(Clickable link in bio) This is a full-page article in the Galway Advertiser this week. It followed our press release. Thanks to Marie Curran for once again telling her story. Can be read for free here: https://www.advertiser.ie/galway/article/141445/the-woman-who-refuses-to-be-beaten-by-me (Clickable link in bio) @galwayadvertiser
Yesterday I had to get my arm rechecked with my GP. He wants me to see an orthopedic doctor just to make sure it’s healing properly & that there isn’t more damage to it. So, I have an appointment on Monday with the Ortho. Got my monthly bloodwork done too. It was a busy day yesterday with two appointments. We also had to run to the Urgent Care to pick up my xray images for my Ortho appointment. I’m all set now. Today will be complete rest. Tomorrow I am going to go say goodbye to one of my aunts. She is on hospice & it’s her last days due to Cancer. Tomorrow will definitely be a hard day. Life is so cruel sometimes. I don’t understand the suffering some of us have to go through. Hug your loved ones & never forget to tell them how much they mean to you. Tomorrow isn’t guaranteed. Love you all. #mecfswarrior #interstitiallundisease #autonomicneuropathy #spoonie #youdontlooksick #myalgicencephalomyelitis #Dysautonomia #youareenough #mecfs #chronicillness #invisibledisability #invisibleillness #sjogrens
May 12 is ME/CFS Awareness Day! How are you going to educate your friends, families and followers about this condition? #mecfsfighter #mecfslife #mecfsrecovery #mecfswarrior #mecfsawareness #mecfs #chronichealthchronicles #mecfsawarenessday
Vården för ME patienter är inte bara undermåttlig den existerar inte. Har du tur har du en bra läkare på din vårdcentral som är villig att lyssna, stötta och hjälpa. Den turen har inte alla. Forskning pågår men forskning är både kostsamt och en långsam process. Med stöd kan forskning fortgå och gå framåt. Du kan genom en liten summa bidra till den viktiga forskning! Riksförbundet för ME patienter har ett forskningskonto där du kan bidra genom att swish valfri summa till 123 056 33 95 Just nu går alla penga oavkortat till svensk ME-forskning via Open Medicine Foundation (OMF) (Detta är inte något betalt samarbete, bara önskan om en bättre tillvaro med stöd av forskning). Berätta gärna om dina upplevelser i vården! #forgetmenot #mecfswarrior #meawareness #mecfs #myalgiskencefalomyelit #aktivitetsbalans #pacing
Wir stellen in den Termin-Highlights Veranstaltungen und Initiativen unserer Kooperationspartner, Mitstreiter und Freunde vor! 🤝🎉 Was Euch erwartet – auf einen Blick. 👀 Hast Du etwas, das wir teilen sollten? Dann schick es uns! 📩 Hilf uns, mehr Menschen zu erreichen. 🌍💪 Wir freuen uns wenn: 💾 Du den Beitrag abspeicherst ↗️ Du den Beitrag teilst ❤️ Du uns ein Like dalässt oder Deine Gedanken in den Kommentaren mit uns teilst. Vielen Dank, Dein Patientenstimme Team #patientenstimme #mecfs #mecfsawareness #mecfswarrior #mecfsfighter #solidarität @liegenddemo @oeg_mecfs @unitetofight2024
Empathy means acknowledging a vast horizon of context that exists beyond you. It’s a learned skill but something we’re all capable of. [ALT TXT PROVIDED] #disabilityrights #disabilityjustice #disabilityinclusion #disabilitypride #mastcellactivationsyndrome #sickandtiredofbeingsickandtired #disabledlife
#mecfs #chronicillness #mecfscommunity #myalgiskencefalomyelit #chronicfatiguesyndrome #mecfssverige #kronisktsjuk #millionsmissing #chronicfatigue #spoonielife #cfs #butyoudontlooksick #sjuk #chronicillnesswarrior #mecfswarrior #mecfsawareness #disability #sjukdom #livetmedme #me #mecfsfighter #me #mentalhealth #mecfsproblems #autoimmunedisease #spoonies #postviral #dontforgetaboutme #pem #postextertionalmalaise #canyouseemenow
NEW ON THE BLOG 👉 ’What is ME/CFS?’ My latest blog post is an essential guide to all things ME/CFS. Want to know more about the science behind this illness? The common signs and symptoms to look out for? Practical coping strategies I’ve developed after living with ME/CFS for 15 years? You’ll find answers to these questions in the new blog. Link in bio to start reading! #mecfsawareness #mecfs #chronicfatiguesyndrome #mecfswarrior #invisibleillnessawareness
Being sick has taught me not to take things for granted anymore. I miss walking in the forest, listening to the birds and just soaking up nature. #chronicpainlife #chronicpainsucks #chronicpainwarrior #chronicpainawareness #mecfsfighter #mecfslife #mecfswarrior #mecfsawareness #mecfs #chronichealthchronicles #chronicillnessproblems #chronicillnesses #chronicillnesscommunity #chronicillnesssupport #chronicillnesslife #chronicillnesswarrior #chronicillnessawareness #chronicillness
We are looking forward to Millions Missing Vancouver 2024 tomorrow! Join us at noon outside Premier David Eby's community office at 2909 W Broadway. Can't make it in person? Our livestream will start on facebook just before 12:15 pm, emceed by the amazing @wandering! Hop over to our facebook page (Millions Missing BC) to watch the livestream from home. Some important reminders: ☀️ The forecast is sunny. Bring your waterbottle, hat, and any tools you need to manage the heat. 😷 Wear a mask. We have n95's on site if you don't have your own. 🚗 The office is located on a busy street. Please bring whatever tools you need to manage sensory issues. 👩🦼 Accessible parking is outside of our control on the public street. Arrive early if possible to find a space! 🛏 We’ll be pacing our event, with lots of breaks throughout. #MECFS #MECFSAwareness #MECFSWarrior #MillionsMissing #MillionsMissingVoices #MillionsMissingVoice #LongCovid #YVR #BCPoli #CanPoli #BCHealthCare
This Sunday, May 12th, is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) International Awareness Day. Please 💙 wear blue 💙 to church this Sunday to support everyone struggling with this condition, especially Sophia Rose (17), granddaughter of Jamie and David Swink, whose Long Haul Covid has recently progressed into ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome). Please also pray for Sophia and her family as they continue to learn more about her situation and how to help her. #mecfs #mecfsawareness . . . #mecfswarrior #mecfsrecovery #mecfslife #mecfsfighter #mecfsawarenessday #mecfsawarenessmonth #chilsonhills #chilsonhillschurch #howellmi #howellmichigan #brightonmi #brightonmichigan
(Clickable link in bio) On page 47 of this week's Galway Advertiser, which anyone can read online at a clickable link in bio, there is a one-page article which followed our press release. Thanks very much to Marie Curran for telling her story. Orla Ní Chomhraí and Dr Nigel Speight are also quoted.
