Today is the last day of Retinoblastoma Awareness week. A week where we try to bring more awareness to this rare fight. RB makes only 3-4% of all Cancers. 96% of children are cured today in the developed world, but many lose one or both eyes or suffer significant vision loss due to late diagnosis. 90% of children with eye cancer live in less economically developed countries, and most are diagnosed too late to save their lives. Global survival is below 20%. We need to bring awareness to the treatment and medication they give the children. We need to fight for their future, because ALL PEDIATRIC CANCER FIGHTERS deserve to live a long life as well. We have plans to start a Non- Profit Foundation. This foundation will be to help families during and after treatment, and will also be to help fund more research on Pediatric Cancer treatments. We will announce more later. #AaronStrong #NoOneFightsAlone #MoreThan4 #KnowTheGlow
Choroid plexus tumors are very rare pediatric brain tumors. These tumors can be both benign or malignant. Choroid plexus tumors are most common in children under 1 year old. You will notice slight differences in symptoms between brain tumor types due to tumor locations and how they impact they brain. Photo of Sammy is from June 21, 2017. Day 246 of hospitalization, and since diagnosis. This was a HUGE day for Sammy. He got his pig tails removed, his broviac central line. No more central line! Which officially marked Sammy's end of treatment!! He got his end of treatment MRI, and it was NED. Meaning he had no evidence of disease. Sammy had spent the last 4 weeks in intensive inpatient rehab working with a speech therapist, feeding therapist, occupational therapist, and physical therapist. Learning how to adapt to the world despite his new challenges. And we spent Sammy's time in rehab readying our home to prepare for his long-awaited homecoming! #forevergotyoursix #hopeforsupersammy #supersammystrong #morethan4 #childhoodcancer #medulloblastoma #gograyinmay #greymatters #braincancer #forever6 #raiseawareness #unexpectedlife #braincancerawareness #posteriorfossasyndrome #cerebralmutism
It's Coconuts, Rivers, Malibu - LOL, Cruzan, Sunset and Vibes this week on We Bleed Soca Saturdays. Oh and we can't forget fun and shenanigans. All of this is happening on May 18, 2024 on Twitch starting at 12PM EST! Here is the lineup: 12 PM - DJ Soca B @djsoca_b 1 PM - DJ Vinyl Touch @djvinyltouch 2 PM - DJ Calypso Crab @djcalypsocrab 3 PM - DJ T Rockk @djtrockk 4 PM - DJ Wally Black @djwallyblack 5 PM - DJ Akin @dj.akin All vibes will be on Twitch, you don't need an account to enjoy, but it does help. #webleedsoca @webleedsoca #soca #socadj #socamusic #twitch #raidtrain #Barbados #Cropover #spicemas #Grenada #vincymas #stvincent #virginislands #morethan4 #vibes #wbs #music
May 18 Enjoy your Saturday however you want to. Moments are fleeting. Be present, know you are loved, and just live today how you wish. #becauseofzoey #letthelightshine #dipg #morethan4 #gogreyinmay
My beautiful Ariana🌸 i wish i could turn back time go back to Valentines day and not let the next day happen. Its been 3 months since Ariana got diagnosed with High Risk Leukemia. Our worlds forever changed. It all happened so fast all happened over night. There weren't any signs no red flags before that day. I always made sure Ariana went to all her appts. Made sure she got all her annual blood work and still i dont get it. Where did i go wrong? There has not been one day where i dont cry. The pain i feel. The guilt. The what did i do what if i would have done this or that maybe she would not have Cancer. I dont know why this happened. 😭 and i will never understand it. No child deserves to have cancer. #childhoodcancerfighter #childhoodcancersucks #morethan4 #fcancer #acutelymphoblasticleukemia
It was scan week this week. Ripp had several different CT scans, an MIBG scan, an echocardiogram, EKG, so many labs, and an MRI. As most of you saw we ended up in the ER Tuesday because we started feeds and shortly after Ripp started throwing up 🤮 bright green. His team was concerned about a bowel blockage. We were able to rule that out and they feel he’s still recovering from transplant and radiation so we are on gut rest for another week or so and then will try again. At this ER visit they also found a lump on his head. He also has been complaining of back pain (around the same site as the tumor) and a CT scan showed micro fractures around the spine where his tumor used to be. The treatment has made his bones weak where the cancer use to be. We got appointments to see Ortho soon for his back. We got meds for the nerve pain. The scan results came back and our boy shows NO EVIDENCE of active disease! This is a huge step! This doesn’t mean he’s done by any means. Neuroblastoma is incredibly aggressive so we still have several months of antibody therapy and then a 2 month maintenance phase. But the treatments are doing what they need too and his body is responding. It’s everything we prayed for. Your prayers and support have helped us get here and we can’t ever say thank you enough. Monday we admit for the first month of phase 3. It’s 5-6 days in the hospital. It can be painful infusions so please pray we don’t have any adverse side effects and he’s able to remain happy and playful and we find the right combination of pain meds from the start. Let’s go Ripp! 🥊 #neuroblastoma #cancersurvivor #pediatrics #pediatriccancer #pediatriccancerawareness #utahmom #specialneedsmom #specialneedsdad #cancer #cancerwarrior #pediatricneuroblastoma #neuroblastomawarrior #neuroblastomaawareness # #medicallycomplex # #primarychildrenshospital #neuroblastomasurvivor #chemotherapy #chemohairgrowth #chemowarrior #pediatricchemo #momcologist #bonemarrowtransplant #stemcelltransplant #stemcelltreatment #morethan4 #itcouldbeyourbaby #kidsgetcancertoo #beourvoice #standuptocancer
We go gray in May because of: Sutton💙 Precious Sutton was just about to turn 3 years old when he suddenly began having some concerning symptoms. Sutton was becoming unbalanced in his walking, and he was also having periods of crying but not responding to sound. It was soon found that Sutton had an ear infection, and he was given antibiotics. However these problems persisted, despite having the antibiotics. Sutton was taken to the ER again where he underwent scans. Horribly, at the end of April 2021, a tumor was found on the pons of his brainstem. It was originally thought to be DIPG due to the location of being on the brain stem, but then it was confirmed on May 3rd, 2021, that the tumor was actually ETMR. Sutton underwent 3 back to back stem cell transplants and had also gotten chemotherapy and radiation. He even participated in the DFMO clinical trial where his tumor had even shrunk by 40%! Suttton also began the process of undergoing CAR-T cell therapy. This seemed like the answer, however, just 5 days later, Sutton lost the ability to walk, to use his right hand, and his left eye was turning in. He underwent an emergency MRI on October 24th, 2022, to find that his tumor grew by 60%. Before he could undergo brain surgery it was found that the tumor grew AGAIN and even more so. The cancer was then found in 6-7 spots on his spine and more in his brain.💔 Tragically, on February 26, 2023, Sutton gained his wings after a 22 month fight against ETMR💔💔💔💙 #ETMR #embryonaltumorwithmultilayeredrosettes #BrainTumorAwarenessMonth #BTAM #greymatters #rememberthechildren #childhoodcancer #KidsShouldntGetADeathSentence #childhoodcancerawareness #nationalpriority #gogold #childhoodcanceradvocate #kidsgetcancertoo #fightlikeakid #notrare #learnyourfacts #hope365 #thisischildhoodcancer #morethan4 #pediatriccancer
