Meet Aaron Alexander! Aaron was only 6 years old when he began to experience some odd and involuntary eye movements in his left eye. He was also becoming unbalanced. After being taken to the hospital, scans revealed that Aaron was diagnosed with DIPG on February 8th 2023. Doctors described his tumor as being like a spider wrapped around his brain stem. Aaron underwent radiation but his tumor had continued to progress. Aaron is unable swallow foods, unable to walk, unable talk, unable to move his body. Aaron had originally been on the PNOC clinical trial in Salt Lake City, after finishing radiation. Unfortunately, Aaron experienced tumor growth while on the trial and he had to be removed from it💔 Aaron recently celebrated his 8th birthday on May 3rd and he is 15 months past diagnosis! As of now, Aaron’s mom is fighting to get him into another DIPG clinical trial that is in Houston, Texas. Please help her raise the funds to save her son’s life!! You can use the following QR codes to scan, I will also have the links in my story! Gofundme: http://gofund.me/db338418 Zelle: 702-517-1262 IG: @gabby_g222 #DIPGfighter #DIPGISNTRARE #mayisbraincancerawarenessmonth #braincancerawarenessmonth #thecurestartsnow #beatchildhoodcancer #gograyinmay #childhoodcancerresearch #givekidsachance #givekidsachanceact #diffuseintrinsicpontineglioma #childhoodcancer #kidscancer #pediatriccancerawareness #dipg #defeatDIPG #gogoldforchildhoodcancer #childhoodcancerawareness #gogold #kidsgetcancertoo #fightlikeakid #thisischildhoodcancer #morethan4 #pediatriccancer 🎗🎗
MAY 17TH #dipgawarenessday “In 2017, for the first time in history, 21 states recognized May 17th as Diffuse Intrinsic Pontine Glioma (DIPG) Awareness Day, to raise public awareness of the DEADLIEST childhood brain cancer.” Sharing picture from @chadtoughdefeatdipg . ⚠️Tell someone about DIPG today !🎗 ______________________________________________ INFO: . DIPG, or diffuse intrinsic pontine glioma, is a type of brain tumor found in an area of the brainstem know as the pons. . DIPG primarily affects children, with most diagnoses occurring between 5 and 7 years of age. . Sometimes parents notice odd eye movements, slurred speech, difficulty swallowing, and trouble maintaining balance, or drooping of one part of their child’s face. . DIPG has median survival range from 8-11 months. . Spread awareness today!🎗 . Kids shouldn’t die like this and kids shouldn’t suffer like this! . 🎗💛 #braintumor #worldbraintumorday #childhoodcancerisnotrare #childhoodcancer #childhoodcancerfunding #nicholassjourney #childhoodcancerawareness #childhoodcancersucks #childhoodcancerresearch #cancersucks #strong #fightcancertogether #cancerwarrior #dipg #dipgfighter #dipgwarrior #dipgawareness #defeatdipg #dipgsucks #dipgfundraising #dipgresearch #dipgcancer #pediatriccancer #gogold #kidsgetcancertoo #hope #cancersupport #braintumor #beatcancer
🎗 17 Mayıs DIPG Farkındalık Günü🎗 Dünyalar güzeli 6 yaşındaki kızım 🍯 Yanaklım 🌹 Yüzlüm Meryem Senam DİPG- Diffuz Pons Gliom denilen ve dünyada tedavisi mümkün olmayan amansız bir dert ile yaklaşık 3 yıldır mücadele ediyor. Küçücük bedenleri ile dünyanın en zor hastalıklarından biri olan DIPG- Diffüz Pons Gliom ile mücadele eden güzel yavrularımızın ve biz ailelerinin sesini duyun, bu amansız derdin tedavisinin bulunması adına çalışmalar yapılabilmesi için sizler de sessiz çığlıklarimiza ses olun, farkında olun ve farkındalık oluşturmak adına sesimize ses olun lütfen. Sayfamızı takip edip paylaşarak bu zorlu mücadelede bizlere destek olabilirsiniz. My beautiful 6-year-old daughter, Meryem Senam, with her sweet cheeks and rosy face, has been battling an incurable disease called DIPG - Diffuse Intrinsic Pontine Glioma for about 3 years. Please hear the voices of our beautiful children, who are fighting one of the most difficult diseases in the world with their tiny bodies, and of us, their families. Join our silent cries and help raise awareness so that efforts can be made to find a cure for this relentless disease. 🎗 May 17th is DIPG Awareness Day🎗 Will you help us share the facts about this horrible pediatric brain cancer? 🔸Diffuse Intrinsic Pontine Glioma, or DIPG, is the leading cause of childhood brain tumor deaths. 🔸DIPG primarily affects children between the ages of 5 and 7. 🔸There are 300-400 new diagnoses per year in the United States. 🔸DIPG is terminal upon diagnosis. The average length of time that parents have with their children after hearing this news is 9 months. We are sending lots of love to all the families who have been affected by DIPG. We will never stop fighting for an effective treatment. You can support us in this tough struggle by following and sharing our page. #dipg #dipgwarrior #dipgfighter #diffüzponsgliom #17maydipgawarenessday #17mayisdipgdmgfarkindalikgunu #pediatrikbeyintümörleri #keşfetteyiz #dua #meryemsena #gogoldforchildhoodcancer #braintumorawareness #maybraincancerawarenessmonth #raredisease #rarediseasesawareness #farkındalık
Congrats to Jabril who has recently finished up with 30 radiation treatments! If you are unaware of his story, 7 year old Jabril was diagnosed with DIPG on March 24th. His mom began to notice strange symptoms the weekend before his diagnosis. This included unusual speech, weakness in his right arm and leg, which created a limp in his walk. After being taken to the hospital that day in March, he underwent a CT scan, revealing a large tumor on his brain stem. His mom is trying everything in her power to support her son, but she needs the support of others to help afford life as a single mother of 6 with the constant appointments. His mom also wants to try a natural or holistic approach. Please send all your love & support to Jabril and his family as they have been thrown into the most unthinkable world💔💔 you can scan the gofundme QR code or click the link in my stories! 🔗: https://www.gofundme.com/f/healing-for-jabril/qr #DIPGfighter #DIPGISNTRARE #DIPGwarrior #JabrilStrong #KidsDeserveMoreThanLeftOvers #HealingForJabril #childhoodcancerresearch #givekidsachance #givekidsachanceact #diffuseintrinsicpontineglioma #childhoodcancer #kidscancer #pediatriccancerawareness #dipg #gogoldforchildhoodcancer #childhoodcancersucks #childhoodcancerawareness #nationalpriority #gogold #kidsgetcancertoo #fightlikeakid #thisischildhoodcancer #morethan4 #pediatriccancer 🎗🎗 #NCI #kidsareworthmore
Açılsın tüm düğümlerim... Hayalimde olan hayatımda olsun tek dileğim... Kuzum neredeyse geçen bir buçuk yıllık süreçte her gün aklına gelen, hayal ettiği ve olması alması zor olan bir şeyleri "anne, cennette istesem Allah'ımız hemen aynısını yapar mı?" diye soruyor yavrum kuzum 🍯 Yanaklım 🌹 Yüzlüm. Ne diyeceğimi bilemiyorum, gözlerim dolu dolu, boğazım düğüm düğüm... #tbt 1,5 yıl önce Bal 🍯 yanaklım gül 🌹 yüzlüm #meryemsena ... Çocukluk çağı kanserlerinden en agresif ve yıkıcı olanı olan DIPG- Diffüz Pons Gliom Beyinsapi tümörü hastalığı ile ilgili Farkındalık oluşturmak için sayfamızı takip ederek paylaşmanızı rica ediyoruz... #dipg #dipgwarrior #dipgawareness #dipgfighter #childhoodcancer #childhoodcancerawareness #doğaterapi #mucize #mucizemsensin #rarediseaseawareness #gogoldforchildhoodcancer #keşfetteyiz
Today marks the first day of the Pediatric Neuro-Oncology Consortium (PNOC) scientific meeting in Boston. We are grateful to the dedication of PNOC’s 275+ pediatric brain tumor specialists from around the world, working together towards cures! #braincancer #braintumors #PNOC #globalcollaboration #oncology #clinicaltrials #FundTheFight #clinicaltrials #DIPG #fightDIPG #DIPGawareness #DIPGfighter #DIPGwarrior #DIPGresearch #astrocytoma #glioblastoma #glioma #ependymoma #medulloblastoma #ATRT #atrtcancer #ETMR #craniopharyngioma #Germinoma #kidswithcancer #hope #biology #childhoodcancer #braincancerclincaltrials #cancerresearch @pnoc_kids
