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Since Tina's tumor donation was made in 2019, the team at Lucille Packard has invited us to visit the Children's Hospital and The Monje Lab. For many reasons, including mental health reasons, I never accepted the invitation. This past Friday, we finally made the trip. The team was extremely professional and kind. 1st Pic: We were able to make a donation to The Monje Lab through the Lucille Packard foundation. 2nd Pic: The front main entrance to the Lucille Packard Children's Hospital. They currently have 361 beds and, on average, birth approximately 4000 babies a year. 3rd Pic: Main entrance. Throughout the entire hospital, you will see bronze statues of Wildlife of California. They're always in pairs as well. 4th Pic: Every floor has a school for all the children with extended stays. 5th / 6th Pic: A new playground structure and statues were recently installed, and the children at the hospital were able to determine the colors. At the base of each statue, you will find the initials of the child that won the coloring contest. 7th Pic: Sophie's Place, donated by 49ers QB Steve Young in honor of his friends daughter, Sophie. It is a full studio. They broadcast pre-recorded and live TV/ radio shows. With children sometimes joining the fun. 8th Pic: Bronze statue outside the chapel of a mother and child hugging, at the right angle, they form a heart in their embrace. 9th Pic: The Monje lab. Where an extremely dedicated team fights every day against #dipg LAST PIC: My daughter, Tina. I knew this would be difficult, but it is our reality. What you see are her cells. If you look closely, you'll see some with large halos around them. Those are the cancerous cells. How ironic? A cancer that is terminal is identified with halos. They have 106 donations to date. To all affected, I encourage you to consider a tumor donation so that we can continue the fight. Hopefully, one day, parents won't hear, "Go make memories," or "There is nothing we can do." We will defeat DIPG, and this is what my Tina will be remembered for. #dancedefeatsdipg #djsagainstdipg #greyinmay #grayinmay #wewillenddipg #wemustdefeatdipg #wewillgivethemhope #teamvalentinamarie #valentinastr

5/29/2024, 6:18:47 AM

In honor of belated National Chihuahua Day, we did a thing. And we did it to the fullest- feral, terrified, bitey, old, and medical wrecks. Send all the good juju. These ladies need it. They are safe at HQ tonight. Senior Hearts Rescue & Renewal is a 501(c)(3) nonprofit, 100% foster-based organization. PA Kennel License #16385 #rescued #feraldogs #neversocialized #novetcare #nationalchihuahuaday #seniorchis #wewillgivethemhope #seniordogrescue #horriblysad #theydeserveachance #pittsburghnonprofit #licensedrescue #seniordogrescue

5/16/2024, 3:18:17 AM

Tina and I always had fun. This was in March of 2019, at a follow up Oncologist visit. We learned that this chair had an up/down feature, so of course we had Mom sit in it while Tina raised her as high as she could go. We couldn't stop cracking up. We both had big belly laughs. I miss you, mi Tinita. #dancedefeatsdipg #djsagainstdipg #morethan4 #dipg #dipgawareness #childhoodcancerawareness #braincancerawareness #greyinmay #grayinmay #wewillenddipg #wemustdefeatdipg #wewillgivethemhope #mybestfriend #valentinastrong #teamvalentinamarie

5/15/2024, 3:43:21 AM

Delivery day with my lovely assistant. Thanks again to all that participated. Look out for more opportunities to win and help our friends at The Monje lab at the Stanford Research Center. #wewillenddipg #morethan4 #wewillgivethemhope #dancedefeatsdipg #djsagainstdipg #teamvalentinamarie #valentinastrong #valentinathebrave #dipg #braincancerawareness #dipgawareness #childhoodcancerawareness #greyinmay #grayinmay

4/28/2024, 1:39:18 AM

This was 9 years ago. 2 months before Dani joined us. Look at that devilish smile, I miss you so much, baby. We had so much fun together #mybestfriend #imissyoueverysecond #dancedefeatsdipg #djsagainstdipg #dipg #morethan4 #wewillenddipg #wewillgivethemhope #wewilldefeatdipg

4/1/2024, 6:36:45 AM

Thank you again for all of you who participated in our March 2024 fundraising. It's time to go shopping for our April fundraising efforts. Please look out for those. Much love! 🥳🥳🥳🥳🥳🥳🥳 #wewillenddipg #wewillgivethemhope #wewilldefeatdipg #morethan4 #dipg #dancedefeatsdipg #djsagainstdipg #braincancerawareness #childhoodcancerawareness #dipgawareness #teamvalentinamarie

3/28/2024, 12:35:32 AM

Thank you again for all of you who participated in our February fundraising. It's time to go shopping for our March Madness, fundraising efforts. Please look out for those. Much love! 🥳🥳🥳🥳🥳 #wewillenddipg #wewillgivethemhope #wewilldefeatdipg #morethan4 #dipg #dancedefeatsdipg #djsagainstdipg #braincancerawareness #childhoodcancerawareness #dipgawareness #teamvalentinamarie