We go gray in May because of: Justice🌈 Justice was 6 years old when she began to experience some alarming symptoms. Justice was starting to slur and she was very off balance, which was unlike her. On August 3rd, 2023, her mom took her to Children’s hospital in Dallas. She underwent a brain scan which revealed a brain mass. Justice was diagnosed with DIPG, an inoperable form of pediatric brain cancer. Justice underwent radiation treatments for 6 weeks. Justice celebrated her 7th birthday a few months into her fight. In October, after radiation was complete, Justice became apart of the ONC201 trial for kids with DIPG. She was 1 of 30 kids with DIPG at her hospital receiving treatment. Despite the clinical trial, scans she underwent in December revealed that the tumor had grown by 4CM. By January 2024, Justice was sadly placed on hospice care. Her fight had lasted for 5 months & 23 days, before gaining her wings at the age of 7💔 🌈11/10/16 - 01/26/24🌈 #JusticeStrong #DIPGISNTRARE #DIPGangel #diffuseintrinsicpontineglioma #BrainTumorAwarenessMonth #BTAM #greymatters #rememberthechildren #childhoodcancer #KidsShouldntGetADeathSentence #childhoodcancerawareness #nationalpriority #gogold #childhoodcanceradvocate #kidsgetcancertoo #fightlikeakid #notrare #learnyourfacts #hope365 #thisischildhoodcancer #morethan4 #pediatriccancer
It’s Coconuts, Rivers, Malibu - LOL, Sunset and Vibes this week on We Bleed Soca Saturdays. Oh and we can’t forget fun and shenanigans. All of this is happening on May 18, 2024 on Twitch starting at 12PM EST! Here is the lineup: 12 PM - DJ Soca B @djsoca_b 1 PM - DJ Vinyl Touch @djvinyltouch 2 PM - DJ Calypso Crab @djcalypsocrab 3 PM - DJ Kandi Sharma @kandisharma 4 PM - DJ Wally Black @djwallyblack 5 PM - DJ Akin @dj.akin All vibes will be on Twitch, you don’t need an account to enjoy, but it does help. #webleedsoca @webleedsoca #soca #socadj #socamusic #twitch #raidtrain #Barbados #Cropover #spicemas #Grenada #vincymas #stvincent #virginislands #morethan4 #vibes #wbs #music
This year of survivorship has been filled with Childhood Cancer advocacy, story sharing and friendship making. 23 years since a tumor the size of a football was found embedded in my kidney, spleen, pancreas, stomach and nodules on my lungs and lymph nodes. 23 years since my tiny body was filled with chemotherapy, radiation and had multiple surgeries. These treatments saved my life, but they also leave life long after effects. Childhood cancer fighters and survivors have already fought cancer, they shouldn’t have to continue to fight their entire lives. While this year has been filled with many smiles and laughter, I’ve also been devastated by the passing of several childhood cancer fighters. This is why I advocate, for BETTER treatments. For MORE treatments. I will never stop pushing forward for all the children fighting now and in the future. #childhoodcancer #childhoodcancerawareness #cchmc #wilmstumor #nephroblastoma #cancer #cancersurvivor #cancerfighter #morethan4 #cincinnatichildrenshospital
Today is #dipgawarenessday before Jan. 23, 2019, I never heard of Diffuse Intrinsic Pontine Glioma. On this date, approximately 11:30 a.m., my first born was diagnosed with DIPG. There is so much I want to say and write about Tina, but I just miss my best friend. We did everything, and she always wanted to be with me. #imissyoueverysecond #wewillfindacure #dipgawareness #comoteextrañomimuñequita #valentinastrong #valentinathebrave #flylittlewingfly #teamvalentinamarie #dancedefeatsdipg #djsagainstdipg #childhoodcancerawareness #braincancerawareness #greyinmay #grayinmay #braincancerawarenessmonth #dipg #morethan4
Today is DIPG awareness day. When I think of DIPG, there are some particularly cruel cases that will always stay with me and impact me so deeply. Saniyah Bell, @pray4princessniyah @princessniyah__mom2018 on her last birthday on earth wished to feel better as she blew out the candles on her cake. Messages with Mikeal of her saying she wanted to become a social worker, our talks of getting into graduate school💔 @a_pretty_chick_just 💔The picture of Zamora Moon and her mom after she took her last breath. The picture posted in March 2016 of Katherine The Brave @katherine_the_brave with her eyes crossed as sat on the couch, telling her mom that she suddenly felt dizzy, plus the video of her struggling to breathe against the death rattle. I think of baby Dahlia @djaevin_dahliajae_my_babies who fought so hard to meet her baby brother and to love on him before she died. I think of Neymar @a_acosta2184 and his fight, only for a few years later his little cousin Lucia @dancingwith_cia to be diagnosed with DMG. I could go on and on about countless stories who stay with me. They shouldn’t be just stories. They should be here living so that there are new stories to tell. #dipgawarenessday #dipgawareness #DIPGISNTRARE #DIPGangel #diffuseintrinsicpontineglioma #BrainTumorAwarenessMonth #BTAM #greymatters #rememberthechildren #childhoodcancer #KidsShouldntGetADeathSentence #childhoodcancerawareness #nationalpriority #gogold #childhoodcanceradvocate #kidsgetcancertoo #fightlikeakid #notrare #learnyourfacts #hope365 #thisischildhoodcancer #morethan4 #pediatriccancer
Regram • @oscarskidsamerica No parent should have to hear that their child is diagnosed with a disease for which there is simply no medical cure. That is why Oscar’s Kids is committed to funding groundbreaking research to find new treatments and a cure for #DIPG and other devastating prognoses. While the scientific community has made significant strides, there’s still much ground to cover and we need your help to end the suffering that comes with this diagnosis; increasing awareness, supporting families as they navigate through the challenges, and pushing lawmakers to increase federal pediatric cancer research funding. We are stronger together. Visit the link in bio and join us in this important mission. #dipgawareness #dipgawarenessday #BrainTumorAwarenessMonth #childhoodcancer #pediatriccancer #morethan4 #morethanfour #kidsgetcancertoo #cancercommunity #cancerresearch
I want to send Naomi and her family a big food card. Probably a Kroger card because that’s where they get their groceries from, or just a Visa card so they can go anywhere. Can you guys help? I don’t have a set goal amount but I know any amount will help for them. (I am not telling her mom about it. I want it to be a surprise from HHB and all of you.) If you’d like to donate our Venmo is @hannahshappybundles, and I will be purchasing the gift card from Amazon and have it shipped directly to them. Let’s help take some burden off them by at least making sure their refrigerator stays full and they have everything Naomi needs. Please share to your stories and pass the word around, if you can. Thanks, friends. ❤️ #naomisfight #childhoodcancer #kidsgetcancertoo #morethan4 #pineoblastoma #relapse #braincancer