🔍 Fatigue ist nicht gleich Fatigue: Die 5 Typen nach dem MSFI-SF 🌟 Fatigue ist mehr als nur Müdigkeit. Es ist ein komplexes Symptom, das viele Menschen mit chronischen Erkrankungen betrifft. Der MSFI-SF (Modified Fatigue Impact Scale - Short Form) hilft uns, die verschiedenen Arten von Fatigue zu klassifizieren. Hier sind die fünf verschiedenen Arten von Fatigue, die wir unterscheiden: 1️⃣ Allgemeine Fatigue: Generelles Unwohlsein, Leistungsminderung, ausgebrannt sein. 2️⃣ Physische Fatigue: Erschöpfung, die körperliche Aktivitäten erschwert und oft zu einer reduzierten körperlichen Leistungsfähigkeit führt. 3️⃣ Mentale Fatigue: Beeinträchtigung der Konzentration, des Gedächtnisses und der Entscheidungsfähigkeit. 4️⃣ Emotionale Fatigue: Auswirkungen auf die emotionale Stabilität und das allgemeine Wohlbefinden. 5️⃣ Motivationale Fatigue oder Tatkraft: Verringerte Motivation, oft begleitet von einem Gefühl der Apathie. 🌿 Also ist Fatigue nicht gleich Fatigue! 💬 Hast du Erfahrungen mit einem dieser Fatigue-Typen? Teile deine Geschichte hier! #FatigueAwareness #ChronicIllness #MSFISF #WellnessJourney #LebenMitFatigue #longcovid #postcovid #covid #corona #covid_19 #immunsystem #immunschwäche #infektanfälligkeit #immunsystemstärken #postcovid19 #postvac #mecfs #mecfsawareness #mecfswarrior #fatigue #chronicfatigue #postexertionalmalaise #pots #potssyndrome #brainfog #dysautonomie #dysregulation #herzrasen #erschöpfung #pem
Bei wem ist die Diagnose auch gesichert? #mecfs #mecfslife #postcovid #mecfswarrior #mecfsfighter #diagnosemecfs #gesichert
I went to the Irish ME/CFS Association @irishmecfsassociation Dr Speight event in Dublin but I wouldn’t be able for all of it so just came in for the tea/coffee/water and biscuits chat part, as the talk was recorded. Here I am with Dr Speight at the end of the night.
Hey! Are you new around here? 😉 If you’ve been following us, or you’ve heard about us and you’re wondering what our Rest Repair Recover programme is all about, you can now enjoy a 2 week free trial 🤩 Our weekly timetable includes over 20 classes including Yoga Nidra, breathe, mindfulness, tea and chats with our Occupational Therapist, yoga for deep sleep, sit, stretch & snooze, and strength rebuilding. Plus, lots more! We have an amazing team of teachers who are all trauma-informed practitioners and fun to watch and learn from! The membership gets you access to all the live classes. We have people joining us from the UK, Europe, Africa, USA, Canada and Aus/NZ, so there is something for all time zones 🌍 The two week free offer will automatically be applied through our website 🙌 Head to the link in our bio to learn more and join us 🔗 #VagusNerve #VagusNerveStimulation #VagusNerveExercises #VagusNerveHealth #VagusNerveHealing #MEAwareness #ChronicIllness #MEWarrior #InvisibleIllness #AutoimmuneDisease #ChronicallyIll #ChronicIllnessAwareness #ChronicFatigueSyndrome #ButYouDontLookSick #Dysautonomia #POTS #POTSIE #EhlersDanlosSyndrome #HyperMobilitySyndrome #MECFSWarrior #YogaForCFS #BreathingForCFS #Fatigue #Fatigued #LongCovidRecovery #LongCovidAwareness #LongCovidSymptoms #SuzyBolt #SuzyBolt360MindBodySoul
~ ME-awarnessmonth ~ ”Tro på att du är hel, även när du känner dig trasig.” (Sofia Sivertsdotter) Ett av alla mantran jag tar till mig. Att hur trasig jag än känner mig så är jag ändå hel, jag är hel även om kroppen inte alltid är och känns hel 💙😔💙. Smärtan är ibland överväldigande. Många gånger har jag verkligen, VERKLIGEN, kännt mig som den osynligt sjuka som ser livet passera utanför medan jag ser på och inte orkar, kan, delta. Det gäller verkligen att ta vara på de stunder som fyller på, ger livsglädje och energi. Att skapa förutsättningar att orka ta sig vidare, att orka kämpa för att få må så bra som möjligt. Trots sjukdomen. Sjukdomen finns alltid där men jag ÄR inte sjukdom, jag är fortfarande jag. Med alla drömmar, förhoppningar, önskningar och med samma livsglädje som förut. Snälla glöm inte det, glöm inte att jag fortfarande är jag fast med mindre energi och med behov av lite anpassningar. ForgetMEnot, förgätmigej 💙Glöm oss inte, vi finns även när vi inte syns ute bland er, vi de osynligt sjuka. 💙🔋🪫🫡🫥🤕😔 #pwme #mecfs #mecfsawareness #mecfswarrior
#chronicpainawareness #chronicillness #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #painproccessing #invisibleillness #invisibledisease #constantsymptoms #constantpain #chronicillness #chronicillnesscommunity #spooniewarrior #spooniesupport #spooniecommunity #spoonillicious #sickpeopleproblems #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #painproccessing #nervepain #allodyniaawareness #allodynia #hyperalgesia #constantsymptoms #constantpain #chronicillness #chronicillnesscommunity #spooniewarrior #spooniesupport #spooniecommunity #spoonillicious #sickpeopleproblems #chronicpain #chronicpainawareness #chronicillness #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #painproccessing #nervepain #allodyniaawareness #allodynia #hyperalgesia #constantsymptoms #constantpain #chronicillness #chronicillnesscommunity #spooniewarrior #spooniesupport #spooniecommunity #spoonillicious #sickpeopleproblems #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #mecfslife #mecfswarrior #idiopathichypersomnia #colonicdysmotility
