Remembering Luna who passed away last year after an eight month fight with DMG. She was just four years old. Luna fought with so much strength, bravery and grace. She was a mighty girl. She touched the hearts of so many, all who knew her and those of us who only knew her through social media, we will never forget her. Her beautiful, powerful light will shine on. We will remember her and always say her name. Luna. Please keep her family in your thoughts and prayers. Being with you always felt like gazing at the stars and into the infinity, reading a book which never ends. You had no boundaries, all you knew was to shine, and live without any walls around you on every page. As you danced in the light with joy, love lifted you. As you brushed against this world so gently, you lifted us. Shine your soul with the same egoless humility as the rainbow and no matter where you go in this world or the next, love will find you, attend you, and bless you. #DefeatDIPG #DMG #Enoughoftherare #RememberTheirNames Luna Zoé Cristobal 31st December 2018 - 1st June 2023
Ozzy Zeward Brown 9th May 2019 - 9th September 2023 Happy Birthday Ozzy Ozzy was a typical little boy who loved construction vehicles, spaceships, cars, bikes and aeroplanes, he had his own little motorbike which he liked to zoom around the house on. Ozzy loved stories and he loved adventure, he was always up for exploring and and trying new things, he was curious and adventurous and enjoyed learning. He loved the beach, his bath, playing with his toys and singing and dancing to his favourite songs. Ozzy was full of joy, mischief, fun and giggles, he loved to make people laugh. He was a ray of sunshine, he was very affectionate and kind and he enjoyed cuddles. Ozzy fought dipg with bravery and strength, he gave it everything he had. He went through so much yet continued to flash his beautiful smile. Ozzy went to be with Jesus after an eighteen month fight, his last heroic act of kindness was to donate his brain cells to create a cell line which will be used to help researchers in their search for a cure. He was only a little boy but he found his way into all our hearts and truly made a forever impact on all the lives he touched. His family miss his physical presence very much but know that Izzy is healed and whole, dancing, singing and rejoicing in heaven. They look forward with hope to a joyful reunion and big Ozzy hugs one day. Until then please keep everyone who loves him in your thoughts and prayers. #DefeatDIPG #Enoughoftherare #DIPG #RememberTheirNames
Charles Thomas, Charlie 1st June 2001 - 6th August 2018 Happy Birthday Charlie Charlie was athletic, he loved to hike, play lacrosse and enjoyed running. He was a smart student who took an active part of many areas of school life. He belonged to St Ann’s church and served at the altar and as a Sacristan. Charlie loved nature and was an advocate for climate change and taking care of the earth. Charlie was only fourteen when his family heard the terrible news that he had dipg, a type brain cancer which is considered terminal upon diagnosis. The disease mostly affects much younger children and Charlie was determined to be a voice for them. Charlie advocated for other kids with pediatric cancer and reached out to others who were suffering. He attended research conferences and participated in several clinical trials. Charlie refused to be defined by his disease but faced it head on, always looking for the wonder in every moment and teaching us to celebrate life in the good and bad. He is a shining light who is so very missed, not just by his family and loved ones but by those of us who never met him but were touched by his spirit and courage. Charlie fought with bravery and grace and chose to love every minute of his life. He also chose to donate his brain and tumor to medical research in hopes of helping others in the future. Please keep Charlie’s family in your thoughts and prayers today and always. Charlie should be celebrating turning twenty three today. #DefeatDipg #Enoughoftherare #GoGray #Dipg #Remembertheirnames
Remembering Kinley who passed away five years ago after fighting dipg since March 2018. She was just six years old. Her family did everything they could to keep their little girl happy and carrying on with as much normal as possible. A little girl who won the hearts of everyone who met her. She never complained about her illness but just got up every day and participated in whatever was planned. Please keep Kinley’s loved ones in your thoughts and prayers. A butterfly lights beside us, like a sunbeam… and for a brief moment it’s glory and beauty belong to our world… but then it flies on again, and although we wish it could have stayed, we are so thankful to have seen it at all. #defeatdipg #DIPG #RememberTheirNames #Enoughoftherare
Cheyannia Kayelee Mae 1st June 2004 - 28th September 2012 Happy Birthday Princess Cheyannia enjoyed scrapbooking, arts and crafts and fishing. She liked sled riding, riding her dune buggy and spending time with her dogs, Daisy Mae, Baby, Browne and Bruno. Her mom describes her as sassy and outgoing. She was a second grade student at Connoquenessing Valley Elementary School until her illness. Chey was eight when she passed away after a nine months battle with dipg. Please keep her family in your thoughts and prayers today on her twentieth birthday. A slideshow I made to honor Chey on her twelth birthday. https://m.youtube.com/watch?v=9ijmHQXpOfk #Dipg #DefeatDipg #Enoughoftherare #RememberTheirNames
Today we remember Constanza who passed away six years ago ago after a long fight with dipg, she fought for sixteen months. She was from Chile and she fought so bravely, always with the same beautiful smile. Constance was just eight years old. Constanza told her mum about a beautiful swing that was in the clouds, it’s good to imagine her swinging today and laughing with that beautiful laugh. Please keep her family in your thoughts and prayers. You are the finest, loveliest, tenderest, and most beautiful person I have ever known and even that is an understatement. I don’t know if life was greater than death. But love was more than either. #DefeatDipg #DIPG #RememberTheirNames Hoy recordamos a Constanza quien falleció hace cinco años luego de una larga pelea con dipp, luchó por dieciséis meses. Ella era de Chile y luchó tan valientemente, siempre con la misma hermosa sonrisa. Constance solo tenía ocho años. Constanza le contó a su mamá sobre un hermoso columpio que había en las nubes, es bueno imaginarla columpiándose hoy y riéndose con esa hermosa risa. Por favor mantenga a su familia en sus pensamientos y oraciones. Eres la persona más fina, encantadora, tierna y hermosa que he conocido e incluso eso es un eufemismo. No sé si la vida fue más grande que la muerte. Pero el amor era más que cualquiera de los dos. #Derrotar a Dipg #DIPG #RecordarSusNombres
An update on July on his caringbridge account. Sadly he continues to decline but continues to fight with dignity and courage. His family ask for these specific prayers. Divine healing. Thank you; July's comfort, for no suffering and for peace of mind. For his family to have courage, hoppe and peace, enjoying each day's gifts. https://www.caringbridge.org/visit/julydotson/journal/ #DefeatDIPG #Enoughoftherare #DIPG #Hope #Negu If you don't have a caringbridge account it is worth getting one as many of our children update on there. All you need is an email and password and there's no spam involved.