DIPG Awareness Day. DIPG deserves a day. Diffused Intrinsic Pontine Glioma is a horrifying diagnosis. A diagnosis few recognize, but one we should all know. This diagnosis is a death sentence, and it is a death sentence specifically for young children. It is a brain tumor that has NO CURE. It has a ZERO SURVIVAL RATE. Hospice care, paliative treatment, and quality of life are the words heard by parents whose children are given this grave diagnosis. In our journey with Sammy, we have walked alongside numerous DIPG families. I strongly believe that if we can find a treatment, a cure, for DIPG, we would be able to cure other terminal brain tumors. Like Sammy's leptomeningeal spread. We stand with those fighting DIPG. They deserve more. They deserve better. They deserve a chance to fight. A chance at a future. A chance at life. Please support these foundations to support the DIPG fight. The Cure Starts Now Jack's Angels Foundation The Morgan Adams Foundation Michael Mosier - Chad Tough Defeat DIPG Smashing Walnuts Julia Barbara Foundation Photo is of Sammy on May 23, 2017. Day 217 of his hospitalization and since diagnosis. This is on day +25 of his bone marrow transplant (stem cell transplant). The day he was discharged from Bone Marrow Transplant!! And FINALLY discharged from the oncology floor. But he wasn't discharged from the hospital just yet. During the last 25 days in transplant, Sammy needed 9 neupogen shots to boost his cell growth. He needed 6 platelet transfusions and 3 red blood cell transfusions. He engrafted on day plus 12. But it took another 13 days to get the numbers needed to be discharged. This photo also clearly shows his shunt line, how it traveled under his skin. #forevergotyoursix #hopeforsupersammy #supersammystrong #morethan4 #childhoodcancer #medulloblastoma #gograyinmay #greymatters #braincancer #forever6 #raiseawareness #braincancerawareness #posteriorfossasyndrome #cerebralmutism #dipg #may17
The most common brain tumor type as a whole is a glioma. Not all gliomas are malignant, but most are malignant. Gliomas are broken into several types. Some impact adults, some impact children. High grade tumors are fast growing, while low grade are slow growing. Photo of Sammy is day 192. April 28, 2017. Transplant Day. The day Sammy got his own stem cells back. That little syringe of pink fluid is his stem cells. It was given to him slowly over a set period of time. It is given extremely precisely. And then we wait to see if his body take them or engraft. Sammy had endured several days of super high dose chemotherapy leading up to this day. One of the drugs he received was thiotepa. This chemotherapy drug required Sammy to have a shower every 6 hours for 3 days. These showers were painful. He also had to have special dressing on his central line so as not to cause wounds. This chemotherapy treatment wiped his entire immune system. This type of stem cell transplant is really called a rescue. A stem cell rescue. As without it, Sammy would not have recovered from the chemotherapy given and would have died. In the cancer world, this transplant day is celebrated as a new birthday. As getting all new cells that give life to our bodies. Sammy's rebirthday is actually on Logan's birthday (Sammy's little brother). So a very special date. Logan turned 2 on this date. April 28, 2017. #forevergotyoursix #hopeforsupersammy #supersammystrong #morethan4 #childhoodcancer #medulloblastoma #gograyinmay #greymatters #braincancer #forever6 #raiseawareness #unexpectedlife #braincancerawareness #posteriorfossasyndrome #cerebralmutism #stemcelltransplant #bmt #bonemarrowtransplant #rebirthday
I previously shared that there are over 120 types of brain tumors. But not all develop in children, not all develop in adults. When looking at the catagories of brain tumors, the Mayo Clinic focuses on 7 key groups of pediatric brain tumors. I will spend the next few days sharing about each of these types. Each with its own diagnosis, with its own symptoms, treatment, and outcomes. Photo is of Sammy on April 6, 2017. Day 170 since diagnosis and of being inpatient. Sammy was about 2 weeks onto his 5th and final round of high dose chemotherapy with the Headstart III protocol. Sammy frequently required blood product transfusions. Typically, he required blood and/or platelets. Blood was needed if his hemoglobin count got too low. And platelets were needed if his platelet count dropped too low. In the period of a year, on 48 different days, Sammy received some for of blood product or multiple blood products. It will take me 8 years of donating regularly to equal 48 donations of blood. 8 years for me to gift back the bare minimum of what Sammy needed. #forevergotyoursix #hopeforsupersammy #supersammystrong #morethan4 #childhoodcancer #medulloblastoma #gograyinmay #greymatters #braincancer #forever6 #raiseawareness #unexpectedlife #braincancerawareness #posteriorfossasyndrome #cerebralmutism #donateblood
The challenge with brain tumors is getting treatment to effectively reach the tumors. Treatment to cross the blood brain barrier. Sammy received high dose chemotherapy in hopes of it breaking through that barrier and reaching the tumor bed. The Ommaya port is a line that accesses into the brain. Instead of using a standard port or other central line that goes to the heart. Sammy did not qualify for an Ommaya port because of his shunt. His shunt was an automatic disqualifier to be on the trial. But the Ommaya port would have been a relapse option, not a front-line treatment as it was in trials at the time he was diagnosed for relapses. Photo is of Sammy on day 138 since diagnosis and of his inpatient stay. March 5, 2017. Sammy had just finished his 4th round of the chemotherapy cycle. And would soon start his 5th and final round of the Headstart III protocol. Sammy was uncomfortable and in pain from the drugs being given. Sammy was frustrated with the loss of his abilities. Not being able to do what he once could. His body would get sores and rashes. He was in pain. It hurt him to be held or touched. He would have periods of tachycardia. He was on several nausea medications, just trying to keep him hydrated and feeds down. Sammy was a trooper through all his treatment, but his screams haunt me. There was nothing I did that could help ease the suffering. Only could watch and pray, praying I could switch places so I could take the pain and suffering away. This is a picture of my child just crying, screaming in his sleep. That is what haunts me. It haunts me. I hear these moments, ones where I could do nothing. This is childhood cancer. And the trauma I carry. #forevergotyoursix #hopeforsupersammy #supersammystrong #morethan4 #childhoodcancer #medulloblastoma #gograyinmay #greymatters #braincancer #forever6 #raiseawareness #unexpectedlife #braincancerawareness #posteriorfossasyndrome #cerebralmutism
