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Creative Reflections for the Day of ♃ some times the beast I let out is better contained until all the work is done I may what to fly but like Icarus heed the warning of wiser parties to not soar to close to the sun sometimes it’s better to not go up against those bigger than me in the hope of defeating the giant instead follow what is right & correct leave it up to others to report otherwise I endanger my position Tools - Jean Noblet Tarot The Endless Odyssey #tarotcreativereflection #tarotliving #jeannoblettarot #theendlessodyssey #tarotreaderofinstagram #tarotjournalling #bookofmirrors #cosmicwitchery #poeticwitchery #neoalchemy #witchesofinstagram #heartjourney

5/9/2024, 11:43:08 AM

𝗕𝗲𝗮𝘂𝘁𝗶𝗳𝘂𝗹 𝗻𝗲𝘄 𝗳𝗼𝗹𝗹𝗼𝘄𝗲𝗿𝘀, 𝗪𝗲𝗹𝗰𝗼𝗺𝗲 𝗮𝘁 𝗖𝘂𝗼𝗿𝗲♥︎ Ik ben dankbaar voor de nieuwe connecties met Cuore en ik wil me graag even opnieuw voorstellen. So here a little something about me; Ik heb een openminded vibe en een onwijs nieuwsgierige blik. In essentie ben ik zacht en gevoelig en in bepaalde stukken ben ik ook verhard. Ik verbind graag en ik ben graag op mezelf. Ik geloof niet in of/of, maar in en/en. Ik houd van esthetiek en ik kan me intens verwonderen over van alles wat ik in het leven tegen kom. Ik zit vol energie, maar zoek ook graag de stilte op. Ik houd van minimalisme, een goed boek en fijne gesprekken met vriendinnen. Ik voel veel en ik heb momenten voor mezelf nodig om op te laden, dan trek ik me graag even terug omdat de wereld om me heen me dan te veel wordt. Zodra ik mijn batterij heb opgeladen deel ik graag mijn energie met mijn gezin, mijn tribe en met mijn inner circle. Al vanaf jonge leeftijd ben ik bewust én onbewust bezig met mijn eigen ontwikkeling en groei. Ik heb altijd al grote levensvragen gehad over ons bestaan en dit blijft een geweldige, intense, altijd voortdurende ontdekkingstocht. Mijn reis naar waar ik nu sta en naar wat ik nu doe, komt voort uit een persoonlijke zoektocht naar veiligheid en zelfliefde. Als kind kende ik dit gevoel niet. Ik ben al vroeg het contact met mijn hart verloren en heb vooral mijn ratio de leiding gegeven. Dit kon ook niet anders, het was mijn overlevingsstrategie. Toen was dat nodig, maar er komt een moment in je leven dat het je niet meer dient. Ik koos liefde boven angst en leerde mijn innerlijke stem te vertrouwen, mijn intuïtie, de stem van mijn ziel, die spreekt via mijn hart. De tools en oefeningen die mij hielpen terug te keren naar mezelf, vormen nu het hart van het aanbod van 𝗖𝘂𝗼𝗿𝗲, ontworpen om anderen te begeleiden naar het realiseren van hun eigen heartjourney. Ik ben jouw guidance in jouw heartjourney, jouw spaceholder voor heling & empowerment♡ Nieuwsgirig naar mijn aanbod, Check mijn linkinbio ♥︎Danie 📸 @daisyvondutch_photographer MUA @phylicia.jpg #instagood #empowerment #healing #heartjourney #cacao #coaching #coach #spaceholder

5/9/2024, 9:07:36 AM

‘Teegan had her annual heart check up today, all good thankfully but a bit of an end of her childhood chapter with Dr Rigby. He has been her consultant since she was born and been through many a traumatic time with us. We gave him gifts today (swipe ⬅️) to thank him for all his care and expertise with Teegan in the last 16 years. He was really quite touched to receive them x.’ Thank you to Teegan’s mum Kelly for the pictures and sharing her journey. ❤️💙 #ImABromptonBaby #WorldClassCare #RoyalBromptonHospital #Heart #Cardiac #Cardiologist #HeartJourney #Care #Expertise #NHS #DrRigby #TheBromptonFountain #Chairman

5/8/2024, 9:15:43 PM

Yesterday was what we call our day 0. It involves getting everything situated in the house and finding what works and what doesn't. Establishing our new routines and "normals." This morning starts our official day 1. A full round of home medications and feeds. We have already worked up a new schedule of medications because in the hospital there were 15+ meds at one time. For a fluid sensitive kid, that does not work well and results in throw ups. This was part of the frustration of being in a hospital setting where things have to be more rigid. Now that we are home, we can adjust both food and med times and volumes to better adjust to what Nick's needs are. I'm kind of neurotic about trying to be organized via spreadsheets. Everything goes into a spreadsheet; house cleaning chores, meal planning, Nick's medicine schedules, Nick's feeding calculations, house projects, etc. What would life even be without Excel spreadsheets? No clue and I shutter at even the idea of it. Nick's first words today were, "Hey Mom,  sleeping in my own bed was awesome!" Melted my heart. There are too many times in the hospital when we can't do things for Nick. The thing we can do is to be his advocates and push more aggressively for discharge because we know he heals and thrives when we are in our own environment. The sun is out today. God is shining his light on Nick to show the world of His love. 1 John 3:1 - See what kind of love the Father has given to us, that we should be called children of God; and so we are. The reason why the world does not know us is that it did not know him. #CHDLife #NicksHeart #HLHS  #CHDAwareness   #MyCHDwarrior #HeterotaxyLife #IAmTheStorm #gtube #tubefed #heartwarrior #CHDawareness #CHD #CHDkid #CHDsurvivor #singleventricle #halfaheart #heartfamily #heartjourney