Sending all our love to warrior Velon as he has recently experienced tumor progression💔 After experiencing symptoms of being unbalanced, Velon soon began to not be able to walk completely, relying on a wheelchair. He was taken to the hospital where scans revealed the tumor progression. This growth is despite completing radiation and being apart of the DIPG clinical trial SonALAsense! SonALAsense is the first company to advance Sonodynamic Therapy into clinical trials, and it is currently being used for DIPG trials among aggressive brain cancers. If you are unaware of his story, Velon’s fight began when in late 2023, he started to exhibit some worrying symptoms, including slurred speech, odd eye movement, nausea and trouble with walking. His mom took him to the doctor a few times but frustratingly, still received no answers. It was then on December 22nd while grocery shopping, Velon passed out in the Walmart checkout line. He was rushed to the hospital where he was given a scan, which revealed an inoperable brain tumor. Velon was diagnosed with DIPG. The costs of DIPG are like no other and his family needs your help to save their son while also being able to make ends meet. If you can, please donate to the link below🤍 @nonchalant_wunn 🤍🤍🤍💛💛💛 https://www.gofundme.com/f/victory-for-velon?member=31810975&sharetype=teams&utm_campaign=p_na+share-sheet&utm_content=ai_control2&utm_medium=copy_link&utm_source=customer FB: Victory for Velon #victoryforvelon #DIPGfighter #DIPGISNTRARE #DIPGwarrior #KidsDeserveMoreThanLeftOvers #childhoodcancerresearch #givekidsachance #givekidsachanceact #diffuseintrinsicpontineglioma #childhoodcancer #kidscancer #pediatriccancerawareness #dipg #gogoldforchildhoodcancer #childhoodcancersucks #childhoodcancerawareness #nationalpriority #gogold #kidsgetcancertoo #fightlikeakid #thisischildhoodcancer #morethan4 #pediatriccancer 🎗🎗 #NCI #kidsareworthmore
❤️Talisha❤️ mein Engel ❤️ meine Zwillingsseele❤️ 25.03.2020 Diagnose „DIPG“ (Diffuse intrinsisches Ponsgliom) 27.11.2021 Mit den Engeln ❤️ geflogen❤️ #krebs #krebskämpfer #krebsisteinarschloch #dipgawarenessday #dipgfighter #dipgwarrior #dipgwarriorprincess #engel #himmelskind #verwaisteeltern #verwaistemama #verwaist #krank
Meet Jabril! 7 year old Jabril was recently diagnosed with DIPG after being taken to the hospital on March 24th. His mom began to notice strange symptoms the weekend before his diagnosis, because his speech seemed to be unusual. Not only that, but he was also experiencing weakness in his right arm and leg, which created a limp in his walk. This is what led Jabril’s mom to take him to the hospital that day. He underwent a CT scan which revealed a large tumor on his brain stem. After being transferred to a bigger children’s hospital, an MRI was performed. He also underwent a biopsy, which revealed the tumor as DIPG. His mom is trying everything in her power to support her son, but she needs the support of others to help afford life as a single mother of 6 kids with the constant appointments including radiation treatments which he just began, as well as speech therapy, physical therapy, and occupational therapy. His mom also wants to try a natural or holistic approach. Jabril is currently on his 3rd day of radiation, soon to start the 4th. Please send all your love & support to Jabril and his family as they have been thrown into the most unthinkable world💔💔 you can scan the gofundme QR code or click the link in my stories! @mlb6tammy 🔗: https://www.gofundme.com/f/healing-for-jabril #DIPGfighter #DIPGISNTRARE #DIPGwarrior #KidsDeserveMoreThanLeftOvers #childhoodcancerresearch #givekidsachance #givekidsachanceact #diffuseintrinsicpontineglioma #childhoodcancer #kidscancer #pediatriccancerawareness #dipg #gogoldforchildhoodcancer #childhoodcancersucks #childhoodcancerawareness #nationalpriority #gogold #kidsgetcancertoo #fightlikeakid #thisischildhoodcancer #morethan4 #pediatriccancer 🎗🎗 #NCI #kidsareworthmore
05.04.2021...heute 05.04.2024. Drei Jahre ist es nun her, dass du nicht mehr bei uns bist. Drei lange Jahre. Und jede Erinnerung an dich, spüre ich tief in meinem Herzen ❤️. Aber dich, deinen Körper spüre ich nicht mehr. Und das ist es, was mich zerreißt. Ich kann dich nicht mehr spüren. Dich feste in meine Arme nehmen. Deinen Geruch einatmen. Jetzt wo ich diese Zeilen schreibe, schießt mir der Geruch deiner Haare in die Nase. Ich dachte, er wäre weg...aber jetzt kommt die Erinnerung. Wie warm war dein Geruch, den ich so sehr vermisse. Unser Leben geht weiter. Ich frage mich jeden Tag, woher ich die Kraft herhole. Wie oft denke ich: "jetzt drehe ich durch. Wie soll ich den Schmerz noch weiter aushalten." Doch ich habe keine Wahl. Das Vermissen und der Schmerz, dich nicht mehr bei mir zu haben, wird mich mein Leben lang begleiten. Ich halte mich weiterhin an unser Band der Liebe ❤️. 💚 SAMI 💚 15.01.2014 - 05.04.2021 Für immer sieben 💚 Ich liebe dich für immer und immer 💚🦋 #dipg #dipgfighter #fuerimmerundimmer
Sending all our love to warrior Velon as he begins his first day of the DIPG clinical trial SonALAsense! SonALAsense is the first company to advance Sonodynamic Therapy into clinical trials, and it is currently being used for DIPG trials among aggressive brain cancers. If you are unaware of his story, Velon’s fight began when in late 2023, he started to exhibit some worrying symptoms, including slurred speech, odd eye movement, nausea and trouble with walking. His mom took him to the doctor a few times but frustratingly, still received no answers. It was then on December 22nd while grocery shopping, Velon passed out in the Walmart checkout line. He was rushed to the hospital where he was given a scan, which revealed an inoperable brain tumor. Velon was diagnosed with DIPG. The costs of DIPG are like no other and his family needs your help to save their son while also being able to make ends meet. If you can, please donate to the link below🤍 @nonchalant_wunn 🤍🤍🤍💛💛💛 https://www.gofundme.com/f/victory-for-velon?member=31810975&sharetype=teams&utm_campaign=p_na+share-sheet&utm_content=ai_control2&utm_medium=copy_link&utm_source=customer FB: Victory for Velon #victoryforvelon #DIPGfighter #DIPGISNTRARE #DIPGwarrior #KidsDeserveMoreThanLeftOvers #childhoodcancerresearch #givekidsachance #givekidsachanceact #diffuseintrinsicpontineglioma #childhoodcancer #kidscancer #pediatriccancerawareness #dipg #gogoldforchildhoodcancer #childhoodcancersucks #childhoodcancerawareness #nationalpriority #gogold #kidsgetcancertoo #fightlikeakid #thisischildhoodcancer #morethan4 #pediatriccancer 🎗🎗 #NCI #kidsareworthmore