Not all brain tumors can be surgically removed. Some are in locations that make them inoperable and impossible to remove. Leaving only chemotherapy, radiation, and/or alternative therapies as options. This can be true of both benign and malignant tumors. Making even benign tumors deadly. When Sammy relapsed, he had tumors that were inoperable. One located in the thalamus area of his brain. This took surgery off the table. And required a balancing act of treatment using radiation. The balancing act was between harming and helping Sammy. Sammy's dad was diagnosed with a pituitary brain tumor on April 7th, 2022. Surgery is risky, as one major risk is blindness due to the area of the tumor. He has been on medication for 2 years. And we believe it has finally stabilized after several medication dose increases. This medication, even if effective, will be a lifelong medication. Surgery may become the option if the medication is ultimately ineffective. Picture is of Sammy is on February 12, 2017. Day 117 of his diagnosis and of his hospitalization. This was taken during a window of good days. Right before Sammy started his 4th cycle of his chemotherapy protocol. At this point, we were working regularly with speech therapy, feeding therapy, occupational therapy, and physical therapy. Supporting Sammy in his recovery, as he moved through the diagnosis of posterior fossa syndrome and cerebral mutism. #forevergotyoursix #hopeforsupersammy #supersammystrong #morethan4 #childhoodcancer #medulloblastoma #pituitarytumor #gograyinmay #greymatters #braincancer #forever6 #raiseawareness #braincancerawareness #unexpectedlife #posteriorfossasyndrome #cerebralmutism
Brain Cancer Facts It is estimated l, that in 2024 there will be 25,400 new cases of brain and other nervous system cancer. (NCI, 2024) These are startling statistics! We need more research! #braincancerawareness #gogreyinmay #noraswarriors #princessnoraswarriorfoundation #fundacure #curechildhoodcancer #pnwf #morethan4
✳️Atlanta Army Fete ATLANTA’S BIGGEST CAMO FETE 12 year Anniversary Wednesday May 22nd 2024 ✅9pm-3am. Come early stay late TICKETS AVAILABLE WWW.ATLANTAARMYFETE.COM TO RESERVE YOUR VIP TEXT 678-886-7930 VIBES BY: LOCAL AND INTERNATIONAL DJs FOLLOW US: @atlantaarmyfete #getyourcamogearready #fetewitdearmy #atlantadowntowncarnival2024 #atlantaarmyfete #fetersarmymas #Riddimisamust #Riddimup #soca #afrobeats #jabjab #dennery #wilders #isasocating #westindians #caribbean #allislands #morethan4 #carnival #socaislife #camoisamust #bestcamowear #combatboots #shortsandboots #fetewiththefam **PLEASE SHARE**
The standard of care for pediatric brain cancer is decades behind. Sammy endured a treatment protocol that averaged the chemotherapy drugs at 50 years old. The oldest was developed in 1951, being Methotrexate. The newest being Carboplatin, a drug we used during transplant protocol, was developed in 1986. The rest 1959, 1959, 1963, 1978 & 1983. In the year 2016, we had NOTHING better to give. And treatment course is still the same in 2024. As Headstart protocol is still used as standard of care in treating young children with medulloblastoma and several other pediatric brain tumors. At the time of Sammy's diagnosis, there were no open trials for newly diagnosed children with medulloblastoma who would not receive radiation initially. So, we had to use a standard of care protocol. Sammy received the Headstart III protocol. But some hospitals were just starting to use Headstart IV. The big difference was 1 stem cell transplant vs 3 transplants. At relapse, we only had one Phase 1 trial in which Sammy fit the qualifications in New York. But we weighed the options and decided to stay home, keep Sammy home. Instead of dividing our family for months and months, and Sammy be inpatient again. We chose quality over quantity. We chose to chase living. You can't live life to full while stuck inpatient for the remainder of your days. So, we chose paliative treatments instead. Which had the same statistical probability anyhow. It was not an easy decision. We called a couple dozen hospitals. Got a couple second opinions. But Sammy's situation was far from ideal, and he was excluded from most trials because of his shunt. We faced the reality that Sammy was terminal. That our hands were tied. And our son would die due to a lack of treatment options. Since Sammy's death, the Right To Try Act has been passed, which allows for terminal patients the right to access non-FDA approved treatments that have passed a phase 1 trial. This may have changed things for Sammy and given our family more options. This legislation was a huge win for the childhood cancer community, but it still only gives access to terminal children.
May is brain cancer awareness month 🩶 Childhood brain cancer, although composed of many subtypes, are one of the most common groups of childhood cancers. Although common, it’s also one of the hardest to treat due to the location and the ability for brain cancer to travel to the spinal fluid. Brain cancers can be treated in many different ways, including chemotherapy, radiation, surgery, stem cell transplants, and more. There are many different kind so childhood brain cancer. Some of which include: Medullblastoma, AT/RT, choroid plexus carcinoma, DIPG, gliomas, and more. Many of these cancers have little or no chance of long term survival, as they are terminal, or almost terminal, upon diagnosis. Childhood brain cancer deserves much more attention. They are deadly and are often overlooked as they skew data toward the negative side. Together we can change this. Together we can bring more awareness to childhood brain cancer, thus channeling more funds into research. Ultimately finding better, safer treatments for childhood brain cancer. #braincancer #gogreyinmay #childhoodbraincancer
Say hello to Charlie! She will be arriving with her family to Seagrove Beach on Saturday for her Sandcastle Kids Vacation and we are so excited! Charlie is 7 years old and recently celebrated her birthday! She has been undergoing treatment at the Children's Hospital in Arkansas since she was two years old. We are thrilled to be hosting her this week and can't wait to hear about all fun she's going to have. See you soon, Charlie! 💛 #sandcastlekids #cancer #pediatriccancer #gogold #morethan4 #give #nonprofit #501c3 #30a #vacation #family #beach #florida
Aaliyah is amazingly strong and a beautiful girl of faith. She has held her head high through this whole process. She’s stayed positive and faith-filled even at the hardest times. Hope session by Through the Looking Glass
No parent should have to hear that their child is diagnosed with a disease for which there is simply no medical cure. That is why Oscar’s Kids is committed to funding groundbreaking research to find new treatments and a cure for #DIPG and other devastating prognoses. While the scientific community has made significant strides, there's still much ground to cover and we need your help to end the suffering that comes with this diagnosis; increasing awareness, supporting families as they navigate through the challenges, and pushing lawmakers to increase federal pediatric cancer research funding. We are stronger together. Visit the link in bio and join us in this important mission. #dipgawareness #dipgawarenessday #BrainTumorAwarenessMonth #childhoodcancer #pediatriccancer #morethan4 #morethanfour #kidsgetcancertoo #cancercommunity #cancerresearch