5/8/2024, 7:13:28 PM

Creative Reflections for the Day of ☿ the time has come to channel my energy towards collective will of the universe not my will alone obstacles or delays are behind me each of my gifts are a treasure that are wrong to keep secreted away from the rest of the universe poised for the next leap into fray but stay humble in victory & ready to set sail into a new era of exploration that lets the heart soar free experiences are collected & give life to a garden of fresh new memories Tools - Jean Noblet Tarot The Endless Odyssey #tarotcreativereflection #tarotliving #jeannoblettarot #theendlessodyssey #tarotreaderofinstagram #tarotjournalling #bookofmirrors #cosmicwitchery #poeticwitchery #neoalchemy #witchesofinstagram #heartjourney

5/8/2024, 12:24:34 PM

It's #NationalNursesWeek🩺 Today we celebrate the wonderful nurses who advocate and care for us and our loved ones. We thank you for the difference you make in each patient's life. Comment below a nurse who has made a positive impact on you or your loved one's #HeartJourney ❤️

5/7/2024, 11:45:17 PM

It's #NationalNursesWeek🩺 Today we celebrate the wonderful nurses who advocate and care for us and our loved ones. We thank you for the difference you make in each patient's life. Comment below a nurse who has made a positive impact on you or your loved one's #HeartJourney ❤️

5/7/2024, 11:45:17 PM

The New Moon in Taurus is here 🌙, and I am catching rainbows in my mug ☺️🌈✨Aren’t they spectacular! The new moon is an opportunity to plant new seeds for the future and uncover what sparks true joy in our lives (which may include experiences, relationships, places, aligned career paths, etc.) In order to get there, we need to connect with our hearts first, deeply and fully, and tame our fear-based egos to the best of our ability. Which, I know, is not an easy feat (speaking from my own experience), but, ultimately, it is a journey of radical authenticity (and self-acceptance) that is worth exploring and leaning into imho. 🙏✨❤️ As a powerful heart-opener, Ceremonial Cacao helps us connect with our hearts paving the way for the most authentic and fulfilling path forward. It also invites us to love ourselves deeply and unconditionally. If you feel called to go on a little intention-setting journey during this new moon, feel free to use my guided Cacao and Intention-setting meditation available on my website https://www.glowcacao.com/cacao-ceremony) 💗🌙✨ #ceremonialcacao #newmoon #newmoonintentions #heartliving #heartjourney #cacaoceremony #cacaoritual #taurusnewmoon #plantmedicine #meditation #wellness #selfcare #selflovejourney #heartopener #soulpurpose #soulawakening #soulalignment #spreadlove #spreadjoy

5/7/2024, 11:41:18 PM

So much gratitude for this beautiful wonderful life that I live 💎👆♥️☀️ #PerceptionIsEverything #CreatingMyReality #FromTheInsideOut #HeartJourney

5/7/2024, 3:33:06 PM

Creative Reflections for the Day of ♂ now is not the time to loose my head, go back to basic, refocus my will on rebuilding each unique part brings something unique to the whole when it comes to banding together to change the future outcome take a action that is decisive to quell the most urgent crisis that pacifies the need to charge full steam ahead instead bide one’s time for when the right moment to arrive Tools - Jean Noblet Tarot The Endless Odyssey #tarotcreativereflection #tarotliving #jeannoblettarot #theendlessodyssey #tarotreaderofinstagram #tarotjournalling #bookofmirrors #cosmicwitchery #poeticwitchery #neoalchemy #witchesofinstagram #heartjourney

5/7/2024, 12:28:39 PM

Join us for a soul-nourishing journey and start your weekend harmoniously by immersing yourself in The Heart Journey Friday Sound Circle - a transformative experience of the heart and mind through intentions and sound. 🙏🎶 Crafted with love by Raechelle Fahey, a dedicated Sound Healing and Breathwork facilitator from @sacredsounds.au and Emma Lagerlow, a holistic wealth and mindset coach, entrepreneur, and meditation leader for The Meditation Headquarters. The Heart Journey Sound Circle invites you to step into a sacred space of self-compassion, harmony, relaxation, and connection. 🫶 We're honored to be welcomed into the beautiful Alasana studio in Gymea by @alasana_yoga and @alasana_hypnotherapy 🤩 Event details: ✨ Date: Friday, May 10th ✨ Time: 6:30-8:30pm ✨ Location: Alasana Yoga Studio, Gymea ✨ Cost: $60 plus booking fee What awaits you: ✨ A sanctuary for renewal and reconnection ✨ Soul-nourishing intentions and mindfulness practices ✨ Guided meditation ✨ The soothing embrace of sound vibrations For further information and ticket reservations, click the link in the @emmalagerlow bio. Let's journey together toward inner peace and serenity. 💕

5/7/2024, 3:49:48 AM

I wanted to make a video showing how far we have come. Something triumphant and uplifting about perseverance. The truth is, trying to look back is still too close and raw. We've been running in survival mode and I'm too exhausted and haven't even processed everything. Eventually, my compartmentalized packages of events will have to be unwrapped and meaningfilly reflected on. Just not yet. Right now, we are still trying to cope with his current physical state and the unexpected and unfavorable outcomes of this surgery. We need distance and more time away from the hospital to fully heal. We just need to be home because home is where we can all be together. Although being at home is a huge step, we are never out of the woods. There are lingering questions and fears of the possibility of continued infection and his overall heart function. But we power through and have faith that we are doing and making the best decisions for Nick that we can. We are still on track for discharge tomorrow. I won't quite believe it until we are in the car and on the road. A big part of us being here has been the love and support of our village. THANK YOU for the well wishes, gift cards, meals, time spent with our kids, and all of the prayers. They all really lifted us when we were desperately at our lowest. #CHDLife #NicksHeart #HLHS  #CHDAwareness   #MyCHDwarrior #HeterotaxyLife #IAmTheStorm #gtube #tubefed #heartwarrior #CHDawareness #CHD #CHDkid #CHDsurvivor #singleventricle #halfaheart #heartfamily #heartjourney