#meawarenessmonth #mecfs #mecfswarrior #mecfslife #mecfssucks #mecfsfighter #severemecfs #severemeawareness #butyoudontlooksick #forgetmenot #hembunden #sängbunden #pem #pacing #millionsmissing #spooniewarrior #spoonie #chronicpainwarrior #chronicillness #chronicfatiguesyndrome #chronicallyill
Del 2. ME och jag en personlig berättelse #forgetmenot #mecfswarrior #meawareness #mecfs #myalgiskencefalomyelit #aktivitetsbalans #pacing
Wir geben LongCovid, ME/CFS und PostVac ein Gesicht! Wir fordern die beschleunigte Zulassung von #BC007 und eine massive Ausweitung der biomedizinischen #LongCovid Forschung. #BC007Now #NichtGenesen #postcovid #postcovid19 #longcovidsymptoms #longcovidwarrior #postcovidsyndrome #treatlongcovid #fundraisingbc007mecfs #mecfs #mecfsawareness #mecfswarrior #chronicillness #chronicfatigue #chronicpain #chronicdisease #sarscov2 #covid_19 #covidpositive #health #healthcare #healthcrisis #research #niedersachsen #lohnbuchhalter
Wir geben LongCovid, ME/CFS und PostVac ein Gesicht! Wir fordern die beschleunigte Zulassung von #BC007 und eine massive Ausweitung der biomedizinischen #LongCovid Forschung. #BC007Now #NichtGenesen #postcovid #postcovid19 #longcovidsymptoms #longcovidwarrior #postcovidsyndrome #treatlongcovid #fundraisingbc007mecfs #mecfs #mecfsawareness #mecfswarrior #chronicillness #chronicfatigue #chronicpain #chronicdisease #sarscov2 #covid_19 #covidpositive #health #healthcare #healthcrisis #research #badenwürttemberg #verwaltungsleiterin
A multi-year wait, for a one year program, for a lifelong disease. We deserve more. @davidebybc - B.C. Legislature’s Select Standing Committee on Finance and Government Services has recommended investing in improving ME care for three years. Will you listen now? Join us on Friday to have your voice heard - details in the link in our bio. #MECFS #MECFSAwareness #MECFSWarrior #LongCovid #BCPoli #BCHealthCare #CanPoli #CanHealthCare #ChronicIllness #YVR
Woop woop: 5 Jahre #krebsfrei 🥳🙏🏼 Und dann noch mit dem kleinen Wunder an der Seite, an das ich lange nicht geglaubt habe und das ich mir/uns lange nicht zugetraut habe. #mecfs lässt grüßen. Aber Schritt für Schritt stehe ich plötzlich hier. Zurück im Leben. Auf der Landstraße. Wäre ich manchmal gerne (immer noch) auf der Autobahn und trauere um mein altes Ich? Lässt sich nicht immer vermeiden. Aber meistens genieße ich hier die Aussicht und den Fahrtwind. Cheers meine Lieben. 🥂 #norainnorainbow #mecfswarrior #cancersurvivor #hodgkinslymphomasurvivor #beingtranquila
Muskelfaserriss 😫😫 Wie ist das passiert? Gecrasht und gestürzt 😢😢 #muskelfaserriss #mecfscrash #crash #mecfs #mecfswarrior #mecfsfighter #mecfslife #postexertionalmalaise
From the free Irish ME/CFS Association event in Dublin yesterday. In photo is the speaker, Dr Nigel Speight with Association Chairperson, Vera Kindlon, and her daughter, Deirdre Kindlon Murphy, both of whom hosted the event. We have received some positive feedback about the event. Dr Speight was very willing to talk to people one-on-one after the talk. Similar events are occurring in the next week in Sligo, Galway, Limerick and Cork.
Cre: @_heal.with.me 'Loving that it’s a no makeup, lazy Sunday. Not so happy that it’s a dysautonomia flare day. I got my covid booster yesterday, and I got my “dysautonomia flare rash” (idk what else to call it) and I’ve been having heart palpitations all day. These symptoms are not anything new, but I have found that after vaccines, blood draws, etc my dysautonomia tends to flare up. Does anyone else have that problem?' . . . - 📸 Via @_heal.with.me - Tag someone who needs to see this💙 - ✔𝓣𝓸 𝓸𝓻𝓭𝓮𝓻 𝓸𝓻 𝓼𝓮𝓮 𝓶𝓸𝓻𝓮 𝓹𝓻𝓸𝓭𝓾𝓬𝓽𝓼,👉𝓒𝓱𝓮𝓬𝓴 𝓽𝓱𝓮 𝓛𝓘𝓝𝓚 𝓘𝓝 𝓞𝓤𝓡 𝓑𝓘𝓞👆 - - - - #dizziness #potsie #migraineawareness #chronicillnesslife #fibromialgia #mcas #chronicillness #invisibleillness #ehlersdanlos #spoonielife #fibromyalgia #wheelchairuser #dysautonomia #autonomicdysfunction #autonomicnervoussystem #chronicillnesssupport #potsproblems #chronicillnessadvocate #dysautonomiastrong #chronicmigrainewarrior #dysautonomiaproblems #potsielife #mecfswarrior #dysautonomiasymptoms #mastcellactivation #chronicillnessmemes
Hi, I've taken some time out, and am currently very low on energy, but I've managed to have some fun with placing my paintings in different room situations. This one is not actually the correct measurements, but it gives an idea how this piece could look hung on a darker wall. Dancing Inside is a mixed media acrylic collage. Actual size 24x24". This painting is currently available from @goosegreenartgallery Hopefully back to creating soon! 🥰
What frustrates you the most about being queer and disabled? I’m looking for your thoughts so I can prep some content that’s relevant to my followers! #chronicpainlife #chronicpainsucks #chronicpainwarrior #chronicpainawareness #queeranddisabled #mecfslife #mecfswarrior #mecfs #disabilitypride #disabilityinclusion #disabilitysupport #disability #chronichealthchronicles #chronicillnessproblems #chronicillnesses #chronicillnesscommunity #chronicillnesssupport #chronicillnesslife #chronicillnesswarrior #chronicillnessawareness #chronicillness #DisabilityCommunity #disabilitylife #disabilityawareness #disabledandqueer #disabledandqueer🌈