This is the heartbreaking reality of Diffused intrinsic pontine glioma. Let's give our babies a fighting chance. Let's give them hope 💔💔💔 Please join me today, May 17th, 2024, to raise awareness for DIPG, Let's raise awareness and bring an end to DIPG. Please share. Thanks, and God bless! 🙏🙏🙏 #enddipg #grayinmay #valentinathebrave #braincancerawareness #dipgawareness #childhoodcancerawareness #morethan4 #dipg #wewillfindacure #dancedefeatsdipg #djsagainstdipg
🔍 Fact Friday with Battle Brynn Foundation 🔍 Did you know? A "poor prognosis" doesn't mean giving up. It's a challenge that inspires strength, hope, and resilience. 🌟 At Battle Brynn Foundation, we believe in fighting every battle with courage and determination. Every story deserves a chance to change. 💪 Let's raise awareness and support for those facing tough prognoses. Together, we can make a difference! 🤝 #BattleBrynnFoundation #KickChildhoodCancer #morethan4
This....right....here! We fundraise, sell wristbands, raffles, sell books, etc. All in hope to give our babies hope. Help me spread awareness for #dipg #braincancerawarenessmonth 😢😢🥺🥺🐞🐞🐞 #gogreyinmay #dancedefeatsdipg #djsagainstdipg #morethan4 #braincancerawareness #dipgawareness #childhoodcancerawareness #dipg #wewillfindacure #teamvalentinamarie #valentinathebrave
“I received the wig and I LOVE IT! It is honestly so nice and looks so great. It is such good quality and so comfy. I wore it for the first time this week and felt so confident because it looks so natural! I seriously love it so much. Thank you again!” If we can help bring a smile to a child that is facing challenges that no one should ever have to, then it’s a success. 💓💓💓 ➡️ Follow @crownsofcourage as we share the impact of our halo wigs for pediatric cancer patients facing chemotherapy-related hair loss. 🔗 : Link in bio to donate to @crownsofcourage 👑💜
To honor Ansley's legacy, we're devoting our platform to sharing a series of collections from her blog posts throughout the month of May – the month we lost her to Neuroblastoma. ———— Blog Post Title: Enough is Enough Published: August 14, 2017 ———— Have you ever thought about how far out of our means we live? This is something that used to never bother me but a few months ago I listened to Radical by David Platt (@plattdavid_) and he tells this story about a man who, no matter how much his salary increased, he capped his lifestyle at $20,000. The money he had leftover, he gave back. Whether it was to his community, to his local churches, to fund mission trips, or to charity… he gave every penny over $20,000 back. What an incredible, giving way to live. It’s really the way we’re supposed to live but somewhere along the way, we started to want more and more for ourselves. I used to never think about the amount of unnecessary stuff we all have and let’s be honest… I’m no stranger to some online shopping (I’m working on that), but the world has a serious greed problem. The problem is that everyone believes that all this money we have is ours, and it’s not. It’s God’s. If you’re keeping for yourself, you’re stealing from God because even if you worked hard for that money, there is nothing in this world you can accomplish without God. ———— If you'd like to read more from Ansley's blog, visit our website linked in our bio. PS: This verse is directly from Ansley's blog, in her hand writing. #childhoodcancerawareness #childhoodcancer #theansleyfoundation #nonprofit #nonprofitorganization #neuroblastoma #pediatriccancer #weneedacure #childhoodcancerresearch #donations #cancerawareness #morethan4 #ayacancer
Happy Birthday, Yariel ! #NoOneFightsAlone #EwingsSarcoma #SarcomaSucks #FundACure #FndACure #MoreThan4
May 17th Today we wear our grey because it is National DIPG day in many states. We remember Zoey and Charlie and Maddie and Hollis and Cameron and Michael and Dany and Phoebe and so many more families that we met and got to know. We wear our grey today because of all the children that are fighting and all the beautiful children we have lost. #becauseofzoey #letthelightshine #dipg #morethan4 #gogreyinmay
It’s Coconuts, Rivers, Malibu - LOL, Sunset and Vibes this week on We Bleed Soca Saturdays. Oh and we can’t forget fun and shenanigans. All of this is happening on May 18, 2024 on Twitch starting at 12PM EST! Here is the lineup: 12 PM - DJ Soca B @djsoca_b 1 PM - DJ Vinyl Touch @djvinyltouch 2 PM - DJ Calypso Crab @djcalypsocrab 3 PM - DJ Kandi Sharma @kandisharma 4 PM - DJ Wally Black @djwallyblack 5 PM - DJ Akin @dj.akin All vibes will be on Twitch, you don’t need an account to enjoy, but it does help. #webleedsoca @webleedsoca #soca #socadj #socamusic #twitch #raidtrain #Barbados #Cropover #spicemas #Grenada #vincymas #stvincent #virginislands #morethan4 #vibes #wbs #music
Layla -- where it all began. This girl continues to change the world as we remember why we strive to end childhood cancer. Learn more about Layla and how we are fighting pediatric brain cancer at the link in our bio. 🎗🩶 #GoGrayInMay #ThrowbackThursday #TBT #LaylaStrong #LaylasLegacy #ThursdayThoughts #GoGold #EndChildhoodCancer #MoreThan4
Signs to looks for •White (leukocoria) or red pupil instead of the normal black. •Misaligned eyes (strabismus) looking toward the ear or nose. •Reddened, painful eye. •Enlarged pupil. •Different-colored irises. •Poor vision or vision loss Remember to make an appointment with a doctor or other healthcare professional if you notice any changes to your child’s eyes that concern you. #AaronStrong #NoBodyFightsAlone #GoGold #MoreThan4 #KnowTheGlow
🌟 Sponsor Spotlight: Supporting the Giveback Gala 🌟 We are thrilled to extend our deepest gratitude to Club Wyndham Bentley Brook for their generous Silver Sponsorship donation towards our upcoming Giveback Gala. This donation supports our local warriors fighting Childhood Cancer and exemplifies his commitment to making a meaningful difference in the lives of children and families affected by pediatric cancer in our community. This heartfelt contribution demonstrates an unwavering dedication to our cause. Their generosity will play a pivotal role in ensuring the success of our gala, allowing us to raise crucial funds and awareness for childhood cancer research, treatment, and support services. Thanks to Club Wyndham Bentley Brook’s support, we will be able to create a memorable and impactful event that brings our community together in solidarity with those fighting childhood cancer. Their sponsorship not only provides financial support but also serves as a beacon of hope for children and families facing this challenging journey. Thank you! #childhoodcancer #childhoodcancerawareness #pediatriccancer #pediatriccancerawareness #kidsgetcancertoo #gogoldforchildhoodcancer #morethan4 #givebackgala #gala #communitysupport #givingback