5/7/2024, 2:11:17 AM

Creative Reflections for the Day of ☽ know the question as the answer I seek is already within me loosing sight of one’s goals it can one to become muddled turned around so my focus is on the wrong thing keep it clear what the big picture is centre & ground & reinforce my boundaries & position against incursion from others who’s priorities don’t mesh with mine Tools - Jean Noblet Tarot The Endless Odyssey #tarotcreativereflection #tarotliving #jeannoblettarot #theendlessodyssey #tarotreaderofinstagram #tarotjournalling #bookofmirrors #cosmicwitchery #poeticwitchery #neoalchemy #witchesofinstagram #heartjourney

5/6/2024, 12:15:54 PM

- Rumi ❤️ 🌹💎❤️🌹💎❤️🌹💎❤️🌹💎❤️💎🌹 #spiritualalchemy #divinelove #heartjourney #hearthealing #wholeness

5/6/2024, 11:03:53 AM

Creative Reflections for the Day of ☉ making wise choices, means knowing the difference between what I want vs what I need from source to being a rush of blood & heat to be directed as I see fit excess energy enclosed that need to released in a more positive manner that subdues the need to rage when I feel a conflicted pull in which thing to tackle first Tools - Jean Noblet Tarot The Endless Odyssey #tarotcreativereflection #tarotliving #jeannoblettarot #theendlessodyssey #tarotreaderofinstagram #tarotjournalling #bookofmirrors #cosmicwitchery #poeticwitchery #neoalchemy #witchesofinstagram #heartjourney

5/5/2024, 10:43:12 AM

April 30 Here our are newest pajamas from @littlefrugalsbamboo “wildflowers.” Every time a new print comes out I have a new favorite. I got a pair of pants to match Kimberly. She also has the twirl dress that we wore out to eat but I forgot to take pictures. Arron bought me flowers so they made the perfect picture. #baby #babygirl #hrhs #hypoplasticrightheartsyndrome #chd #chdlife #congenitalheartdefect #heartbaby #chdwarrior #chdbaby #chdawareness #firstbaby #rainbowbaby #kimberlymarieramsey #tricuspidatresia #halfaheart #heartstrong #heartjourney #conqueringCHD #1in100 #heartwarrior #babiesofinstagram #glennprocedure #zipperclub #happy #blueeyes #flowers #roses #bamboo #pajamas

5/5/2024, 7:06:37 AM

April 27 Kimberly will sometimes wake up between 10-11pm and won’t go back to sleep. She was crying and crying wanting to be held so I gave her the tablet while I got everything ready for bed. I turn around and she’s just relaxing holding the tablet watching Ms Rachel. #baby #babygirl #hrhs #hypoplasticrightheartsyndrome #chd #chdlife #congenitalheartdefect #heartbaby #chdwarrior #chdbaby #chdawareness #firstbaby #rainbowbaby #kimberlymarieramsey #tricuspidatresia #halfaheart #heartstrong #heartjourney #conqueringCHD #1in100 #heartwarrior #babiesofinstagram #glennprocedure #zipperclub #happy #blueeyes #msrachel #msrachelforlittles #tablet #nightowl

5/5/2024, 6:55:14 AM

April 22 Kimberly loves taking pictures. I hope she is always likes this and wants to continue documenting her heart journey when she’s old enough. It will be nice to look back on and see all the battles she has won. Each scar is a battle she won to continue living. #baby #babygirl #hrhs #hypoplasticrightheartsyndrome #chd #chdlife #congenitalheartdefect #heartbaby #chdwarrior #chdbaby #chdawareness #firstbaby #rainbowbaby #kimberlymarieramsey #tricuspidatresia #halfaheart #heartstrong #heartjourney #conqueringCHD #1in100 #heartwarrior #babiesofinstagram #glennprocedure #zipperclub #happy #blueeyes #scars #health #living

5/5/2024, 6:12:25 AM

Creative Reflections for the Day of ♄ increase my vibrations by maintaining the right attitude for success mysterious siren queen of the depths the balm of the nurturer supreme a gentle defender gifted with insight communicates in riddles & metaphor slight of hand & a slip of tongue subconscious, ego and the conscious speaks through Mother Nature love the muse of creation & expansion embrace the chaos of the changing season Tools - Ritual Tarot Universal Mind Oracle #tarotcreativereflection #tarotliving #ritualtarot #universalmindoracle #tarotreaderofinstagram #tarotjournalling #bookofmirrors #cosmicwitchery #poeticwitchery #neoalchemy #witchesofinstagram #heartjourney

5/4/2024, 3:16:27 PM

April 16 I had to go to the social security office because they scheduled interviews and I didn’t get the notice about the interview until two weeks after. They really try to set this up so you can’t get social security or try to set you up so it gets canceled. Thankfully I got it all fixed. Arron had to take my mom to her doctor appointment and took Kimberly with him. This is the adorable picture I get while I am sitting and waiting. #baby #babygirl #hrhs #hypoplasticrightheartsyndrome #chd #chdlife #congenitalheartdefect #heartbaby #chdwarrior #chdbaby #chdawareness #firstbaby #rainbowbaby #kimberlymarieramsey #tricuspidatresia #halfaheart #heartstrong #heartjourney #conqueringCHD #1in100 #heartwarrior #babiesofinstagram #glennprocedure #zipperclub #happy #blueeyes #daddy #daddydaughter #daddysgirl

5/4/2024, 5:15:13 AM

After being cooped up in the hospital for 68 straight days, Nick finally got to go outside today! A little sunshine and soft breeze on the face can do wonders for the spirit. ❤️ Please pray that we have an uneventful last weekend in the hospital. Hopefully, the final labs and dose of antibiotics will be on Monday afternoon. We still need pacer wires and picc line removed before discharge. We will also have to sort out a new set of prescriptions for medications, new gtube foods for chyle, and some additional medical equipment. If after the weekend everything still looks good, discharge is possible as early as Tuesday! The last few months have been long and very challenging. We are beyond exhausted and just looking forward to getting some distance both physically and emotionally from this hospital stay. #CHDLife #NicksHeart #HLHS  #CHDAwareness   #MyCHDwarrior #HeterotaxyLife #IAmTheStorm #gtube #tubefed #heartwarrior #CHDawareness #CHD #CHDkid #CHDsurvivor #singleventricle #halfaheart #heartfamily #heartjourney