T MINUS 34 MINUTES TO MY ZOOM APPOINTMENT. I HAVE FOUND THE LINK AND NOW MUST FINISH THE FAKE OUT OF PASSABLE FOR THE DOC WITH THE POWER OF A MAKEUP REMOVER WIPE AND SOME EYEBROWS AND EYELINER PAINTED ON #chronicpainawareness #chronicillness #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #painproccessing #invisibleillness #invisibledisease #constantsymptoms #constantpain #chronicillness #chronicillnesscommunity #spooniewarrior #spooniesupport #spooniecommunity #spoonillicious #sickpeopleproblems #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #painproccessing #nervepain #allodyniaawareness #allodynia #hyperalgesia #constantsymptoms #constantpain #chronicillness #chronicillnesscommunity #spooniewarrior #spooniesupport #spooniecommunity #spoonillicious #sickpeopleproblems #chronicpain #chronicpainawareness #chronicillness #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #painproccessing #nervepain #allodyniaawareness #allodynia #hyperalgesia #constantsymptoms #constantpain #chronicillness #chronicillnesscommunity #spooniewarrior #spooniesupport #spooniecommunity #spoonillicious #sickpeopleproblems #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #mecfslife #mecfswarrior #idiopathichypersomnia #colonicdysmotility
Sick people and friends and loved ones w some expected typos ps if you're seeing it your my cup of tea #chronicpainawareness #chronicillness #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #painproccessing #invisibleillness #invisibledisease #constantsymptoms #constantpain #chronicillness #chronicillnesscommunity #spooniewarrior #spooniesupport #spooniecommunity #spoonillicious #sickpeopleproblems #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #painproccessing #nervepain #allodyniaawareness #allodynia #hyperalgesia #constantsymptoms #constantpain #chronicillness #chronicillnesscommunity #spooniewarrior #spooniesupport #spooniecommunity #spoonillicious #sickpeopleproblems #chronicpain #chronicpainawareness #chronicillness #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #painproccessing #nervepain #allodyniaawareness #allodynia #hyperalgesia #constantsymptoms #constantpain #chronicillness #chronicillnesscommunity #spooniewarrior #spooniesupport #spooniecommunity #spoonillicious #sickpeopleproblems #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #mecfslife #mecfswarrior #idiopathichypersomnia #colonicdysmotility
✨How I Feel About M.E✨ This feels like a vulnerable post for me. The inner workings of a M.E sufferer’s mind. I’m speaking for myself but I’m sure some of you can relate. When I made this I wanted to express how I feel about #myalgicencephalomyelitis and I think it’s kind of morphed into both how I feel about M.E and how M.E makes me feel. I hope this makes sense! I hate M.E it’s destroyed my life. It has killed the woman I used to be. I hate it for doing this to millions of other people too. I hate it for forcing us to try and make new lives when we did nothing wrong. This in turn makes me angry because again we did nothing wrong!! I’m scared of M.E I’m scared that now I’ve got #severeme it’s going to keep taking and taking and I’m not going to survive. I’m scared for all of us #millionsmissing I feel like it’s my punishment for past mistakes. 12 years of punishment and that’s just the start. This makes me feel lost, lost in a sea of sadness and despair. Like all of us M.E sufferers are drifting in the #chronicillness ocean desperately looking for each others light. To connect with people who understand. I am resigned to M.E I am resigned to the fact I will never get better. I am resigned to being #bedbound and #housebound but deep down I still have hope. Hope gets me through and the little things in life. Nothing is trivial. 🩵💙love and positive vibes🩵💙 #myalgicencephalomyelitisawareness #meawareness #meawarenessmonth #mecfs #mecfsawareness #mecfswarrior #mecfslife #mecfslife #chronicillnessawareness #chronicillnessandme #chronicillnessadvocate #advocate #disabled #disabledlife #disabilityawareness #disabilityadvocate #disabledisnotabadword #disabledinstagram #hiddendisability #invisibleillness #invisible #spoonie #spoonielife #spooniesupport #iammissing
I have other symptoms i didnt mention but its long enough. Had to take a ew breaks to accomplish that much so its good enough 🥄💪🫂 🧡 #centralnervoussystemdisorder #centralsensitizationsyndrome #colonicdysmotility #chronicillness #chronicpain #mecfslife #mecfssucks #mecfsawareness #mecfswarrior #mecfs #myalgicencephalomyelitis #postviralmecfs #postviral #flare #postexertionalmalaise #spooniewarrior #spoonielife #spoonie
Thanks very much to Ruth Flood for speaking to the Sligo Champion last week for this piece. She hadn’t expected to be interviewed about her own story as she had discussed it in the paper in a previous year: another person had volunteered but for reasons that probably aren’t worth dwelling on that didn’t happen. Ruth is once again hosting the Irish ME/CFS Association meeting this year in Sligo which takes place tomorrow, Thursday May 9 at 7:30 PM in the Glasshouse Hotel. After that there will be further events in Galway, Limerick & Cork in the coming week.