Sunnie has gained her angel wings after taking her last breath this morning at 7:11 AM💔💔💔💔 If you are unaware of her story, Sunnie was only a fourth grader when her life was forever changed by DIPG on 10/26/22. She had just celebrated her 10th birthday when she began to experience horrific headaches. After being taken to the ER it was horrifically discovered that Sunnie had an inoperable brain tumor. She immediately required surgery for a shunt to be placed in order to drain the fluid in her brain. Less than a month later in November, Sunnie underwent a clinical trial in Georgia called the Indoximine Trial, which consisted of an immunotherapy drug, radiation, and oral chemo. She finished radiation in January of 2023 and began the chemo regimen soon after. In February 2023, Sunnie began the Phase 2 clinical trial. Sadly, the tumor continued to be relentless in its growth. Sunnie began radiation for the second time in September of 2023. This time it was just for relief of the symptoms & she only had 12 rounds. Throughout her fight, Sunnie continued to struggle with losing her functions and the tumor would respond to treatments sometimes by either shrinking, or causing inflammation, swelling and necrosis (tissue death). She also struggled with cystic areas of tumor that would form and cause havoc as well. Sunnie began the ONC201 trial in late January of this year after she once again fell into progression. She continued this treatment until her family decided to let Sunnie live out the rest of her days, knowing the tumor was rapidly growing for the final time💔Now, after a 16 month & 28 day fight, Sunnie is free of DIPG💔🌈🌅 Sunnie’s FB Group: #SunnieStrong💛💜 🎗️ Her gofundme: https://gofund.me/ab2a01c4 Venmo: @Jade-Williams-91 Website: https://www.sunniestrong.org 🎗️ #sunniestrong💛💜 #childhoodcancer #kidscancer #pediatriccancerawareness #dipg #DIPGWarrior #dipgfighter #gogoldforchildhoodcancer #diffuseintrinsicpontineglioma #DIPGangel #childhoodcancersucks #childhoodcancerawareness #nationalpriority #childhoodcanceradvocate #braintumor #dipgawareness #kidsgetcancertoo #fightlikeakid #thisischildhoodcancer #morethan4 #pediatriccancer 🎗🎗
Precious Sunnie has been fighting against DIPG since 10/26/22 and today her family has posted the most devastating update💔 “We will not be continuing any further treatment for Sunnie and will be stopping the Onc201. She has declined rapidly over the last month-and we have been assured that further treatment would not regain anything lost and would only hopefully stop or slow progression. We do not feel as though that is fair to Sunnie. Trapping her in a body that cannot sustain her spunky self is not just- it is our job as her parents to protect her and we feel that is what we are doing. We do not know how many days are left ahead of us- but we are certain that we will spend them loving on Sunnie and making sure she knows she is safe and we are proud of her.” Sunnie’s FB Group: #SunnieStrong💛💜 🎗️ Her gofundme: https://gofund.me/ab2a01c4 Venmo: @Jade-Williams-91 Website: https://www.sunniestrong.org 🎗️ #sunniestrong💛💜 #childhoodcancer #kidscancer #pediatriccancerawareness #dipg #cancer #DIPGWarrior #dipgfighter #gogoldforchildhoodcancer #childhoodcancersucks #childhoodcancerawareness #nationalpriority #gogold #childhoodcanceradvocate #braintumor #dipgawareness #kidsgetcancertoo #fightlikeakid #thisischildhoodcancer #morethan4 #pediatriccancer 🎗🎗 #NCI #nationalcancerinstitute #beboldgogold
Credit belongs to: @.gogoldforchildhoodcancer with @get_repost If you like it...please Follow me to see more Update on warrior Velon, or CJ as his family calls him: Velon has completed radiation and is now undergoing the clinical trial SonALAsense. Please send all your love as he undergoes surgery to fix his shunt causing fluid build up! He has been fighting for exactly 2 months and he is powering through every single day!🫶🏽🫶🏽 🎗️ Velon’s story began when in late 2023, he started to exhibit some worrying symptoms, including slurred speech, odd eye movement, nausea and trouble with walking. His mom took him to the doctor a few times but frustratingly, still received no answers. It was then on December 22nd while grocery shopping, Velon passed out in the Walmart checkout line. He was rushed to the hospital where he was given a scan, which revealed an inoperable brain tumor. Velon was diagnosed with DIPG. The costs of DIPG are like no other and his family needs your help to save their son while also being able to make ends meet. If you can, please donate to the link below🤍 @nonchalant_wunn 🤍🤍🤍💛💛💛 https://www.gofundme.com/f/victory-for-velon?member=31810975&sharetype=teams&utm_campaign=p_na+share-sheet&utm_content=ai_control2&utm_medium=copy_link&utm_source=customer FB: Victory for Velon #victoryforvelon #DIPGfighter #DIPGISNTRARE #DIPGwarrior #KidsDeserveMoreThanLeftOvers #childhoodcancerresearch #givekidsachance #givekidsachanceact #diffuseintrinsicpontineglioma #childhoodcancer #kidscancer #pediatriccancerawareness #dipg #gogoldforchildhoodcancer #childhoodcancersucks #childhoodcancerawareness #nationalpriority #gogold #kidsgetcancertoo #fightlikeakid #thisischildhoodcancer #morethan4 #pediatriccancer 🎗🎗 #NCI #kidsareworthmore #victoryforvelon #DIPGfighter #DIPGISNTRARE #DIPGwarrior #KidsDeserveMoreThanLeftOvers ZzHaveagooddayzZ
Last day to order Kaylan Haywood’s “Say My Name” tribute to revive this gorgeous tumbler and more 🌺🩵 ORDER NOW! ➡️ https://theh.life/products/say-my-name-coffee-subscription?variant=45277642031291 Your support is a blessing 💕☕️ #DIPGWarrior #DIPGFighter #DIPG #DefeatDIPG #DIPGAwareness
SAY MY NAME 🩵 Kaylan Haywood 🌺20 oz Custom Tumbler with Kaylan's Signature 🌺 4 oz Chocolate Macadamia Nut Coffee 🌺 Straw 🌺 Bubbles!! 🌺 Tie Dye drawstring backpack 🌺 Hawaiian Flowers Donated by Kaylan's family This drawstring bag & tumbler combo is PERFECT for everyone. From dance class to the beach, this versatile combo will meet all your wants and needs! Grab Kalyan’s “Say My Name” box while you can! ☀️ Your support is a blessing 💕☕️ Order here! ➡️ https://theh.life/products/say-my-name-coffee-subscription?variant=45277642031291 #DIPGWarrior #DIPGFighter #DIPG #DefeatDIPG #DIPGAwareness
10 months 🪽💔 “I hide my tears when I say your name, but the pain in my heart is still the same. Although I smile and seem carefree there’s no one who misses you more than me. By: Someone “ #dipgwarrior #dipgawareness #dipgresearch #dipgfighter #defeatdipg #dipgangels #enddipg @disneylandparis #disneylandtheartofmarvel #marvel #spiderman #raphytheeternalspiderman @jmiranda83
Update on warrior Velon, or CJ as his family calls him: Velon has completed radiation and is now undergoing the clinical trial SonALAsense. Please send all your love as he undergoes surgery to fix his shunt causing fluid build up! He has been fighting for exactly 2 months and he is powering through every single day!🫶🏽🫶🏽 🎗️ Velon’s story began when in late 2023, he started to exhibit some worrying symptoms, including slurred speech, odd eye movement, nausea and trouble with walking. His mom took him to the doctor a few times but frustratingly, still received no answers. It was then on December 22nd while grocery shopping, Velon passed out in the Walmart checkout line. He was rushed to the hospital where he was given a scan, which revealed an inoperable brain tumor. Velon was diagnosed with DIPG. The costs of DIPG are like no other and his family needs your help to save their son while also being able to make ends meet. If you can, please donate to the link below🤍 @nonchalant_wunn 🤍🤍🤍💛💛💛 https://www.gofundme.com/f/victory-for-velon?member=31810975&sharetype=teams&utm_campaign=p_na+share-sheet&utm_content=ai_control2&utm_medium=copy_link&utm_source=customer FB: Victory for Velon #victoryforvelon #DIPGfighter #DIPGISNTRARE #DIPGwarrior #KidsDeserveMoreThanLeftOvers #childhoodcancerresearch #givekidsachance #givekidsachanceact #diffuseintrinsicpontineglioma #childhoodcancer #kidscancer #pediatriccancerawareness #dipg #gogoldforchildhoodcancer #childhoodcancersucks #childhoodcancerawareness #nationalpriority #gogold #kidsgetcancertoo #fightlikeakid #thisischildhoodcancer #morethan4 #pediatriccancer 🎗🎗 #NCI #kidsareworthmore
This is the best way to try new coffees, while making a continuing and compounding impact on our mission to bring hope, faith, mercy, and encouragement to those who have been affected by DIPG, and Pediatric Brain Cancer.☕️ For the month of February, we are celebrating Valentines Day with lots of chocolate! But not only that, we are also celebrating the brave warriors whose legacy lives on through their coffee. Your support is a blessing 💕 #DIPGWarrior #DIPGFighter #DIPG #DefeatDIPG #DIPGAwareness