we are ChadTough! #DefeatDIPG #Superhero6k #ChadToughDefeatDIPG
Superhero 6k!! #superhero6k #defeatdipg #chadtoughdefeatdipg ❤️🎗️
We go grey in May because of: Helena👼🏽 2 days ago was Helena’s 2nd angelversary💔💔💔💔💝 if you are unaware of her story, Helena was only 7 years old when her entire world changed. She was diagnosed with DIPG and was in the fight for her life. She endured radiation treatments soon afterwards and she continued to fight. One day, Helena began to have multiple seizures of what was originally an unknown origin. Soon it was found that that she had a brain hemorrhage, and that hemorrhage was a result of her spinal fluid being backed up so much to the point where it was causing her spinal vertebras to be extremely swollen. Her tumor had also become swollen at this time and had grown more. It was also discovered that she had pneumonia which caused her breathing to extremely compromised. She gained her wings at the age of 8 after fighting for over half a year💝 @helenasfightfordipg @jeny4rmthebloxknails #gogreyinmay #mayisbraincancerawarenessmonth #ForeverHelena #DIPG #dipgawareness #dipgangel #defeatDIPG #braincancerawareness #diffuseintrinsicpontineglioma #givekidsachance #givekidsachanceact #childhoodcancer #kidscancer #pediatriccancerawareness #gogoldforchildhoodcancer #childhoodcancersucks #childhoodcancerawareness #nationalpriority #gogold #childhoodcanceradvocate #kidsgetcancertoo #fightlikeakid #thisischildhoodcancer #morethan4 #pediatriccancer 🎗🎗 #NCI #kidsareworthmore
Remembering Liah 31st May 2011 - 11th September 2018 Happy Birthday Princess Liah loved to play with her many friends and helping with her little brother. She was very active and enjoyed cycling and rollerblading. Her favourite activity was riding and she spent a lot of time at the stables. Liah was a happy and sweet little girl, she had a smile for everyone. She was kind and caring and wise beyond her years. Liah was diagnosed with dipg and sadly passed away just eleven weeks later. Please keep her family in your thoughts and prayers today. #DefeatDipg #GoGray #Dipg #Enoughoftherare #RememberTheirNames #braintumourawareness
Remembering Kaydence who passed away five years ago. She was just nine years old and had been fighting dipg since May 2018. Kaydence loved to travel and so her Facebook page began, stories and pictures of adventures Kaydence took, pictures from people of places all over the world and there was also ‘Flat Kaydence’ who went on her travels too. There is no doubt that Kaydence was a sweet, loving and brave little girl who captured the hearts of those she met and those who knew her from following her journey. Please keep her family in your thoughts and prayers. We live in a wonderful world that is full of beauty, charm, and adventure. There is no end to the adventures we can have if only we seek them with our eyes open. Do not follow where the path may lead. Go instead where there is no path and leave a trail. #GoGray #DefeatDipg #Dipg #Enoughoftherare #RememberTheirNames #braintumourawareness
#GoGray for Layla Layla passed away seven years ago after a fourteen month fight with dipg. She was just four years old. Please keep her family in your thoughts and prayers. Layla showed us that even with dipg you can live a life of joy and laughter and fun. That you can be dealt the worst card there is but still rise above it and find contentment and delight. A butterfly lights beside us, like a sunbeam… and for a brief moment it’s glory and beauty belong to our world… but then it flies on again, and although we wish it could have stayed, we are so thankful to have seen it at all. #DefeatDipg #Dipg #Enoughoftherare #gogray #RememberTheirNames #braintumourawareness
Remembering Destiny who passed away eight years ago after a twenty month battle with dipg. She was five years old. Please keep her family in your thoughts and prayers today. She was bendable light: she shone around every corner of my day, lighting the way ahead, even when I couldn’t see the light directly. StarGirl #DefeatDipg #Dipg #Remembertheirnames #Enoughoftherare #braintumourawareness
Ariella passed away on the 31st May, five years ago, the last day of brain tumor awareness month and the third child to lose her life to this terrible disease on that day. Ariella was a gorgeous little girl, full of life and joy and giggles. Ariella truly sparkled and her ray of light and sunshine is badly missed from her home and the lives of her family. Ariella was diagnosed the previous September, the day after her fifth birthday. Please keep Ariella’s parents Emilia and John in your thoughts and prayers. Death ends a physical life, not a relationship. Lost love is still love. It takes a different form, that's all. You can't see their smile or bring them food or tousle their hair or move them around a dance floor. But when those senses weaken another heightens. Memory. Memory becomes your partner. You nurture it. You hold it. You dance with it. #DefeatDIPG #Enoughoftherare #DIPG #braintumourawareness #RememberTheirNames
Remembering Kayge who passed away five years ago after a brave and courageous fight with dipg. He was just six years old and the end came very rapidly and suddenly for his family. Kayge was an incredible boy, full of joy and fun and giggles. He was the sweetest, kindest little man and was as brave as any one ever could be. I could continue on about how many children have passed away lately but the truth is, one is too many. Imagine if little Kayge was your child, he’s five years old and you’re told there’s nothing anyone can do. It’s the most gut wrenching and unfair thing. Kayge had potential, he was funny, he had smarts, he was supposed to grow up and lead a full life, fulfilling his dreams. Please keep his family and loved ones in your thoughts and prayers, especially his siblings. Thank you So as you stand upon a shore, gazing at a beautiful sea - remember me. As you look in awe at a mighty forest and its grand majesty - remember me. As you look upon a flower and admire its simplicity - remember me. Remember me in your heart, your thoughts, your memories of the times we loved, the times we cried, the times we giggled, the times we laughed. For if you always think of me, I will never be gone. #defeatdipg #DIPG #Enoughoftherare #RememberTheirNames #braintumourawareness
Remembering Halle who passed away five years ago after fighting dipg for six months. She was just eight years old. Please keep her family in your thoughts and prayers. I believe that imagination is stronger than knowledge. That myth is more potent than history. That dreams are more powerful than facts. That hope always triumphs over experience. That laughter is the only cure for grief. And I believe that love is stronger than death. Robert Fulghum #DefeatDipg #Dipg #Remembertheirnames #Enoughoftherare #braintumourawareness
Maika Lefebvre 31st May 2013 - 13th April 2019 Happy Birthday Maika, Eleven in Heaven Maika was like any other five year old girl, full of fun, energy and laughter. She was a ray of sunshine in the life of everyone who knew her and she had the biggest of hearts, she cared about everyone. Maika loved collecting stuffies, unicorns and doing art and crafts. She adored all the Disney princesses and loved to dress up as them, she also loved to wear make up, paint her nails and accessories. She was always smiling, she was so smart and beautiful. Sadly Maika was diagnosed with dipg on the 27th August 2018. Despite her young age of just five, she fought with maturity and grace, always caring more for others than herself. She never complained even in the last two weeks of her life when things were tough. Maika accepted all she went through with bravery and patience, she went through radiation without sedation. Maika battled like a true warrior as she fought to stay with her family for longer. Maika fought for seven months before passing away in the arms of her mummy and daddy. Please keep her family in your thoughts and prayers today. #DefeatDIPG #Enoughoftherare #DIPG #braintumourawareness #RememberTheirNames