Sources : @chydorina (Twitter/X) https://www.healthrising.org/blog/2013/02/15/glutamate-one-more-piece-in-the-chronic-fatigue-syndrome-mecfs-puzzle-the-neuroinflammatory-series-pt-ii/ (link in bio) Potential protective roles of phytochemicals on glutamate-induced neurotoxicity: A review, by Amir R. Afshari, Sahar Fanoudi, Arezoo Rajabian, Hamid R. Sadeghnia, Hamid Mollazadeh, Azar Hosseini . . . . . . . . . #longcovid #longcovidawareness #longcovidadvocacy #longcovidrecovery #longhaulers #chronicillnessawareness #chronicpain #chronicpainwarrior #chronicillnesses #chronicfatiguesyndrome #chronicillnesses #chronic #em #me #mecfs #mecfswarrior #mecfsawareness #myalgicencephalomyelitis #disability
~ Trygghet ~ ”Bygg ett rum inuti dig där din sanning kan leva. Skapa en plats där tryggheten får rötter. Inred en vrå så varm och så vänlig att dina nästa steg vill flytta in.” ”Hjälp mig att skapa ett inre rum som är så ljust att jag inte kan undgå att bli till ett ljus i världen. Befria mig från mina små och mörka tankar. Hjälp mig att lämna det trånga och snåriga bakom mig och gör mig kreativ och pålitlig när jag bygger mitt inre slott. Ge mig vingar som lyfter så högt att jag ser mitt nästa steg tydligt och hjälp mig att lyfta det budskap som jag är här för att sprida.” (älskad VILA I DEN DU ÄR av Sofia Sivertsdotter) När jag har det tungt och kämpar med livet vilar jag i tryggheten i den inre fasta kärnan, den grundläggande trygghet jag har i mig själv, den som fått gro och växa från den lilla, lilla flickan till den kvinna jag har blivit idag. Det har inte varit en enkel resa. Det har varit uppförsbackar, omvägar, fel vägar, krockar, nedförsbacke, krascher, gråt, oro, smärta… Men jag har tagit mig tillbaka, litat på min förmåga till omstart, min styrka och förmåga att läka, anpassa, hitta vägar att komma vidare. Så när jag nu åter igen står inför en förändring så litar jag på att mitt inre rum, min inneboende trygghet, finns här för mig och leder mig rätt. 💙 Jag kommer att få veta, det jag behöver veta, när jag behöver veta det. 💙🙏🏻💙 Livet med ME/CFS 💙 #pwme #mecfs #mecfsawareness #mecfswarrior
Vad är orsaken till att man får ME? Dessvärre har forskningen inte kommit så långt att man fått klarhet i detta. Däremot finns teorier om att det är en infektion eller annan belastning som reaktiverar latent virus i kroppen. Vi hoppas forskningen går framåt så att man hittar orsak och kan börja behandla utefter det. #mecfs #myalgiskencefalomyelit #aktivitetsbalans #pacing #forgetMEnot #forgetmenot #mecfswarrior #meawareness
💜🦄 . . . #myalgischeenzephalomyelitis #nevergiveup #chronicpainwarrior #chronicillnessawareness #chronischkrank #fitnessmotivation #fitfamgermany #yogateacher #neuropathie #inked #mecfs #mecfsawareness #mecfswarrior #fit #fitnesstrainer #invisibleillness #myalgicencephalomyelitis #strongwomen #mamavonzwei #mamaleben #neuropathy
Söndagen den 12 maj uppmärksammar MillionsMissing ME-dagen med en manifestation på Sergels torg i Stockholm kl. 12.00–15.00. De ställer ut flera hundra par tomma skor med tillhörande berättelser från ME-sjuka. Världen över är det miljoner människor som saknar sina liv på grund av sjukdomen. MillionsMissing är en global kampanj, de ger en röst åt alla ME-sjuka i Sverige och kämpar för bättre vård och mer biomedicinsk forskning. #mecfs #chronicillness #mecfscommunity #myalgiskencefalomyelit #chronicfatiguesyndrome #mecfssverige #kronisktsjuk #millionsmissing #chronicfatigue #spoonielife #cfs #butyoudontlooksick #sjuk #chronicillnesswarrior #mecfswarrior #mecfsawareness #disability #sjukdom #livetmedme #me #mecfsfighter #me #mentalhealth #mecfsproblems #autoimmunedisease #spoonies #postviral #dontforgetaboutme #pem #postextertionalmalaise #canyouseemenow
The formation of microclots in COVID19 has been proposed as a possible mechanism of injury. Blood clots are formed in response to inflammatory cytokines and oxidative damage. Glutathione is the most abundant antioxidant in human cells and protects against the adverse effects of oxidation and excessive inflammation. This new study set out to determine if liposomal glutathione @readisorb could reduce microclot formation caused by COVID-19 spike protein. The researchers used peripheral blood mononuclear cells (PBMC) treated with SARS-CoV-2 spike protein. Then, they measured inflammatory cytokine levels, fibrin clot formation, oxidative stress, and intracellular glutathione levels. After adding liposomal glutathione to the cell culture, cytokine, microclot, and oxidation levels were reduced, and cellular glutathione levels increased. The results from this study suggest the use of liposomal glutathione can reduce the adverse effects of the COVID-19 spike protein. Click the link in the bio for the source: (https://www.mdpi.com/2076-3921/13/3/271) #chronicillness #chronicillnesswarrior #chronicillnessawareness #lymedisease #lyme #spoonie #spooniewarrior #spooniecommunity #lymewarrior #chroniclyme #lymestrong #lymecommunity #lymelife #mecfs #mecfswarrior #mecfsawareness #mecfsrecovery #longcovidrecovery #longcovid #longcovidsupport #POTS #dysautonomia #mcas #mastcellawareness #mastcellactivationsyndrome #mastcellactivationdisorder #mastcell #mastcellactivation
It’s time for Chipper the Chronically Ill Potato! I think a lot of us can relate to Chipper today. He’s got so much to do, and he has zero energy to get it done. Who can relate? Description: Comic consists of four frames with pictures of a badly-drawn potato. He is standing on grass with blue sky and clouds in the background. In the fourth frame, the potato has angry eyebrows. Frame 1: “It’s a beautiful day!” Frame 2: “Today I’m going to be so productive!” Frame 3: “Nothing can stop me today!!” Frame 4: “Ugh wait…no energy. Going back to bed.” If there’s a topic you’d like to see Chipper discuss, please feel free to comment or message me anytime! #chipperthechronicallyillpotato #chronicpainmemes #chronicpainlife #chronicpainsucks #chronicpainwarrior #chronicpainawareness #mecfsfighter #mecfslife #mecfsrecovery #mecfswarrior #mecfsawareness #mecfs #chronichealthchronicles #chronicillnessproblems #chronicillnesses #chronicillnesscommunity #chronicillnesshumor #chronicillnesssupport #chronicillnesslife #chronicillnessmemes #chronicillnesswarrior #chronicillnessawareness #chronicillness #DisabilityCommunity #disabilitylife
These are just SOME of my symptoms. I feel like I could have given at least double the examples that I have, but Instagram wouldn’t let me add more to this post! I feel like I’m discovering new symptoms all the time. I have regular appointments with a specialist for M.E, so I always make sure I check out any new symptoms or change in my symptoms with them. If I could magically eradicate two of the symptoms, it would have to be the fatigue and the weight gain. #chronicillness #chronicillnessawareness #chronicillnessandme #mecfs #mecfslife #mecfswarrior #mecfsawareness #mecfsfighter #spoonie #spoonielife