5/4/2024, 2:28:46 AM

April 11 I knew it was only a matter of time. But Kimberly tried her first dog treat today. I didn’t realize she ripped it open and took a bite out. Guess good thing it’s barkbox so it’s all healthy lol. #baby #babygirl #hrhs #hypoplasticrightheartsyndrome #chd #chdlife #congenitalheartdefect #heartbaby #chdwarrior #chdbaby #chdawareness #firstbaby #rainbowbaby #kimberlymarieramsey #tricuspidatresia #halfaheart #heartstrong #heartjourney #conqueringCHD #1in100 #heartwarrior #babiesofinstagram #glennprocedure #zipperclub #happy #blueeyes #barkbox #dogtreats

5/4/2024, 1:55:33 AM

Creative Reflections for the Day of ♀ realigning energies, takes time & a mindful being, connect to the present a reinvigorated sense of oneness high hopes means staying grounded being contented & equally motivated accept what I have & where I am the time for transitional healing asks me embrace the process a new crossroads asks one to choose make a new commitment to myself a chance to come full circle Tools - Ritual Tarot Universal Mind Oracle #tarotcreativereflection #tarotliving #ritualtarot #universalmindoracle #tarotreaderofinstagram #tarotjournalling #bookofmirrors #cosmicwitchery #poeticwitchery #neoalchemy #witchesofinstagram #heartjourney

5/3/2024, 2:28:45 PM

April 8 Kimberly loves spending time with her daddy. She knows high five now. She gets so excited and happy when you put your hand up and say high five. She learns something new every day. #baby #babygirl #hrhs #hypoplasticrightheartsyndrome #chd #chdlife #congenitalheartdefect #heartbaby #chdwarrior #chdbaby #chdawareness #firstbaby #rainbowbaby #kimberlymarieramsey #tricuspidatresia #halfaheart #heartstrong #heartjourney #conqueringCHD #1in100 #heartwarrior #babiesofinstagram #glennprocedure #zipperclub #happy #blueeyes #daddydaughter #daddysgirl #daddy

5/3/2024, 4:00:11 AM

April 3 Kimberly had some pasta for dinner. We keep trying some different foods but Kimberly will still get scared and throw up. The GI specialist said to be patient and she will get it eventually. #baby #babygirl #hrhs #hypoplasticrightheartsyndrome #chd #chdlife #congenitalheartdefect #heartbaby #chdwarrior #chdbaby #chdawareness #firstbaby #rainbowbaby #kimberlymarieramsey #tricuspidatresia #halfaheart #heartstrong #heartjourney #conqueringCHD #1in100 #heartwarrior #babiesofinstagram #glennprocedure #zipperclub #happy #blueeyes #dinner #pasta #newfood #yummy

5/3/2024, 2:39:13 AM

April 1 We had to get Kimberly a cow Easter basket. Also @littlefrugalsbamboo brought out some Holstein pajamas “Spring Moos.” I had to get them for Kimberly’s Easter basket of course! #baby #babygirl #hrhs #hypoplasticrightheartsyndrome #chd #chdlife #congenitalheartdefect #heartbaby #chdwarrior #chdbaby #chdawareness #firstbaby #rainbowbaby #kimberlymarieramsey #tricuspidatresia #halfaheart #heartstrong #heartjourney #conqueringCHD #1in100 #heartwarrior #babiesofinstagram #glennprocedure #zipperclub #happy #blueeyes #cows #holstein #easter #pajamas

5/3/2024, 2:01:41 AM

I love prepping my therapy room for sacred journeys. Little mementos of fresh flowers, candles, herbal teas, books, comfy pillows and blankets, art supplies, crystals, oracle cards, and an open window blowing in fresh air. Cultivating safety within and without. So that the heart can begin to open and unfold at its own unique pace. #ketamineassistedtherapy #kap #sacredjourney #heartjourney

5/3/2024, 1:55:39 AM

March 31 Today was Easter! Kimberly is wearing “Hoppy Hipsters” from @littlefrugalsbamboo They are the cutest bunnies with sunglasses on. Kimberly won an Easter basket in a Facebook group. Arron went and picked it up at Walmart. It had some adorable stuffed animals and a ball. We have been wanting to get a ball for Kimberly to play with but I could never find one. Kimberly cuddled with her Auntie Melinda and cousin Thomas after we had Easter dinner. #baby #babygirl #hrhs #hypoplasticrightheartsyndrome #chd #chdlife #congenitalheartdefect #heartbaby #chdwarrior #chdbaby #chdawareness #firstbaby #rainbowbaby #kimberlymarieramsey #tricuspidatresia #halfaheart #heartstrong #heartjourney #conqueringCHD #1in100 #heartwarrior #babiesofinstagram #glennprocedure #zipperclub #happy #blueeyes #easter #easterbasket #family #cousins

5/3/2024, 1:52:48 AM

dein herz ist in deinem körper. dein herz schlägt für dich. dein herz hält dich am leben. dein herz lebt für dich. in dir. dein herz ist ausdruck deiner liebe. dein herz ist deine liebe. deine liebe in deinem herzen. dein herz. für dich. für die liebe. zu dir. zu anderen. liebe. dich. denn dein herz schlägt für dich. in dir. LOVE. always. 🫀🤍🙏🏽✨ __________________________________________________________ #liebe #love #herz #poetry #leben #life #thankful #dankbarkeit #bewusstsein #god #journey #erkenntnisse #knowledge #heartjourney