Get Elliot’s “Dark Chocolate Mocha Perfection” in Heather’s Coffee Subscription this month! ☕️➡️ https://theh.life/products/heathers-coffee-subscription?selling_plan=3457908923&variant=39626172301499 #DIPGWarrior #DIPGFighter #DIPG #DefeatDIPG #DIPGAwareness
Credit belongs to: @.gogoldforchildhoodcancer with @get_repost If you like it...please Follow me to see more Meet Velon, or CJ as his family calls him! Velon is a recently diagnosed DIPG warrior. His story began when in late 2023, he started to exhibit some worrying symptoms, including slurred speech, odd eye movement, nausea and trouble with walking. His mom took him to the doctor a few times but frustratingly, still received no answers. It was then on December 22nd while grocery shopping, Velon passed out in the Walmart checkout line. He was rushed to the hospital where he was given a scan, which revealed an inoperable brain tumor. Velon was diagnosed with DIPG. As of now, Velon is on his 18th session of radiation out of his 30 that he will be receiving. After radiation, his mom hopes to get him started on a clinical trial. The costs of DIPG are like no other and his family needs your help to save their boy while also being able to make ends meet. If you can, please donate to the link below🤍 @nonchalant_wunn https://www.gofundme.com/f/victory-for-velon?member=31810975&sharetype=teams&utm_campaign=p_na+share-sheet&utm_content=ai_control2&utm_medium=copy_link&utm_source=customer #victoryforvelon #DIPGfighter #DIPGISNTRARE #DIPGwarrior #KidsDeserveMoreThanLeftOvers #childhoodcancerresearch #givekidsachance #givekidsachanceact #diffuseintrinsicpontineglioma #childhoodcancer #kidscancer #pediatriccancerawareness #dipg #gogoldforchildhoodcancer #childhoodcancersucks #childhoodcancerawareness #nationalpriority #gogold #kidsgetcancertoo #fightlikeakid #thisischildhoodcancer #morethan4 #pediatriccancer 🎗🎗 #NCI #kidsareworthmore #victoryforvelon #DIPGfighter #DIPGISNTRARE #DIPGwarrior #KidsDeserveMoreThanLeftOvers ZzHaveagooddayzZ
Meet Velon, or CJ as his family calls him! Velon is a recently diagnosed DIPG warrior. His story began when in late 2023, he started to exhibit some worrying symptoms, including slurred speech, odd eye movement, nausea and trouble with walking. His mom took him to the doctor a few times but frustratingly, still received no answers. It was then on December 22nd while grocery shopping, Velon passed out in the Walmart checkout line. He was rushed to the hospital where he was given a scan, which revealed an inoperable brain tumor. Velon was diagnosed with DIPG. As of now, Velon is on his 18th session of radiation out of his 30 that he will be receiving. After radiation, his mom hopes to get him started on a clinical trial. The costs of DIPG are like no other and his family needs your help to save their boy while also being able to make ends meet. If you can, please donate to the link below🤍 @nonchalant_wunn https://www.gofundme.com/f/victory-for-velon?member=31810975&sharetype=teams&utm_campaign=p_na+share-sheet&utm_content=ai_control2&utm_medium=copy_link&utm_source=customer #victoryforvelon #DIPGfighter #DIPGISNTRARE #DIPGwarrior #KidsDeserveMoreThanLeftOvers #childhoodcancerresearch #givekidsachance #givekidsachanceact #diffuseintrinsicpontineglioma #childhoodcancer #kidscancer #pediatriccancerawareness #dipg #gogoldforchildhoodcancer #childhoodcancersucks #childhoodcancerawareness #nationalpriority #gogold #kidsgetcancertoo #fightlikeakid #thisischildhoodcancer #morethan4 #pediatriccancer 🎗🎗 #NCI #kidsareworthmore
☕✨ Saturdays are for sipping with purpose. Whether you're a tea enthusiast, coffee connoisseur, or love a bit of both, we've got your perfect cup waiting. Your sip supports our mission to fight DIPG/DMG & Pediatric Brain Cancer! 🌈💛 Let's make this Saturday extra special. Ps: don’t forget we are still running 16% off our Tea Collection. Sip & Save! What’s better than that? #SipWithPurpose #SaturdaySips #TheHLife #DIPGWarrior #DIPGFighter #DIPG #DefeatDIPG #DIPGAwareness #Coffee #Tea #MakeADifference
Credit belongs to: @.gogoldforchildhoodcancer with @get_repost If you like it...please Follow me to see more Meet mighty Mercy! Mercy is 5 years old and she is fighting for her life right now against DIPG. What started out as Mercy experiencing balance issues, headaches and unusual eye movements, led to the diagnosis of the monstrous DIPG. Mercy has bravely endured 3 brain surgeries, 28 radiation sessions and intense physiotherapy to help with her strength. Her family is trying to raise the funds to get access to the ONC201 clinical trial drug for DIPG as well as CAR-T cell therapy. They live in the UK and these treatments are not covered by their NHS. Please donate if you can and help give sweet Mercy a fighting chance!🫶🏽🫶🏽🫶🏽🫶🏽 the links are below💛💛 JustGiving: https://www.justgiving.com/crowdfunding/mercy-cuthbertson?utm_term=WXqqJyM98 Fb: Mercy’s Mighty Fight🌟 Twitter: MercysMightyFight #MercysMightyFight #MercysDIPGFight #givekidsachance #DIPGwarrior #DIPGISNTRARE #DIPGfighter #childhoodcancer #kidscancer #pediatriccancerawareness #dipg #defeatDIPG #gogoldforchildhoodcancer #childhoodcancersucks #forevergoinggold #childhoodcancerawareness #nationalpriority #gogold #childhoodcanceradvocate #kidsgetcancertoo #fightlikeakid #thisischildhoodcancer #morethan4 #pediatriccancer 🎗🎗 #NCI #nationalcancerinstitute #beboldgogold #kidsareworthmore #gogold365 #MercysMightyFight #MercysDIPGFight ZzHaveagooddayzZ
☕✨ Wake up and win with The H Life! Don’t forget our tea collection is on sale – 16% off all 2 oz varieties for a cozy winter. But guess what? We know we have some coffee lovers are out there too! 🚀 Dive into the rich, bold world of our coffee collection, the staple of our offerings! Although coffee isn’t on sale at the moment, those potential savings are instead used to further our mission to fight DIPG/DMG & Pediatric Brain Cancer. Let us know if you're on #TeamCoffee or #TeamTea , and let's turn up the caffeine camaraderie! Ps: don’t forget to subscribe to our emails on our website to be the first to find out about all of our specials and promotional items on tea, coffee, and more! #CoffeeLovers #TeaTime #TheHLife #DIPGWarrior #DIPGFighter #DIPG #DefeatDIPG #DIPGAwareness #MakeADifference #BeTheChange
Meet mighty Mercy! Mercy is 5 years old and she is fighting for her life right now against DIPG. What started out as Mercy experiencing balance issues, headaches and unusual eye movements, led to the diagnosis of the monstrous DIPG. Mercy has bravely endured 3 brain surgeries, 28 radiation sessions and intense physiotherapy to help with her strength. Her family is trying to raise the funds to get access to the ONC201 clinical trial drug for DIPG as well as CAR-T cell therapy. They live in the UK and these treatments are not covered by their NHS. Please donate if you can and help give sweet Mercy a fighting chance!🫶🏽🫶🏽🫶🏽🫶🏽 the links are below💛💛 JustGiving: https://www.justgiving.com/crowdfunding/mercy-cuthbertson?utm_term=WXqqJyM98 Fb: Mercy’s Mighty Fight🌟 Twitter: MercysMightyFight #MercysMightyFight #MercysDIPGFight #givekidsachance #DIPGwarrior #DIPGISNTRARE #DIPGfighter #childhoodcancer #kidscancer #pediatriccancerawareness #dipg #defeatDIPG #gogoldforchildhoodcancer #childhoodcancersucks #forevergoinggold #childhoodcancerawareness #nationalpriority #gogold #childhoodcanceradvocate #kidsgetcancertoo #fightlikeakid #thisischildhoodcancer #morethan4 #pediatriccancer 🎗🎗 #NCI #nationalcancerinstitute #beboldgogold #kidsareworthmore #gogold365
