Thank you for all the messages checking up on me. Unfortunately I have not been very well on my new chemo and pretty much been in bed since I took them. Yesterday was the worse day as I couldn’t eat anything and if I drank water I threw it up. I literally spent the day in bed not moving as I felt so rough. My husband never takes photos without me asking but took this one of me and my little side kick sleeping next to me 🐶. My son came up to see me on Saturday concerned why I was sleeping all the time so I made an effort to get up today. Definitely feeling a lot better but still not 100%. Everything tastes horrible again like on iv chemo so what I did eat today I didn’t really enjoy except for asparagus 🤷🏼♀️. We did manage to have a family film tonight which I always love 🥰 . I am really hoping this is not going to be like this every week as it is horrible feeling so ill again. I missed out on going out with the rugby mums on Friday and also had been looking forward to going to a friend’s BBQ today. It really annoys me that I am fighting to stay alive but then can’t go and do things. Hoping tomorrow I improve even more as I really want to take my son on a date to the cinema. #incurablecancer #metasticbreastcancer #livingwithcancer #chemosucks #stage4breastcancerfighter #frenchie
I had a grand mal seizure last Sunday. I’ve not had one for over 2 years.No warning, no missed medication, no werid feeling prior. I didn’t even realise what was happening to me until i was unconscious. Luckily Danny was there. I got scanned the day after and got my results on Friday. I wasn’t expecting good results but they weren’t as bad as they could be. My tumour has activity again which means radiotherapy only worked for a few months but i was warned that it was a short term solution. We all just thought we’d have more time. I still have options though,it’s back to chemotherapy for me. I still made it to my birthday holiday and despite everything i had an amazing time! Even though I spent a lot of it recovering in bed,I still made some great memories with Sienna and my family. I took her to 1st ballet lesson ,watched her run around playing, found out she has a 2p machine addiction and took her the kids disco every night. It was my birthday yesterday. I had a great day and got spoilt rotten. Its funny because I used cry on my birthdays cause it meant I was getting older and I didn’t want that. Yesterday I cried because i realised I do actually want to get old and I’m never going to now. Funny how the universe has ways of teaching you things.
I should have got my new chemo tablets on Friday but the doctor didn’t do the paperwork so on Monday my husband spoke to my oncologist and got it signed up. I had hoped it would be ready on Monday afternoon to collect but it wasn’t. We called on Tuesday and I was told it was being processed. Yesterday me and my husband spent most of the day being given wrong information until eventually I got the chemo tablets which I didn’t take till 6pm. I cried when I took them. I really tried to have hope that the last treatment would work and it did nothing. It’s hard to have optimism that these will be the ones to shrink my tumours, but god I hope they do. It will be another 3 months of worrying and checking my tumours, but also making as many memories as possible. I had the worst nights sleep. In pain, diarrhoea and the constant feeling of being sick. Today I haven’t felt any better and feel lightheaded on top. The symptoms are definitely more in line with iv chemo. Just wondering how long they will last for. I am also back to the hospital for weekly blood tests. It’s horrible to back feeling this ill again. I am hoping my body gets used to the new treatment. I also spoke to GP yesterday about my anxiety that is really p*ssing me off. I never thought I would ever suffer with anything like this and it frustrates and makes me angry. The GP has put me on Sertraline as even though I am not depressed they work really well for anxiety. So as well as feeling poorly from chemo I started these today. By the way I am not looking like this today as I haven’t managed to leave my bed! #hope #chemotablets #cancersucks #sertraline #anxiety #incurablecancer #breastcancerfighter
The face of a pissed off pony 🤣 I refuse to let him beat us.... Yesterday he broke the £45 @thinlineeurope Flexible Filly headcollar within an hour. The @shires_equestrian one he got off but with some adjustment he started to keep it on, he keeps managing to flip it under his chin now though, and it also rubs. I've tried a different bucket type one which he gets off by using his back leg to scratch the velcro🤦♀️. I can't afford to keep buying new ones to try and watch fail! I so wish he'd understand it's for his own good and if he keeps breaking/getting them off he's going to be stuck in the barn/school just eating old hay! I spent some time in the field today watching him with both of these muzzles on. I do really like the Flexible Filly design, it's so much lighter and more airy. He can eat and drink fine in it (just not as much as he'd like...)! I'm hoping not all is lost of the £45....thanks to the ingenuity of a few people he's now got a Thinline / @lemieuxproductsofficial mash up headcollar held on one side with a cable tie in the hope it'll keep it field safe but not break so easily! Hoping it will hold enough. The original headcollar strap snapped far too easily, clever Dartmoor ponies are very persistent and have many skills to remove and break these things!! There's such a fine balance between field safe and being too easily removable/breakable! My next trick will be putting a fly mask on top for extra protection from his antics! If that fails the rather expensive Greenguard may be the next and final option. I used one of those before with great success, but that was with a mare who didn't try to escape it! If any brands need to test out a muzzle Tigger's your pony to really put it through its paces 🤣 I've got enough stress trying to stay alive myself, without trying to convince my pony not to eat himself to death! #dartmoorhillpony #ponies #grazingmuzzle #grazingmuzzles #livingwithcancer #incurablecancer #Devon
Tomorrow, our May online get together for anyone aged 20-49 around the UK, to connect with others who get what it's like having had a cancer diagnosis. For anyone who heard those words "You have cancer", at any stage - recently diagnosed, going through treatment or getting life back on track after. We make sure no one is alone🧡 #ShineTalksMentalWellbeing Let us know you'll be there (find the link in our bio) ✨ ✨ ✨ #cancersupport #youngadultcancer #cancer #lifewithcancer #livewellwithcancer #livingwithcancer #cancerreality #cancerawareness #incurablecancer #cancercommunity #together #shinecancersupport #noonealone #livingwithandbeyondcancer #lifeafercancer