Today is the last day of Brain Tumor Awareness Month, but we encourage you to continue raising awareness every day of the year. DIPG often strikes the most innocent among us and we can’t continue to watch this happen. We will keep fighting for them until they are no longer fighting for their life. These kids are fighting all year round, so we will too. Join us as we #GoGoldandGrayEveryDay. Consider making a gift on Instagram or at chadtough.org/donate. #ChadTough #DefeatDIPG
The 9th Annual ChadTough Defeat DIPG Superhero Sprint & 6K, presented by @HeadfirstSummerCamps, was a great success! We’re thrilled to share that thanks to the generosity of our participants, sponsors, fundraisers, and donors, the event raised over $260,000! The Superhero 6K included 2,290 participants with more than 50 race teams! We loved seeing the gatherings across so many different states and countries in honor of our childhood cancer heroes. Congratulations to our largest race teams this year: Rally for Raegan, Fight for Gordie, Team Ethan, the Michael Mosier teams, Mirah’s Many, Love for Maggie, and HUNT for a DIPG Cure. And congratulations to our top fundraisers: Rally for Raegan, Viv’s Vikings, Team Big Hero Michael, Team 2000 Tower Oaks, Mirah’s Many, Zachary Strong, HUNT for a DIPG Cure, Team Covington, and Team Liam. More than 800 donors gave generously to the Superhero 6K – inspired by so many different children who have fought DIPG. EVERY participant and EVERY dollar raised makes a difference against this devastating disease. Thank you to ALL of our teams and fundraisers! You are amazing! We are so grateful for Presenting Sponsor, Headfirst Summer Camps, who has continued to stand with us since our very first event in 2016. Please join us in also thanking our Platinum Sponsors @DARCARS Automotive Group and The Tower Companies, and our Gold Sponsors @BialekSocial and @Lerner. Check our race site for the full list of valued sponsors! We would love to see your pictures! Make sure to tag us on social or email photos to [email protected]. Thank you to everyone who made an impact by participating in the Superhero 6K. Together, we will Defeat DIPG! If you haven't had the chance to make a gift, all fundraisers will stay open until June 7. Make a donation to any team at Superhero6K.com. #Superhero6K #DefeatDIPG #ChadTough
The 9th Annual ChadTough Defeat DIPG Superhero Sprint & 6K, presented by @HeadfirstSummerCamps, was a great success! We’re thrilled to share that thanks to the generosity of our participants, sponsors, fundraisers, and donors, the event raised over $260,000! The Superhero 6K included 2,290 participants with more than 50 race teams! We loved seeing the gatherings across so many different states and countries in honor of our childhood cancer heroes. Congratulations to our largest race teams this year: Rally for Raegan, Fight for Gordie, Team Ethan, the Michael Mosier teams, Mirah’s Many, Love for Maggie, and HUNT for a DIPG Cure. And congratulations to our top fundraisers: Rally for Raegan, Viv’s Vikings, Team Big Hero Michael, Team 2000 Tower Oaks, Mirah’s Many, Zachary Strong, HUNT for a DIPG Cure, Team Covington, and Team Liam. More than 800 donors gave generously to the Superhero 6K – inspired by so many different children who have fought DIPG. EVERY participant and EVERY dollar raised makes a difference against this devastating disease. Thank you to ALL of our teams and fundraisers! You are amazing! We are so grateful for Presenting Sponsor, Headfirst Summer Camps, who has continued to stand with us since our very first event in 2016. Please join us in also thanking our Platinum Sponsors @DARCARS Automotive Group and The Tower Companies, and our Gold Sponsors @BialekSocial and @Lerner. Check our race site for the full list of valued sponsors! We would love to see your pictures! Make sure to tag us on social or email photos to [email protected]. Thank you to everyone who made an impact by participating in the Superhero 6K. Together, we will Defeat DIPG! If you haven't had the chance to make a gift, all fundraisers will stay open until June 7. Make a donation to any team at Superhero6K.com or by clicking the link in our bio. #Superhero6K #DefeatDIPG #ChadTough
We were humbled and grateful to support such an amazing event in honor of all those affected by DIPG. We will continue to do our part ♥️ #RallyForRaegan #defeatdipg
Kyle McKenzie Morrison 30th May 2011 - 15th October 2020 Happy Birthday Kyle Kyle was one of a kind, he was cheeky, smart, and full of energy. He was loving and caring to everyone and was the best big brother to Tyler. Kyle loved anything Pokemon, Transformers, and most of all building Lego. He enjoyed his PlayStation and Five Nights at Freddie’s. Kyle loved making people laugh, he was full of energy with a side of sass. On September 13th, 2019 sweet Kyle was diagnosed with DIPG, He bravely fought for thirteen months. Kyle stole many hearts, ones of those he met and those who only knew him through social media. He passed away at the age of nine. Just nine, Kyle was an incredible boy, full of joy and fun and laughter. He was caring and kind and was as brave as any one ever could be. Kyle had potential, he was funny, he had smarts, he was supposed to grow up and lead a full life, fulfilling his dreams. Kyle we promise that we will remember you and your shining light and we will continue to fight so that others don’t have to go through all that you endured. We promise to keep telling your story. Please keep Kyle’s family in your thoughts and prayers today, his milestone thirteenth birthday. #DefeatDipg #Enoughoftherare #Dipg #Remembertheirnames #braintumourawareness
Remembering Camilla who passed away on the 29th May three years ago. She fought GITC with courage and bravery for twenty one months and was just six years old, the most beautiful angel. Heavy is the crown and yet she wears it as if it were a feather. There is strength in her heart, determination in her eyes and the will to survive resides within her soul. A warrior, a champion, a fighter, a queen. #Dipg #DefeatDipg #Enoughoftherare #Remembertheirnames #GITC #braintumourawareness
Chase Cross 30th May 2001 - 25th April 2012 Happy Twenty Third Birthday Chase Chase was smart, funny, and mischevious. His name fit him because as soon as he learned to walk, you chased him. Chase was friendly with a great big smile for everyone all the time. He loved video games, baseball, soccer, and board games. Chase also loved music, Big Time Rush and Alabama were two of his favorite groups. He also loved Oreos and Ice Cream. He was a Star Trek fan and he enjoyed playing and watching sport. Chase was diagnosed with dipg in January 2010 and he fought for twenty seven months, living his life to the full. Chase is forever loved Infinity and Beyond. Please keep his family in your thoughts and prayers today and always. Chase should be with his family celebrating his nineteenth birthday, please honour him and his memory for doing something for someone else today. Chase was a kind, careful and thoughtful young man, please help to remember him today by carrying out a random act of kindness in Chase’ honour today. It can be big or small; smile at a stranger, buy a coffee for a homeless person, carry someone’s shopping, take your neighbour a cake. Tell them Chase sent you. #GoGray #Dipg #DefeatDipg #Enoughoftherare #RememberTheirNames #braintumourawareness
Remembering Ila who passed away five years ago after fighting dipg since October 2017. She was just three years old when she was diagnosed, just a baby. Ila was the sweetest most adorable little girl with a beautiful smile and an infectious giggle. She loved all things sparkly and most of all to dance. We hope you’re dancing now sweet girl. We will never forget you. Please keep Ila’s family in your thoughts and prayers. People you love never die. That is what Omai had said, all those years ago. And he was right. They don't die. Not completely. They live in your mind, the way they always lived inside you. You keep their light alive. If you remember them well enough, they can still guide you, like the shine of long-extinguished stars could guide ships in unfamiliar waters. #forever5 #DefeatDipg #Dipg #Remembertheirnames #GrayinMay #Enoughoftherare #braintumourawareness