5/2/2024, 9:58:04 PM

March 30 The winery Arron works at had an Easter egg hunt for employees and their families. This was our first Easter egg hunt as a family. Kimberly was barely home from the hospital last Easter so we didn’t celebrate the holiday. Kimberly is wearing a gorgeous handmade Minnie Mouse dress from my bff’s super talented mom. If you have a little girl in your life, you must check out her shop, @kikasprettylittledresses06 #baby #babygirl #hrhs #hypoplasticrightheartsyndrome #chd #chdlife #congenitalheartdefect #heartbaby #chdwarrior #chdbaby #chdawareness #firstbaby #rainbowbaby #kimberlymarieramsey #tricuspidatresia #halfaheart #heartstrong #heartjourney #conqueringCHD #1in100 #heartwarrior #babiesofinstagram #glennprocedure #zipperclub #happy #blueeyes #easter #easterbunny #easteregghunt #eastereggs

5/2/2024, 8:02:05 PM

March 29 Last year I got pictures of Kimberly with the Easter bunnies that Arron has bought me the last few years. A tradition his dad did with him and now he’s continuing with Kimberly. So I wanted to get pictures of her with the bunnies to document how much she has grown in the last year. I cannot believe she has been home from her long five week hospital stay for almost a year. She came home with the ng tube and not able to take a bottle. Now look at big she has gotten. She has accomplished so much this last year it’s hard to remember those first five weeks at the hospital. First picture is from last year. The other pictures are now. She is wearing “Dance Mode” from @littlefrugalsbamboo . #baby #babygirl #hrhs #hypoplasticrightheartsyndrome #chd #chdlife #congenitalheartdefect #heartbaby #chdwarrior #chdbaby #chdawareness #firstbaby #rainbowbaby #kimberlymarieramsey #tricuspidatresia #halfaheart #heartstrong #heartjourney #conqueringCHD #1in100 #heartwarrior #babiesofinstagram #glennprocedure #zipperclub #happy #blueeyes #easter #oneyear #bunny #holiday

5/2/2024, 1:12:01 PM

March 25 Kimberly has my mom’s old tablet. YouTube still works on it so Kimberly can watch Ms Rachel. It was a nice day today so we were able to open the windows and doors. Kimberly loves to sit at the front door and watch everything outside. #baby #babygirl #hrhs #hypoplasticrightheartsyndrome #chd #chdlife #congenitalheartdefect #heartbaby #chdwarrior #chdbaby #chdawareness #firstbaby #rainbowbaby #kimberlymarieramsey #tricuspidatresia #halfaheart #heartstrong #heartjourney #conqueringCHD #1in100 #heartwarrior #babiesofinstagram #glennprocedure #zipperclub #happy #blueeyes #msrachel #msrachelforlittles #learning #screentime

5/2/2024, 1:05:18 PM

March 24 Mimi made Kimberly scrambled eggs today. She loves eggs. Like always she has pajamas on from @littlefrugalsbamboo “Pitter Patter.” They are adorable duckies in raincoats. This afternoon she once again grabbed the switch. Her daddy will be so proud. #baby #babygirl #hrhs #hypoplasticrightheartsyndrome #chd #chdlife #congenitalheartdefect #heartbaby #chdwarrior #chdbaby #chdawareness #firstbaby #rainbowbaby #kimberlymarieramsey #tricuspidatresia #halfaheart #heartstrong #heartjourney #conqueringCHD #1in100 #heartwarrior #babiesofinstagram #glennprocedure #zipperclub #happy #blueeyes #bamboo #eggs #breakfast #ducks

5/2/2024, 1:02:30 PM

March 23 Kimberly found the Nitendo Switch today. The dock is on our entertainment center. I had my back to her for a second and heard a sound of a device turning on that I couldn’t place. So I turn around and she was trying to play with the switch. She just might be a gamer like her mama and dada lol. #baby #babygirl #hrhs #hypoplasticrightheartsyndrome #chd #chdlife #congenitalheartdefect #heartbaby #chdwarrior #chdbaby #chdawareness #firstbaby #rainbowbaby #kimberlymarieramsey #tricuspidatresia #halfaheart #heartstrong #heartjourney #conqueringCHD #1in100 #heartwarrior #babiesofinstagram #glennprocedure #zipperclub #happy #blueeyes #gamer #nintendoswitch #gamergirl #gaming

5/2/2024, 12:52:56 PM

March 22 Kimberly loves spending time with her daddy. I told him how I have been giving her massages so he was trying. I think he was tickling her more than anything. Like always Arron is wearing “Football Daze” pajama pants from @littlefrugalsbamboo . So far this is his only pair, but she has a lot more “manly” prints coming out this summer so he doesn’t just continue wearing the same pants every night. But he says they are the most comfortable pair of pants he’s ever worn. #baby #babygirl #hrhs #hypoplasticrightheartsyndrome #chd #chdlife #congenitalheartdefect #heartbaby #chdwarrior #chdbaby #chdawareness #firstbaby #rainbowbaby #kimberlymarieramsey #tricuspidatresia #halfaheart #heartstrong #heartjourney #conqueringCHD #1in100 #heartwarrior #babiesofinstagram #glennprocedure #zipperclub #happy # #blueeyes #daddysgirl #daddydaughter #girldad

5/2/2024, 12:46:05 PM

Creative Reflections for the Day of ♃ with regularity they arise & fall, the cosmic pattern etched in dark hallucinations of yearning turbulent longing of the daydreamer locked into cumulus ridden scrying bowl peering past the veil of mediocrity a retraction from the everyday opportunity to reorder my thoughts reconnect to mindful contemplation gentle resilience that allows me to bend not break under the pressure to conform to the domestication of the wildling Tools - Ritual Tarot Universal Mind Oracle #tarotcreativereflection #tarotliving #ritualtarot #universalmindoracle #tarotreaderofinstagram #tarotjournalling #bookofmirrors #cosmicwitchery #poeticwitchery #neoalchemy #witchesofinstagram #heartjourney