3/3/2024, 10:44:01 PM

Today is #worldcancerday much love, strength and comfort to all that have been affected by this horrible disease and to all that have fought along side the friends and family. On this day, I want to shine a light on #dipg which is considered an extremely rare brain cancer and fatal. My Tina was diagnosed in Jan. Of 2019 and gained her wings 6 months later. Her treatments were the same as Neil Armstrong (yeah, the astronaut) daughter, Muffie, who also passed away from DIPG in 1962. 60 years later and our children continue to receive the same treatments. Please help me spread the word or just simply tell someone about DIPG. I never heard about until doctors told me my daughter had it on a Wednesday, 1-23-19. #dancedefeatsdipg #djsagainstdipg #valentinathebrave #teamvalentinamarie #dipgawareness #braincancerawareness #childhoodcancerawareness #morethan4 #wewillgivethemhope #wewillenddipg #comoteextrañomimuñequita

2/5/2024, 9:43:57 AM

THHHAAAANNKKKKKK YOU #teamvalentinamarie Because of all of you we had a very successful #5thannual #toydrive for the children at #millerchildrenshospital in Long Beach. #dancedefeatsdipg #dipg #djsagainstdipg #childhoodcancerawareness #dipgawareness #braincancerawareness #wewillenddipg #wewillgivethemhope

12/18/2023, 7:52:10 PM

Busy, fun filled weekend running all over the city, picking up Toys, monetary donations, gift cards, and/or shopping. I am excited to announce that tomorrow morning, we will be donating over 700 toys, and $700 to benefit the Miller Children's hospital oncology dept. Thank you and God bless. #teamvalentinamarie #djsagainstdipg #dipg #dancedefeatsdipg #morethan4 #childhoodcancerawareness #braincancerawareness #dipgawareness #wewillenddipg #wewillgivethemhope

12/18/2023, 7:26:24 AM

Big shout out to @oneway77jc for this generous gift for #teamvalentinamarie you two are always supporting our team. 🤝🤝🙏🙏 We will post a raffle soon, and all proceeds will benefit #drmonje at Stanford, where our Tina still continues the battle against DIPG. #dancedefeatsdipg #dipg #morethan4 #valentinathebrave #wewillenddipg #wewillgivethemhope #dipgawareness #childhoodcancerawareness #braincancerawareness

11/20/2023, 5:53:33 AM

Big shout out to my friends Mike and Laura @bles.sedrealtor @decor_and_more_4_all really grateful to you both for this generous gift for #teamvalentinamarie I got a special surprise to pair with amazing TV, in hopes of raising big earnings for #drmonje at Stanford where our Tina still continues the battle against DIPG. Stay tuned, everyone. #dancedefeatsdipg #djsagainstdipg #braincancerawareness #childhoodcancerawareness #dipg #morethan4 #dipgawareness #valentinathebrave #wewillenddipg #wewillgivethemhope

11/20/2023, 5:35:53 AM

Good evening Team, In order to make this fifth year of our amazing Holiday Toy/Gift Drive the best yet, we are beginning NOW until 12/15/23.Delivery is scheduled for Monday, 12/18/23. When shopping, please keep in mind that we support infants through teens! Thank you, much love, and Happy Shopping!! I will be making pick-ups every weekend starting now. Please DM if you have a donation #dancedefeatsdipg #djsagainstdipg #dipgawareness #childhoodcancerawareness #braincancerawareness #dipg #valentinathebrave #teamvalentinamarie #morethan4 #wewillenddipg #wewillgivethemhope #toydrive #5thannual

11/12/2023, 4:45:41 AM

We #gogreyinmay for all our little warriors. My little Tina was always so happy. No matter what life threw at her, she faced it with a smile from ear to ear. Prayers and hugs to all the warriors and to the families of all our angels 😇💛❤💛❤😢🥺 #wewillfindacure #enddipg #dipg #dipgawareness #dancedefeatsdipg #djsagainstdipg #valentinathebrave #braincancerawareness #childhoodcancerawareness #morethan4 #teamvalentinamarie #wewillgivethemhope

5/3/2023, 11:28:48 PM

To all the #dipg families out there, Prayers to you all! For comfort, for strength, for healing. #wewillgivethemhope #enddipg #dancedefeatsdipg #djsagainstdipg #teamvalentinamarie #mentalhealth #wewillgiveourbabieshope #wewillenddipg

7/11/2022, 4:02:42 AM

Please join me today, May 17th, 2022. To raise awareness for DIPG, Let's raise awareness and bring an end to DIPG. Please share. Thanks and God bless! 🙏🙏🙏 #enddipg #grayinmay #valentinathebrave #braincancerawareness #dipgawareness #wewillenddipg #wewillgivethemhope #dancedefeatsdipg #djsagainstdipg #childhoodcancerawareness #morethan4 #dipg #wewillfindacure

5/17/2022, 4:27:53 PM

Please join me today, May 17th, 2022. To raise awareness for DIPG, Let's raise awareness and bring an end to DIPG. Please share. Thanks and God bless! 🙏🙏🙏 #enddipg #grayinmay #valentinathebrave #braincancerawareness #dipgawareness #wewillenddipg #wewillgivethemhope #dancedefeatsdipg #djsagainstdipg #childhoodcancerawareness #morethan4 #dipg #wewillfindacure

5/17/2022, 9:23:59 AM

Please join me today, May 17th, 2022. To raise awareness for DIPG, Let's raise awareness and bring an end to DIPG. Please share. Thanks and God bless! 🙏🙏🙏 #enddipg #grayinmay #valentinathebrave #braincancerawareness #dipgawareness #wewillenddipg #wewillgivethemhope #dancedefeatsdipg #djsagainstdipg #childhoodcancerawareness #morethan4 #dipg #wewillfindacure #comoteextrañomimuñequita #imissyoueverysecond