Remembering Aubree who was born on October 30, 2016 and passed away two years ago after a nine month fight with dipg. She was just five years old. Aubree was the light in every room she walked into. She could be sassy and tenacious but was also the sweetest, silliest and most outgoing little girl who loved to make everyone around her feel loved and make them laugh. Please keep her family in your thoughts and prayers today. Most of all, I remember her laughing. It filled my ears. Her smile, her sparkling eyes, and her infectious laughter, along with the vistas, were limitless and unending and powerful. Laughter with those that understand us is music for the soul. A hug at the right moment and a kind shoulder to lean on, is the sprinkle of magic that keeps us walking towards hope. #Dipg #DefeatDipg #RememberTheirNames #Enoughoftherare #braintumourawareness
Remembering Joshua who passed away twelve years ago after fighting dipg for less than a year. He was fourteen years old. Josh was celebrated for both academic and athletic achievements but he was known mostly for his huge loving heart. He won awards at school for citizenship and caring. Please keep his family in your thoughts and prayers today. Take my hand, and lead me to salvation. Take my love, for love is everlasting. And remember the truth that once was spoken: to love another person is to see the face of God. Victor Hugo, Les Miserables #DefeatDIPG #DIPG #Enoughoftherare #RememberTheirNames #braintumourawareness
Forever three Remembering Stevie who was two and a half when she was diagnosed with dipg on Easter Sunday 2020. The family’s plan was to bring little Stevie home to her familiar things as soon as possible but Stevie gently transitioned from her earthly home to her heavenly forever home just a few weeks later. Please keep all who love her in your thoughts and prayers. O child, my child, are you going away? Will you leave on the wings of the morning? You have heard his voice; you've answered the call, But it's hard the path you're making. Will you think of me When the blue bird sings, With the warmth of the sun in its rising And I'll think of you When the roses bloom, With the sound of a baby laughing. And if I never hear your sweet voice again We will sing at the gates of heaven O we'll sing at the gates of heaven Walk on, walk on, with the wind at your back And a prayer for a new life beginning. You've been given to me by the Good Maker's hands Now my gift to the Lord is returning. And I'll bless your path With the stars at night, And the smile of the day as its dawning. And if I never walk beside you again, We'll dance at the gates of heaven, O we'll dance at the gates of heaven. #DefeatDipg #Dipg #Enoughoftherare #RememberTheirNames #braintumourawareness
Remembering Jayvis who passed away five years ago after fighting dipg for nine months. He was fourteen years old. Jayvis had a tough battle, for part of his fight he was incubated in PICU but he fought back and was able to return home. He is forever his family’s hero. Please keep them in your thoughts and prayers today. We all have the capacity to be a superhero. In order to become one, you just have to find your unique power or ability and exploit it for the greater good. The cape and mask are optional accessories, but a kind heart is essential. #DefeatDipg #Dipg #Remembertheirnames #GrayinMay #braintumourawareness
Claire Sophia Hornby 29th May 2010 - 8th September 2020 Happy Birthday Claire Claire loved to sing and dance and always had a smile on her face. She loved school and was a curious learner, she was joyful, kind and funny. Most important to Claire were her family, friends and her puppy, whom she named, Mr. Freddy von Fluffypants. She never held back on the love she shared with so many and she never knew a stranger. Clair loved animals and before she died she helped to set up a program like a food pantry, only instead of offering groceries for people, it offers kibbles and canned fare for pets. Claire had a seventeen month journey with DMG. Claire was her family’s sunshine and she showed them that even with the diagnosis of DMG you can still love and find joy in things both small and large. That even amidst the deadly prognosis, you can still live and live strongly and seek the best of life with passion and vigor. Claire used perseverance, humor and wonder to contend with incurable cancer She faced her disease with strength and a quiet courage that were well beyond her years. In the early hours of Tuesday, September 8, 2020, Claire Sophia Hornby passed away at home. She was ten years old. Claire walked knowingly towards her death, unafraid. She loved God and knew he would protect her. Claire's tumor, which she named "Nerd," was donated to St. Jude Children's Research Hospital upon her death. Claire's great hope was that her contributions to medical research might lead to a cure. Please keep Claire’s family in your thoughts and prayers today on her fourteenth birthday. #DefeatDIPG #DIPG #DMG #Enoughoftherare #braintumourawareness #RememberTheirNames
Remembering Brayden who passed away six years ago after a two year fight with dipg. He was only four years old. Please keep his family in your thoughts and prayers especially his twin brother Landon. Brayden you fought with courage, grace, joy and strength, if there was a funny moment to be found, you found it. We will remember your care for others, your belly laughs, your giggles. The way you never complained when there were things you could no longer do, you cheered on your brother instead. Let my soul smile through my heart and my heart smile through my eyes, that I may scatter rich smiles in sad hearts. #DefeatDipg #Dipg #GoGray #braintumourawareness #RememberTheirNames
These children all passed away from dipg, twelve beautiful children, twelve more families forever shattered because of their loss. We must continue to share these children and their stories, we must be the voices for those who are too young to have an effective one of their own. Please share and please tell someone new, how thousands of children have died, are dying because we have no cure. Don't help because it's your child, help because it's a child. Let them guide you. Alex, Makayla, Alex, Zhengi, JaMarcus, Ashley, Rubi, Clara, Katie, Braelynn, Julian, Daniel People you love never die. That is what Omai had said, all those years ago. And he was right. They don't die. Not completely. They live in your mind, the way they always lived inside you. You keep their light alive. If you remember them well enough, they can still guide you, like the shine of long-extinguished stars could guide ships in unfamiliar waters. Dipg is a paediatric brain cancer which is inoperable and incurable, it is considered terminal on diagnosis. Most of those affected live for nine to twelve months. It mostly occurs in young children but can affect teenagers, young people and more rarely adults. Funding for research is minimal with most monies coming from foundations and charities set up by families who have lost their child. This is why a cure for dipg and other brain cancers lags a long way behind other cancers. Sadly we still have a long way to go for all paediatric cancers, please help by sharing stories and only giving to charities who give all monies raised to research for children. #DefeatDipg #Dipg #Enoughoftherare #gogray #RememberTheirNames #braintumourawareness
Jade Victoria 28th May 2012 - 29th August 2016 Happy Birthday Princess Jade also own as Pretty Jade was smart, loving and caring. She was a great big sister to Mila. She loved princesses, dancing and singing, unicorns and dolls. Jade was diagnosed with dipg on the 24th of August last year and sadly passed away just five days later. She was just four years old. Please keep Jade's family and all who love her in your thoughts and prayers today, her twelfth birthday. Think of your child, then, not as dead, but as living; not as a flower that has withered, but as one that is transplanted, and touched by a Divine hand, is blooming in richer colors and sweeter shades than those of earth. #GoGray #Dipg #DefeatDipg #Enoughoftherare #RememberTheirNames #braintumourawareness Troy Bridier Vicky Cha