5/2/2024, 12:15:14 PM

I wanna share something with you.. ❤️ this journey since over a year, was tough..🫠 I thought tapping into my biggest healing transformation AND starting my biz will be easy, because healing & spirituality is something I loved, it shouldn’t be hard to share that… Well, if I would have known before that literlally everything -I thought I want, -I thought I knew -I thought who Iam will dissolve in a spiral of healing just to end up in kinda the same where I was before but also somehwere completly different 🌀 I’m back where I always belonged ✨ I never really wanted to show my vulnerability, I never wanted to just sell something, I never wanted to be shallow. But of course everything I didn’t wanted came to me so that I can heal those parts of myself. I did everything I never wanted that led to massive unsatisfaction towards myself, my content and everything why I started it in the first place. This discontent & not wanting to show my vulneribility led to my on & offs on this page all the time. It took 1 year to realize the depth of this pattern - and it was worth to explore it 🤯 
So thank you, thank you for giving me this opportunity to grow such profound parts of myself and still be here, thanks for the love, trust & support I’ve got from you ❤️ I want to share my whole journey in the next posts, the believes that kept me stucked, and everything I’ve learned. (Unfortunately I don’t have enough space in one post for a whole article 😅) until then, enjoy the photodump from my last few months🔥 and let me know: HOW ARE YOUUUU??? _____ #spiritualawakening #heartjourney #darknightofthesoul #healingjourney

5/2/2024, 10:25:00 AM

At LunaSpell Mystic Tattoo Studio in Porto, Portugal, we believe your heart holds the map to a magnificent journey. #heartjourney #meaningfultattoos #lunaspell The Heart Journey Tattoo is a deeply personal symbol representing your unique path of love, growth, and self-discovery. Let LunaSpell create a masterpiece that reflects the unique path of your heart, a constant reminder of your strength, resilience, and the beauty of your ongoing journey. Book a consultation today and explore the possibilities! ❤️🔥 #embraceyourjourney #selflovetattoos #innercompass #growthmindset #portugal #portotattoos #lunaspell #portotattoo #portotattoostudio #tattoosportugal #portugaltattoo #portugaltattoos #porto #portugal #symbolism #dualitytattoos #embraceyourmagic #innerstrength #spiritualgrowth #meaningfultattoos #customtattoos #tattoolife #selfdiscovery #youaremagic #tattooart #tattooartist #tattooartists #lunaspell

5/2/2024, 9:48:24 AM

This is my home away from home. The beautiful owners of the Rudraksh Retreat, Mahesh and Rupali, feel like family. And Joe and I will return to share this special place with as many others as we can. Through Sundara, we will be supporting their community development programs to support the beautiful local women. They are creating programs to increase their skills, education and simple medical programs - we will share more with you soon. I seem to exhale more gently just sharing these images with you of the foothills of the Himalaya. Come join Joe and I on our next Sacred Journey… these are not tourist journeys, they are a journey through the eyes of your heart 💗 #sacredjourney #himalayas #heartjourney #exhale #homeawayfromhome #joinus #freshstart

5/2/2024, 8:09:35 AM

March 20 Today was Kimberly’s checkup with the pediatrician. Unfortunately it’s time for more vaccines. But we trust scientists and our doctors. Whatever vaccines they want to give her we do. We need to do what will protect her little half of a heart. She was also able to get the covid vaccination finally. She had to wait 6 months since her heart was on bypass. It doesn’t seem like it has been over 6 months since her open heart surgery (Glenn procedure). Time is flying with our little heart warrior. #baby #babygirl #hrhs #hypoplasticrightheartsyndrome #chd #chdlife #congenitalheartdefect #heartbaby #chdwarrior #chdbaby #chdawareness #firstbaby #rainbowbaby #kimberlymarieramsey #tricuspidatresia #halfaheart #heartstrong #heartjourney #conqueringCHD #1in100 #heartwarrior #babiesofinstagram #glennprocedure #zipperclub #happy #blueeyes #bluey #disney #doctor #hospital

5/2/2024, 3:53:18 AM

March 18 I just can’t get over how wonderful Ms. Rachel is. She is so talented and amazing. Kimberly has learned so much from her and is above a lot of milestones, and I honestly believe it’s because Ms Rachel. She loves when we sing to Ms Rachel and do the activities together #baby #babygirl #hrhs #hypoplasticrightheartsyndrome #chd #chdlife #congenitalheartdefect #heartbaby #chdwarrior #chdbaby #chdawareness #firstbaby #rainbowbaby #kimberlymarieramsey #tricuspidatresia #halfaheart #heartstrong #heartjourney #conqueringCHD #1in100 #heartwarrior #babiesofinstagram #glennprocedure #zipperclub #happy #blueeyes #msrachel #msrachelforlittles #learning #milestone

5/2/2024, 3:40:04 AM

March 16 One of Kimberly’s snacks is yogurt. My mom found Bluey yogurt when we were shopping so of course we had to have that. One of the many pajamas from @littlefrugalsbamboo is the football daze. I love this small business because we all match, plus I got a blanket. #baby #babygirl #hrhs #hypoplasticrightheartsyndrome #chd #chdlife #congenitalheartdefect #heartbaby #chdwarrior #chdbaby #chdawareness #firstbaby #rainbowbaby #kimberlymarieramsey #tricuspidatresia #halfaheart #heartstrong #heartjourney #conqueringCHD #1in100 #heartwarrior #babiesofinstagram #glennprocedure #zipperclub #happy #blueeyes #bamboo #bamboopajamas #pajamas #football

5/2/2024, 3:25:05 AM

Explore our website www.ccardiac.com and take the first step towards a healthier heart. Your journey starts here! 🌟 #HeartJourney #TrustYourHeart