🩸𝐁𝐨𝐧𝐞 𝐌𝐚𝐫𝐫𝐨𝐰 𝐁𝐢𝐨𝐩𝐬𝐲🩸 A bone marrow biopsy involves removing a small sample of the bone marrow inside your bones for testing. Bone marrow is a soft tissue in the centre of most large bones. It makes most of the body's blood cells. The biopsy is done using a small needle inserted into the bone. The bone marrow tissue is removed and then sent to a lab and checked under a microscope. Swipe across to see more Pic 1 Anatomy of Bone Pic 2 Illustrustration of process Pic 3 Tools used to obtain marrow Pic 4 Bone Marrow Sample #cancerjoinedourfamily #cancerawareness #multiplemyelomaawareness #incurablecancer #bonemarrowbiopsy #livingwithcancer #supportresearch #hopingforacure #bonemarrow #myeloma #nonsecretarymyeloma #bloodcancer
YouTube video Saturday 18th May Ride Out! https://youtu.be/1RY_Mf6RaCk 💚🤘🥃 #lymphoma #nonhodgkinlymphoma #nonhodgkinfollicularlymphoma #cancerfighter #incurablecancer #letsprovethatwrong #positivity #cancer #chronicdisease #bloodcancer #HD #biker #harley #custom #harleydavidson #chopper #ftw #nighttrain #success #motivate #lifestyle #yougotthis #blog #lymphomawarrior
💙 HOW WE HELP: SUPPORT LIBRARY 💙 Our online Support Library is full of blogs, articles, and short reads that dive into the lived experience of a cancer diagnosis in or around cancer. ⭐Link in bio. Topics include: Emotional Support Financial Support Real Life Stories Practical Support Incurable Cancer End Of Life Support and more... #cancer #cancerandpregnancy #cancerresources #cancersupport #pregnancy #parentingandcancer #livingwithcancer #incurablecancer #secondarycancer
A massive thank you to @soapbox_childrens_theatre for putting on such an amazing festival! We had so much fun today doing all the things Grace loves! Potion making, wand making, music, circus skills, fairies, goblins, maypole dancing and so much more. The weather was amazing. Today was a special mummy/daughter day for the memories. Sadly we had to leave after only a few songs by @maddogmcrea , we'll have to find another gig soon! I never take days like today for granted, the fact I could take Grace by myself on the train feels like a miracle when I think back to where I was a year ago! I very much plan to still be alive to take her again next year! #fairyfestival #Devon #parentingwithcancer #makingmemories #findingthejoy #glimmers #livingwithcancer #incurablecancer #metastaticcancer
"Shine’s Break Out Programme came along at the right time for me – I found out that I had relapsed and was feeling like I did at diagnosis once again: anxious, uncertain, alone. I felt I was in need of support and direction from people who would understand and empathise with my experiences." #ShineTalksMentalWellbeing Shine's programmes of support are designed to connect you with others who know what cancer's like at a younger age, to provide you with ways to help you cope with it's impact on your life. Find the link to read Sarah’s experience in our bio ✨ #cancersupport #youngadultcancer #cancer #lifewithcancer #livewellwithcancer #livingwithcancer #cancerreality #cancerawareness #incurablecancer #cancercommunity #together #shinecancersupport #noonealone #livingwithandbeyondcancer #lifeafercancer
🩸Non Secretory Myeloma🩸 Think of this as a toxic relation of Myeloma that goes around causing havoc and damage silently and secretly, and it’s damage only coming to light too late. To give context on how rare Michaels "𝐧𝐞𝐰" diagnosis is. Approximately 42,000 people every year are diagnosed with cancer in Ireland. 380 (less than 1%) of those people are told their cancer is Multiple Myeloma, and 1% of those people (3 - 4 people) are told they have Non secretory Myeloma. Non secretory Myeloma, is only detected and monitored by PET scan (radioactive scans) and Bone Marrow Biopsies, both of which are difficult to put patients through at regular intervals. For Michael, it is unfortunate that his SCT (Stem Cell Transplant) only gave him 2 years and not the 5 to 8 years we had hoped for. 😔 The disappointment is immense, especially as Michael has been on a very intense maintenance regime for the last two years, daily concoction of pills, monthly blood tests, appointments, scans, and variety of IVs. Myeloma is sneaky, it mutates, it becomes resistant to treatment, it reacts differently for every single patient, leaving it a difficult cancer to treat and 𝐜𝐮𝐫𝐞. Please support cancer research, a wonderful charity making great strides for all cancers with poor prognosis is Breakthrough Cancer Research. This year I am not going to jump out of a plane or shave my head. BUT since last January I have been offering holistic treatments to the public and a % of the proceeds are being collected to donate to two cancer related charities at the end of the year, @breakthroughcancerresearch and @cancersupportsanctuarylarcc Also with my clients' loyalty I #payitforward, whereby they can nominate a friend or family member in need of a little TLC for a 𝐅𝐑𝐄𝐄 treatment. If you can support the cause, please do. Have one of your self-care treatments with me, self-care that can help others. DM @align.heal.grow_ #cancerjoinedmyfamily #livingwellwithcancer #togetherwecanmakeadifference #supportresearch #cancerresearch #cancerawareness #multiplemyelomaresearch #myelomawarriors #nonsecretarymyeloma #incurablecancer
Treatment 65 today and on the eve of what would be my daughter’s 13th birthday, I am feeling crushed 🥺 for one: There are 3 days I love & hate - Mothers Day - Valentina’s birthday - Valentina’s death day Each year I am reminded of you and feel pure love whilst at the same time feeling intense sadness you are not here😥 Secondly, one of the most inspiring, determined and courageous women I know who has been fighting cancer since I first met her on an Augustine Cancer Survivor photoshoot a few years ago, has just been told today to prepare for end of life and I am absolutely devastated for her, although I know if anyone can beat it, she can 🙏🏼💔 As always though, I try to kept a smile on my face while here at least (even if I feel like crumbling inside) for not only other patients around me but for others following my story who are struggling in their own journeys. As my hope, is just like my brave Augustine friend who even in her darkest hour is determined to remain positive and prove everyone wrong , that I can continue to bring a little bit of light and positivity to their day and that they feel buoyed in spite of what they might be going through.❤️❤️❤️ #valentinagrace #lifeisprecious #incurablecancer #hope #love #livefortoday #lifestooshort #mycancerjourney #grateful #cancerwarrior #fightingcancer #makingmemories #happiness #family #humble #immunotherapy #radiationtherapy #grief #griefjourney #mum #keepingstrongformydaughters