MCFS ENERGY ENVELOPE PUSH CRASH CYCLES THINKING AND STRING EMOTIONS BURN ENERGY EXISTING BURNS MOST OF YOUR ENERGY USE AS BMR TO KEEP BASIC FUNCTIONS SUCH AS ENERGY SUCKERS LIKE THE BRAIN AND LIVER FUNCTIONS ALL LIFE COUNTS W/MECFS NOT JUST ACTIVITY THIS IS WHY SOME SEVERE PAITIENTS HAVE THEIR INTESTINAL TRACT SHUT DOWN BC THE BODY CAN NO LONGER SUPPORT IT. PEM ETC #chronicpainawareness #chronicillness #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #painproccessing #invisibleillness #invisibledisease #constantsymptoms #constantpain #chronicillness #chronicillnesscommunity #spooniewarrior #spooniesupport #spooniecommunity #spoonillicious #sickpeopleproblems #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #painproccessing #nervepain #allodyniaawareness #allodynia #hyperalgesia #constantsymptoms #constantpain #chronicillness #chronicillnesscommunity #spooniewarrior #spooniesupport #spooniecommunity #spoonillicious #sickpeopleproblems #chronicpain #chronicpainawareness #chronicillness #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #painproccessing #nervepain #allodyniaawareness #allodynia #hyperalgesia #constantsymptoms #constantpain #chronicillness #chronicillnesscommunity #spooniewarrior #spooniesupport #spooniecommunity #spoonillicious #sickpeopleproblems #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #mecfslife #mecfswarrior #idiopathichypersomnia #colonicdysmotility
~ ... ich fühl mich heute wie lebendig begraben ... ...Willkommen in meinem Leben... ~ #chronischesfatiquesyndrom #chronischeerkrankung #chronischkrank #chronicillnessawareness #chronicillness #kämpferherz #kämpfenfürdasleben #mecfsawareness #mecfswarrior #mecfssurvivor
🤓📚 - #mecfs #mecfsawareness #mecfswarrior #cfsme #chronicillness #chronicfatiguesyndrome #chronicfatigue #fatigue #pcos #ibs #ibsdiet #ibsawareness #spoonielife #spooniewarrior #spooniecommunity #chronicpain #postextertionalmalaise #utmattelse #utmattningssyndrom #kroniskesmerter #ibs #utmattelse #utmattelsessyndrom #ibsflare #ibsflareup #postexertionalmalaise #anstrengelsesutløstforverring #mentalhealth #brainfogsucks
We're on a mission to transform the lives of individuals grappling with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long COVID, post-viral illness, and the many co-existing conditions. Here's why your support matters: 1. Clinical and Research Advancements: Your contribution fuels our multidisciplinary team's efforts to provide cutting-edge clinical care while simultaneously advancing vital research initiatives. By supporting us, you're directly impacting the development of evidence-informed, precision medicine that can significantly improve outcomes for patients worldwide. 2. Outreach and Education: We're a beacon of knowledge and support for patients, caregivers, and healthcare professionals. Your donations enable us to expand our outreach efforts, recruit top clinicians and researchers, and develop educational resources that empower both patients and professionals in medicine with the latest insights and strategies. 3. Community Support: Many individuals affected by ME/CFS and related conditions face significant barriers to accessing quality, informed care. Your generosity helps us to support community-based physicians through consultative and educational efforts, ensuring that patients receive the care they need close to home. We hope you can join us online for our May outreach events. We strive to foster an inclusive and accepting environment for all. https://batemanhornecenter.org/events/ #MECFSAwareness #MyalgicEncephalomyelitis #OnlineCommunity #ChronicIllnessSucks #pwME #LongCovid #CovidRecovery #MECFS #SupportGroup #Fatigue #ChronicFatigue #AutoImmune #ChronicIllness #MedicalEducation #POTS #ThinkingOfYou #Disability #Exhausted #SickAndTired #mecfswarrior #QualityofLife #Healthcare #VirtualEvent #LCSW #Lyme #FibromyalgiaPain #PostCOVIDME Event reminders, including registration links, are sent by email the day prior to each event. If you know of friends, colleagues, or patients who might benefit from our resources and/or support groups, we appreciate your efforts in connecting us.
#chronicpainawareness #chronicillness #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #painproccessing #invisibleillness #invisibledisease #constantsymptoms #constantpain #chronicillness #chronicillnesscommunity #spooniewarrior #spooniesupport #spooniecommunity #spoonillicious #sickpeopleproblems #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #painproccessing #nervepain #allodyniaawareness #allodynia #hyperalgesia #constantsymptoms #constantpain #chronicillness #chronicillnesscommunity #spooniewarrior #spooniesupport #spooniecommunity #spoonillicious #sickpeopleproblems #chronicpain #chronicpainawareness #chronicillness #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #painproccessing #nervepain #allodyniaawareness #allodynia #hyperalgesia #constantsymptoms #constantpain #chronicillness #chronicillnesscommunity #spooniewarrior #spooniesupport #spooniecommunity #spoonillicious #sickpeopleproblems #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #mecfslife #mecfswarrior #idiopathichypersomnia #colonicdysmotility
Ugh #chronicpainawareness #chronicillness #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #painproccessing #invisibleillness #invisibledisease #constantsymptoms #constantpain #chronicillness #chronicillnesscommunity #spooniewarrior #spooniesupport #spooniecommunity #spoonillicious #sickpeopleproblems #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #painproccessing #nervepain #allodyniaawareness #allodynia #hyperalgesia #constantsymptoms #constantpain #chronicillness #chronicillnesscommunity #spooniewarrior #spooniesupport #spooniecommunity #spoonillicious #sickpeopleproblems #chronicpain #chronicpainawareness #chronicillness #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #painproccessing #nervepain #allodyniaawareness #allodynia #hyperalgesia #constantsymptoms #constantpain #chronicillness #chronicillnesscommunity #spooniewarrior #spooniesupport #spooniecommunity #spoonillicious #sickpeopleproblems #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #mecfslife #mecfswarrior #idiopathichypersomnia #colonicdysmotility
