcommunity #longcovidteens #longcovidteenagers #longcovidrecoverytips #longcovidfighter #longcovidjourney #longcovidrecoveryjourney #longcovidwarrior #longhauler #chronicillness #health
Être patiente. Encore. #mecfslife #longcovidjourney #epsteinbarrvirus
This says it all really. I'm sick and tired of being sick and tired. I feel like I'm always waiting to feel better or for a break in my symptoms and all that seems to happen is they get worse or something new appears 🙃 The past 3 1/2 years have been truly relentless. Some days I've held it together better than others but in the end they've all been pretty bad days. I've been backwards and forwards to so many different doctors, specialists, physios etc, had new diagnosis' , new medications, but ultimately there isn't much that can be done to improve my symptoms or quality of life at this stage which is beyond frustrating and upsetting. I've been on so many different combinations of medication which mostly haven't helped and have just left me with more side effects than they're really worth. I'm currently debating coming off 2 more of them but having to weigh up the side effects with the symptoms they're supposed to be helping. I'm also currently on 2 waiting lists which I've been on for over 7 months now. Both of which are referrals to departments I've already previously been discharged from. There's a line when it comes to chronic illness between thinking positively and being realistic about your future.
My #longcovid tip today is something my Mum thought of when she saw me playing on the Xbox one day.. Some days (like today) my arms hurt so much that I can’t do everyday things.. even eating with cutlery can be too painful. My arms ache and feel SO heavy 🥹 It’s a simple idea, but putting pillows under your arms when you’re playing means that you only have to move your fingers rather than focusing on holding the controller and keeping your arms up! So after a hard day where I’ve barely managed to get out of bed, I’m now enjoying some relaxing #minecraft time 🎮 #longcovidrecovery #longcovidtips #mylongcoviddetour #longcovidawareness #longcovidcommunity #longcovidteens #longcovidteenagers #longcovidrecoverytips #longcovidfighter #longcovidjourney #longcovidrecoveryjourney #longcovidwarrior #longhauler #chronicillness #health
Basierend auf eurem Feedback habe ich die Yogastunden für ME/CFS und Long Covid Betroffene erweitert! 🌈🤍 Ich freue mich über alle, die das Angebot testen und gemeinsam mit mir praktizieren. Selbstverständlich sind auch alle Nicht-Betroffenen willkommen, die Lust auf eine ruhige und meditative Yogapraxis haben 🙏 #YadeYoga #MECFS #LongCovidJourney“
Long covid can take a lot away. The more it takes, the more you appreciate just how much each little improvement matters. What might a 10% improvement mean to you? #longcovidawareness #longcovidrecovery #longcovid #longhaulers #covidlong #covidsurvivors #stillsickstillfighting #millionsmissing #pem #healthjourney #healingjourney #longcovidjourney
Showering used to be something I took for granted but now I can only shower when I have enough energy. Showering uses energy in 2 ways… standing up (exhausting!) AND holding my arms up and washing my hair (so tiring!) 🚿 My top tip is to buy a shower stool.. It’s really helped me! That way, although I still have to lift my arms, I don’t have to focus on standing up too! #longcovidtips #longcovid #longcovidrecovery #mylongcoviddetour #longcovidawareness #longcovidcommunity #longcovidteens #longcovidteenagers #longcovidrecoverytips #longcovidfighter #longcovidjourney #longcovidrecoveryjourney #longcovidwarrior
Today for Mother’s Day we went pottery painting @pots2go! I painted a mini pitcher to use when I make coffees ☕️🤎 such a lovely day🥰 #mothersday #longcovidwellbeing #longcovid #longcovidrecovery #mylongcoviddetour #longcovidawareness #longcovidcommunity #longcovidteens #longcovidteenagers #longcovidrecoverytips #longcovidfighter #longcovidjourney #longcovidrecoveryjourney #longcovidwarrior
I got out of bed today! Whoop whoop 🙌 My parents and I went to an independent cafe close to home and I got a peach frappe! 🧡 Absolutely exhausted afterwards but it’s good to get out where I can… it’s the little wins 😁 #longcovid #longcovidrecovery #mylongcoviddetour #longcovidawareness #longcovidcommunity #longcovidteens #longcovidteenagers #longcovidrecoverytips #longcovidfighter #longcovidjourney #longcovidrecoveryjourney #longcovidwarrior