🩸𝐃𝐚𝐲 +𝟖𝟐𝟎🩸 The clock resets, and a new challenge begins. Life with Myeloma. Ever moving goalposts. #Day+820 #cancerjoinedmyfamily #incurablecancer #multiplemyelomaawareness #stemcelltransplant #bloodcancerawareness #supportawareness # #supportresearch #nonsecretarymyeloma #livingwithcancer
When I was diagnosed If I’m honest I thought, that’s the end of the gym. Everything i’ve worked so hard to achieve in my fitness over the previous 5 years, stabilising my mental health, working on my physical health ‘looking good’ would all be lost. 😞 But that’s not the case, whenever I visit the gym there’s always a friendly face, a smile, a hug a reminder that I still belong. Never did I imagine that the gym and many of the members I had got to know and love would rally around to hold raffles, raise money for my family and hold charity fundraising events. Our local @anytimefitness_sia held a MacMillan fundraising event for members on Friday last week where we raised £1100 for @macmillancancer whilst having a family night out! Never did I imagine that the gym community would do something amazing for a charity so close to my heart. @cazzachini_81 did an amazing job of organising the event that even the kids could attend. We played a quiz, played bingo, had some games but most importantly connected as a gym in aid of a fabulous cause! #gym #fitness #community #secondarybreastcancer #incurablecancer
16.4.23 PET scan was great. The new treatment is working hard and there is barely any cancer showing. The main thing showing was my nose all full of cold 👍🏻The sciatic pain could be caused by the cancer in the spinal fluid but everything else is getting better so we can just wait and see. It could also be caused by the chemo or just simply a problem with the sciatic nerve. We are doing a brain and spine MRI to compare to the ones taken when I was so ill but the cancer would not show. I have discovered I'm a top case at the Marsden because of the leptomeningeal disease and the new treatment. At least I'm good at something! Super Prof doing good things as always and for now it's really good news. Things are working! Onto the next three months! #cancer #incurablecancer # leptomeningealdisease #scanxity #cancerwarrior #superprof #royalmarsden @royalmarsden
Next Thurs, our May online get together for anyone aged 20-49 around the UK, to connect with others who get what it's like having had a cancer diagnosis. For anyone who heard those words "You have cancer", at any stage - recently diagnosed, going through treatment or getting life back on track after. We make sure no one is alone🧡 #ShineTalksMentalWellbeing Let us know you'll be there (find the link in our bio) ✨ ✨ ✨ #cancersupport #youngadultcancer #cancer #lifewithcancer #livewellwithcancer #livingwithcancer #cancerreality #cancerawareness #incurablecancer #cancercommunity #together #shinecancersupport #noonealone #livingwithandbeyondcancer #lifeafercancer
❤️ Scan results ❤️ All clear. Phew. No matter how positive you try to be, those face to face results days are nerve wracking! I am grateful to be NED and know that not everyone gets this privilege. I will keep researching, keep exercising, keep practising gratitude and continue to heal. To hope. I met an *incredible* woman 2 days ago with stage 4 cancer. She has been sent home on palliative care twice in the last 3 years with brain metastases. Now, she has combined standard of care with alternatives and is thriving. She lost mobility and vision in both eyes due to the brain tumor - both of which she has now gained back and is thriving. Hope. She is on Enhertu, a drug which (should I ever need to switch treatment) will be available to me because of my cancer type. It's described as a game changer, yet NICE ruled that people with other types of cancer can't access it because it's too expensive. Help change that - sign @breastcancernow petition in my stories and fundraising highlights to stop the #EnhertuEmergency Pics: Castle exploring, park picnics and a little work buddy ❤️ # #stage4deservesmore #cancerunder40 #incurablecancer #thriver #healing #hope
Life is a bit of a struggle at the moment…I think it’s the unknown, so I sat and thought of all the things I I love. 1) Waking up each day with my husband. As we have always worked shifts this hasn’t always been the case 2) My son coming home from school and shouting Mummy 3) Kissing, cuddling and laughing with my son 4) Cuddling on the sofa with my frenchie 5) Reading a book in the sun 6) Family Sunday dinner 7) Spending time with my friends. I couldn’t do this without all their support 8) FaceTiming my sister 9) Singing and dancing to Motown with my Dad 10) Sitting looking at the sea 11) Family film nights 12) Christmas 13) A pina colada or a glass of white wine sangria 14) Fashion 15) Watching reality tv especially the Housewives franchise 🤦🏼♀️ 16) Pick n mix 17) My job 18) Exercise even though it’s hard these days 19) Showing my son the world 20) Dancing…I hope to be able to again soon 21) Sitting on the sofa with my husband just watching TV 22) Eating nice food 23) My happy place Portugal 24) Disney 25) Watching my son enjoying life 26) Motown, R&B music and obviously Taylor Swift 27) Summer I am sure there are lots of things I haven’t thought about but it has made me smile thinking of all the things I love 🥰. I am the happiest when I am with my little triangle family with an added Frenchie thrown in. #incurablecancer #thingsilove #holdingontohope #stage4breastcancerfighter #livercancer #bonecancer #frenchbulldog
25.5.24 I just needed some TIME with my beautiful friend. Time is so precious. I've been worrying a little about a scan Super Prof wanted me to have because of Sciatic pain in one leg but I'm happy he is so proactive and cautionary. Results tomorrow and a chance to see him, which I love. A morning with a friend really takes the anxiety away. #scanxiety #cancertreatment #incurablecancer #nerves #bebrave #positivity #cancerrightnow #survivingcancer #time
Feel lesss alone in all you're going through with cancer. Application closes today for Shine's free June Circles programme. It gives you the chance to connect with a small group of other young adults coping with incurable cancer, who really do "get it". The sessions focus on issues you face: living with uncertainty, relationships, processing grief (amongst others!). Find the link in our bio to apply to #ShineCircles. ✨ ✨ ✨ #cancersupport #youngadultcancer #cancer #lifewithcancer #livewellwithcancer #livingwithcancer #cancerreality #incurablecancer #cancercommunity #together #shinecancersupport