I'm kicking off May with something that impacts every aspect of our lives: mental health. May is Mental Health Awareness Month. For those living with a chronic disability like ME/CFS or long COVID, our mental health can be dramatically impacted if we’re not actively caring for ourselves. Here are 4 strategies to put your mental health first while managing your condition: 1️⃣ SELF-COMPASSION: Do you find yourself in a shame spiral some days, when you’re too fatigued to get out of bed or accomplish what you’d like to? Be kind to yourself and acknowledge your unique challenges. Remember. Each day is a new roll of the dice, so you can't fully prepare. It's okay not to be okay. 2️⃣ FIND AN ADVOCATE: You can’t walk this journey alone. Find advocates to surround yourself with who understand your challenges and can offer emotional support. These can be family members, friends, or even healthcare providers. You don’t need many, just a few. 3️⃣ BOUNDARIES: This is a hard one for many of us. Learn to say no to commitments or activities you know will drain your energy or exacerbate your symptoms. Prioritize activities that nourish your soul. It’s not selfish, and you’ll be grateful you did. 4️⃣ PASSIONS & INTERESTS: Don’t underestimate the power of having personal passions and fun hobbies when it comes to mental health. Any activity you love will promote your sense of motivation and creativity, from gentle yoga to reading, gardening, painting, or listening to new music. Your mental health matters. Reach out for support when you need it, and remember to be gentle with yourself. 🫂 #MentalHealthAwarenessMonth #ChronicIllnessAwareness #SelfCare #mecfswarrior #invisibleillnessawareness
2 reshare from @inspirelife86 ,the only motivation inspiration I can tolerate tuning into anymore 😆 lol #chronicpainawareness #chronicillness #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #painproccessing #invisibleillness #invisibledisease #constantsymptoms #constantpain #chronicillness #chronicillnesscommunity #spooniewarrior #spooniesupport #spooniecommunity #spoonillicious #sickpeopleproblems #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #painproccessing #nervepain #allodyniaawareness #allodynia #hyperalgesia #constantsymptoms #constantpain #chronicillness #chronicillnesscommunity #spooniewarrior #spooniesupport #spooniecommunity #spoonillicious #sickpeopleproblems #chronicpain #chronicpainawareness #chronicillness #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #painproccessing #nervepain #allodyniaawareness #allodynia #hyperalgesia #constantsymptoms #constantpain #chronicillness #chronicillnesscommunity #spooniewarrior #spooniesupport #spooniecommunity #spoonillicious #sickpeopleproblems #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #mecfslife #mecfswarrior #idiopathichypersomnia #colonicdysmotility
Resharing @oh_chronicpain #chronicpainawareness #chronicillness #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #painproccessing #invisibleillness #invisibledisease #constantsymptoms #constantpain #chronicillness #chronicillnesscommunity #spooniewarrior #spooniesupport #spooniecommunity #spoonillicious #sickpeopleproblems #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #painproccessing #nervepain #allodyniaawareness #allodynia #hyperalgesia #constantsymptoms #constantpain #chronicillness #chronicillnesscommunity #spooniewarrior #spooniesupport #spooniecommunity #spoonillicious #sickpeopleproblems #chronicpain #chronicpainawareness #chronicillness #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #painproccessing #nervepain #allodyniaawareness #allodynia #hyperalgesia #constantsymptoms #constantpain #chronicillness #chronicillnesscommunity #spooniewarrior #spooniesupport #spooniecommunity #spoonillicious #sickpeopleproblems #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #mecfslife #mecfswarrior #idiopathichypersomnia #colonicdysmotility
🌟 Entdecke die Möglichkeiten von Künstlicher Intelligenz (KI) bei Long-COVID, Post-Vaccine-Syndrom und ME/CFS! 🌐 📊 KI-Technologie revolutioniert die medizinische Forschung und Behandlung dieser komplexen Erkrankungen. Durch die Analyse großer Datenmengen kann KI Muster erkennen, die für menschliche Forscher nicht offensichtlich sind, und so zur Entwicklung personalisierter Behandlungspläne beitragen. 💡 KI hilft dir auch persönlich dabei, mit deiner Alltagsbelastung besser zurecht zu kommen. Du kannst z.B. Hilfsmittel wie DeepL, ChatGPT oder GoogleDocs um die das Leben einfacher zu machen. Wie du diese Anwenden kannst erfährst du in meinem Blogbeitrag auf meiner Webseite (über mein Profil). 🔍 Bleibt dran für mehr Updates und teilt Eure Gedanken und Erfahrungen mit uns! #LongCOVID #MECFS #KünstlicheIntelligenz #MedizinischeForschung #GesundheitInnovation #longcovid #postcovid #covid #corona #covid_19 #immunsystem #immunschwäche #infektanfälligkeit #immunsystemstärken #postcovid19 #postvac #mecfs #mecfsawareness #mecfswarrior #fatigue #chronicfatigue #postexertionalmalaise #pots #potssyndrome #brainfog #dysautonomie #dysregulation #herzrasen #erschöpfung #pem
New shoe day! Hopefully these will keep me upright on the lakeland trails and North York Moors slabs and stones. Gutted to miss the demo night at Lets Run on Friday but looking forward to getting over on the lakeland trails to try them out later this week #picoftheday #inov8 #trailrunning #trailrunnersofinstagram #takemetothetrails #ultratraining #lakeland50 #lakeland50training #hardmoors #bestrongerthanyesterday #mecfswarrior #thescottgirlhasturned #letsrun #bemoreshelli
Hello @chronicmarketplace fam! I’ve picked up a fair number of new followers in the past months so thought it would be good to do a “who am I and what the heck is the chronic marketplace” post. About me: Im 51 going on 5, and going on 20 years with mild ME/CFS I developed while traveling Europe with a mild virus of some sort. I was training for the Boston Marathon and an amateur boxing match, still able to train in the cold in Amsterdam despite having a bug, but had a stressful moment trying to get to the Paris airport and almost missed my plane. In that very moment it all shifted - body hijacked by this disease (though in the early days I did experience some periods of remission before a relapse I never bounced back from). I haven’t been able to exercise in well over a decade and even too long a walk can send me down the hole but for the most part, I am spared all the worst parts of this disease. I can still work a full-time job (helping sell recycled human poop fertilizer!!) and manage several side hustles, including freelance writing (aprilwrites.com is my website) and teaching foraging workshops, in addition to lots of travel, light touch gardening, art making and so much more. I live alone with my mushroom-loving wonderkitty Ninjette in Washington DC. @prillytee is my personal account and features lots of food/nature/travel/cat pics. I started the chronic market about four years ago to do several things - raise awareness for this crazy misunderstood and underfunded condition, bring people in our community together, help creatives with ME/CFS sell their creations, and celebrate our talents and achievements. We have people all over the world participating in different initiatives, some that are one off and some that are ongoing. Some ways anyone can get involved: -chronic card project for people with chronic illness. Somewhere around 250 art cards have been made for patients suffering from all sorts of conditions all over the world. You can sign up to make or receive one through the links in my bio. Yikes - too long a caption, will continue in comments!