5/2/2024, 2:51:38 AM

I've just put my clothes in a washing machine, clicked a button , didn't give another thought, and then I saw this picture . Washing your clothes in a river is going to be much more time-consuming and much harder work. Yet, I've never had a good fun story to tell about putting my clothes in the washing machine. The best it gets is when I accidentally dye the whites pink again. . I'm sitting here thinking about all the nature you'd be connected with if you washed your clothes in a river And coming home with an entertaining story for your family, such as the one about the crazy people who thought they could flow sweetly down the river, but instead they were pulled down bashing into the rocks along the way, yelping and laughing hysterically. . There are pros and cons in everything and right now I'm thinking if I didn't have to do all the other stuff that comes with an urban life and I could wash my clothes in a clean river. Then I happily would . I'm sticking a note on my washing machine to remind me to revisit and remember the beautiful energy of lanquin , Guatemala, and to keep connected in the modern world. . Thanks to @themayanwisdomproject @kambo_in_my_soul @_suryawellness @xingyiacademy @lizestam @nosyowlart . . . . . . #ancientknowledgeformodernliving #dualities #yourexperience #takemetotheriver #connectionwithnature #connectioniskey #inconnection #heartjourney #eyesopened #riverjourney #beingfullyalive #washingmachines #washingclothes #soulfusion #meaningfulmoments

5/1/2024, 11:21:46 PM

Witnessing so many clients, friends & colleagues doing the work. #suhba #heartjourney #doingthework #healing #traumahealing #posttraumaticgrowth

5/1/2024, 4:53:33 PM

Creative Reflections for the Day of ☿ making choices that keep one satiated longer with smaller serves, minimise that are not the unknown is a enigma waiting to be quantified into conscious thought stop chasing shadows as it breed contention shifts focus from the end goal cut through individual beliefs instead focus the on logical reason along with agreed procedures Tools - Ritual Tarot Universal Mind Oracle #tarotcreativereflection #tarotliving #ritualtarot #universalmindoracle #tarotreaderofinstagram #tarotjournalling #bookofmirrors #cosmicwitchery #poeticwitchery #neoalchemy #witchesofinstagram #heartjourney

5/1/2024, 11:28:37 AM

🏥 Hospital Visit 🏥 On Thursday 25th of April, I had a phone call from our assigned Cardio Nurse who informed us that they'd had correspondence from Leeds to say that they'd had a meeting and had accepted Violet onto the elective surgery waiting list. She mentioned that we would be contacted via letter about arranging an appointment to go and visit the ward and meet some of the staff that may be looking after Violet when she has her surgery. We were told that the waiting list for the surgery is still up to year - depending on circumstances - so I thought this letter wouldn't come for a few weeks at least. Imagine my surprise when it came the very next day. It's scary to think that it could be this year her surgery happens..but as much as it scares me I'm also glad that the ball is rolling and we're that bit closer to having her heart condition seen to. My big girl is creeping closer to 1 and is thriving despite her condition! 🩷 She's confidently crawling around EVERYWHERE and cruising on her feet while holding onto furniture. She babbles so much and has begun using lots of single words already! She loves music and will dance along to any tune 🪇 She plays lovely independently but always comes for snuggles without hesitation. She loves to kiss people but she's not realised you don't need to kiss with your teeth (ouch) 🙈 I really hope that when this surgery happens..it doesn't change my little girlies personality because who she is becoming is magnificent and beautiful 🩷 #chd #avsd #asd #vsd #heartwarrior #heartcondition #congenitalheartdefect #heartdefect #atrioventricularseptaldefect #openheartsurgery #appointmentletter #hospitalvisit #leedsgeneralinfirmary #heartmurmur #heartjourney #heartdefectstory #chduk #waitinglist

5/1/2024, 9:59:24 AM

My heart is full from the food full of love and the company of the owners of this restaurant @hacienda.aragon.gt . It is a beautiful restaurant, which is so much more than somewhere to eat . I'm an unapologetic about what I eat, and these owners have no menu. The chef says I can do you vegan, vegetarian, meat, gluten-free, big or small. . Within 2 days, I trust him enough to not even know what I'm going to eat. I just say. 'I'll have a small vegetarian because I know whatever is put in front of me is going to be spectacular . . That's impressive, don't you think. It's worth a trip to the jungle in Guatemala just to go here. . Thank you so much @hacienda.aragon.gt . . . . . . #foodforchange #soulfulfood #nourishmentforthesoul #foodoflove #creativechef #consciouscreativity #hearthealthyfood #energisedmindbody #heartjourney #eatwithlocals #healthyeatings

4/30/2024, 8:57:42 PM

Our Mario Bros shenanigans continue! Today, Nick got a really cool Lego set, character socks, and Croc charms from the hospital's Little Wishes program. He also picked out a pair of Mario Crocs that are arriving on Friday. The program lets kids make special requests for items while they are inpatient for a long time. It's such an amazing way to help keep morale in tact. It is really easy to get in a rut of emotions being cooped up in a hospital room. Nick has weened down to 2 liters of oxygen from 20 a week ago. He weened further on another medication that will be turned off tomorrow. Lipids will be run today but will also be turned off tomorrow because we are starting to add olive oil as the replacement. That basically takes care of his lines except for a port for his antibiotics and a feeding pump line. We normally bolus feed Nick through a syringe, but since his volume requirements are so high right now, we are running a continuous pump 24 hours. We will work to get back to a full fat and bolus feeds slowly at home. "Life is just like a game. First you have to learn rules of the game, and then play it better then any one else." Einstein #CHDLife #NicksHeart #HLHS #CHDAwareness   #MyCHDwarrior #HeterotaxyLife #IAmTheStorm #gtube #tubefed #heartwarrior #CHDawareness #CHD #CHDkid #CHDsurvivor #singleventricle #halfaheart #heartfamily #heartjourney

4/30/2024, 8:38:58 PM

Creative Reflections for the Day of ♂ greet the dawn as often as I can,this is time of intention building & is full of possibilities the wheels are always turning how fast or slow is align to any change is completely up to me maintaining the status quo depends on my ability to self govern the day to day structure I built it’s all a matter of perspective consistently balancing my priorities accordingly to import to my wellbeing Tools - Ritual Tarot Universal Mind Oracle #tarotcreativereflection #tarotliving #ritualtarot #universalmindoracle #tarotreaderofinstagram #tarotjournalling #bookofmirrors #cosmicwitchery #poeticwitchery #neoalchemy #witchesofinstagram #heartjourney