5/17/2022, 9:20:22 AM

Please join me today, May 17th, 2022. To raise awareness for DIPG, Let's raise awareness and bring an end to DIPG. Please share. Thanks and God bless! 🙏🙏🙏 #enddipg #grayinmay #valentinathebrave #braincancerawareness #dipgawareness #wewillenddipg #wewillgivethemhope #dancedefeatsdipg #djsagainstdipg #childhoodcancerawareness #morethan4 #dipg #wewillfindacure #comoteextrañomimuñequita #imissyoueverysecond

5/17/2022, 9:19:51 AM

💔💔💔💔💔 Please join me today, May 17th, 2022. To raise awareness for DIPG, Let's raise awareness and bring an end to DIPG. Please share. Thanks and God bless! 🙏🙏🙏 #enddipg #grayinmay #valentinathebrave #braincancerawareness #dipgawareness #wewillenddipg #wewillgivethemhope #dancedefeatsdipg #djsagainstdipg #childhoodcancerawareness #morethan4 #dipg #wewillfindacure

5/17/2022, 9:16:11 AM

💔💔💔💔 Please join me today, May 17th, 2022. To raise awareness for DIPG, Let's raise awareness and bring an end to DIPG. Please share. Thanks and God bless! 🙏🙏🙏 #enddipg #grayinmay #valentinathebrave #braincancerawareness #dipgawareness #wewillenddipg #wewillgivethemhope #dancedefeatsdipg #djsagainstdipg #childhoodcancerawareness #morethan4 #dipg #wewillfindacure

5/17/2022, 9:15:31 AM

This is DIPG!!! 😔😔💔💔 Please join me today, May 17th, 2022. To raise awareness for DIPG, Let's raise awareness and bring an end to DIPG. Please share. Thanks and God bless! 🙏🙏🙏 #enddipg #grayinmay #valentinathebrave #braincancerawareness #dipgawareness #wewillenddipg #wewillgivethemhope #dancedefeatsdipg #djsagainstdipg #childhoodcancerawareness #morethan4 #dipg #wewillfindacure

5/17/2022, 9:14:47 AM

This is DIPG! 😔😔😔 Please join me today, May 17th, 2022. To raise awareness for DIPG, Let's raise awareness and bring an end to DIPG. Please share. Thanks and God bless! 🙏🙏🙏 #enddipg #grayinmay #valentinathebrave #braincancerawareness #dipgawareness #wewillenddipg #wewillgivethemhope #dancedefeatsdipg #djsagainstdipg #childhoodcancerawareness #morethan4 #dipg #wewillfindacure

5/17/2022, 9:14:00 AM

Please join me today, May 17th, 2022. To raise awareness for DIPG, Let's raise awareness and bring an end to DIPG. Please share. Thanks and God bless! 🙏🙏🙏 #enddipg #grayinmay #valentinathebrave #braincancerawareness #dipgawareness #wewillenddipg #wewillgivethemhope #dancedefeatsdipg #djsagainstdipg #childhoodcancerawareness #morethan4 #dipg #wewillfindacure

5/17/2022, 9:12:23 AM

Please join me today, May 17th, 2022. To raise awareness for DIPG, Let's raise awareness and bring an end to DIPG. Please share. Thanks and God bless! 🙏🙏🙏 #enddipg #grayinmay #valentinathebrave #braincancerawareness #dipgawareness #wewillenddipg #wewillgivethemhope #dancedefeatsdipg #djsagainstdipg #childhoodcancerawareness #morethan4 #dipg #wewillfindacure

5/17/2022, 9:12:08 AM

Please join me today, May 17th, 2022. To raise awareness for DIPG, Let's raise awareness and bring an end to DIPG. Please share. Thanks and God bless! 🙏🙏🙏 #enddipg #grayinmay #valentinathebrave #braincancerawareness #dipgawareness #wewillenddipg #wewillgivethemhope #dancedefeatsdipg #djsagainstdipg #childhoodcancerawareness #morethan4 #dipg #wewillfindacure

5/17/2022, 9:11:29 AM

Please join me today, May 17th, 2022. To raise awareness for DIPG, Let's raise awareness and bring an end to DIPG. Please share. Thanks and God bless! 🙏🙏🙏 #enddipg #grayinmay #valentinathebrave #braincancerawareness #dipgawareness #wewillenddipg #wewillgivethemhope #dancedefeatsdipg #djsagainstdipg #childhoodcancerawareness #morethan4 #dipg #wewillfindacure

5/17/2022, 9:10:54 AM

Please join me today, May 17th, 2022. To raise awareness for DIPG, Let's raise awareness and bring an end to DIPG. Please share. Thanks and God bless! 🙏🙏🙏 #enddipg #grayinmay #valentinathebrave #braincancerawareness #dipgawareness #wewillenddipg #wewillgivethemhope #dancedefeatsdipg #djsagainstdipg #childhoodcancerawareness #morethan4 #dipg #wewillfindacure

5/17/2022, 9:08:42 AM

Please join me today, May 17th, 2022. To raise awareness for DIPG, Let's raise awareness and bring an end to DIPG. Please share. Thanks and God bless! 🙏🙏🙏 #enddipg #grayinmay #valentinathebrave #braincancerawareness #dipgawareness #wewillenddipg #wewillgivethemhope #dancedefeatsdipg #djsagainstdipg #childhoodcancerawareness #morethan4 #dipg #wewillfindacure