[🔉ON for # 1] It's a Wild Little Ride... #menopause + #chronicillness = ✨(No.1) I created this video in early December 2023, in the midst of what turned out to be a🔥10 day long hot flash night sweat. 😏 A little tongue in cheek for me as I learn and grow through chronic illness (ME/CFS- Longcovid) and the Fires of Menopause. ✨(No. 2) Pause. Reset. (Frequently.) ✨(No. 3) Resolve. They say that we're not given anything that we can't handle, so - ✨(No. 4) "Bring It." Surrender to What Is. Sometimes, while I'm peeling off my soaked pajamas (after like the 4th night sweat) and I'm fumbling to find the robe- I just start laughing. Like, Holy Shit, this is INTENSE...! . 🎥 Video info (Ursula Carrie): All copyright free materials: Stock video of explosion from Pixabay, cropped to square. 2 bomb explosion sound effects from Freesound.org. 🎶MUSIC: "Si Tu Vois Ma Mere" by Sidney Bechet. GIF of Josephine Baker, converted to Mp4. . . Original Note when I posted : (It's 5:55 am and I'm blasted awake by the 4th night sweat. I'm awake - and in FULL BODY PAIN. But I HAVE to get this posted. I'M getting the rest of the post written after I pull myself together...) #nightsweat #menopausaljourney #empoweredwoman #longcovidjourney #thechange #menopausenaturally #stoprestpace #selfcompssion #healingjourney #healerhealingherself #lifeisawildride #bringit #ilovebeingawoman #sacredwoman #onemomentatatime #lifecyclesofwomen #ilikewhoimbecoming #lovingmyselfthroughtheprocess #menopauseisreal #menopauseisnotfortheweak #menopauseisnormal #menopausehumor #menopauselife #trusttheprocess #soulsjourney #thenextchapter #embracingthemysteryofillness #imexhaustedthough
One of the hard days today 😔 Sometimes it’s hard to socialise with family or even get out of bed due to the extreme levels of tiredness; this can really effect mood levels but doing just one thing can help break a sad cycle. ❤️ Realising this, I did 10 minutes of yoga this evening 👊 #longcovid #longcovidrecovery #mylongcoviddetour #longcovidawareness #longcovidcommunity #longcovidteens #longcovidteenagers #longcovidrecoverytips #longcovidfighter #longcovidjourney #longcovidrecoveryjourney #longcovidwarrior #yoga #fatigue #wellnessjourney
Today’s event… I made a @lego Tiny Plant 🪴 from their Botanical Collection as part of my wellness journey. I was told it would help calm my #vagalnerve as part of my #longcovidrecovery. Took me 45 minutes but I absolutely love it and I really enjoyed doing it 💞 #longcovid #longcovidrecovery #mylongcoviddetour #lego #legotinyplants🪴 #legobotanicalcollection #longcovidawareness #longcovidcommunity #longcovidteens #longcovidteenagers #longcovidrecoverytips #longcovidfighter #longcovidjourney #longcovidrecoveryjourney #longcovidwarrior
My first post and a little bit about me.. Thanks for following 🥰 #longcovid #longcovidrecovery #longcovidawareness #longcovidcommunity #longcovidteens #longcovidteenagers #longcovidrecoverytips #longcovidfighter #longcovidjourney #longcovidrecoveryjourney #longcovidwarrior #mylongcoviddetour
I have had a busy morning. Got up early to get the girls ready for school and to the bus! Then I came home to have a nice hot bath. I tried to refill some of my energy before going to South Campus for a swallowing assessment. This is another symptom common with Long Covid, difficulty swallowing. I had to eat some delicious barium coated foods while they assessed how my tongue, epiglottis and esophagus worked with my swallowing. Turns out I do have a bit of mild esophageal delay. My food gets stuck in the middle of my chest when I eat. Plus a bit of back-flow or reflux. It’s is only minor, so I should be able to manage it with changed eating habits and adding in a reflux medication. I will be getting another referral to an ENT though so assess my vocal chords and area since I get a hoarse voice by about 3 or 4 to see what’s up with that! But overall good and informative results. Now it’s time for another rest. To again, replenish energy before I move on to what’s next in my day. Hot coffee and a Heidi dog snuggles in my lap! I have been able to change my mindset from getting stressed about tests, to thinking about it as gathering information. Not much is known about Long Covid in our medical system. And our family Drs were not trained in this in school! So all information is new, to everyone!! I have previously gotten myself overwhelmed and worked up about “what will this appointment find? Or not find?”. With ACCEPTING my long covid diagnosis I am trying more to think of it as “what information will I learn today to help me modify things in order to move forward!”. 2024 is my year to accept where I am. To accept the changes that have transpired over the last 2 years. To form new life habits, and let go of old ones. To live a fulfilling life and pace myself so I can fit in the things I love more easily. What is the most helpful this you do everyday to help manage your chronic illness symptoms? #longcovid #longcovidawareness #longcovidrecovery #longcovidsymptoms #acceptance #chronicillnesses #longcovidjourney #shineandrise