B12 injektioner Spruta nr 27 👍🏻 Är oerhört tacksam över att sambon är sjuksköterska och kan ge mig dessa (i skinkan). Vore så jobbigt och krångligt att ta sig till vårdcentralen varje vecka... Hur gör ni? #mecfssweden #mecfs #mecfswarrior #mecfsrecovery #mecfsfighter #mecfsproblems #mecfslife #mecfssucks #mecfsawareness #b12 #b12injektion #b12injections
Danke an @nichtgenesen das ihr diese Aufklärung betreibt 😘 #mecfs #mecfswarrior #mecfsfighter #mecfslife #postexertionalmalaise #nichtgenesen
Ich möchte hier erneut ein Blog-Artikel vorstellen, der bereits über 1000 mal gelesen wurde und ich daher denke, dass er auf großes Interesse gestoßen ist: "Nikotinpflaster als potentielle Therapie bei Long-COVID" 🚀 Nikotinpflaster werden zunehmend als potenzielle Therapie für die anhaltenden Auswirkungen von Long-COVID betrachtet. Obwohl Nikotin traditionell für seine suchterzeugenden Eigenschaften beim Rauchen bekannt ist, bietet seine hohe Affinität zu nikotinergen Acetylcholinrezeptoren einen neuen Ansatz zur Linderung von Symptomen. 🧠 🔍 Rolle des Nikotins im Körper: Nikotin stimuliert die Freisetzung von Neurotransmittern, verbessert die Stimmung und Aufmerksamkeit und könnte Entzündungen reduzieren - Schlüsselfaktoren bei der Behandlung von Long-COVID-Symptomen wie "Brain Fog" und Erschöpfung. 🩹 Wie funktionieren Nikotinpflaster? Nikotinpflaster liefern eine kontrollierte Menge Nikotin, ohne die schädlichen Effekte des Rauchens. Sie zielen auf nikotinerge Rezeptoren im Gehirn ab und können kognitive Funktionen und Stimmung verbessern. 👨⚕️👩⚕️ Konsultiere jedoch vor Beginn einer neuen Behandlung, besonders einer so unkonventionellen wie Nikotinpflaster, einen Gesundheitsdienstleister, um sicherzustellen, dass sie für Ihre spezifischen Gesundheitsbedingungen geeignet ist. #covid #corona #covid_19 #immunsystem #immunschwäche #infektanfälligkeit #immunsystemstärken #postcovid19 #postvac #mecfs #mecfsawareness #mecfswarrior #fatigue #chronicfatigue #postexertionalmalaise #pots #potssyndrome #brainfog #dysautonomie #dysregulation #herzrasen #erschöpfung #pem
For me it’s a nice balance to pour candles, create scents with oils and add appropriate plants/herbs. 💜 Handmade vanilla candles {with lavender - amethyst} ——————————— Für mich gerade ein schöner Ausgleich, Kerzen zu gießen, mit Ölen Düfte herzustellen und entsprechende Pflanzen/Kräuter hinzuzufügen. 💜 💟🕯️ 💟🕯️ Handgemachte Vanillekerzen {mit Lavendel - Amethyst} * Amethyst: Der Stein ist dafür bekannt, negative Energie zu absorbieren und in positive umzuwandeln. Er kann dazu beitragen, Stress abzubauen und Ängste zu lindern. Dabei unterstützt der Amethyst auch die geistige Klarheit und kann bei der Meditation helfen. * Lavendel: Lavendel steht für Ruhe und Ausgeglichenheit, aber auch für Eleganz #candles #handmade #handmadecandles #lavender #candlemaking #candlelover #wicca #witchesofinstagram #kerzen #kerzenherstellen #amethyste #amethystcrystals #chronicillness #mecfs #myalgischeenzephalomyelitis #polyneuropathy #chronischkrank #chronischeschmerzen #mecfswarrior #handmadecrafts #candlemagic
#meawarenessmonth #mecfs #mecfsawareness #mecfswarrior #mecfsrecovery #mecfslife #mecfssucks #pem #pacing #millionsmissing #myalgiskencefalomyelitt #myalgicencephalomyelitisawareness #severemecfs #severemecfsawareness #butyoudontlooksick #spoonielife🥄 #canyouseemenow #postexertionalmalaise
It’s alright to grieve the person you were before you got sick…how you feel is valid, and will continue to be valid even if that feeling of grief never goes away. #grief #griefjourney #griefsupport #griefquotes #griefandloss #griefawareness #griefsucks #grieving #GrievingProcess #chronicpainlife #chronicpainsucks #chronicpainwarrior #chronicpainawareness #mecfsfighter #mecfslife #mecfswarrior #mecfsrecovery #mecfsawareness #mecfs #chronichealthchronicles #chronicillnessproblems #chronicillnesses #chronicillnesscommunity #chronicillnesssupport #chronicillnesslife #chronicillnesswarrior #chronicillnessawareness #chronicillness
#mecfs #chronicillness #mecfscommunity #myalgiskencefalomyelit #chronicfatiguesyndrome #mecfssverige #kronisktsjuk #millionsmissing #chronicfatigue #spoonielife #cfs #butyoudontlooksick #sjuk #chronicillnesswarrior #mecfswarrior #mecfsawareness #disability #sjukdom #livetmedme #me #mecfsfighter #me #mentalhealth #mecfsproblems #autoimmunedisease #spoonies #postviral #dontforgetaboutme #pem #postextertionalmalaise #canyouseemenow
Wir geben LongCovid, ME/CFS und PostVac ein Gesicht! Wir fordern die beschleunigte Zulassung von #BC007 und eine massive Ausweitung der biomedizinischen #LongCovid Forschung. #BC007Now #NichtGenesen #postcovid #postcovid19 #longcovidsymptoms #longcovidwarrior #postcovidsyndrome #treatlongcovid #fundraisingbc007mecfs #mecfs #mecfsawareness #mecfswarrior #chronicillness #chronicfatigue #chronicpain #chronicdisease #sarscov2 #covid_19 #covidpositive #health #healthcare #healthcrisis #research #berlin #unternehmensberaterin
Trying to ease into a slower mindset about all things, before i got sick i used to run. I had also just startet to learn how to snowboard 💔 Might purchase a paddle board (SUP) this summer 🤫 #mecfs #mecfsawareness #mecfswarrior #cfsme #chronicillness #chronicfatiguesyndrome #chronicfatigue #fatigue #pcos #ibs #ibsdiet #ibsawareness #spoonielife #spooniewarrior #spooniecommunity #chronicpain #postextertionalmalaise #utmattelse #utmattningssyndrom #kroniskesmerter #ibs #utmattelse #utmattelsessyndrom #ibsflare #ibsflareup #postexertionalmalaise #anstrengelsesutløstforverring #mentalhealth #brainfogsucks