Odin Baer 28th May 2011 - 29th April 2015 Happy Birthday Little Man Odin loved the Muppets, the Toy Story Movies, he loved superheroes and ice cream. He enjoyed books, music and dancing. Odin was a thoughtful and kind little boy, he was quiet but brave. He was diagnosed with dipg in October 2013 at the age of two and a half and fought courageously for eighteen months. Odin touched all our hearts and we will never forget him. Please keep his family in your thoughts and prayers today, his thirteenth birthday. #GoGray #Dipg #DefeatDipg #Enoughoftherare #braintumourawareness #RememberTheirNames
#GoGray for Taylah Remembering Taylah who passed away from dipg nine years ago. She fought for eleven months and passed away a few weeks before her eighth birthday. Please keep Taylah's family in your thoughts and prayers today. I hope you never lose your sense of wonder You get your fill to eat but always keep that hunger May you never take one single breath for granted God forbid love ever leave you empty handed I hope you still feel small when you stand beside the ocean Whenever one door closes I hope one more opens Promise me that you'll give faith a fighting chance And when you get the choice to sit it out or dance I hope you dance I hope you dance #DefeatDipg #Dipg #Enoughoftherare #RememberTheirNames #braintumourawareness
Please send your love, warm thoughts and prayers for DaShawn as he had his MRI this morning and we hope for good results. God please let my baby boys tumor still be Stable he goes for his 7 week MRI at 7 this morning 💔😭🎗️🙏🏽 I’m a nervous wreck this is the first time in almost 3 years we have had to go though this he has been stable since day 1. His last MRI showed a spot on his tumor and the dr isn’t sure what it is so they wanted to keep an eye on it that’s why he is going for another mri this soon. This shit is not fair why do our babies have to go through this I would trade places with him In A heartbeat. And the only think he requested was to take his Aunt Stacey’s ashes with him he said mom I want aunt Stacey with me 😭💔 I know he is worried I can tell the way he has been acting lately this is the first time he has shown any worry since day 1 😭 God why him why my baby boy. And this is the 1st appointment I’ve missed in a year and a half and I feel like crap I should be with him my car is acting up something wrong with the throttle body light and it wouldn’t accelerate yesterday and I’m worried going 2 hours away like that. I feel like I’m letting my so. Down by not being there 😭💔 Please everyone say a prayer for my Son for a Stable Tumor 🙏🏽🎗️ Stacey please be with your Nephew today and watch over him. Dashawn VS Dmg #DefeatDIPG #DMG #Enoughoftherare #GoGray #braintumourawareness
Josiah David 27th May 2008 - 27th February 2014 Happy Birthday Josiah Josiah was a sweet, kind and friendly boy with a contagious laugh. He fought dipg bravely for ten months and was just five when he passed away. In Josiah’s own words: I love SpongeBob, Spiderman, Cars, Marvel Super Heros Super Squad, Monsters INC, I love playing Soccer and football with my dad! I love building big things with my blocks.I love to color and draw and I am very smart and can write I also love having tattoos just like my daddy! Thinking of you today and always #GoGray #Dipg #DefeatDipg #Enoughoftherare #RememberTheirNames #braintumourawareness
#GoGrey for Mackenzie who passed away seven years ago at the end of a courageous fourteen month fight. She will be remembered by us all every day as she touched our hearts. A light like yours can't go out. And even though I can't see you, when I look at twinkling stars, I know you are still shining somewhere too. #DefeatDipg #Dipg #Enoughoftherare #GoGray #RememberTheirNames #braintumourawareness
#GoGray for Howard Remembering Howard who passed away seven years ago. He was just six years old when he died after fighting for six months. So many kids and each one matters. Please keep Howard's family in your thoughts and prayers today. The most beautiful people wear their hearts on their sleeves, and their souls in their smiles #DefeatDipg #Dipg #Enoughoftherare #RememberTheirNames #braintumourawareness
Remembering Drake who passed away five years ago after a brave and courageous fight with dipg that began in March 2017. He was eight years old. Drake showed us all that even with the diagnosis of DIPG you can live and find joy, even amongst the pain and loss that Drake has experienced you can live strongly and pursue life to the full every moment. Drake was a wonderful little boy, he was full of life and energy and fought dipg with the same tenacity he used to tackle the rest of life. My heart breaks to post about the passing of this little boy with so much to live for. Drake deserved so much more and we have to do better. Drake had potential, he was funny, he had smarts, he was supposed to grow up and lead a full life, fulfilling his dreams. My heart breaks for another little broken body. He is now healed in heaven but his family have to to live without their adorable son. Please keep them and all who love Drake in your thoughts and prayers. There can be no goodbyes for us It'd be too painful, dear Our connection still lives on Although you're far from here I miss the times that we once had But one day, once again I'll hold you close and laugh with you I just wish I knew when Each moment til that day arrives Until my time is through I'll miss you more than words can say And always think of you I'll look for you among the stars, And each dawn's pastel sky. And whisper words of love to you And never say goodbye #DefeatDipg #GoGray #Dipg #Enoughoftherare #braintumourawareness #Remembertheirnames
Remembering Chloe who passed away seven years ago after a courageous fight with dipg. Chloe was just five years old and was diagnosed in July 2016. After a long wait to start a family Chloe was born on the 11th of October 2011. She was a kind, joyful little girl with a vibrant personality, funny, caring and smart. Please keep her family in your thoughts and prayers today. A butterfly lights beside us, like a sunbeam… and for a brief moment it’s glory and beauty belong to our world… but then it flies on again, and although we wish it could have stayed, we are so thankful to have seen it at all. #DefeatDipg #Dipg #Remembertheirnames #Enoughoftherare #braintumourawareness
In honour of #BrainTumourAwarenesss Month, today, we’re sharing Gavin’s story! 🌈 This DIPG Warrior is a sweet 5-year-old boy who loves all things tee-ball, soccer, basketball and monster trucks! He is a bundle of joy whose resilience inspires those around him. At 2 years old, Gavin’s parents began to notice that he went cross-eyed at times. After visiting an ophthalmologist, he was sent for an MRI just to be safe. After the results came back, Gavin was diagnosed with DIPG. Despite receiving the heartbreaking diagnosis, Gavin’s family is committed to ensuring he can still part-take in tee-ball practice and see his friends from kindergarten! Follow Gavin’s story on Facebook @GavinsGuardians2 and support him and his family by donating to his GoFundMe at the link in our bio. #GavinsGuardians #JordanasRainbows #DIPGAwareness #DIPGResearch #DIPGWarrior #DiffuseIntrinsicPontineGlioma #CureDIPG #DefeatDIPG #EndDIPG #NotRareNotFair #BrainTumorAwarenessMonth #GoGrayInMay
Thank you to everyone who donated and joined us for the 2024 superhero 6k . We are beyond appreciative, i wish i had the right words to express how grateful we are. The support for us and our sweet boy Liam means so much to us. It was so awesome to see Team Liam grow this year. To our friends and family who are ALWAYS there for us , you are not unnoticed. We couldn’t get through the loss of our baby without all of you. To the people we just met today, thank you for being so caring and selfless by supporting us. I wish the world was filled of people like all of you. I hope next year Team Liam grows even more. 💛🧡💛🧡. #Braincancer #dipgresearch #dipg #dipgwarrior #chadtough #childrencancerawareness #teamliam #defeatdipg #weareteamliam #pediatricawareness #braintumorawareness #braincancerawareness #cancer #Braincancer #dipgresearch #dipg #dipgwarrior #chadtough o #childrencancerawarenessy