☕✨ Warm up your winter with The H Life's Tea Collection! 🌬️❄️ Enjoy 16% off on all 2 oz varieties throughout February. Every sip supports our mission against DIPG/DMG Pediatric Brain Cancer – funding research, supporting families, and making a difference. Join us in overcoming the impossible, one cup at a time! Explore our tea collection and make a difference today by visiting our website. #DIPG #DIPGWarriors #overcometheimpossible #TheHLife #ChildhoodCancer #DIPGAngel #PediatricBrainCaner #Hope #Cancer #DIPGFighter #DIPGAwareness #DIPGWarrior #DefeatDIPG #tea #teatime #MakeADifference #makeadifferencetoday #MakeADifferenceTogether
Dein Lachen... Deine Lebensfreude...Deine Hilfsbereitschaft.... Du warst ein ganz besonderes Kind. All diese Eigenschaften und noch soviele mehr, sind in meinen Erinnerungen geblieben. Welche Eigenschaften hättest du dazu bekommen? Am Montag würde die 10. Kerze auf deinem Geburtstagskuchen brennen. Und wieder sind die Tage vor dem 15.01. fast nicht zu ertragen. Du hast mich ein paar Tage zuvor im Traum besucht. Wieder als ein kleiner Junge, wieder habe ich dich lachen gehört. Nur für einen kurzen Moment und dann ist wieder alles weg... Du bist weg... für immer! Und das kann ich immernoch nicht begreifen. Es ist unbegreiflich. Du fehlst mir so sehr! Ich liebe dich mein großer... für immer und immer 💚🦋. #dipgfighter #dipg #fuerimmersieben #fuerimmerundimmer
In wenigen Tagen ist 2023 Geschichte.... Es war ein aufregendes Jahr. Viele Menschen sind gegangen und viele sind dazu gekommen. Wir hatten eine wunderschöne Zeit im Schwarzwald mit vielen tollen Menschen. Im Schwarzwald konnte ich Kraft tanken und wieder zu mir zurück finden. Ich bin dankbar das ich Läuschen Hand in Hand mit ihr ihren Weg gehen darf. Das es ihr so gut geht und wir auch dieses Jahr ohne Komplikationen überstanden haben. 2024 steht für uns vieles an. Der erste gemeinsame Urlaub mit @julala123 und @karstenkallevoss worauf ich mich schon riesig freue. Und Läuschen ihre Einladung. Und ich bin davon überzeugt das auch das Jahr 2024 viele schöne Momente hat und Ende 2024 ich wieder davon schreibe das ich dankbar bin das Läuschen es immer noch gut geht und ich ein weiteres Jahr mit ihr verbringen dürfte❤️ #dipgfighter #einwunderfürläuschen #2023 #dankbar
Dein letzter Tag im Kindergarten. Deine Freunde und du wurden im Sommer 2020 als Schulanfänger verabschiedet. Deine Diagnose und Corona hatten es nicht mehr zugelassen, dass ihr an eurem 'wir sind stark - Projekt' als Gruppe weitermachen konntet. Dennoch konntest du mit dem Bollerwagen am Ausflug teilnehmen. Deine Erzieherinnen sind mit uns über Felder gerannt und sie haben dich durch den Bach getragen. Jede Sekunde haben wir alle gemeinsam genossen. Zum Abschluss sind alle Kinder nacheinander vor den Spiegel gestanden. Du bist freiwillig als erster aufgestanden und hast in dein Spiegelbild geschaut und gesagt: Ich bin ich und du bist du. Ich kann gut Fußball ⚽ spielen und was kannst du? Ich werde diesen Moment niemals mehr vergessen. Wie stark und selbstsicher bist du hinkend und ganz wackelig zum Spiegel gelaufen. Du konntest keinen Ball mehr kicken, nicht mehr rennen, nicht mehr selbständig gehen und deine Sprache war auch nicht mehr klar. All das hat dich nicht gestört. Ich bin so unendlich stolz auf dich! Wir vermissen dich hier sehr...wir lieben dich... für immer und immer 💚🦋!! #dipg #dipgfighter #fuerimmersieben #fuerimmerundimmer
Wir haben bereits 944 Tage geschenkt bekommen, das sind 2 Jahre und 7 Monate. Wahnsinn, ja Wahnsinn weil die Ärzte uns alle vor 2 Jahren und 7 Monate Grade mal 11 Monate gegeben haben. Läuschen ist eine wahre Kämpferin, so stark und mutig und dabei immer glücklich. 🥰 #meinkleineswunder #dipgfighter #einfachimmerweitermachen #keineoptionaufzugeben #dankbarfürjedeunterstützung
Stay tuned for these joyful boxes of small goodies that will make the perfect stocking stuffer, white elephant, teacher, or friend gift! 🎄🎅🏼 In the meantime, checkout our storefront for the best presents to give this holiday season! ➡️ https://theh.life Your support is a blessing. ❤️ #DIPGWarrior #DIPGFighter #DIPG #DefeatDIPG #DIPGAwareness
This #GivingTuesday accelerate pediatric brain cancer cures! Since PNOC was founded in 2012, its innovation has rapidly changed the landscape of pediatric brain cancer research and clinical trials. PNOC is developing clinical trials for the deadliest pediatric brain cancers and has dedicated research groups for Medulloblastoma, Diffuse Midline Glioma/High grade Glioma/DIPG, Low grade Glioma, Atypical Teratoid Rhabdoid Tumors (ATRT), Craniopharyngioma, Ependymoma & Germ Cell Tumors. #braincancer #braintumors #PNOC #globalcollaboration #oncology #clinicaltrials #FundTheFight #clinicaltrials #DIPG #fightDIPG #DIPGawareness #DIPGfighter #DIPGwarrior #DIPGresearch #astrocytoma #glioblastoma #glioma #ependymoma #medulloblastoma #ATRT #atrtcancer #craniopharyngioma #Germinoma #kidswithcancer #hope #biology #childhoodcancer #braincancerclincaltrials #cancerresearch
✨🎁 Unwrap the magic of the season with our newest arrival – Gingerbread Coffee! ☕️ Infused with the nostalgic flavors of ginger, cinnamon, and a hint of molasses, this limited-edition brew from The H Life is here to spice up your holidays! 🎄 Get ready to cozy up and experience the warmth of the festivities in every delightful cup. Available now on our website at #linkinbio #GingerbreadSeason #HolidayBrew #GingerbreadCoffee #DIPGWarrior #DIPGFighter #DIPG #DefeatDIPG #DIPGAwareness #Gingerbread #TheHLife
@charmbeatingcancer Beautiful 5yo Charm gained her angel wings after battling Neuroblastoma stage 4 cancer for 3 years. Charm was a brave and resilient soul, facing her illness with courage and strength that inspired everyone around her. Her spirit and determination touched the hearts of many, and she will be dearly missed. It’s true that children should never have to endure such pain and suffering. It’s a reminder of the importance of supporting families who are going through similar challenges. If you would like to contribute to Charm’s family to help cover any costs, please consider donating to support them during this difficult time. Your kindness and generosity can make a meaningful difference in their lives as they navigate through this loss. 💜Charm’s memory will live on in the hearts of those who knew her, and her legacy will continue to inspire others to cherish every moment with their loved ones. 💜 (Posted with permission.) #dosomethinggood today and donate. To directly donate link in our bio or @charmbeatingcancer #childhoodcancerisnotrare #childhoodcancer #childhoodcancerfunding #childhood #childhoodcancerawareness #childhoodcancersucks #childhoodcancerresearch #cancersucks #strong #fightcancertogether #cancerwarrior #dipg #dipgfighter #dipgwarrior #dipgawareness #defeatdipg #pediatriccancer #gogold #kidsgetcancertoo #kidssupportingkids
Our menu for our “Shine The Light On Christmas” production! 💙❄️ We hope to see all of you there!! Get your tickets now! ☃️☃️ LINK TO TICKETS ➡️➡️ https://www.zeffy.com/en-US/ticketing/0d36b14a-e19a-4fa4-924e-18c9e2d57147 #DIPGWarrior #DIPGFighter #DIPG #DefeatDIPG #DIPGAwareness
Get ready to sparkle and celebrate this holiday season! SO excited to announce our ‘Shine The Light On Christmas’ dinner and play!!! 💙❄️ Join us for a magical evening filled with festive delights, heartwarming moments, and the joy of togetherness 🎅🏼 Let’s illuminate the holiday spirit together. Save the date and stay tuned for the BEST Christmas experience! ☃️🎄 Scan the QR code to get your tickets NOW, or use this link! ➡️➡️ https://www.zeffy.com/en-US/ticketing/0d36b14a-e19a-4fa4-924e-18c9e2d57147 #DIPGWarrior #DIPGFighter #DIPG #DefeatDIPG #DIPGAwareness