Today's integrative therapy to try to support my body with the chemo - hyperbaric oxygen - breathing pure oxygen in a pressurised chamber. I started this about a year ago but had to have a break since February due to an ear infection. I was going to depths of 10 metres, but one day was in agony as we descended. Turns out after a cold I had an underlying ear infection that I'd not felt yet. The compression to 10 metres exacerbated it and 2 days later I had a night in hospital. The ear infection caused a temperature and due to chemo low immune system I had no choice but to have a night courtesy of the NHS for some IV antibiotics - I'm grateful this happens and it's always taken seriously but equally it's such a ballache getting admitted every time I have a temperature! It also always happens in the middle of the night - why is that?! I have to leave little notes for Grace, and my mum sleeps in my bed so when she comes in in the morning at 5/6am she's not upset when I'm not there! I was in hospital after seizures for nearly 4 weeks last year and this affected her alot, so understandably she's worried if I'm not there when she wakes up! Anyway, I digress! This was my second "dive" in two weeks, starting at 5 metres. So far so good! The pressurised chamber allows the lungs to take in more oxygen than they would without it. This has shown to help fight bacteria & can help promote healing. There's mixed studies on its effectiveness in relation to cancer itself, which is why I look at it as a supportive therapy for my body, not a cancer cure! My cancer is stable and on the last scan couldn't be seen so it's certainly not doing any harm. I feel it really helps support my recovery from chemo each week. If hyperbaric oxygen therapy is something you want to consider check out your local MS Centre, many have chambers available for anyone to book on. It tends to be more affordable than other options and at least what you do pay goes to a good cause! I go to the Exeter MS Centre which is brilliant. #livingwithcancer #hyperbaricoxygen #metastaticcancer # #metastaticbreastcancer # #dyingforacure #iamthe31 #intergrativetherapies #incurablecancer #devon
On Friday morning a friend I haven’t seen for ages last minute asked if I was free and took me out for breakfast. She is such a positive and understanding person so it was a lovely catch up. Just before we left I started feeling really uncomfortable and tired so had a sleep when I got back (I have found this weekend that the fatigue has been really bad). From then onwards I haven’t been able to relax all weekend. I tried exercising, reading my book but nothing has worked. My son brought home a dream catcher he made at school that I love and have put next to my bed. Saturday night we had our first film night outside that I normally love but I was so tense, but I loved the cuddles with my son. Sunday was the end of season rugby presentation and I hated that I had to have parents helping me even though they are all great. We had our annual photo together that I initially liked until I saw the huge tumours showing. Now this is all I can see 😢. They are growing so fast, but I know I just need to ignore them as they will be on show, now the summer is coming, only if I want to wear jumpers for the next few months🤦🏼♀️. Last night I woke at 3am and just thought about cancer. I have cried on and off this weekend wishing things could be different. Even though I have the best friends around me I feel so lost and alone. Everyone is making plans for the future and I just don’t feel like I fit in anywhere even at home. I feel like I am loosing hope and don’t know how to stop it. My son started his Sats today and to say he was excited would be an understatement. He has been counting down the days for weeks. I am so proud that he takes it in his stride and excited to sit exams, even though it is a bit strange😂. After he went to school I had two light headed moments that really upset me. They really scare me now, but I know they shouldn’t. After a few hours rest I took my sister out for a ‘Dirty Dancing’ themed afternoon tea for her birthday. I didn’t feel great but didn’t want to let her down. I just hope she enjoyed it. Hospital appointments on Thursday and Friday and I will find out where we go next. #incurablecancer #loosinghope #metastaticbreastcancerfighter
Despite being infertile from cancer, I’ve had the honor of expressing my motherly energy as a godmother, auntie, and book mom. That nurturing energy also spills into my work, friendships, creativity, and self-care…there are so many ways to mother. And I want to honor Mother’s Day can feel complicated - not just for those living with cancer, but for anyone. There can be gratitude and joy, and also heartbreak and grief for life turning out differently than we wanted. Whatever you are feeling today, know that you are loved - just the way you are. Happy (or whatever you’re feeling) Mother’s Day! May we all be tender and compassionate with ourselves. I love you😘 xoxo, ❤️Bethany #cancerthriver #metastaticbreastcancer #cancerandmotherhood #grief #love #mbc #infertility #breasties #stage4cancer #incurablecancer #bookmom #auntielife #motherhood
So me and chemo (sunshine bear ) managed chemo number 18 without too much trouble . It was delayed by a day as my bloods weren’t right on Wednesday but all ok now and now I have a few weeks till the scan and results . Fingers crossed for a summer break with my boy … but for now it’s enjoy myself . Try not to get an anxiety attack d get out there and live 🩷. . . #chemotherapy #chemowarrior #bowelcanceruk #metastatic #incurablecancer #keepfighting #onedayatatime #summer #carebear #chemonumber18 #warriorwomentribe #bravery #courage #godhelpme #letslive
On Tuesday my lovely Mummy Gilly booked me in for another session of craniosacral therapy with @priticoles. It was just what I needed after the weekend. I came home and had a sleep, but I felt so well I took myself to my CT scan in the evening. On Wednesday I went to sound bath @sueyoungcancersupport . I have never been to anything like this but found it really relaxing. I had hoped to meet some people my age but it didn’t happen. On the way home I stopped off at M&S to grab some food. This may sound strange but driving myself and doing things alone is a big achievement for me these days. I am so glad I am heading in the right direction without the need to take medication. I think I just need to keep doing things. Today I caught up with my best friend and introduced her to my favourite tapas @peppervine_tapas . It was so good catching up with her in the sun. I have missed her so much whilst she has been away. I have managed to go out for two walks with my dog and trying really hard to prepare myself for the bad news next week. My two tumours have definitely grown and I also have a new one. I know my oncologist held one chemotherapy back so hoping that this is still an option. The thought of going back on to iv chemo fills me with dread but I know I have to do it for my son. Trying not to worry that it may have spread further. I think since December when I was in New York my tumours were growing as I was in a lot of pain. Suppose I just need to wait till next week. #incurablecancer #metasticbreastcancer #livingwithhope #sueyoungcancersupport #peppervines #bestfriends