Maddison Joyce May 26, 2009 - May 29, 2017 Happy Birthday Princess Maddison loved life and she loved people; she was happy to be with her friends and also with her family. Maddison enjoyed art, singing, to dance but her favourite was gymnastics. Maddison fought dipg with courage and grace for six months, she never thought about all that dipg had taken from her, she shared her joy and she left sunshine and a rainbow of hope wherever she went. Her family miss her more than they could ever have imagined but they know she is healed and happy in heaven and that one day there will be a sweet and beautiful reunion. Please keep all who love her in your thoughts and prayers on Maddison’s fifteenth birthday. Sometimes your joy is the source of your smile, but sometimes your smile can be the source of your joy Let us continue to dance in the sun, wearing wild flowers in our hair. #GoGray #DefeatDipg #DipgWarrior
When people ask me why I started doing this, here are my whys. Because of Sadie and Mara I have been honoured to support thousands of families and to remember their children. Today I though I'd share Sadie and Mara. There families were the first dipg families that I had real contact with, I’d followed other families but never communicated. Although I have never met either of these precious little girls, they have both taught me so much and forever changed my heart. They both dealt with dipg as so many of these children do, with courage and smiles, determination and grace. They never fussed about the limitations dipg gave them but showed me every day how to live with hope and faith and to see the bigger picture. How to find joy and wonder in every day. They both knew that their heavenly father loved them and He would always be there for them whatever happened. Mara passed away in 08 and Sadie in 09. Heather Adams Tiffany Huish love you guys You are the finest, loveliest, tenderest, and most beautiful person I have ever known—and even that is an understatement. When I find you again Love, it’ll rain where there’s a drought, it’ll shine where it should snow, the earth will shake where it’s never moved, mountains will rise on the flattest plains, stars will fall all around us, rainbows will appear at night, but the world won’t notice a thing. Because when you find me, Love, the past and present will cease to exist and we’ll fall into a moment that will last forever - F. Scott Fitzgerald #Enoughoftherare #DIPG #gogray #defeatdipg #RememberTheirNames #braintumourawareness
Gage Lee Scott 26th May 2008 - 26th December 2014 Happy Birthday Gage Today Gage should be celebrating his sixteenth birthday with his family, but he passed away in 2014 after a brave fight with dipg that lasted nine months., Gage was an outgoing little boy, very friendly and caring and he always wanted to help others. He was funny and could make people laugh. He liked the colour blue, to ride his bike, play baseball and his favourite superhero was Captain America. Gage loved to cook and wanted to be a chef when he grew up. I never met Gage but my abiding memory is of him rushing round to answer the phones at the St Jude's fundraiser. Please keep his family in your thoughts and prayers today. #DefeatDipg #GoGrayinMay #GoGray #Dipg #RememberTheirNames. #Enoughoftherare #braintumourawareness
#GoGray for Leah Remembering Leah who passed away eight years ago after a seven month battle with dipg. She was just four years old. Please keep her family in your thoughts and prayers today and always. You are a part of me, a part of me that will never leave. My memory will never erase you, not the pain of your absence nor the joy of your existence. You are within me, carried within my heart, you will be the undercurrent of my thoughts, the inspiration to my days. #DefeatDipg #Dipg #GoGray #Remembertheirnames #Enoughoftherare #braintumourawareness
#GoGray for Felicia Felicia Maria 26th May 2010 - 6th December 2015 Happy Birthday Princess Felicia fought dipg for almost two years before passing away in December 2015 Throughout her battle Felicia was courageous and determined to live her life to the full. Felicia loved going to school and she loved to sing. She lives on in the hearts of all who loved her. Please keep her family in your thoughts and prayers on her fourteenth birthday. #DefeatDipg #Enoughoftherare #Dipg #Enoughoftherare #braintumourawareness #RememberTheirNames
Meritxell 26th May 2006 - 27th August 2018 Happy Birthday Meritxell Today Meritxell should be celebrating her eighteenth birthday with her family but she passed away two years ago after a brave fight with dipg. Meritxell was a kind and caring young lady, she enjoyed learning, art work and being with her sisters. Meritxell never complained but bore her illness with courage, dignity and grace for nineteen months. Meritxell was full of joy and light, she brightened the lives of all who knew her and taught them to live each moment with happiness. Meritxell was a beautiful princess and her family’s hero. Please keep them in your thoughts and prayers today. #DefeatDipg #Dipg #GoGray #Enoughoftherare #RememberTheirNames #braintumourawareness
#GoGray for Arden Remembering Arden who passed away nine years ago after fighting dipg with faith, courage and grace. I never met Arden and her family were not really Facebook users but we were kept up with her journey through her fundraiser page and her uncle Ryan who shared her fight. It is not always the easiest to bond and love a child you have never met, but Arden’s trust in God, her love and kindness for others and light shone from her. Please keep her family and all who love her in your thoughts and prayers. Here's another way to put it: You're here to be light, bringing out the God-colors in the world. God is not a secret to be kept. We're going public with this, as public as a city on a hill. If I make you light-bearers, you don't think I'm going to hide you under a bucket, do you? I'm putting you on a light stand. Now that I've put you there on a hilltop, on a light stand—shine. #DefeatDipg #Dipg #Enoughoftherare #braintumourawareness #RememberTheirNames
Remembering Mayra who passed away seven years ago after a brave fight with dipg. She was just six. Such an amazing little girl who fought with courage and grace and found the joy in every day. Please keep her family in your thoughts and prayers. Thank you. If the sight of the blue skies fills you with joy, if a blade of grass springing up in the fields has power to move you, if the simple things of nature have a message that you understand, rejoice, for your soul is alive. Eleonora Duse #RememberTheirNames #Dipg #DefeatDipg #Enoughoftherare #braintumourawareness
Paxton Nathaniel Elkins May 26, 2009 - October 15, 2017 Happy Birthday Paxton Celebrating the lives of two loving and beautiful brothers, Paxton fifteen in heaven, Landon fifteen here on earth. Their spirits connected for ever. Paxton was a unique and extraordinary little boy. He always brought laughter and joy, and lit up any room he entered. He was extremely selfless and giving, and warmed the hearts of anyone he met. Paxton never knew a stranger. Paxton loved to build things, play with oars and make his family laugh – they called him their little comedian. One of his favourite places was the beach. Paxton passed away after a fifteen month fight with dipg. He was eight years old. Paxton was the sweetest child, he fought with courage and with grace and he did it on his own terms. He was gentle and brave. Paxton deserved so much more. He deserved to grow up alongside his twin brother Landon and fulfil his dreams and wishes. Please keep his family in your thoughts and prayers today. And please wish Landon a very Happy Birthday too. #DefeatDIPG #Enoughoftherare #DIPG #braintumourawareness #RememberTheirNames
We turned the run into a hike🏔️ Had to use last year’s shirt because our washing machine melted down. The link is in my bio if you’d like to donate to an organization that will make your dollars count in the fight against childhood brain cancer 💪 #Superhero6K #defeatdipg #chadtough