#longcovidrecovery #longcovid #longcovidjourney
This tree, it is a better day today. 2 days of being able to walk the dog. This is 5 mins from my house and brings me joy. I love walking and used to love hiking. I will get to be able do longer walks again. I tried yoga nidra for the first time today and feel very calm. #longcovid #longcovidrecovery #longcovidjourney
I’ve completed my 24hr blood pressure monitoring! It feels weird not to have it on my right arm 😂 I’ve completed my diary of symptoms………. Documented my meal times, medications & times I went to bed & got up this morning. The monitor & diary are all safely packed away ready to return on Monday morning after my next appointment. I didn’t sleep well last night, so I’ve got my feet up & resting. Miss E & @outdoorbikerveteran have gone food shopping, so I might have a nap as I’m at work tonight😴 #nurselife #longcovidrecovery #longcovidjourney #longcovid #bloodpressuremonitoring #countryliving #countrylife #countrycottage #livingthegoodlife #freerangechooks #verysmallsmallholdingblog #personalblog #countryside #countrysideandfarmlife #smallholdingdreams #smallholdings #smallholdinguk #smallholdinglife #rurallife #ruralliving #ruralblogger #countrybloggersuk #countryblogger #smallholdingblogger #verysmallsmallholding
Amidst the challenges of Long Covid, I've discovered the profound importance of nurturing both body and soul. 💕 Despite the devastating effects it has had on my health , my usual business routine& life in general, I've realised the importance in balancing my journey with healing activities ! Look after your health & wellness and choose activities like yoga, meditation, or peaceful walks along the beach to help you unwind destress and reset. Moments of tranquility not only provide respite from the storm but also serve as anchors of hope and renewal. Here's to embracing the journey to wellness with grace and resilience. 🙏 🤍Paying it Forward🤍 @resakahnfortheloveofbeauty @resakahn @biodermalskintech @mygoleanweightloss @asteriapharmsa @asteriafinancialservices @asteriaaesthetics #resakahnfortheloveofbeauty #biodermalskintech #asteriafinancialservices #asteriapharmaceuticals #mygoleanweightloss #payingitforward #motivate #inspire #weekend #LongCovidJourney #HealingBalances
Idk about you…but long covid has never been just a minor inconvenience for me. It has been over 3 years since my original infection and I am still deeply impacted - and that is despite receiving care from the top hospitals in NYC and the surrounding areas. I’ve had to step away from my career, pause plans for starting a family, stop driving, and make countless other changes and compromises that I never dreamed would be necessary….especially not in my 30s. This doesn’t just affect me. It affects everyone in my life - my husband, parents, in-laws, siblings, friends, neighbors. I need help preparing meals, running errands, driving, cleaning the house, caring for my dog…it is incredibly humbling. While I try my best to remain strong and hopeful, I’d by lying if I said it was easy. As long covid awareness month approaches, it is my hope that everyone impacted by long covid will share their experience (if they are able). There are literally millions of us. Our stories have power. By sharing our stories, we can stop the false narrative that “covid is mild,” “it’s just a flu,” “it’s a minor inconvenience” and push for real change. ❤️🩹 Comment “YES” below if you’ve been impacted by long covid. #longcovidawareness #longcovidawarenessmonth #longcovid #longhaulers #longhaulcovid #longcovidcommunity #covidsurvivors #iacc #infectionassociatedchronicconditions #pwlc #pwme #millionsmissing #mecfs #cfs #dysautonomia #pots #mcas #invisibleillnesswarrior #medicalgaslighting #longcovidjourney #disability #chronicillness #spoonie
Reclaiming Tomorrow: Stories of Triumph Over Long Covid 😷 #LongCovidJourney #BeyondTheSymptoms #CovidSurvivorStories #ResilienceOverIllness #NavigatingLongCovid #Prime #PrimeMags #PrimeMagazine
(Clickable link in bio) ABC News (Australia): Long COVID will take your health, your wealth - then it will come for your marriage https://www.abc.net.au/news/2023-12-27/long-covid-mecfs-health-damaging-relationships-crisis/103205564 (Clickable link in bio) Article about how illnesses such as Long Covid and ME not only affect the patients, but also their partners, family and society overall. David Putrino is among those interviewed and says he wishes people understood the social impact of long COVID: “I’m talking about the workforce being diminished, the fact that people can’t think the way they used to think - we’re losing intellectual capital, we’re losing physical capital, we’re losing social capital”.