Feel lesss alone in all you're going through with cancer. Shine's Breakout and Circles programmes are free, giving you the chance to connect with a small group of other young adults coping with cancer, who really do "get it". The sessions focus on issues you face: living with uncertainty, relationships, processing grief (amongst others!). ✨ #ShineBreakOut is for anyone who has had a diagnosis at any point. ✨ #ShineCircles is for those living with an incurable diagnosis. Find the link in our bio to apply. ✨ ✨ ✨ #cancersupport #youngadultcancer #cancer #lifewithcancer #livewellwithcancer #livingwithcancer #cancerreality #incurablecancer #cancercommunity #together #shinecancersupport
When you've had an exhausting day both physically and emotionally there's only one thing to do..... jump on a disco tuk tuk to get you back to the train station! #livingwithcancer #incurablecancer #enhertuemergency #London #londontuktuk
Me on the train to London, having had chemo yesterday I'm masked up due to the low immune system and dosed up on anti sickness and have my stick with me (is that to help when I'm dizzy or get people out my way... I'm not sure yet 🤣) This trip is to support @breastcancernow in their campaign to get Enhertu available on the NHS in England and Wales - need it now! People's lives are worth it, my life and extended time with my daughter is worth it. Please send positive vibes for today's meeting and if you've not signed the petition please do, you'll find it in my bio link and linked on Breast Cancer Now page #enhertuemergency #enhertu-emergency-sign-petition #Enhertu #dyingforacure #livingwithcancer #parentingwithcancer #incurablecancer
Omico recognises that patient advocacy organisations are experts in understanding the patient, family and community experience with cancer, tailoring information, and support, and advocating for equity of access to the latest advances in diagnosis, treatment and care. Omico has joined forces with a longstanding partner, @RareCancers Australia (RCA) and several Australian cancer patient advocacy organisations to establish a Patient Advocacy Advisory Group for PrOSPeCT. We are thrilled to partner for PrOSPeCT and eagerly anticipate sharing further details about this initiative, the represented patient advocacy groups, and our areas of focus and progress. #AdvancedCancer #IncurableCancer #CancerMeetsItsMatch #PatientAdvocacy #PatientAdvocacyOrganisations #PatientAdvocacyGroups #CancerPatients #PersonalisedMedicine
Anyone who wants to enjoy their body and their life more will benefit from episode #20 of the Plucky Not Perfect Podcast featuring @monicarosenke.wellness, now live. Doctors told Monica she would go blind because of a brain tumor, then they discovered a massive liver tumor and diagnosed her with a non-treatable cancer, Primary Hepatic Angio Sarcoma. Later, two breast tumors. Most people with this condition are given 2-6 months to live. But Monica is living an active and thriving life as a mom of three, Personal Trainer, coach and adventurist. Cancer has affected her, but it doesn't define her. Tune in to hear what healing shifts she’s made to thrive and be courageous when facing death and authentically living life. #rlag #runlikeagirl #seemerlag #pluckynotperfect #pluckypodcast #resilience #incurablecancer #cancerwarrior #cancerthriver #cancermom #runner #ultramom #courage
Our May online get together for anyone aged 20-49 around the UK, to connect with others who get what it's like having had a cancer diagnosis. For anyone who heard those words "You have cancer", at any stage - recently diagnosed, going through treatment or getting life back on track after. We make sure no one is alone🧡 Let us know you'll be there (find the link in our bio) ✨ ✨ ✨ #cancersupport #youngadultcancer #cancer #lifewithcancer #livewellwithcancer #livingwithcancer #cancerreality #cancerawareness #incurablecancer #cancercommunity #together #shinecancersupport #noonealone #livingwithandbeyondcancer #lifeafercancer
Me and my boy . Quality time with him .. he plays Xbox i read the walkthroughs . Teamwork .. feeling so much better now following a rather hideous food poisoning episode .. and chemo on top of that I felt so poorly and down . But I will keep fighting. . And this week have pushed myself to get out , see friends and walk . Big loves xx . . . . #myboy #mumwithcancer #keepfighting #bowelcancerawarenessmonth #bowelcancer #incurablecancer #findingjoy #love #peace #mummy #happymoments #onthemend #cancersucks #weekendvibes #xbox #onedayatatime #alive
The best feeling to get a ride in with Tigger! It's been a while thanks to the weather and my varying energy levels. Luckily today we just had drizzle whilst riding, the heavens opened once we got back to the yard. It was his first ride out wearing his new Scoot Hoof Boots on the fronts and so far so good! He didn't want to move initially, I imagine having never had anything on his feet it felt a bit odd but he soon got used to it and was striding out. Tigger does really well barefoot and has never been shod. As I'm hoping to get a few more miles under our belt I felt some front boots would help us along. I've signed up to the @yourhorsemagazine #hack1000miles challenge. We are up to 3 miles 🤣 I don't forsee us managing 1000 miles in a year but it's a great way to track our progress and I like an incentive, it gives me a focus other than cancer shite! It was a really comfortable ride. His @wintec.saddles saddle was checked recently and he'd gone down 2 gullet sizes, we also decided I needed to ride a bit shorter in the stirrup and all felt very comfy! Also some photos of Dave the foal snoozing! Too cute not to share 🥰 #dartmoorpony #devon #equestrianlife #barefootpony #livingwithcancer #incurablecancer #metastaticbreastcancer #triplenegativebreastcancer
For #ShineTalksMentalWellbeing month we're sharing people's experiences, advice and resources to help you see you're not alone in things you may be going through with cancer. Here Ben shared his story from last June for #MentalHealthAwarenessMonth If you have a story or advice you'd like to share please email us [email protected] Find the link to Ben's personal experience in our bio. #cancersupport #youngadultcancer #cancer #lifewithcancer #livewellwithcancer #livingwithcancer #cancerreality #cancerawareness #incurablecancer #cancercommunity #together #shinecancersupport #mentalhealth #mentalwellbeing #wellbeing #anxiety #uncertainty #guilt #sadness #depression #ptsd