Heartbroken to share that Indori has passed away after living with and fighting dipg for almost eleven years, Dori was diagnosed on the 18th of June 2013; she was just two years old. I have a huge heart for Indori having followed her story and sent her packages since the beginning of her journey with dipg, even though I knew she was in progression and has been for a while, the news is sad and shocking. Indori was a strong and brave princess who loved Disney princesses, the colour pink and to sing and dance; she was a wonderful dancer. She was always full of happiness and had the same beautiful smile on her face no matter what she faced, she was an inspiration to us all in how to find the wonder in every day and find the joy in every moment. Indori was a hero, she was brave and strong, but she shouldn't have had to be, no child should, there should have been a cure for Dori so that she could live her life and grow up to fulfil her dreams and those of her family for her. You are healed now Indori, dance away beautiful princess. Please keep Dori's family in your thoughts and prayers. You are the finest, loveliest, tenderest, and most beautiful person I have ever known—and even that is an understatement. When I find you again Love, it’ll rain where there’s a drought, it’ll shine where it should snow, the earth will shake where it’s never moved, mountains will rise on the flattest plains, stars will fall all around us, rainbows will appear at night, but the world won’t notice a thing. Because when you find me, Love, the past and present will cease to exist and we’ll fall into a moment that will last forever - F. Scott Fitzgerald #DefeatDipg #Dipg #Remembertheirnames #findingjoy #braintumourawareness #RememberTheirNames
Remembering Antonia who passed away six years ago after an eighteen month battle with dipg. She was just four years old. Please keep her loved ones in your thoughts and prayers. You taught me how to love you by The way that you loved me; And by your unseen sustenance, To see what you could see. You gave to me through who you were The gift of what I am. Your pride in me is now my pride; Your faith, my caravan. Your life does not conclude with death, Nor will it end with mine, For all the lives I touch, you touch, And so on through all time. #DefeatDIPG #Enoughoftherare #DIPG #gogray #RememberTheirNames #braintumourawareness
#GoGray for Lea Lea Doran 25th May 2011 - 10th May 2018 Happy Birthday Lea Lea was a bright, determined little girl who was diagnosed with dipg in the summer of 2017. She has been a little one full of joy since she was born and only the combination of radiation and steroids threatened to take that. But she was stronger and found that wonder in every moment she could. Lea was a smart and creative little girl, she enjoyed art and was very good at it. She loved playing with her sisters and her friends. Even when things were tough she continued to exude joy. She brought people together, those she knew and those of us who never met her, Please keep her family in your thoughts and prayers today, Lea's milestone thirteenth birthday. #DefeatDipg #Dipg #Gogray #Enoughoftherare #RememberTheirNames #braintumourawareness
#GoGray for Kera Remembering Kera today, ten years after she passed away from dipg. She was nine years old and she bravely fought dipg for ten months. Kera was a wonderful big sister to her little brothers, she loved pink, purple and anything sparkly. Her mom says she had a special light about her and that she was loved by everyone. Please keep her family and all who love her in your thoughts and prayers today. A kind of light spread out from her. And everything changed color. And the world opened out. And a day was good to awaken to. And there were no limits to anything. And the people of the world were good and handsome. And I was not afraid any more. #DefeatDIPG #Enoughoftherare #DIPG #RememberTheirNames #braintumourawareness
Remembering Bryan who passed away on this day ten years ago. Normally I do a short post for an 'angelversary' and share how long a child fought dipg, Bryan fought for only 16 days. Imagine being told you had only six to nine months with your child and then only getting a little over two weeks. No time for special treats and events, no time to do the often dreaded ‘make memories.’ I'm sharing a little of Bryan's story here because his mom had been sharing the details of her son's story every day during May again this year. year. Joanne Peels is so brave to recall and share. If you go over to her page she has written a longer and more detailed post. Bryan started with a headache on the fourth of May 2014 and on the 6th Joanne got a call to pick Bryan up from school as he wasn't feeling so good. At this point she noticed that Bryan was stumbling and that one eye didn't look right. By the 7th Bryan told his mom he was seeing double and his Dr referred him for a CAT scan. The doctors could see something on the scan and decided Bryan needed an MRI. It was then that Bryan's family heard the words Diffuse Intrinsic Pontine Glioma and were told their precious and beautiful boy was going to die. There was nothing the Drs could do. On the 22nd Bryan started radiation and a clinical trial. The next day Bryan was incredibly sleepy and finding it difficult to talk. He was rushed to urgent care and from there the decision was made to ventilate Bryan who was deteriorating rapidly. Joanne told Bryan she loved him and he replied, ' I love you too, don't cry, I'm going to be ok'. These were Bryan's last words as he passed away on the 25th May. Please keep his family in your thoughts and prayers today. And she loved a little boy very, very much—even more than she loved herself. #GoGrayinMay #DefeatDipg #Dipg #Enoughoftherare #RememberTheirNames #braintumourawareness
#GoGray for Semmi Remembering Semmi who passed away seven years ago after fighting dipg for nine months. He had just celebrated his ninth birthday. Please keep his family and all who love him in your thoughts and prayers. Thank you. A hero is an ordinary individual who finds the strength to persevere and endure in spite of overwhelming obstacles. A true hero isn't measured by the size of his strength but by the strength of his heart. #DefeatDipg #Dipg #GoGray #Enoughoftherare #RememberTheirNames #braintumourawareness
Ian Steven-James Pomeroy 25th May 2012 - 10th July 2018 Happy Birthday Ian Ian loved being outdoors, and enjoyed riding anything with a motor, especially jet skis, dirt bikes and snowmobiles. He was an energetic blond hair boy. Ian was known for having fun in the sun, fishing, jogging, and running from the girls who loved to chase him. He loved playing games, watching YouTube, and was known as the “Bottle-Flip Champion” of the family. Although his years here were short, he leaves a legacy of bringing people together, and facing even the most unbearable challenges with love and courage. Ian fought dipg for almost a year with spirit, tenacity and courage. A small child who was truly mighty and who taught us all how to be courageous, to look the things we are scared of straight in the eye and that what ever is happening, you can always find joy. He passed away at the age of only six but taught us all so much on his too short journey. Please keep his family in your thoughts and prayers today on Ian's twelfth birthday. #Dipg #DefeatDipg #GrayEveryDay #Enoughoftherare #braintumourawareness #RememberTheirNames
Meet Vivian ☀️ She is a vivacious and spunky 9-year-old who brightens any room she enters! Filled with care and compassion, she would do anything for those she loves. During a family vacation, Vivian’s vision started to become a concern. After visiting a pediatrician then ophthalmologist, she underwent an MRI and was referred to an oncologist where she was diagnosed with DIPG. Despite the diagnosis, Vivian’s family is making sure she gets to live her best and fullest life. Follow Vivian’s story on Facebook at viviandawnsjourney and support her and her family by donating to her GoFundMe at the link in our bio. Stay tuned as we share more DIPG Warriors throughout the month in honour of #BrainTumourAwareness Month! #TeamViv #JordanasRainbows #DIPGAwareness #RainbowMagic #JordanasRainbows #DIPGAwareness #DIPGResearch #DIPGWarrior #DiffuseIntrinsicPontineGlioma #CureDIPG #DefeatDIPG #EndDIPG #NotRareNotFair #BrainTumorAwarenessMonth #gograyinmay