5/17/2022, 9:06:10 AM

Please join me today, May 17th, 2022. To raise awareness for DIPG, Let's raise awareness and bring an end to DIPG. Please share. Thanks and God bless! 🙏🙏🙏 #enddipg #grayinmay #valentinathebrave #braincancerawareness #dipgawareness #wewillenddipg #wewillgivethemhope #dancedefeatsdipg #djsagainstdipg #childhoodcancerawareness #morethan4 #dipg #wewillfindacure

5/17/2022, 9:04:49 AM

Please join me today, May 17th, 2022. To raise awareness for DIPG, Let's raise awareness and bring an end to DIPG. Please share. Thanks and God bless! 🙏🙏🙏 #enddipg #grayinmay #valentinathebrave #braincancerawareness #dipgawareness #wewillenddipg #wewillgivethemhope #dancedefeatsdipg #djsagainstdipg #childhoodcancerawareness #morethan4 #dipg #wewillfindacure

5/17/2022, 9:04:24 AM

Please join me today, May 17th, 2022. To raise awareness for DIPG, Let's raise awareness and bring an end to DIPG. Please share. Thanks and God bless! 🙏🙏🙏 #enddipg #grayinmay #valentinathebrave #braincancerawareness #dipgawareness #wewillenddipg #wewillgivethemhope #dancedefeatsdipg #djsagainstdipg #childhoodcancerawareness #morethan4 #dipg #wewillfindacure

5/17/2022, 9:04:05 AM

Please join me today, May 17th, 2022. To raise awareness for DIPG, Let's raise awareness and bring an end to DIPG. Please share. Thanks and God bless! 🙏🙏🙏 #enddipg #grayinmay #valentinathebrave #braincancerawareness #dipgawareness #wewillenddipg #wewillgivethemhope #dancedefeatsdipg #djsagainstdipg #childhoodcancerawareness #morethan4 #dipg #wewillfindacure

5/17/2022, 9:03:42 AM

Please join me today, May 17th, 2022. To raise awareness for DIPG, Let's raise awareness and bring an end to DIPG. Please share. Thanks and God bless! 🙏🙏🙏 #enddipg #grayinmay #valentinathebrave #braincancerawareness #dipgawareness #wewillenddipg #wewillgivethemhope #dancedefeatsdipg #djsagainstdipg #childhoodcancerawareness #morethan4 #dipg #wewillfindacure

5/17/2022, 9:03:07 AM

Please join me today, May 17th, 2022. To raise awareness for DIPG, Let's raise awareness and bring an end to DIPG. Please share. Thanks and God bless! 🙏🙏🙏 #enddipg #grayinmay #valentinathebrave #braincancerawareness #dipgawareness #wewillenddipg #wewillgivethemhope #dancedefeatsdipg #djsagainstdipg #childhoodcancerawareness #morethan4 #dipg #wewillfindacure

5/17/2022, 9:02:16 AM

Please help us raise awareness for all our babies. This is a small example of what 4% really amounts to. And 4% replects the percentage allocated for ALL pediatric cancers. #dipg is severely underfunded and #wemustenddipg #wewillgivethemhope #enddipg #greyinmay #teamvalentinamarie #wewillfindacure #djsagainstdipg #dancedefeatsdipg

5/12/2022, 4:54:49 AM

Please help us raise awareness for all our babies. This is a small example of what 4% really amounts to. And 4% replects the percentage allocated for ALL pediatric cancers. #dipg is severely underfunded and #wemustenddipg #wewillgivethemhope #enddipg #greyinmay #teamvalentinamarie #wewillfindacure #djsagainstdipg #dancedefeatsdipg

5/12/2022, 4:54:15 AM

We will give all our little warriors hope! Prayers and hugs to all the warriors and to the families of all our angels 😇💛❤💛❤😢🥺 #wewillfindacure #enddipg #dipg #dipgawareness #dancedefeatsdipg #djsagainstdipg #valentinathebrave #braincancerawareness #childhoodcancerawareness #morethan4 #teamvalentinamarie #wewillgivethemhope

5/6/2022, 5:49:45 PM

We will give all our little warriors hope! Prayers and hugs to all the warriors and to the families of all our angels 😇💛❤💛❤😢🥺 #wewillfindacure #enddipg #dipg #dipgawareness #dancedefeatsdipg #djsagainstdipg #valentinathebrave #braincancerawareness #childhoodcancerawareness #morethan4 #teamvalentinamarie #wewillgivethemhope

5/6/2022, 5:48:58 PM

We #gogreyinmay for all our little warriors. My little Tina was always so happy. No matter what life threw at her, she faced it with a smile from ear to ear. Prayers and hugs to all the warriors and to the families of all our angels 😇💛❤💛❤😢🥺 #wewillfindacure #enddipg #dipg #dipgawareness #dancedefeatsdipg #djsagainstdipg #valentinathebrave #braincancerawareness #childhoodcancerawareness #morethan4 #teamvalentinamarie #wewillgivethemhope

5/5/2022, 7:20:33 AM

We #gogreyinmay for all our little warriors. My little Tina was always so happy. No matter what life threw at her, she faced it with a smile from ear to ear. Prayers and hugs to all the warriors and to the families of all our angels 😇💛❤💛❤😢🥺 #wewillfindacure #enddipg #dipg #dipgawareness #dancedefeatsdipg #djsagainstdipg #valentinathebrave #braincancerawareness #childhoodcancerawareness #morethan4 #teamvalentinamarie #wewillgivethemhope