Fear, anxiety, sadness, guilt, anger: you’re likely to have experienced one or more of these following your diagnosis. Cancer is a new, unexpected, and unwanted, part of your life that can make you feel out of control. All whilst trying to maintain your career, family, and friendships, as normal. See our support page with resources, events and content to help you. #ShineTalksMentalWellbeing Find the link to our Mental Health Wellbeing resource page in our bio. ✨ ✨ ✨ #cancersupport #youngadultcancer #cancer #lifewithcancer #livewellwithcancer #livingwithcancer #cancerreality #cancerawareness #incurablecancer #cancercommunity #together #shinecancersupport #mentalhealth #mentalwellbeing #wellbeing #anxiety #uncertainty #guilt #sadness #depression #ptsd
May 2019….if I could talk to myself 5 years ago, how would I have prepared her. Is there anything I could possibly say or do that would prepare me for the life changing time ahead. All I can say is you will find HOPE, just keep putting one foot infront of the other. It’s gonna be a rollercoaster where you won’t have all the answers. Small positive steps. Cry, scream, take your little family with you, laugh, smile, enjoy the moments, make those memories & teach them the importance of life. Stop overthinking, get peace with yourself & know you are enough. Find your tribe you really won’t know how much you will need this, look for alternatives. It’s time to think about you & your loved ones. This was never the plan but if only life was simple & the plan always happened. Thankyou to everyone who has rode the rollercoaster with me, Thankyou Roy, Scarlet & Will for holding on tight, I really can’t imagine how tough that ride was & still is. Finally Thankyou Buddy, my perfect distraction, you love me on the sofa, in bed when chemo hits me & ask for nothing in return. To me that’s what love is, no expectations. Love you! #secondarybreastcancer #hope #harrogate #love #incurablecancer #lungmets #livermets #bonemets #leptomeningealdisease #positivity #keepmoving #memories
#gogreyinmay This is Me,Danny and our family at our gender reveal party. A couple of weeks after this photo was taken my life changed forever. I woke up one day and i couldn’t move my toes. It’s very strange and scary looking at a body part and not being able to move it. I was sent for a brain scan where I was told if it was what it looked like it was a giloblastoma brain tumour. The most aggressive kind of brain tumour to have, which has no cure and any treatment I accepted would only prolong my life and not save it. I was told I’d have a year to live if I was lucky. I was pregnant with sienna when I was told this. All I ever wanted was a little girl whose was gonna be my bestie like my mum is to me. It breaks my heart I possibly wont see her grow up. I set myself milestones in my head and that’s how I get through this shit situation. My next one is to see Sienna go to school. Ive been told more times than I’ve had hot dinners that I should not be here. But I am, and I don’t plan on going anywhere anytime soon. That was nearly 3 years ago.I now live on borrowed time. Which is a very strange way to live your life but it’s my new normal. I’ve had brain surgery, 19 months of 3 different chemotherapy drugs, 8 weeks of radiotherapy, blood tests, MRIs, I’ve spent nearly a month on ward, IV drips, syringes drivers and cannulas. I want to raise awareness for brain tumours and how devastating they are. When I was diagnosed I had no idea about them. I didn’t know they were the biggest cancer killer of under 40s I didn’t know that only 12% of people who are diagnosed with a brain tumour will survived past 5 years I didn’t know that just 1% of the national cancer fund goes towards brain tumours. I hope my story shows you that there is always hope no matter what your situation is. No one can tell you how long you have left in the world. I was just a normal girl who went to work, went out with friends and was just loving life with my hubby. Then this happened to me and I’ve just tried to make the best of it, Because that’s all I can do 🫶🏼
Join us on Saturday 18th May as we walk part of the iconic River Thames. This family friendly route will be commencing by the majestic London Eye and will take in many famous sights along the way to St. Katherine's Dock, where we will stop for a mooch round and a bite to eat. You can choose to either join us on the walk back to the London Eye where the walk will end, or you may choose to dip out at any point along the way. Time: 10.30am meet 11am prompt start Where: Jubilee Gardens near The London Eye What3Words: ///stud.verge.smiled Please see link in bio for our JustGiving page. #fitfortreatment #canceradvocate #cancercharity #lungcancercharity #fundraising #nsclc #egfrpositive #egfrpositivesuccessstories #egfrpositivelungcancer #livingwellwithegfrpositive #nonsmokinglungcancer #fortheloveoflungs #lungcancersupport #anyonewithlungs #anyonewithlungscangetlungcancer #youjustneedlungs #oncogene #livelaughlovelungs #lungcancercommunity #theforgottencancer #theignoredcancer #thesilentcancer #incurablecancer #stage4deservesmore
Your feelings of panic, of anxiety, of total despair are completely normal. Cancer impacts our emotions, mental state, family, friends, ability to work, socialize, care for children, eat, drink, etc. It is a merciless fire burning everything in its path. You have every reason to feel terrified of the future. Do not lose hope. Focus on this very moment. Don’t look ahead because the future can be too scary. Don’t worry about what you did or did not do yesterday. The Lord tells us not to be anxious in His sermon on the mount (you can read this in Matthew, chapter 6). Focus on this moment. Breathe. It’s okay. It’s alright. Just take each moment as it comes. The Creator of the universe, The King of kings, The Good Shepherd… He is right here with you. He loves you. He holds you now. #havehope #anxiety #depression #despair #cancer #saintquotes #cancerthriver #cancerfighter #cancersucks #catholiccancer #catholicmom #catholicmotherhood #anxietyrelief #terminalcancer #incurablecancer #advancedcancer #breastcancer #pregnantwithcancer #catholicmomsofinstagram
Shine's Break Out and Circles programmes are free, giving you the chance to connect with a small group of other young adults coping with cancer, who really do "get it". The sessions focus on issues you face: living with uncertainty, relationships, processing grief (amongst others!). ✨ #ShineBreakOut is for anyone who has had a diagnosis at any point. ✨ #ShineCircles is for those living with an incurable diagnosis. Find the link in our bio to apply. ✨ ✨ ✨ #cancersupport #youngadultcancer #cancer #lifewithcancer #livewellwithcancer #livingwithcancer #cancerreality #incurablecancer #cancercommunity #together #shinecancersupport