SAY MY NAME 💚 OWEN DANIEL EAST We love to share the kids stories through their favorites, and Owen’s is such a beautiful tale to tell. Not only is this our very first GLOW IN THE DARK tumbler, but also an artist rendition of one of Owen’s favorite characters. 🎬 This box includes Owen’s personalized Buzz Lightyear 20 oz tumbler, a Toy Story straw, a Lightyear sticker, a flashlight keychain, miniature galaxy slime, and our Chocolate Buttercream Coffee! ☕️ 🔦 Order at the link in our bio to purchase Owen’s tribute!!! Your support is a blessing 🫶🏼 #DIPGWarrior #DIPGFighter #DIPG #DefeatDIPG #DIPGAwareness
We have received the cutest package from Miss Mary and we just had to share! 💖 #DIPGWarrior #DIPGFighter #DIPG #DefeatDIPG #DIPGAwareness #wearethehopedealers
MARY STEGMUELLER 💕 BEYOND excited to be sharing this gorgeous tumbler made by the most adorable artist there is!! 🎨 We got permission from Mary herself to share just her tumbler with you all 🥰 Proceeds from purchasing her tumbler will go to Mary’s Magical Moments & Tough2gether !!! CLICK HERE TO PURCHASE ➡️➡️ https://theh.life/products/marys-tumbler-2023?_pos=1&_psq=marys+tumbe&_ss=e&_v=1.0 #DIPGWarrior #DIPGFighter #DIPG #DefeatDIPG #DIPGAwareness
Coming VERY soon… 🔦 OWEN DANIEL EAST 💚 # #DIPGWarrior #DIPGFighter #DIPG #DefeatDIPG #DIPGAwareness #wearethehopedealers
Join Dr. Javad Nazarian today at 12 noon PT / 3:00 ET for the PNOC #DIPG / #DMG webinar to hear the latest research and clinical trials updates. Link in bio to register for the zoom link. Dr. Javad Nazarian is a professor at the University of Zürich, the Head of the DIPG/DMG Research Center at University Children’s Hospital Zürich and an Associate Professor of Pediatrics at the George Washington University and Children’s National Hospital (CNH) in Washington DC, USA. Thank you to @pnoc_kids @wearecbtn @yuvaantiwarifoundation @jacksangels1 @stormtheheavensfund @tough2gether_dipg @beadragonmaster @tommystrongfoundationinc for collaborating to share this information with the community! A huge thank you to the mosaic of foundations, patient families and philanthropists who contribute vital funding to PNOC’s DMG ACT Research Group which is focused on advancing research and new treatment options for diffuse midline glioma (DMG) tumors, including high grade gliomas (HGG) and diffuse intrinsic pontine gliomas (DIPG). #dipgawarenessday #braincancerawareness #clinicaltrials #DIPG #fightDIPG #DIPGawareness #DIPGfighter #DIPGwarrior #DIPGresearch #cancerresearch #kidswithcancer #childhoodcancer #braincancerclincaltrials #cancerresearch #dipg #dmg #diffuseintrinsicpontineglioma #diffuseintrinsicmidlineglioma #dipgfighter #dipgclinicaltrials #dipgtreatment #dipgtumor
SAY MY NAME ❤️ GAVIN MICHAEL WARD Gavin’s “Say My Name” tribute box is available to purchase on our website until September 30th. Also here to STAY is Gavin’s t-shirt & Salted Vanilla Cream coffee! ☕️ We are SO excited to continue to share his story through your favorites. What a wonderful life to celebrate 🥰 CLICK HERE TO PURCHASE ➡️ https://theh.life/products/say-my-name-coffee-subscription?variant=44698608599227 #DIPGWarrior #DIPGFighter #DIPG #DefeatDIPG #DIPGAwareness #wearethehopedealers
Join us for DIPG/DMG ACT webinar tomorrow, September 27 at 12noon PST/3pm EST/9pm CEST. Dr. Sabine Mueller, Dr. Carl Koschmann, and Dr. Javad Nazarian will provide updates on research and clinical trials. Live Q&A will be held and webinar will be recorded. Register through the link in bio. #childhoodcancerawarenessmonth #dipgawarenessday #braincancerawareness #clinicaltrials #DIPG #fightDIPG #DIPGawareness #DIPGfighter #DIPGwarrior #DIPGresearch #cancerresearch #kidswithcancer #childhoodcancer #braincancerclincaltrials #cancerresearch #dipg #dmg #diffuseintrinsicpontineglioma #diffuseintrinsicmidlineglioma #dipgfighter #dipgclinicaltrials #dipgtreatment #dipgtumor #pnoc
Join Dr. Carl Koschmann on 9/27 at 12:00 PM PT / 3:00 PM ET to hear the latest DIPG / DMG research and clinical trial updates. Dr. Koschmann is a PNOC Co-Principal Investigator and Pediatric Neuro-Oncologist in the Department of Pediatrics and a Principal Investigator of an independent translational Pediatric Neuro-Oncology laboratory. His work in the clinic and lab complement and drive each other, resulting in a clear goal to improve therapies for children with brain tumors. He has engaged in research and the clinical care of pediatric brain tumor patients at both Seattle Children’s Hospital and the University of Michigan’s Mott Children’s Hospital. The Koschmann laboratory is exploring the molecular mechanisms by which recurrent mutations in pediatric high-grade glioma (HGG), including glioblastoma (GBM), anaplastic astrocytoma (AA) and diffuse intrinsic pontine glioma (DIPG) promotes tumor formation and affect treatment response. Register to receive the zoom link - link in @pnocfoundation bio and stories! There will be time allocated for live Q&A at the end of the webinar. For those who are unable to make it in real time, please register to receive a link to the video recording on demand. Thank you to @pnoc_kids @wearecbtn @yuvaantiwarifoundation @jacksangels1 @stormtheheavensfund @tough2gether_dipg @beadragonmaster @tommystrongfoundationinc 💛 #dipgawarenessday #braincancerawareness #clinicaltrials #DIPG #fightDIPG #DIPGawareness #DIPGfighter #DIPGwarrior #DIPGresearch #cancerresearch #kidswithcancer #childhoodcancer #braincancerclincaltrials #cancerresearch #dipg #dmg #diffuseintrinsicpontineglioma #diffuseintrinsicmidlineglioma #dipgfighter #dipgclinicaltrials #dipgtreatment #dipgtumor #
Join PNOC Project Leader Dr. Sabine Mueller for a live webinar to hear #DMG / #DIPG research and clinical trial updates. Register via link in @pnocfoundation bio and join us via zoom on September 27th at 12:00 PM PT / 3:00 PM ET. Dr. Sabine Mueller will be joined by esteemed colleagues Dr. Carl Koschmann and Dr. Javad Nazarian. The webinar will be recorded and on demand for those who can not tune in in real time. Register and you will receive the link for the recording. For those who attend in real time there will be a live Q&A. Thank you to @pnoc_kids @wearecbtn @yuvaantiwarifoundation @jacksangels1 @stormtheheavensfund @tough2gether_dipg @beadragonmaster @tommystrongfoundationinc 💛 #dipgawarenessday #braincancerawareness #clinicaltrials #DIPG #fightDIPG #DIPGawareness #DIPGfighter #DIPGwarrior #DIPGresearch #cancerresearch #kidswithcancer #childhoodcancer #braincancerclincaltrials #cancerresearch #dipg #dmg #diffuseintrinsicpontineglioma #diffuseintrinsicmidlineglioma #dipgfighter #dipgclinicaltrials #dipgtreatment #dipgtumor #pnoc
Brainstorm Summit Mommas! I love them all! This year we even have Silvia’s daughter. Blessed beyond measure. World changers! #BrainstormSummit #WorldChangers #DIPGWarrior #DIPGFighter #DIPG #DefeatDIPG #DIPGAwareness
Brainstorm Summit 2023 is coming to a close. The meetings are so power packed and filled with families we love and organizations we partner with to #overcometheimpossible We are so proud of the work we have had the privilege to do and the gifts we have been able to give. I’m this space what if’s turn into steps forward that turn into getting it done. A dear friend said, I have never worked so hard at something and then done it for free as the work we do.” I’d like to add that we are all rejoicing in the movement forward that has been made. I will be trying to explain to all and yes, do my best to get everyone involved. Thank you for your continued support. We appreciate you so much. #DIPGWarrior #DIPGFighter #DIPG #DefeatDIPG #DIPGAwareness #BrainstormSummit