5/5/2022, 7:20:07 AM

Breaks my heart that I share this poem again, our #dipg #teamvalentinamarie community is heartbroken again. Ava, one of our heroes, has earned her wings. Be free again Ava, play, run, laugh, be a kid again. My little Tina will show you around. Praying for strength, comfort and love to all of Ava's family #wewillenddipg #wemustfindacure #wewillgivethemhope #djsagainstdipg #enddipgnow #dancedefeatsdipg #childhoodcancerawareness #braincancerawareness #dipgawareness #morethan4

12/18/2021, 8:03:54 PM

Breaks my heart that I share this poem again, our #dipg #teamvalentinamarie community is heartbroken again. Ava, one of our heroes, has earned her wings. Be free again Ava, play, run, laugh, be a kid again. My little Tina will show you around. Praying for strength, comfort and love to all of Ava's family #wewillenddipg #wemustfindacure #wewillgivethemhope #djsagainstdipg #enddipgnow #dancedefeatsdipg #childhoodcancerawareness #braincancerawareness #dipgawareness #morethan4

12/18/2021, 8:03:04 PM

This TEAM ❤️. This COMMUNITY ❤️. This SUPPORT❤️. we are able to deliver 430 toys AND gift cards to Miller Children’s & Women’s Hospital Long Beach this year in loving memory of our Angel and to bring smiles to so many children and families throughout their hospital stays that are fi In December of 2018, our beautiful Valentina Marie had her very last time on Earth celebrating beautiful holiday traditions that are supposed to grow on you and with you for years to come. We never imagined. We couldn’t believe over just a few days time, some simple symptoms of some type of possible illness would turn in to the most devastating news of our lives, with such a horrible diagnosis. We prayed hard, hoped hard, loved hard, cried hard, and believed hard. We would not be where we are today without all of you. Thank you to EVERYONE and a special thank you to our San Pedro Community for supporting with over 300 of the 430 toys! Our elves worked hard to sort & pack. Much appreciated!! I’ll be LIVE on Monday with our drop off! Stay tuned for details. #teamvalentinamarie #dipg #dancedefeatsdipg #djsagainstdipg #wewillenddipg #wewillgivethemhope #enddipgnow

12/18/2021, 7:00:33 AM

This TEAM ❤️. This COMMUNITY ❤️. This SUPPORT❤️. we are able to deliver 430 toys AND gift cards to Miller Children’s & Women’s Hospital Long Beach this year in loving memory of our Angel and to bring smiles to so many children and families throughout their hospital stays that are fi In December of 2018, our beautiful Valentina Marie had her very last time on Earth celebrating beautiful holiday traditions that are supposed to grow on you and with you for years to come. We never imagined. We couldn’t believe over just a few days time, some simple symptoms of some type of possible illness would turn in to the most devastating news of our lives, with such a horrible diagnosis. We prayed hard, hoped hard, loved hard, cried hard, and believed hard. We would not be where we are today without all of you. Thank you to EVERYONE and a special thank you to our San Pedro Community for supporting with over 300 of the 430 toys! Our elves worked hard to sort & pack. Much appreciated!! I’ll be LIVE on Monday with our drop off! Stay tuned for details. #teamvalentinamarie #dipg #dancedefeatsdipg #djsagainstdipg #wewillenddipg #wewillgivethemhope #enddipgnow

12/18/2021, 6:59:53 AM

And everyday........much love! 🙏🙏🙏🙏 #teamvalentinamarie #dancedefeatsdipg #djsagainstdipg #wewillenddipg #wewillgivethemhope

11/27/2021, 6:33:30 AM

Big congratulations to @luaflores5 our Grand Prize winner of the "BULLDOG" drawing. 🥳🥳🥳🥳🥳🥳🥳🥳🥳 As always, thanks to all that participated and be on the look out for our next drawings. I have a huge one coming up starting in December. I'll give you ONE CLUE!!!!! The initials are.......PS5...........🤯🤯🤯🥳🥳🥳🥳🥳🤣🤣🤣🤣🤣😍 #dancedefeatsdipg #djsagainstdipg #teamvalentinamarie #morethan4 #wewillenddipg #wewillgivethemhope #enddipg

11/19/2021, 5:48:10 AM

Big congratulations to @luaflores5 our Grand Prize winner of the "BULLDOG" drawing. 🥳🥳🥳🥳🥳🥳🥳🥳🥳 As always, thanks to all that participated and be on the look out for our next drawings. I have a huge one coming up starting in December. I'll give you ONE CLUE!!!!! The initials are.......PS5...........🤯🤯🤯🥳🥳🥳🥳🥳🤣🤣🤣🤣🤣😍 #dancedefeatsdipg #djsagainstdipg #teamvalentinamarie #morethan4 #wewillenddipg #wewillgivethemhope #enddipg

11/19/2021, 5:40:26 AM

One of my favorite pictures. Happy Friday 😊 our first trip to a pumpkin patch #pumpkinpatch #fbf #beautifulmemories #imissyoueverysecond #wewillenddipg #wewillgivethemhope #djsagainstdipg #dancedefeatsdipg #morethan4