I decided I needed to go out for a dog walk today as I haven’t left the house since my hospital appointment on Thursday…plus the sun was eventually shining. It was actually really nice and I even chose to stop for a drink. My son is not a football fan but went to watch an Leicester City away game last night and loved all the celebrations that went on. He got his dad to take photos of him so they could be sent to me. When he got in at 1am he was desperate to wake me up to tell me all about it. This morning he was so excited telling me all the funny stories from his night out. His excitement was infectious…he was truly so happy. I love nothing more than seeing him smiling and laughing. I hope he always has this enthusiasm for life. When he went to school I cried. It upsets me that I won’t be around to hear all about his exciting adventures but also that he won’t have me to tell everything to. I am not someone that swears but it is f***ing sh*t!!!! My son’s axolotl died yesterday which also made me randomly cry. I think because I think so much of death it made me feel so sad. Seeing my son cry and say, ‘I don’t want him to die’ made me so upset for him. Thankfully he is dealing with it ok. Next week is time to get a new one. My head still feels all over the place but tomorrow I have my first reflexology session and will also be the first time visiting the cancer charity. #incurablecancer #cancersucks #breastcancer #stagefour #metasticbreastcancer #bonecancer #livercancer
It’s not easy to face a Stage 4 cancer diagnosis. It’s not easy to discover that if your cancer progresses anymore it will be incurable. It’s not easy at any time of life for these things to happen… particularly when you have young children. And that great terrible monster - the deep dark pit of despair is just waiting to swallow you whole. But despair if the opposite of HOPE and I will never lose hope in the loving care of my Lord. This cancer is not a punishment. God’s ability to heal isn’t transactional or limited. He could heal the entire world in an instant. If He doesn’t heal me it isn’t because He doesn’t love me. His love for me is steadfast, boundless, and incomprehensibly merciful. When despair wants to swallow me whole, I remember I am held by the creator of the universe and I find peace. #cancer #pregnantwithcancer #adenoidcysticcarcinoma #jesuslovesyou #catholicmom #cancermom #momwithcancer #cancermoments #prolifecatholic #cancerawareness #stage4cancer #stageivcancer #incurablecancer #livingwithcancer #cancerwarrior #stage4needsmore #cancerthriver #catholicwife #catholiclife #cancercantstopme
After text chatting yesterday with my best friend, by late afternoon I felt the best I have felt all week. I think I just needed to get out how I was feeling. I managed to sit and watch TV and make some chocolate strawberries that I had been craving for ages. It felt good to not feel so tense. Later on my son wanted a movie night in his bed. He has had a bad chesty cough since Thursday, so had been in bed for the last few days. I am hoping I don’t catch it but just because I have a weakened immune system you don’t stop being a mum. I have loved all the extra cuddles he has been wanting and even laid in bed and read him a book. I hate seeing him poorly but loved that he has let me mother him for a bit🥰. It has got a bit out of hand as he said he loves being treated like a King. Well King Buddy has been getting out of control so I told him today he is going back to just being an 11 year old boy…who actually does nothing for himself 🤦🏼♀️. Anyway last night whilst we were watching a movie he fell asleep hugging my arm, making me feel like the happiest and luckiest mummy in the world. I slept really well last night and woke up smiling 😊. In other news I have a mouth full of ulcers, two black finger nails, lost another toe nail (actually wish they would all fall off as they are so sore) and one of my feet is shedding skin 🥴. One of the main side effects of my new chemo is the skin coming off your hands and feet. I had read that people really struggle with this so I have constantly been putting cream on, but it’s not made much difference. Also whilst my tumours in my sternum have been getting bigger I have had no pain in my liver since being on Capecitabine. One small win even though my liver isn’t the area my oncologist is concerned about. #incurablecancer #mummywithcancer #mummyandson #makingmemories #stage4breastcancerfighter #livercancer #capecitabine
We know ‘breathwork’ is a bit of a trendy topic at the moment, but learning to control your breath really can help – whether you’re doing it in the moment that you feel stressed, or more regularly to manage your feelings and emotions. Here Hannah ( #ShineManchester leader) shares how “controlled breathing” has helped her, for #ShineTalksReconnecting month (find the link to her blog in our bio) ✨ ✨ ✨ #cancersupport #youngadultcancer #cancer #lifewithcancer #livewellwithcancer #livingwithcancer #cancerreality #cancerawareness #incurablecancer #cancercommunity #together #shinecancersupport #breathwork #breathing #miondfulness #wellbeing #reconnecting
‘Maybe I’ll become cherry blossom.’ Just posted a new blog on my website with a bit of an update on the old big C. But also a bit of a ramble on some thoughts that have been nagging to try and get out. If I’m honest, I’m not sure I’ve explained myself very well 😂 It feels as if we spend and awful lot of the first parts of our lives cluttering, filling, avoiding, overstimulating, running away, building distractions and such and then something changes and we begin to start to feel the need to unpick. This blog is about Un-ing. Something I’ve been thinking about lately. Stripping back to the core of who we are and what we actually need in order to make our next iteration as positive as possible. Interestingly, over the last few weeks, I’ve seen other writers pondering on similar lines - perhaps there is something in the air. To this end I encourage you to read the latest Bimblings by @porridgebrain #cancer #cancerawareness #livingwithcancer #incurablecancer #writer #writersofinstagram #suffolk #suffolkwriter #life #death #dying #dyingwell #breastcancer #simplify
Shine's Break Out and Circles programmes are free, giving you the chance to connect with a small group of other young adults coping with cancer, who really do "get it". The sessions focus on issues you face: living with uncertainty, relationships, processing grief (amongst others!). ✨ #ShineBreakOut is for anyone who has had a diagnosis at any point. ✨ #ShineCircles is for those living with an incurable diagnosis. Find the link in our bio to apply. ✨ ✨ ✨ #cancersupport #youngadultcancer #cancer #lifewithcancer #livewellwithcancer #livingwithcancer #cancerreality #incurablecancer #cancercommunity #together #shinecancersupport