Register via link in @pnocfoundation bio for the upcoming DIPG / DMG Act Webinar. Join us via zoom on September 27th at 12:00 PM PT, 3:00 PM ET. Hear #DMG / #DIPG research and clinical trial updates directly from Dr. Sabine Mueller, Dr. Carl Koschmann and Dr. Javad Nazarian. Ask questions directly to the world’s leading disease experts with a live Q&A. The webinar will be recorded and on demand for those who can not tune in in real time. Register and you will receive the link for the recording. Thank you to @pnoc_kids @wearecbtn @yuvaantiwarifoundation @jacksangels1 @stormtheheavensfund @tough2gether_dipg @beadragonmaster @tommystrongfoundationinc 💛 #dipgawarenessday #braincancerawareness #clinicaltrials #DIPG #fightDIPG #DIPGawareness #DIPGfighter #DIPGwarrior #DIPGresearch #cancerresearch #kidswithcancer #childhoodcancer #braincancerclincaltrials #cancerresearch #dipg #dmg #diffuseintrinsicpontineglioma #diffuseintrinsicmidlineglioma #dipgfighter #dipgclinicaltrials #dipgtreatment #dipgtumor #pnoc
Brainstorm Summit 2023! Last night we arrived later than expected but found people we love ready to pack the bags!! So much fun! Represented is: NoahBRAVE Live Brave Noah Halek Strong Lucy Love Live Grays Way Tough2gether David Turner Jr. Garrett Webber The most amazing humans! #DIPGWarrior #DIPGFighter #DIPG #DefeatDIPG #DIPGAwareness #BrainstormSummit
Link in @pnocfoundation bio to register! Hear #DMG / #DIPG research and clinical trial updates directly from PNOC experts. Join us via zoom for the DMG / DIPG Informational Webinar on September 27th at 12:00 PM PT, 3:00 PM ET. FEATURED SPEAKERS: Dr. Sabine Mueller Pacific Pediatric Neuro-Oncology Consortium (PNOC) Project Leader; Professor, Neurology, UCSF Weill Institute for Neurosciences. Dr. Carl Koschmann Joan and David Evans Pediatric Brain Tumor Scholar; Assistant Professor, Pediatric Neuro-Oncology, Chad Carr Pediatric Brain Tumor Center, Michigan Medicine. Dr. Javad Nazarian Head of DMG Research Center at University Children’s Hospital, Zurich, Switzerland; Associate Professor of Pediatrics Children’s National Hospital (CNH) Washington, D.C.. This webinar will provide a rare opportunity to ask questions directly to the world’s leading disease experts with a live Q&A. The webinar will be recorded and on demand for those who can not tune in in real time. Register and you will receive the link for the recording. Thank you to @pnoc_kids @wearecbtn @yuvaantiwarifoundation @jacksangels1 @stormtheheavensfund @tough2gether_dipg @beadragonmaster @tommystrongfoundationinc 💛 #dipgawarenessday #braincancerawareness #clinicaltrials #DIPG #fightDIPG #DIPGawareness #DIPGfighter #DIPGwarrior #DIPGresearch #cancerresearch #kidswithcancer #childhoodcancer #braincancerclincaltrials #cancerresearch #dipg #dmg #diffuseintrinsicpontineglioma #diffuseintrinsicmidlineglioma #dipgfighter #dipgclinicaltrials #dipgtreatment #dipgtumor #pnoc
This month isn’t an easy one, but it’s an important one. Join us in the fight to end DIPG/DMG & Pediatric Brain Cancer. A few ways to help: 1. Share this post. 2. Pray for those who are fighting the impossible. 3. Make a purchase from our website. The proceeds from each purchase go directly toward fighting this disease. 4. Volunteer with us. This month is such a busy one. Consider making a difference by volunteer some time with The H Life. #DIPGWarrior #DIPGFighter #DIPG #DefeatDIPG #DIPGAwareness #ChildhoodCancer #ChildhoodCancerAwareness #ChildhoodCancerAwarenessMonth #DIPGAngel
Die liebe Julia von der DIPG Seite hat uns diese Woche vorgestellt. Im Bewusstseinsmonat für Kinderkrebs möchte sie auch Bewusstsein schaffen für die Familie, die jeden Tag mit dem Schicksalsschlag DIPG weiterleben müssen. Ohne ihre geliebten Kinder ... Für immer in unseren Herzen ❤️💚🦋 #dipgfighter #dipg #fuerimmerundimmer
Ich hoffe, dass dich liebe Mira mein Sami liebevoll empfangen hat. Mira hat sehr lange gegen das Monster DIPG gekämpft. Sie hat mich immer wieder an Sami erinnert...ihr Lachen, ihre Stimme, ihre leuchtenden Augen ❤️. Jetzt bist du befreit von all den Schmerzen... Ich stelle mir vor, wie Sami mit dir durch hell erleuchteten, mit Blumen geschmückten Wiesen umher springt. Deinen Eltern und deinem Bruder wünsche ich ganz viel Kraft. Güzeller güzeli Miram, umarım Sami'm seni sevgiyle karşılamıştır. Mira çok uzun süre canavar DIPG'ye karşı savaştı. Gülüşü, konuşması, parlayan gözleri ❤️ bana hep Sami'yi hatırlattı. Artık tüm acılardan kurtuldun... Sami'yle birlikte çiçekler içinde, pırıl pırıl aydınlatılmış çayırlarda koştuğunuzu hayal ediyorum. Annene babana ve kardeşine çok büyük sabır diliyorum. @miraturgut2013 Gamzem, Mira'nın güzel annesi kalbimdesin ❤️ #dipgfighter #fuerimmerundimmer
🌟 Introducing the Say My Name Coffee Tribute Box: Honoring Londyn Buss 🌟 At The H Life, we believe in the power of stories. Today, we're proud to introduce our latest tribute box, dedicated to the incredible Londyn Buss. Her story touched our hearts, and we are humbled to share it with you. Londyn's journey was nothing short of extraordinary. She faced the unimaginable, battling DIPG with unwavering courage and resilience for nearly two years. Despite the challenges she endured, Londyn's spirit never wavered. Her legacy serves as a powerful reminder: it's not about dwelling on sadness, but about taking action to make a difference. We are honored to share her story in this month's Say My Name Coffee Tribute Box is here, especially as we enter into Childhood Cancer Awareness month. Join us in celebrating Londyn's spirit and turning her story into a movement. Londyn's box includes: - 4 oz of Chocolate Covered Nuts Coffee - An engraved espresso pot - Londyn Acts of Kindness Notebook and purple butterfly pen - Acts of Random Kindness Stickers to tell the story Purchase Londyn's box on our website today at #linkinbio #SpreadPositivity #PediatricBrainCaner #DIPGAngels #Hope #Cancer #overcometheimpossible #TheHLife #ChildhoodCancer #DIPGFighter #DIPGAwareness #DIPG #DIPGWarrior #LONDYNLIVES
Blueberryfest just ended. It will take another day or so for me to be able to catch up on filling orders but I wanted to tell you a little about what it takes to do this event! Emmanuel and Angie Reese (Jaisyn Reese) graciously hosted the house on wheels provided by Elmore and Melissa Mundell. Seriously this is a two bedroom home on wheels. Thank you to all of you! Linda Weightman volunteered for weeks before and then all through the festival. She even stayed with me here and worked every. Allyson Wright well, she did stuff. That doesn’t even have names running, getting more coffee, filling samples. We gave out 1,370 samples… or more. Just figuring it out from the cups. 23 children represented. Stories told. Connections made! We learned of new children diagnosed in this area and learned of a girl who passed from DIPG that we did not know. A special thank you to Joanna King who spent time with me two days in a row. We love Joanna and her beautiful family! Courage for Carter is a page to follow and definitely support her sweet boy. Nick-Praying Ninja Warrior chalked up 16 hours standing 4 days! 22000 steps a day for 4 days. I should have gotten sponsors for the steps! Thank you for all of your patience! We will start filling those orders ASAP!! #DIPGWarrior #DIPGFighter #DIPG #DefeatDIPG #DIPGAwareness #BlueberryFestival
Today, as we celebrate Labor Day, we're reminded of the incredible dedication and hard work of our team and supporters. Together, we're making strides in the fight against DIPG and pediatric brain cancer, and we couldn't do it without your unwavering support. Thank you for all you do! 💪 September also marks Childhood Cancer Awareness Month, a time to shine a light on the brave young warriors battling this disease. Their strength and resilience inspire us every day. This labor day, consider joining our mission as we continue to raise awareness and funds for pediatric brain cancer research. Together, we can make a difference and give hope to children and families facing these challenges. 💛🎗️ #Cancer #ChildhoodCancer #Hope #DIPGFighter #DIPGAwareness #DIPG #DIPGWarrior #DefeatDIPG #DIPGAngels #SpreadPositivity #TheHLife #PediatricBrainCaner #overcometheimpossible #LaborDay