Well, I have Ethan and Austin’s cold now - we just pass it right around the family! Sharing is caring 🤧. Austin didn’t have any appointments today 😳 so we actually got to run some normal people errands! Austin is somehow wearing 5t clothes from old navy and target - not really sure how that’s possible considering he just turned 2. Thankfully 4t is still fine from some other stores. The 5t looks so silly because it’s so long on him but he has quite the large waist size 😯. Ethan graduates from 5th grade next week!! Grades are turned in tomorrow so next week is just full of graduation and field trips and parties 🎉🥳. Summer is a different kind of stress with both kids at home but it’s a much needed break from the school routine. And we go to the beach 🏖️ in a month!! We hope everyone is having a nice week! Please continue to pray for sweet Nova as they are facing some difficult decisions and discussions over the next few days and weeks. I will keep you posted on what we can do help her family out once we know a bit more. ❤️🙏🩶🎗️💛 #kidsgetcancertoo #pediatriclowgradeglioma #strabismus #ChildhoodCancer #PediatricBrainTumor #GrayMay #graymay #thisischildhoodcancer #morethan4 #sallysteelephotography #opticpathwayglioma #braintumorawareness #cancerkids #gograyinmay #AustinsArmy #curechildhoodcancer #childhoodcancerawareness #toddleringlasses
Today we celebrate the 10th birthday of this forever boy. The original “lost boy.” The little warrior that for always be three. Not because he chose to though, but because cancer took away a life time of growing up. Miles fought stage IV neuroblastoma. The treatment was so harsh that complications from the medicine that was supposed to save Miles’ life untimely took his life. Miles absence is felt everyday in the lives that he touched, but comfort is held in knowing that he is playing wild in free in Neverland 💚. Happy birthday, Miles. You are so missed, today and everyday. #neuroblastoma #happybirthday #neverland
My daughter Aaliyah was diagnosed with lymphoma on October 11, 2023. She developed jaundice and when we took her in they did an ultrasound on her liver and found a mass. Her treatment plan includes chemo and long hospital stays, which are hard on my other children. It has been very challenging in all aspects of our life. Hope session by Through the Looking Glass
🌟 Honor a neuroblastoma hero and make a difference! 🌟 Create a Peer-to-Peer fundraiser in honor of a neuroblastoma warrior or angel in your life. Not only will you support life-saving research, but you'll also create a meaningful tribute. Join us in the fight against neuroblastoma. Create your fundraiser today by following the link in bio cncfhope.org/how to help/fundraising ideas • • • • • #neuroblastoma #cncfhope #wherehopeunitesus #pediatriccancer #childhoodcancer #morethan4 #fightchildhoodcancer #neuroblastomafighter #neuroblastomawarrior #neuroblastomaawareness #cancerresearch #supportcancerresearch #beatcancer #cancerfighters #childhoodcanceradvocate #cancersucks #gogoldforchildhoodcancer #thisischildhoodcancer #donatenow #nonprofitorganization #childhoodcancerawarenessmonth #gogold #childhoodcancer
Our #fiercekalyani got awarded for her art again 💓🎨👩🏽🎨 🏫 We are so incredibly proud she was nominated and awarded Dragon of Distinction for Visual Art by her art teacher. I love our girl's school so much! Our warrior gets to be fiercely herself and is so loved for who she is. I am so proud of this girl! She has overcome so much and this only reinforces our decision for her to continue on the clinical trial she is on. She gets to live her best quality of life while still fighting. We are so grateful for where she is at. 💪🏽🎗️🧠💓 . . . #artist #visualart #braintumorawarenessmonth #gogreyinmay #gograyinmayforbraintumors #braincancerawarenessmonth #braincancer #braintumor #braincancerwarrior #medulloblastoma #medulloblastomarelapse #relapsedcancer #fightlikeakid #fightforourkids #morethan4
This is Leo 💜 he is a ATRT warrior and now fighting MRT. Leo recently received an Ollie’s Orchestra backpack and his mom reports that Leo’s favorite instrument from the backpack is the ukulele. She writes “He’s having so much fun exploring them. The ukelele is his favorite. Was a great distraction to have right before scans and will be so nice to have these instruments to play with this week after he gets chemo again.” We are sending our love and music to Leo, Meghan and their whole family. #olliesorchestra #morethan4 #childhoodcancer #pediatriccancer #atrt #mrt #musictherapy #musicforkids #remo #hohnerkids
Happy 10 years of life G. 💚 God has great things planned for you, my big fighter! Super G indeed! You are always curious, a protective brother, mischievous, momma’s boy to the core, Pa’s kindred spirit, fisherman and so, so, so loved! 🥰 I cherish every day with you. #childhoodcancersurvivor #momsdaybunker #momsdayprepper #neuroblastomawarrior #neuroblastomaawareness #birthdaycelebration #morethan4 #mommasboy #supermom2024
May 16 When battling DIPG you are reaching for a dream, a hope, a cure. Only 4% of cancer research goes to childhood cancer. DIPG is considered rare, and it doesn't get enough attention. It's rare and its not fair that are kids are given a death sentence. We go grey in May because she should be here. #becauseofzoey #letthelightshine #dipg #morethan4 #gogreyinmay
I loved playing with gouache to bring the water to life in this piece! 6”x9” $40 🎗a portion of proceeds goes directly to pediatric cancer research🎗 #morethan4 #childhoodcancerawareness #childhoodcancerwarrior #paintingsforacure #watercolor #watercolorpainting #watercolordaily #instartist #landscapewatercolor #fightlikeakid #gogold #gouache
What an amazing mid week experience.... thank you soooooo much @one_summit for this family and friends ❤️ outing. #pediatriccancerawareness #wilmstumorsurvivor #wilmswarrior #wilmstumor #childhoodcancersurvivor #childhoodcancerawareness #kidsgetcancertoo #kidneycancer #morethan4 #boymomlife #boymomadventures #boymom #remission #lifeafterchemo #fyp #explore
Congrats to Jabril who has recently finished up with 30 radiation treatments! If you are unaware of his story, 7 year old Jabril was diagnosed with DIPG on March 24th. His mom began to notice strange symptoms the weekend before his diagnosis. This included unusual speech, weakness in his right arm and leg, which created a limp in his walk. After being taken to the hospital that day in March, he underwent a CT scan, revealing a large tumor on his brain stem. His mom is trying everything in her power to support her son, but she needs the support of others to help afford life as a single mother of 6 with the constant appointments. His mom also wants to try a natural or holistic approach. Please send all your love & support to Jabril and his family as they have been thrown into the most unthinkable world💔💔 you can scan the gofundme QR code or click the link in my stories! 🔗: https://www.gofundme.com/f/healing-for-jabril/qr #DIPGfighter #DIPGISNTRARE #DIPGwarrior #JabrilStrong #KidsDeserveMoreThanLeftOvers #HealingForJabril #childhoodcancerresearch #givekidsachance #givekidsachanceact #diffuseintrinsicpontineglioma #childhoodcancer #kidscancer #pediatriccancerawareness #dipg #gogoldforchildhoodcancer #childhoodcancersucks #childhoodcancerawareness #nationalpriority #gogold #kidsgetcancertoo #fightlikeakid #thisischildhoodcancer #morethan4 #pediatriccancer 🎗🎗 #NCI #kidsareworthmore