Start of cycle 4 and I really need to see my tumours reducing as I have a scan on the 7th May and will get the results on the 17th May. I think I know in my heart it hasn’t worked. This week I feel like mentally I have been all over the place. My head feels like it is going at a 100mph with thoughts wizzing round about cancer. I have tried everything to try and relax but nothing has worked and I really don’t want to take the medication from my GP. I haven’t been able to think about anything else. I hope once I know what the next plan of action is I will feel more relaxed…but I am not sure it will. I just want to plan for the summer and hate all the uncertainty hanging over me. I don’t know what I would do without my little furry friend. She keeps me company everyday and makes me smile and laugh, however even she hasn’t been able to make me relax this week. I still haven’t had my appointment come through for counselling but I am at the centre on Wednesday for my first session of reflexology that I am really looking forward to. It will also be my first visit there so I really hope I feel relaxed there. I just want to feel like me again but I just don’t know how to get there 😢 #livingwithcancer #incurablecancer #scaredoftheunknown #anxiety #unabletorelax #frenchbulldog #mydogismybestfriend #metasticbreastcancer #stagefour
Raising awareness for lung cancer in young women! I want to make sure people who have similar symptoms to mine take action and push for further investigation if they need to. It shouldn’t have taken nine months and a trip to A&E for me to have an x-ray. We’re so quick to assume it’s anything but lung cancer. Yes, my symptoms were more likely due to stress or anxiety or poor posture at work but lung cancer was still a possibility and should have been ‘ruled out’. It’s my hope that by sharing my experience I can help other people avoid such unnecessarily and life changing delays. READ RHE LINK IN MY BIO FOR FULL INFORMATION! #alkpositive #lungcancer #adenocarcinoma #oncogene #lungcancer #cancerfighter #cancerwarrior #roycastlelungcancerfoundation #roycastlelungcancer #targetedtherapy #incurable #incurablecancer #staypositive #raiseawareness #pushforanswers
This is my cheesy gobsmacked face! After a lovely day in London on Saturday I came home to these @docmarten sandals from my best friend. Who even does this???? Obviously my best friend. The gift feels too grand to even accept. You are very naughty Sammi😘 Last summer I commented on her wearing these sandals and how much I liked them, but days of spending that much money on a pair of seasonal shoes are long gone. I no longer work overtime for treats but also I would feel really guilty as that money could be spent making memories with my family. I live to spend time with my family experiencing new things together. I want my son to have as many memories as possible to look back on. My best friend knows this and wanted to treat me to put a smile on my face. I should say she is always treating me! Today I still feel knackered from London. I was in bed by 7pm last night and struggled getting up today. Cancer fatigue is hard enough but when you have had a day out it takes me a couple to days to recover. It feels like being on an all day drinking session and having a hangover for two days! I have had my Covid booster jab this morning, chased the cognitive therapist that was suppose to ring me on the 5th April (waiting for her to call back) and this afternoon I have an assessment re alternative therapies to help me relax. Until then I am going to lay on the sofa and watch @housewivesofsaltlakecity under my heated blanket that my best friend also bought me. #bestfriends #docmartens #housewivesofsaltlakecity #incurablecancer #covid #cognitivetherapy
If you said Yes to any of these 3 questions, put a heart emoji 💙 in the comments. Join the Heart Community Network, bringing together individuals who relate to any of these 3 questions. If that’s you, click the link below or in our BIO to get your exclusive ticket to the launch event of our community network. https://events.humanitix.com/launch-of-our-heart-community #chdawareness #sydneyevents #networkingevent #supportothers @heartkids @cancercouncil @rmhcgws @westmeadkids #mentalheathawareness #incurablecancer #breastcancerawareness #chdwarrior #sydney @strokefdn @dementia_australia @benchmarkeventsandtravel #inspireothers @mosmanliving_
A surreal day as my great friend @jeremylangmead writes about his cancer journey in @thetimesmagazine and includes a few lines and mugshots of me! We launched our podcast @howlonghaveyougot2024 to try to help people affected by cancer. Trying to wade through some of the challenges, stigmas and questions whilst inspiring and laughing! I’m so grateful to @nicola_jeal for giving us this opportunity to reach so many people. And to the amazing @dankennedyphoto for making me feel so at ease even without my hair. And to @alysteermakeup.me for making me look less like Fester Adams. My dream is to leave the world a slightly better place than how I found it, it’s getting harder to do that in our current landscape, but if I can just help one person to have some confidence, some joy, some determination or comfort then I guess that is a start. #thetimes #cancer #breastcancerawareness #prostatecancer #incurablecancer #livingwithcancer #thrivingnotsurviving
A little bit of paradise, positivity, hope & a cabin that is a beautiful sanctuary with the most amazing human being Tiff. I met Tiff at the @acornretreat where I have had a retreat day for people going through cancer or had cancer. It’s weird as I feel like we were brought together as I didn’t actively go looking for a therapist, even though I knew it helped with my symptoms from chemo. These past few sessions I was introduced to her cabin which is more local to me. There was work going on at the acorn. Tiff is really an earth angel who is so special. This morning I arrived after dragging myself from my bed, in pain & really not feeling much today. During my cancer journey I’ve become very open to holistic therapy & have total trust in Tiff in the choices she makes with me. Today I experienced weightlessness, love, my energy shifting, pain being lifted & so much more. The sceptical part of me questions how, but I’m learning to go with it, Chinese medicine has being round a long time & all I can say is it helps, it stops me taking extra medication that my body doesn’t really need & my husband even sees the difference too. Living on a 3 weekly cycle is draining both mentally & physically. I’ve struggled the past few days with breathlessness, bloating & pain, feeling like there was blockage & without telling Tiff this, she felt it through my body. Thankyou doesn’t ever seem enough as I left today @tiff_innerglow_acorn_retreat #holistichealer #energy #reflexology #secondarybreastcancer #incurablecancer #harrogate