10/22/2021, 7:44:29 PM

One of my favorite pictures. Happy Friday 😊 our first trip to a pumpkin patch #pumpkinpatch #fbf #beautifulmemories #imissyoueverysecond #wewillenddipg #wewillgivethemhope #djsagainstdipg #dancedefeatsdipg #morethan4

10/22/2021, 7:44:06 PM

Less than a week after the passing of Elijah and Princess Hailey our #dipg #teamvalentinamarie community is heartbroken again. Levi, one of our heroes, has earned his wings. Be free again Levi, play, run, laugh, be a kid again. #wewillenddipg #wemustfindacure #wewillgivethemhope #djsagainstdipg #enddipgnow #dancedefeatsdipg #childhoodcancerawareness #braincancerawareness #dipgawareness #morethan4

9/30/2021, 7:00:23 PM

Less than a week after the passing of Elijah and Princess Hailey our #dipg #teamvalentinamarie community is heartbroken again. Levi, one of our heroes, has earned his wings. Be free again Levi, play, run, laugh, be a kid again. #wewillenddipg #wemustfindacure #wewillgivethemhope #djsagainstdipg #enddipgnow #dancedefeatsdipg #childhoodcancerawareness #braincancerawareness #dipgawareness #morethan4

9/30/2021, 6:59:52 PM

Today our #dipg community is heartbroken. Princess Hailey and Elijah, two of our #teamvalentinamarie #dancedefeatsdipg dipg warriors have earned their wings. My heart breaks with their families. No words can help alleviate the pain but this poem really helped me when my Tina was set free #flylittlewingfly be free again, Elijah and Hailey, run, laugh, play, be a kid again. 🙏🙏🙏🙏🙏 #wewillenddipg #wemustfindacure #wewillgivethemhope #djsagainstdipg #enddipgnow #childhoodcancerawareness #braincancerawareness #dipgawareness #morethan4

9/24/2021, 5:11:26 PM

Today our #dipg community is heartbroken. Princess Hailey and Elijah, two of our #teamvalentinamarie #dancedefeatsdipg dipg warriors have earned their wings. My heart breaks with their families. No words can help alleviate the pain but this poem really helped me when my Tina was set free #flylittlewingfly be free again, Elijah and Hailey, run, laugh, play, be a kid again. 🙏🙏🙏🙏🙏 #wewillenddipg #wemustfindacure #wewillgivethemhope #djsagainstdipg #enddipgnow #childhoodcancerawareness #braincancerawareness #dipgawareness #morethan4

9/24/2021, 5:10:56 PM

Drumroll 🥁 Please! With ONE month away from San Pedro Relay for Life, we are at 47 Luminaria Bags to honor Valentina Marie and other fighters, heroes, and angels at this super special event. So, so honored! Cancer is the leading cause of death by disease in American children. Each day 43 kids in the United States are diagnosed with cancer. With pediatric cancer severely underfunded, San Pedro Relay for Life’s #Team Valentina Marie, Gold Together is working hard for the third year in a row to support all children from this devastating reality. We miss our Princess greatly. Let her beautiful Angel wings continue to fly over us while her tumor tissue lives here on Earth for the cure to come 🐞🎗. Now, let’s get to 6o Luminaria bags! Reserve yours by: Venmo: @Emily-Hernand PayPal: [email protected] Zelle: Message for details. #teamvalentinamarie #morethan4 #djsagainstdipg #dancedefeatsdipg #dipgawareness #braincancerawareness #childhoodcancerawareness #wewillenddipg #wewillgivethemhope #wemustenddipg #dipg #luminaria

9/17/2021, 5:54:47 AM

Drumroll 🥁 Please! With ONE month away from San Pedro Relay for Life, we are at 47 Luminaria Bags to honor Valentina Marie and other fighters, heroes, and angels at this super special event. So, so honored! Cancer is the leading cause of death by disease in American children. Each day 43 kids in the United States are diagnosed with cancer. With pediatric cancer severely underfunded, San Pedro Relay for Life’s #Team Valentina Marie, Gold Together is working hard for the third year in a row to support all children from this devastating reality. We miss our Princess greatly. Let her beautiful Angel wings continue to fly over us while her tumor tissue lives here on Earth for the cure to come 🐞🎗. Now, let’s get to 6o Luminaria bags! Reserve yours by: Venmo: @Emily-Hernand PayPal: [email protected] Zelle: Message for details. #teamvalentinamarie #morethan4 #djsagainstdipg #dancedefeatsdipg #dipgawareness #braincancerawareness #childhoodcancerawareness #wewillenddipg #wewillgivethemhope #wemustenddipg #dipg #luminaria

9/17/2021, 5:54:07 AM

Meet Levi. Levi is a handsome thirteen year old warrior, DIPG Hero 🤴👊🏻. Such.A. Courageous. Fighter! He is from Colorado Springs, CO and was diagnosed with DIPG in July 2020. Levi has experienced two clinical trials, radiation, three brain surgeries, and too many MRIs and pokes. (As our 🐞 would ask before every doctor visit, no matter the doc, “No pokies or ouchies?” 😭) Levi participated in Seattle Children’s Hospital CAR T Cell Trial, just as Hero Emily. Just a few weeks ago, Levi was placed on hospice care at home, due to the progression. Thanks to this beautiful team & the generous sponsorship of Leonora Alfonso Stone, the care package will arrive any day! With sponsorship, each care package includes a $50 Amazon card, (if out of state or overseas) or grocery/gas cards if local (residing in CA) where we are able to specify grocery store and gas station locations. If we can bring a smile and a distraction from the chaos of living with this fatal pediatric cancer, even if it’s for just one moment- we have fulfilled our mission. You, #teamvalentinamarie, are making this all possible. Keep up the fight Adorable Levi! We #negu for you❤️ courageous boy! Sending the family love, prayers, light & HOPE. Please continue to leave messages of hope, light, prayer, and support for mom Katie McConnell & family below. #dancedefeatsdipg #djsagainstdipg #dipg #dipgawareness #childhoodcancerawareness #braincancerawareness #morethan4 #wemustenddipg #wewillgivethemhope