We’ve been a little quiet sharing updates from Blueberry Festival this weekend. It’s been non-stop! We are still here, and still have a voice to continue sharing the stories of our kids. We’ll be here for two more days! #DIPGWarrior #DIPGFighter #DIPG #DefeatDIPG #DIPGAwareness #BlueberryFestival
September marks the start of Childhood Cancer Awareness Month, and at The H Life, we're gearing up for a month full of impactful initiatives! 🎗️ Our mission for this month is crystal clear: we're aiming to raise $25,000 this September and another $25,000 in October. 🚀 These funds are the lifeblood of our cause, enabling us to make a real difference in the lives of children battling pediatric brain cancer. 🤝 But here's the remarkable part – it's a collective effort. We are honored to collaborate with dedicated foundations that tirelessly strive to support these brave young souls year-round. And you too can be a part of this impact. Whether it be remembering the legacies of the warriors who have fought, with our Say My Name coffee tribute, grabbing one of our new Boxes of Hope, or just re-filling your supply of your favorite coffee or tea blend you can be a part of a real change. Together, we can make a difference. Let's join hands this Childhood Cancer Awareness Month to spread love, awareness, and support to these incredible young warriors. Together, we can overcome the impossible! 💪 To join us in the fight, go to our website today and make a purchase, make a donation of any amount, or simply share this post or tag a friend so we can reach even more people with this incredible opportunity to make a real difference in the lives of those fighting the impossible. #DIPG #DIPGAwareness #DIPGWarrior #DIPGFighter #DefeatDIPG #ChildhoodCancer #Cancer #Hope
"Only 4% of the billions of dollars the government spends annually on cancer research is directed towards treating childhood cancer." Visit to read more or to donate & make a difference @nationalpcf #dosomethinggood #love #strong #motivation #childhoodcancerisnotrare #childhoodcancer #childhoodcancerfunding #childhood #childhoodcancerawareness #childhoodcancersucks #childhoodcancerresearch #cancersucks #fightcancertogether #cancerwarrior #dipg #dipgfighter #dipgwarrior #dipgawareness #defeatdipg #pediatriccancer #nicholassjourney #amazing #life
In a world that often seems filled with negativity and chaos, it is more important than ever to focus on doing good things and being kind. Small acts of kindness ——-> can have a profound impact on both individuals and communities, creating a ripple effect that spreads positivity and compassion. #dosomethinggood #givingback #love #strong #amazing #life #motivation #childhoodcancerisnotrare #childhoodcancer #childhoodcancerfunding #childhood #childhoodcancerawareness #childhoodcancersucks #food #childhoodcancerresearch #cancersucks #fightcancertogether #cancerwarrior #dipg #dipgfighter #dipgwarrior #dipgawareness #defeatdipg #pediatriccancer #nicholassjourney
Bitte helft mit! https://www.ratiopharm.de/ Es ist so weit: Die große Jubiläums-Spendenaktion von ratiopharm ist in vollem Gange! Bis zum 15. September haben Sie nun die Möglichkeit, die nominierten Vereine und Organisationen mit Ihrer Stimme zu unterstützen. Die Anzahl der Stimmen entscheidet dabei über die Höhe der von Teva gespendeten Summe – diese reicht von 2.000 – 12.000 EUR. Entdecken Sie hier die nominierten gemeinnützigen Vereine und stimmen Sie für den guten Zweck ab. #ratiopharm #dipgfighter #dipg #benhilft
Brainstorming-Tour 2023 / Kilometer-für-Kinder.de Kurzer Boxenstopp in Mühlhausen auf der 5. Etappe (Ulm - Regensburg) der Brainstorming-Tour 2023 von Burkhard Hein/Initiator www.kilometer-fuer-kinder.info. Wir hoffen, dass ihm und seinem heutigen Begleiter Hubert die kleine Stärkung ☕️🥨 ein bisschen gut getan und etwas neue Kraft für die Weiterfahrt bei viel Regen 🌧️ und leider doch sehr kühlen Temperaturen gegeben hat. Riesen Respekt vor Eurer Leistung und schön, Euch getroffen zu haben! Auch wir werden weiter fleißig Kilometer für Kinder sammeln 🚴♀️🚴🏻♂️, um dieses sinnvolle und so wichtige Projekt mit ganzen Kräften zu unterstützen 👍🏼!! Alles Gute für die restlichen Etappen! #kilometerfürkinder #dipgfighter #krebskrankekinder
@caseycares helps make lasting memories for critically ill kids and their families, and that's especially true for 12-year-old Jeremiah. He's fighting a brave battle against #DIPG, an incredibly rare and deadly brain tumor. We're helping his family embrace every precious moment with Jeremiah, like during their recent adventure at the @marylandzoo 🦁🐯
We are reaching out to whoever is reading this today with a heartfelt request to support a courageous child who is currently battling cancer. Your generous donation can make a significant impact on their journey towards recovery and bring hope to their family during this challenging time. Charm, a 4-year-old sweet girl, was diagnosed with Neuroblastoma stage 4 cancer in 2020 and currently relapsed. This devastating news has turned her family's world upside down, and they are now facing an arduous battle against this life-threatening disease. @charmbeatingcancer Despite the immense physical and emotional pain, they endure daily, Charm remains resilient and determined. 💜 Your contribution, no matter the amount, will directly support Charm's fight against cancer and alleviate the financial burden on their family. Every dollar counts in making a difference in Charm's life. If you are unable to donate at this time, we kindly ask you to share this message. #dosomethinggood today and donate. To directly donate link in our bio or @charmbeatingcancer #childhoodcancerisnotrare #childhoodcancer #childhoodcancerfunding #childhood #childhoodcancerawareness #childhoodcancersucks #childhoodcancerresearch #cancersucks #strong #fightcancertogether #cancerwarrior #dipg #dipgfighter #dipgwarrior #dipgawareness #defeatdipg #pediatriccancer #gogold #kidsgetcancertoo #kidssupportingkids #nicholassjourney
In a world that often seems filled with negativity and chaos, it is more important than ever to focus on doing good things and being kind. Small acts of kindness ——-> can have a profound impact on both individuals and communities, creating a ripple effect that spreads positivity and compassion. #dosomethinggood #givingback #love #strong #amazing #life #motivation #childhoodcancerisnotrare #childhoodcancer #childhoodcancerfunding #childhood #childhoodcancerawareness #childhoodcancersucks #food #childhoodcancerresearch #cancersucks #fightcancertogether #cancerwarrior #dipg #dipgfighter #dipgwarrior #dipgawareness #defeatdipg #pediatriccancer #nicholassjourney
🎧 Hey everyone! Looking for an engaging podcast to follow? Look no further! Check out @spreadgoodsquad, an amazing podcast that covers a wide range of topics on how others spread good, and it keeps you hooked from start to finish. 🎙️ #spreadgoodsquad #dosomethinggood #love #strong #amazing #happy #life #motivation #november #timetogive #thanksgiving #spreadgood #childhoodcancerisnotrare #childhoodcancer #childhoodcancerfunding #childhood #childhoodcancerawareness #childhoodcancersucks #food #childhoodcancerresearch #cancersucks #fightcancertogether #cancerwarrior #dipg #dipgfighter #dipgwarrior #dipgawareness #defeatdipg #pediatriccancer #nicholassjourney
Trusting god that he has a plan and a purpose for hazels life 💕I love this poster that was made for hazel. We are standing in faith together as a body of Christ. #dipg #dipgawareness #dipgwarrior #dipgfighter #healingforhazel