And yet, just 4% of the National Cancer Institute’s budget is directed to pediatric cancer. When faced with devastating diseases like DIPG that afflict our youngest and most vulnerable, we're reminded of the urgent need to prioritize funding for pediatric childhood cancer research; to spur new treatments and a cure, at last. Because every child deserves the chance to grow, learn, and thrive without the shadow of illness looming over their future. By advocating for increased funding and support for pediatric cancer research, we not only fight for the lives of today's children, but also demonstrate our commitment to shaping a better future for generations to come. Together, let's ensure that every child's potential is realized, allowing resilience to triumph over adversity. #braintumorawarnessmonth #braintumorawareness #dipg #dipgawareness #graymay #curecancernow #childhoodcancer #childhoodcancerawareness #pediatriccancer #pediatriccancerresearch #cancerresearch #cancercommunity #morethan4 #morethanfour #kidsgetcancertoo
Many of you are asking me about an update on our girl, Naomi. (This is my favorite picture, because if you know her this explains her personality.) She is getting a scan today. It’s incredibly hard to get her out of the house. She cannot use her right hand because of how bad it shakes. Naomi has also lost a ton of weight. Please pray they get some answers from this scan. They know where this is all headed but they just want her comfortable and not in any pain. Please continue to pray for my friend. We love you, Nay. ❤️ #naomisfight #childhoodcancer #kidsgetcancertoo #morethan4 #pineoblastoma #braincancer #relapse
Shirts are available!!! Link in bio! ❤️ #childhoodcancer #kidsgetcancertoo #morethan4
#mayısbeyintümörüfarkındalıkayı 15.gün BEYİN SAPI GLİOMLARI Beyin sapı gliomları çocuklardaki tümörlerin %20’sini oluşturular. Diensefalon ile servikal omurilik arasındaki mezensefalon, pons ve medullo oblangata’dan oluşan bölgeye beyin sapı denmektedir. Bu bölgenin tümörlerine beyin sapı gliomları denmektedir. Her iki cinstede eşit ve yenidoğandan erişkine kadar her yaş grubunda görülmesine rağmen sıklıkla 3-9 yaşlararasında ortaya çıkar. #dipg #dmg #diffüzponsgliom #beyinsapıtümörü #ependimoma #glialtümör #embryoneltümör #medulloblastom #gograyinmayforbraintumors #gograyinmay #gogoldforchildhoodcancer #morethan4
We have TWO families arriving on Saturday for their #SandcastleKids vacations and we'd love for you to help us welcome Angie 👋 She is 11 years old and was diagnosed with Leukemia in April of 2022. The Frozen movie is her absolute favorite and she is coming to us from The Childrens Hospital of Arkansas. We can't wait to meet you, Angie! #cancer #pediatriccancer #501c3 #nonprofit #give #360blue #vacation #travel #30a #destin #florida #gogold #morethan4
Treatment types Every treatment planned is developed for each individual person , which often has lifelong physical and psychosocial impacts on young children. About 50% of survivors have an increased life-long risk of certain other cancers, and many struggle to receive appropriate ongoing medical care. Available treatments for intraocular tumors include : * Brain stereotactic radiosurgery * Cryotherapy * Intra-arterial chemotherapy * Intravenous chemotherapy * Intravitreal chemotherapy * Photodynamic therapy * Plaque radiotherapy * Proton therapy * Transpupillary thermotherapy * Tumor resection #AaronStrong #NoBodyFightsAlone #GoGold #MoreThan4 #KnowTheGlow
Meet Aaliyah!! Hope session by Through the Looking Glass
Brielle and super siblings update for their goodies ‼️ We still need $154 to meet our goal. We’re getting so close. Can you help? PayPal: [email protected] Venmo: @hannahshappybundles Cash App: $hannahshappybundles Please make sure to comment “Brielle” in the comment section of your donation. Let’s complete this by today, that’s our goal! Can you help us complete this by today? Thank you all from the bottom of my heart who have donated. ❤️ *this post will be deleted once funds are fully raised. This is just an update post.* #childhoodcacncer #kidsgetcancertoo #morethan4 #neuroblastoma #relapse
Did you know that two out of every three pediatric cancer survivors will experience lasting chronic health issues due to their treatment? Ten-year-old cancer survivor Thatcher is an excellent example. He now relies on hearing aids to mitigate the irreversible damage caused by chemotherapy, uses ankle braces for mobility support, deals with a blind spot affecting his vision resulting from one of his six brain surgeries and is being evaluated to assess potential damage to his pituitary gland that could impact his growth. Only breakthrough research will discover safer, better treatments for kids like Thatcher. Your generous donations will help make a world of difference! Visit our link in bio to contribute cure today.🎗️ #PCRFKids #PediatricCancer #ChildhoodCancerAwareness #MoreThan4 #NonProfitOrganization #ChildrenAreOurWhy #ResearchIsHow #MoreThan4 #ChildhoodCancerSurvivor
Tomorrow is the last day to get your tickets for the Giveback Gala! Don’t miss out. Join us on May 25th as we aim to raise $50,000 for children affected by pediatric cancer. Get your tickets NOW! https://givebutter.com/givebackgala #childhoodcancer #childhoodcancerawareness #kidsgetcancertoo #gogold #gogoldforchildhoodcancer #morethan4 #pediatriccancer #gala #givebackgala #pittsfieldcountryclub #countryclubofpittsfield
It's Coconuts, Rivers, Malibu - LOL, Sunset and Vibes this week on We Bleed Soca Saturdays. Oh and we can't forget fun and shenanigans. All of this is happening on May 18, 2024 on Twitch starting at 12PM EST! Here is the lineup: 12 PM - DJ Soca B @djsoca_b 1 PM - DJ Vinyl Touch @djvinyltouch 2 PM - DJ Calypso Crab @djcalypsocrab 3 PM - DJ Kandi Sharma @kandisharma 4 PM - DJ Wally Black @djwallyblack 5 PM - DJ Akin @dj.akin All vibes will be on Twitch, you don't need an account to enjoy, but it does help. #webleedsoca @webleedsoca #soca #socadj #socamusic #twitch #raidtrain #Barbados #Cropover #spicemas #Grenada #vincymas #stvincent #virginislands #morethan4 #vibes #wbs #music
May 15 Even though we go grey in May doesn't mean our girl wasn't full of life and color. Zoey hated wearing the color black and only wore it when she was mad. Black was not pretty or beautiful. This is the reason we requested that no black was to be worn at her funeral. She would have wanted a rainbow of colors. The most beautiful thing about thay day was walking into the church and seeing the giant stained glass rainbow. Never being in there before and witnessing it that morning, I knew she would be smiling with the loveliness of it all. We go grey in May because of this sparkling shining girl. #gogreyinmay #dipg #morethan4 #letthelightshine #becauseofzoey
✳️Atlanta Army Fete ATLANTA’S BIGGEST CAMO FETE 12 year Anniversary Wednesday May 22nd 2024 ✅9pm-3am. Come early stay late TICKETS AVAILABLE WWW.ATLANTAARMYFETE.COM TO RESERVE YOUR VIP TEXT 678-886-7930 VIBES BY: LOCAL AND INTERNATIONAL DJs FOLLOW US: @atlantaarmyfete #getyourcamogearready #fetewitdearmy #atlantadowntowncarnival2024 #atlantaarmyfete #fetersarmymas #Riddimisamust #Riddimup #soca #afrobeats #jabjab #dennery #wilders #isasocating #westindians #caribbean #allislands #morethan4 #carnival #socaislife #camoisamust #bestcamowear #combatboots #shortsandboots #fetewiththefam **PLEASE SHARE**