4/30/2024, 10:46:22 AM

Sometimes, being out of the hospital bed and sleeping on the couch feels more comfortable and like home. We are still moving forward and making progress. We weened down on a medication and stopped another. Nick continues to walk the halls, and we are also tackling strength training for steps. He also got fitted for custom orthotics we will be trying on Wednesday. There are still whispers of discharge being next week. We have unfortunately done this too many times and know that we need to stay on top of everything to avoid adding unnecessary time in the hospital. Every day, we all superstistiously knock on a wooden PT chair Nick uses so that we can stay on track to break outta here soon! #CHDLife #NicksHeart #HLHS  #CHDAwareness   #MyCHDwarrior #HeterotaxyLife #IAmTheStorm #gtube #tubefed #heartwarrior #CHDawareness #CHD #CHDkid #CHDsurvivor #singleventricle #halfaheart #heartfamily #heartjourney

4/30/2024, 1:47:23 AM

Too many people in a tuc tuc . I love this picture so much as it shines the liberation of our journey here. . A spiritual journey of ease , flow, joy, fun, and laughter. I'm done with the hard processes . If I need a kick or a shift , life will bring it to me, Cacao will show it to me, or spirit will take me to it. . No need to seek the uncomfortable. It will find me when needed. . Like my first sweat lodge. I think I must have thought I was going to sort of spa !!! Which got me in there, then I met death inside and rebirthed when I crawled out covered in sweat, mud, and saw the full moon. . It's time to enjoy the ride with joy @lizestam @kambo_in_my_soul .. .@_suryawellness . . . . . #soulshines #spiritvibes #itsajourneynotadestination #easemytrip #heartjourney #incommunity #flowfromtheheart #laughtillyoucry #cacaobliss #yourjoy #intotheease #enjoythemoment❤️ #liberateyourself . .

4/29/2024, 8:01:57 PM

As we stand at the threshold of nature's embrace, let's take a moment to reflect on the path we're on. Just as this tree frames a journey ahead, our hearts encircle the dreams we dare to follow. 🌳💚✨ Let the verdant fields remind us of growth, and the solitary tree be a testament to our resilience. We are nature's children, sculpted by the winds of experience and nourished by the roots of our strength. 🌄 This view invites us to step forward with love in our hearts and courage in our steps. With each new dawn, remember that paths of beauty and tranquillity are always waiting to be discovered. 🚶‍♀️❤️🚶 So let's set forth kindred spirits, hand in hand, heart within heart, forging our future with intention and grace. 🔍 #PathToInnerPeace #NatureHeals #HeartJourney #SpiritWorldMedicine #MindfulnessMoment #SelfDiscoveryPath

4/29/2024, 8:00:10 PM

✨ Experience the Blossoming Beauty at The Belle of Bethlehem! 🌸 Immerse yourself in the vivid hues of the yard, featuring a paved patio beneath the grace of a grand pergola, where the scent of fresh blooms fills the air. 🌺 Located just moments away from diverse shopping districts and charming eateries, this gem is a mosaic of convenience, perfect for a springtime retreat. Plunge into the rhythm of North Bethlehem's heartbeat, where the lively events and concerts at Wind Creek await you, promising melodies to serenade the season. 🎶 Embark on an Airbnb escapade, securing your place in this dynamic oasis of North Bethlehem's allure. 🏡🌟 Don't miss your chance to embrace the vibrant energy of spring in this enchanting getaway! 🌷 https://airbnb.com/h/belleofbethlehemcity #belleofbethlehem #PAgetaway #bookwithus #lingerlonger #holidaymode #roomyretreat #escapeurban #familygetaway #heartjourney #travelmore #homestylestay #booknow #bethlehemcharm #valleyelitehomes #bookonvrbo #bookonairbnb #reserveonline #staysafe #briefstay #citybreakaway

4/29/2024, 4:01:54 PM

Creative Reflections for the Day of ☽ past wisdom gleamed whispers the answers one is seeking, pay attention inner peace only comes from acceptance healing is never easy, it requires work often it’s neither black or white but a multitude of mixed shades stand in possession of the facts have enough gumption to stay the course embrace the feeling of being truly alive in the present moment & experiences are worthy of being remembered and collected for their potential value Tools - Le Tarot Arthurien Dreamscape Oracle #tarotcreativereflection #tarotliving #letarotarthurien #dreamscapeoracle #tarotreaderofinstagram #tarotjournalling #bookofmirrors #cosmicwitchery #poeticwitchery #neoalchemy #witchesofinstagram #heartjourney

4/29/2024, 12:05:05 PM

*This post discusses open-heart surgery and contains post-surgery images. Oscar's story, by mum, Lia: I found out I was pregnant when I was 17. During my pregnancy, there were no concerns until my 20-week scan. The sonographers spent a long time focusing on the heart before leaving to get another doctor who told us there was something wrong with our baby's heart. We then got referred to a larger hospital where we had another scan, which revealed that our little boy had tetralogy of Fallot. The doctors there warned us of all the possible risks that our little boy may face, such as struggling to walk and talk. The doctors also offered a termination, which I refused. I got induced early to monitor how my little boy coped. Oscar was born at 39 weeks and was very blue in appearance. I was allowed a quick cuddle before he got rushed to the NICU. He was one of the larger babies in there, and fortunately, we could go home after two weeks. At six months old, Oscar had his open heart surgery. The surgery took seven hours, and his recovery over the next two weeks was awful. However, Oscar recovered so quickly and surprised everyone. Oscar now has yearly checks and will require more surgery once he is a little older. Currently, he is a happy, energetic seven year old, and he is doing great! I am so glad the sonographers found his heart condition antenatally. Otherwise, who knows if he would be here with us today? #ToF #tetralogyofFallot #chd #congenitalheartdisease #congenitalheartdefect #heartdefect #heart #hearts #tinyhearts #heartjourney

4/29/2024, 7:00:53 AM