8/22/2021, 7:59:20 PM

Meet Levi. Levi is a handsome thirteen year old warrior, DIPG Hero 🤴👊🏻. Such.A. Courageous. Fighter! He is from Colorado Springs, CO and was diagnosed with DIPG in July 2020. Levi has experienced two clinical trials, radiation, three brain surgeries, and too many MRIs and pokes. (As our 🐞 would ask before every doctor visit, no matter the doc, “No pokies or ouchies?” 😭) Levi participated in Seattle Children’s Hospital CAR T Cell Trial, just as Hero Emily. Just a few weeks ago, Levi was placed on hospice care at home, due to the progression. Thanks to this beautiful team & the generous sponsorship of Leonora Alfonso Stone, the care package will arrive any day! With sponsorship, each care package includes a $50 Amazon card, (if out of state or overseas) or grocery/gas cards if local (residing in CA) where we are able to specify grocery store and gas station locations. If we can bring a smile and a distraction from the chaos of living with this fatal pediatric cancer, even if it’s for just one moment- we have fulfilled our mission. You, #teamvalentinamarie, are making this all possible. Keep up the fight Adorable Levi! We #negu for you❤️ courageous boy! Sending the family love, prayers, light & HOPE. Please continue to leave messages of hope, light, prayer, and support for mom Katie McConnell & family below. #dancedefeatsdipg #djsagainstdipg #dipg #dipgawareness #childhoodcancerawareness #braincancerawareness #morethan4 #wemustenddipg #wewillgivethemhope

8/22/2021, 7:58:38 PM

Meet Mary. Mary is a beautiful five year old princess, DIPG Hero 👸 👊🏻. Despite all of her challenges Mary’s joy and strength is contagious (something that resonates deep within as was so evident in our little 🐞). It’s truly unbelievable and even more unbelievable to witness. Such.A. Beautiful. Fighter! She is from Northglenn, CO and was diagnosed with DIPG in October 2020. Mary’s story began very similar to Valentina Marie’s- and most DIPG patients with noticeable changes/symptoms that appear minor at onset but rapidly progress. After 30 rounds of radiation therapy, Mary was able to begin the CAR-T Cell Therapy trial and was the seventh person in the entire country to undergo it (Angel Jace Ward, Kyra, Julianne, Alexandra included❤️). This is the trial conducted by Dr. Monje & team at Stanford, home of Valentina Marie’s tumor tissue. Mary’s preschool has rallied around the family to keep #MaryStrong and her family is so grateful from their community’s support, faith, and beyond. Thanks to this beautiful team & the generous sponsorship of Claudia Abad the care package will arrive any day! With sponsorship, each care package includes a $50 Amazon card, (if out of state or overseas) or grocery/gas cards if local (residing in CA) where we are able to specify grocery store and gas station locations. If we can bring a smile and a distraction from the chaos of living with this fatal pediatric cancer, even if it’s for just one moment- we have fulfilled our mission. You, #teamvalentinamarie, are making this all possible. Keep up the fight Beautiful Mary! We #negu for you❤️ beautiful girl! Sending the family love, prayers, light & HOPE. #wewillfindacure #wewilldefeatdipg #wewillgivethemhope #enddipg #dipg #morethan4 #braincancerawareness #dipgawareness #childhoodcancerawareness #dancedefeatsdipg #djsagainstdipg

7/24/2021, 3:36:20 AM

Meet Mary. Mary is a beautiful five year old princess, DIPG Hero 👸 👊🏻. Despite all of her challenges Mary’s joy and strength is contagious (something that resonates deep within as was so evident in our little 🐞). It’s truly unbelievable and even more unbelievable to witness. Such.A. Beautiful. Fighter! She is from Northglenn, CO and was diagnosed with DIPG in October 2020. Mary’s story began very similar to Valentina Marie’s- and most DIPG patients with noticeable changes/symptoms that appear minor at onset but rapidly progress. After 30 rounds of radiation therapy, Mary was able to begin the CAR-T Cell Therapy trial and was the seventh person in the entire country to undergo it (Angel Jace Ward, Kyra, Julianne, Alexandra included❤️). This is the trial conducted by Dr. Monje & team at Stanford, home of Valentina Marie’s tumor tissue. Mary’s preschool has rallied around the family to keep #MaryStrong and her family is so grateful from their community’s support, faith, and beyond. Thanks to this beautiful team & the generous sponsorship of Claudia Abad the care package will arrive any day! With sponsorship, each care package includes a $50 Amazon card, (if out of state or overseas) or grocery/gas cards if local (residing in CA) where we are able to specify grocery store and gas station locations. If we can bring a smile and a distraction from the chaos of living with this fatal pediatric cancer, even if it’s for just one moment- we have fulfilled our mission. You, #teamvalentinamarie, are making this all possible. Keep up the fight Beautiful Mary! We #negu for you❤️ beautiful girl! Sending the family love, prayers, light & HOPE. #wewillfindacure #wewilldefeatdipg #wewillgivethemhope #enddipg #dipg #morethan4 #braincancerawareness #dipgawareness #childhoodcancerawareness #dancedefeatsdipg #djsagainstdipg