You may have heard that children's cancer research only receives 4% of funding here in the US. Who else thinks this is absolutely ridiculous? 🙋♀️ So what can You do? Here are a few ideas: 1. Ask your elected officials to advocate for more funding. 2. Share this post. 3. Donate We have to do better for these kids and families. They are worth way #MoreThan4. #GoGrayInMay #LaylasLegacy #faith #family #cure #FightLikeAKid #ChildhoodCancerAwareness #gogold #gogray #warriormoms
Tina and I always had fun. This was in March of 2019, at a follow up Oncologist visit. We learned that this chair had an up/down feature, so of course we had Mom sit in it while Tina raised her as high as she could go. We couldn't stop cracking up. We both had big belly laughs. I miss you, mi Tinita. #dancedefeatsdipg #djsagainstdipg #morethan4 #dipg #dipgawareness #childhoodcancerawareness #braincancerawareness #greyinmay #grayinmay #wewillenddipg #wemustdefeatdipg #wewillgivethemhope #mybestfriend #valentinastrong #teamvalentinamarie
Look at these CUTIES #osteosarcoma #NotRareNotFair #kidsgetcancertoo #morethan4 #halliesheroes #futureolympian #childhoodcancerawareness #leftlegless #ffa #ffabanquet #FFAProud
Brain cancers account for about 15% of pediatric cancers 🎗️ Brain cancers are the second most common type of cancer in children. (ACCO,2023) #braincancerawareness #braincancer #pediatriccancerawareness #noraswarriors #princessnoraswarriorfoundation #fundacure #curechildhoodcancer #pnwf #morethan4
🌟 Affiliate Partnership Spotlight: Supporting Giveback Gala🌟 We are thrilled to extend our deepest gratitude to Kyle Finn-Dempsey of Trout and Coffee for their affiliated partnership towards our upcoming Giveback Gala. Kyle has taken on the role of creating a special video to be shown at the gala! This partnership supports our local warriors fighting Childhood Cancer and exemplifies their commitment to making a meaningful difference in the lives of children and families affected by pediatric cancer in our community. This heartfelt partnership demonstrates an unwavering dedication to our cause. Their generosity will play a pivotal role in ensuring the success of our gala, allowing us to raise crucial funds and awareness for childhood cancer research, treatment, and support services. Thanks to Kyle’s support, we will be able to create a memorable and impactful event that brings our community together in solidarity with those fighting childhood cancer. Their partnership not only provides generous support but also serves as a beacon of hope for children and families facing this challenging journey. Thank you @troutandcoffee ! 🌟Join us on Saturday May 25th as we come together to raise funds, spread hope, and show our unwavering support for our local children and families affected by cancer right here in Berkshire Country. 🌟 TICKET SALES END THURSDAY 5/16! Purchase your tickets at https://www.stronglittlesouls.org/giveback-gala #childhoodcancer #childhoodcancerawareness #kidsgetcancertoo #morethan4 #kidsgetcancertoo #givebackgala #gala #fundraiser
We are starting a BRAND NEW SERIES I am calling ‘EASY ways to advocate for yourself or others in healthcare’ because I find that most people do not know where to start! 👇🏻 The best place to start in my opinion ➖ RELY ON SOMEONE YOU TRUST! Ask a loved one, caregiver, friend, coworker, whoever it may be to come to any appointments with you that have you feeling stressed, anxious, & worried (for me that’s basically allllll of them 👀)! Not only does this provide another ear to listen if a lot of information is being presented, but it also provides a sense a comfort that someone is on your side & it’s not just the doc versus you… And the same goes for caregivers or others who support someone with cancer and/or a chronic illness: ASK the patient if they would like some support at their upcoming appointment(s)! 🖤 There is strength in numbers in the medical system 🖤 SHARE this post if you found this tip helpful 🙌🏻 Reminder that I am working on an advocacy guide that will be available soon! If you want to be among the first to receive it, comment ‘ME’ below! **𝙵𝚒𝚗𝚍 𝚒𝚝 𝚊𝚕𝚕 𝚊𝚝 ➖ linktr.ee/SydneyKresconko #ColorStreet #BeColorStreet #BeColorful #BeBrilliant #CancerSurvivor #Survivor #ChildhoodCancer #ChildhoodCancerAwareness #kidsgetcancertoo #MoreThan4 #Survivorship #CancerSurvivorship #Chemo #Chemotherapy #ChemoSideEffects #ChronicIllness #ChronicPain #AVN #AvascularNecrosis #Pain #ChronicPainWarrior #Advocacy #SelfAdvocacy #AdvocateForYourself #Advocate #NewSeries #EasyTips #SpeakUp #FollowForMore #Share
#mayısbeyintümörüfarkındalıkayı 14.gün Optik-Kiazmatik-Hipotalamik Gliomlar Optik yollara ait tümörler pediyatrik tümörlerin %3-7’sini oluştururlar. Optik gliomlar optik sinirin astroglialarından gelişir. Optik tümörlerin %75’i ilk on yılda, %90’ı da ilk 20 yılda ortaya çıkar. Optik gliomlar genellikle düşük dereceli astrositomlardır. #dipg #dmg #diffüzponsgliom #beyinsapıtümörü #ependimoma #glialtümör #embryoneltümör #medulloblastom #gograyinmayforbraintumors #gograyinmay #gogoldforchildhoodcancer #morethan4
✳️Atlanta Army Fete ATLANTA’S BIGGEST CAMO FETE 12 year Anniversary Wednesday May 22nd 2024 ✅9pm-3am. Come early stay late TICKETS AVAILABLE WWW.ATLANTAARMYFETE.COM TO RESERVE YOUR VIP TEXT 678-886-7930 VIBES BY: LOCAL AND INTERNATIONAL DJs FOLLOW US: @atlantaarmyfete #getyourcamogearready #fetewitdearmy #atlantadowntowncarnival2024 #atlantaarmyfete #fetersarmymas #Riddimisamust #Riddimup #soca #afrobeats #jabjab #dennery #wilders #isasocating #westindians #caribbean #allislands #morethan4 #carnival #socaislife #camoisamust #bestcamowear #combatboots #shortsandboots #fetewiththefam **PLEASE SHARE**
✳️Atlanta Army Fete ATLANTA’S BIGGEST CAMO FETE 12 year Anniversary Wednesday May 22nd 2024 ✅9pm-3am. Come early stay late TICKETS AVAILABLE WWW.ATLANTAARMYFETE.COM TO RESERVE YOUR VIP TEXT 678-886-7930 VIBES BY: LOCAL AND INTERNATIONAL DJs FOLLOW US: @atlantaarmyfete #getyourcamogearready #fetewitdearmy #atlantadowntowncarnival2024 #atlantaarmyfete #fetersarmymas #Riddimisamust #Riddimup #soca #afrobeats #jabjab #dennery #wilders #isasocating #westindians #caribbean #allislands #morethan4 #carnival #socaislife #camoisamust #bestcamowear #combatboots #shortsandboots #fetewiththefam **PLEASE SHARE**
🚗 Save the Date 9.14.24! 🚗 Our 6th Annual Car Show for Childhood Cancer is revving up for another unforgettable event! This year is extra special as it falls on Ansley's birthday, September 14th. 🎂 🎗️ Join us as we come together to shine a spotlight on the fighters, the survivors, and the memory of those we've lost. There will be live music, raffles, prizes and more to benefit Children's Healthcare of Atlanta (@childrensatl) @aflac Cancer & Blood Disorder Center. Hosted at @pizzashackco 📍80 Seven Hills Blvd, Dallas, Ga Mark your calendars and stay tuned for more details! Together, we drive towards a brighter future for children battling cancer. 💛 #childhoodcancerawareness #childhoodcancer #theansleyfoundation #nonprofit #nonprofitorganization #neuroblastoma #pediatriccancer #weneedacure #childhoodcancerresearch #donations #cancerawareness #morethan4 #ayacancer #charitycarshow #carshow #vintagecarshow #atlantacarshow