As we enter the final days of Brain Tumor Awareness Month we would like to take a moment to thank everyone for standing with us as we work to #DefeatDIPG. These kids need us. They deserve a fighting chance to live. Learn more about what you can do this month to make a difference at the link in our bio. #GoGoldAndGrayEveryDay #ChadTough
These children all passed away from dipg. Twenty beautiful children who have lost their lives because of dipg. All these beautiful and precious children with so much love and potential who should have had the chance to grow and fulfil their dreams and the dreams and hopes of their families. It's heartbreaking to look at these adorable faces and know that they are all gone. This is not ok, it will never be ok. Please remember these children, please pray for their families and please share their beautiful faces and their stories with everyone you can. Things have got to change, we can't settle for this. Look at these children and ask yourself if it's possible to do nothing. Do not go gentle into that good night. Rage, rage against the dying of the light. #DefeatDIPG #DIPG #remembertheirnames #Enoughoftherare #gogray
Lucas Harashima May 24, 2011 - March 21, 2018 Happy Birthday Lucas Lucas was a little boy full of fun and joy and mischief. Lucas love minions and sushi. He enjoyed school, playing with his friends and his brother. Lucas had the biggest heart and the biggest smile. He was full of love for everyone he met and taught us all to take that moment to reach out to someone who may need it. In September 2016 Lucas was diagnosed with DIPG, an aggressive brain tumor that typically affects children and has no known cause or cure. He fought bravely for 18 months and inspired all who knew him. Lucas passed away on March 21, 2018, just a few months shy of his 7th birthday. Please keep his family in your thoughts and prayers today Lucas’s milestone thirteenth birthday. When you know someone close to you who are quiet or smaller or missing, seek them out, they may need to be found again. It is most beautiful to turn off our ego and feel true empathy for others. Compassion, sympathy, kindness, empathy, selflessness, etc. are the biggest signs of a person with a good soul and a big heart. It only takes a split second to smile and forget, yet to someone that needed it, it can last a lifetime. We should all smile more often. #DefeatDipg #Dipg #Remembertheirnames #Enoughoftherare #braintumourawareness #loveforlucas
How can this be ten years ago, afternoon tea in Harrods. Wonderful memory of such a special day together. Try to remember to take pictures but not let the snapping make you miss those precious moments which we need to keep us going. Still can’t believe she’s not here but we know she’s in a happy place. #Dipg #DefeatDipg #Enoughoftherare #braintumourawareness #Remembertheirnames #makememories #princesskeira
#GoGray for Molly Remembering Molly Little, 'Molly Dolly' who touched all our hearts with her bravery, smile and her joy for life. She was sweet, zany and kind. Molly was just six years old and she fought dipg for eleven months before passing away nine years ago. You are truly missed every day Molly. Please keep Molly's family in your thoughts and prayers today. There is inestimable blessing in a cheerful spirit. When the soul throws its windows wide open, letting in the sunshine, and presenting to all who see it the evidence of its gladness, it is not only happy, but it has an unspeakable power of doing good. #GoGray #Dipg #DefeatDipg #Enoughoftherare #RememberTheirNames #braintumourawareness
On the 1st of June there will be a football camp in honour of Ander who passed away from dipg three years ago. All proceeds will go to dipg research, please share to your pages. Thank you.? HERUA BLUES C. D ⚽💙 JUNE 1ST WE CELEBRATE THE 3º MEMORIAL ANDER MOYA 💙🫶 WITH THE AGE OF 2014⚽. IT WILL BE A DAY TO ENJOY AND HAVE FUN PLAYING FOOTBALL 🙌🙌 WE WISH BETIONDO SOCCER CAMP FULL OF PEOPLE, ON THIS DAY SO MARKED FOR ERMUA BLUES, AS ALL THE TICKETS AND RAFFLES ARE DONATED TO THE FOUNDATION MARTIN ÁVAREZ TEETH THANKS TO ALL THE PARTICIPATING TEAMS 😊😊 BETWEEN ALL WE'LL HAVE A GOOD DAY. UP THE BLUES!! #DefeatDIPG #Enoughoftherare #grayeveryday #DIPG #braintumourawareness
Remembering Trinity who passed away seven years ago after a brave fight with dipg. Trinity was diagnosed with dipg the previous summer and she showed us how to fight with strength and grace. Trinity was just six years old and is a twin to brother Tristan. Please keep her family in your thoughts and prayers. Memories saturate my heart and the story of you spills from my eyes. If I had a single flower for every time I think about you, I could walk forever in my garden. #Dipg #DefeatDipg #Enoughoftherare #GrayEveryDay #braintumourawareness #RememberTheirNames
Crew and his family need our love, support, warm thoughts and prayers, this dipg journey is so very hard and no child, no family should have to endure it. Standing with you Allison Kay Camp, always with hope. Update on our boy: My love has been having a harder time lately. Balance is super off and wild. Crew’s eyes are doing things they’ve never done before. Wandering, turning in, red, tired. “Mom, my cancer is just being tough today, but it’s ok!” is usually how the conversation goes. “My legs are really tired but I can rest them and they will be fine!” He adapts everyday to whatever cruel things DIPG is doing to him. He looks at us bravely and promises he is fine and we should carry on like we always do. So, that’s what we do. If we can. Crew refuses to let his cancer define him and we’re trying our best to match that goal when it’s possible. Crew craves to be normal. He misses his old life, and to be honest… we all do. We are living a nightmare. One where we are forced to watch Crew slowly unbecome himself a little bit more everyday. He’s slowly losing control of his little body and it’s as awful as you can imagine it would be having to powerlessly spectate as my son’s precious life dwindles a bit more with every passing day. Appreciate what you have, especially your health if you have it. Take care of yourself so you can take care of the ones you love when they need you. Prepare for the worst, but expect the best. See the beauty in the pain and keep pushing yourself even when it hurts, even when you feel like you’ll fold. Remember what’s important and get rid of what isn’t. Never forget that each moment is a new opportunity to start again and you can do that at any time. We love you all. Keep holding us close. This hurts so much. 💔🎗️ Crew’s Crew #CrewStrong #CrewsCrew #DIPG #dipgawareness #DefeatDIPG #dipgwarrior #childhoodcancerawareness
What is a brainstem glioma and what are the differences between DIPGs, DMGs, and focal brainstem gliomas? Learn more in this infographic and share with others to raise awareness about this aggressive type of pediatric brain tumor. Through expanded funding of research, direct family support, and patient advocacy initiatives, we are seeking better outcomes for all children with brain tumors, every day. Visit the link in bio for more information about the different types of pediatric brain tumors, signs and symptoms, and common tests and treatments. If you or someone you know needs support, connect with us anytime at [email protected].
We're looking forward to seeing the applications from researchers interested in our ChadTough Defeat DIPG Fellowship Grants! This type of grant awarded to outstanding pre-doctoral and post-doctoral fellows under the guidance of a mentor, is intended to help develop the next generation of leaders in DIPG research. If you are interested, the deadline to apply is September 13, 2024. Learn more at chadtough.org/research/grant-application or by clicking the link in our bio. #DIPGResearch #ResearchGrants #DefeatDIPG