7/24/2021, 3:35:57 AM

Meet Reese. Reese is an adorable five year old princess, DIPG Hero 👸 🎗. Her story is one of 💔 but a testimony of just how powerful & strong these tiny little humans of ours are- meant for the greatest and most divine things- in this highly unfair world of so little funding to support research and the cure for the most fatal of all cancers. Such.A.Hero! * please note, I’ve been given permission to share part of this hero’s story. She is from Mainville, OH and was diagnosed with DIPG in 2019. She is almost two years post diagnosis this August, and is still fighting with a stable tumor. 🙏. Reese’s heroism does not just stem from her second by second fight with this most fatal pediatric cancer. Reese was born premature and hardly breathing. By two years of age, she suffered from so much physical abuse from her biological family members, that it took toll on her body and left her with disabilities and special needs to carry for her lifetime. In 2017, she moved in with foster parents, unable to see, struggling to speak and walk. Please note: This was all prior to her diagnosis in 2019. This is so much more than a heroic warrior Princess❤️. Her family continues to hold on to the faith that she will beat this. Thanks to this beautiful team & the generous sponsorship of Michael Schiotis, the care package was sent out yesterday. With sponsorship each care package includes a $50 Amazon card, (if out of state or overseas) or grocery/gas cards if local (residing in CA) where we are able to specify grocery store and gas station locations. If we can bring a smile and a distraction from the chaos of living with this fatal pediatric cancer, even if it’s for just one moment- we have fulfilled our mission. You, #teamvalentinamarie, are making this all possible. Keep up the fight Beautiful Reese! We #negu for you❤️ brave girl! Sending the family love, prayers, light & HOPE. #wewillfindacure #wewilldefeatdipg #teamvalentinamarie #wewillgivethemhope #djsagainstdipg #dancedefeatsdipg #braincancerawareness #dipgawareness #morethan4 #childhoodcancerawareness

7/22/2021, 12:21:40 AM

Meet Reese. Reese is an adorable five year old princess, DIPG Hero 👸 🎗. Her story is one of 💔 but a testimony of just how powerful & strong these tiny little humans of ours are- meant for the greatest and most divine things- in this highly unfair world of so little funding to support research and the cure for the most fatal of all cancers. Such.A.Hero! * please note, I’ve been given permission to share part of this hero’s story. She is from Mainville, OH and was diagnosed with DIPG in 2019. She is almost two years post diagnosis this August, and is still fighting with a stable tumor. 🙏. Reese’s heroism does not just stem from her second by second fight with this most fatal pediatric cancer. Reese was born premature and hardly breathing. By two years of age, she suffered from so much physical abuse from her biological family members, that it took toll on her body and left her with disabilities and special needs to carry for her lifetime. In 2017, she moved in with foster parents, unable to see, struggling to speak and walk. Please note: This was all prior to her diagnosis in 2019. This is so much more than a heroic warrior Princess❤️. Her family continues to hold on to the faith that she will beat this. Thanks to this beautiful team & the generous sponsorship of Michael Schiotis, the care package was sent out yesterday. With sponsorship each care package includes a $50 Amazon card, (if out of state or overseas) or grocery/gas cards if local (residing in CA) where we are able to specify grocery store and gas station locations. If we can bring a smile and a distraction from the chaos of living with this fatal pediatric cancer, even if it’s for just one moment- we have fulfilled our mission. You, #teamvalentinamarie, are making this all possible. Keep up the fight Beautiful Reese! We #negu for you❤️ brave girl! Sending the family love, prayers, light & HOPE. #wewillfindacure #wewilldefeatdipg #teamvalentinamarie #wewillgivethemhope #djsagainstdipg #dancedefeatsdipg #braincancerawareness #dipgawareness #morethan4 #childhoodcancerawareness

7/22/2021, 12:18:03 AM

Meet Kimberlee. Kimberlee is an adorable ten year old DIPG Hero 👸🎗. She is described by family as spunky & sassy❤️. Such.A.Fighter! She is from Holden, LA and was diagnosed with DIPG in March 2021. She received radiation therapy at St. Jude from March-May and will continue on her brave path to a future clinical trial after follow up in Dallas, TX. Thanks to this beautiful team & the generous sponsorship of Esther Arreola, the care package was sent out Saturday. With sponsorship each care package includes a $50 Amazon card, (if out of state or overseas) or grocery/gas cards if local (residing in CA) where we are able to specify grocery store and gas station locations. If we can bring a smile and a distraction from the chaos of living with this fatal pediatric cancer, even if it’s for just one moment- we have fulfilled our mission. You, #teamvalentinamarie, are making this all possible. Keep up the fight beautiful Kimberlee! We #negu for you❤️ brave girl! Sending the family love, prayers, light & HOPE 🐞. #dipgawareness #dancedefeatsdipg #djsagainstdipg #valentinathebrave #braincancerawareness #childhoodcancerawareness #morethan4 #dipg #wewillfindacure #wewillenddipg #wewillgivethemhope

6/23/2021, 5:34:20 PM