LAST DAY to customize your team shirt is 5.24.24! Help us MOVE MOUNTAINS, Stronger Together! Visit 5ktoFightHistio.org!💙👟🗻🏃 #LLF #5kToFightHistio #liamslighthousefoundation #histio #HLH #LCH
💙 Please join us in welcoming Team Bryson!! 💙 Team Bryson is joining us virtually from Virginia! To learn more about Team Bryson, join the team or make a donation visit their race page: https://raceroster.com/events/2024/82940/5k-to-fight-histio/pledge/team/19 We are excited to announce all teams participating in the 2024 5k to Fight Histio! 👏👏 Teams will be fundraising until race day, together we can #movemountains !! #LiamsLighthouseFoundation #LLF #5ktoFightHistio #HLH #LCH #histio #TeamBryson
💙 Please join us in welcoming Team Laila!! 💙 Team Laila is joining us from Connecticut! To learn more about Team Laila, join the team or make a donation visit their race page:https://raceroster.com/events/2024/82940/5k-to-fight-histio/pledge/team/648533 We are excited to announce all teams participating in the 2024 5k to Fight Histio! 👏👏 Teams will be fundraising until race day, together we can #movemountains !! #LiamsLighthouseFoundation #LLF #5ktoFightHistio #HLH #LCH #histio #TeamLaila
💙 Please join us in welcoming Team Audra!! 💙 Team Audra is joining us from Wisconsin! To learn more about Team Audra, join the team or make a donation visit their race page: https://raceroster.com/events/2024/82940/5k-to-fight-histio/pledge/team/625213 We are excited to announce all teams participating in the 2024 5k to Fight Histio! 👏👏 Teams will be fundraising until race day, together we can #movemountains !! #LiamsLighthouseFoundation #LLF #5ktoFightHistio #HLH #LCH #histio #TeamAudra
💙 Please join us in welcoming Team Remington Strong!! 💙 Team Remington Strong is joining us from North Carolina! To learn more about Team Ethan, join the team or make a donation visit their race page: https://raceroster.com/events/2024/82940/5k-to-fight-histio/pledge/team/630975 We are excited to announce all teams participating in the 2024 5k to Fight Histio! 👏👏 Teams will be fundraising until race day, together we can #movemountains !! #LiamsLighthouseFoundation #LLF #5ktoFightHistio #HLH #LCH #histio #TeamRemingtonStrong
💙 Please join us in welcoming Team Ethan!! 💙 Team Ethan is joining us from Pennsylvania! To learn more about Team Ethan, join the team or make a donation visit their race page: https://raceroster.com/events/2024/82940/5k-to-fight-histio/pledge/team/624822 We are excited to announce all teams participating in the 2024 5k to Fight Histio! 👏👏 Teams will be fundraising until race day, together we can #movemountains !! #LiamsLighthouseFoundation #LLF #5ktoFightHistio #HLH #LCH #histio #TeamEthan
💙 Please join us in welcoming Team Aspen!! 💙 Team Aspen is joining us from Virginia! To learn more about Team Aspen, join the team or make a donation visit their race page: https://raceroster.com/events/2024/82940/5k-to-fight-histio/pledge/team/5 We are excited to announce all teams participating in the 2024 5k to Fight Histio! 👏👏 Teams will be fundraising until race day, together we can #movemountains !! #LiamsLighthouseFoundation #LLF #5ktoFightHistio #HLH #LCH #histio #teamaspen
💙 Please join us in welcoming Team Momo!! 💙 Team Momo is joining us from New York! To learn more about Team Momo, join the team or make a donation visit their race page: https://raceroster.com/.../5k-to-fight-histio/pledge/team/3 We are excited to announce all teams participating in the 2024 5k to Fight Histio! 👏👏 Teams will be fundraising until race day, together we can #movemountains !! #LiamsLighthouseFoundation #LLF #5ktoFightHistio #HLH #LCH #histio #teammomo
💙 Please join us in welcoming Team Mia!! 💙 Team Mia is joining us from Texas! To learn more about Team Mia, join the team or make a donation visit their race page: https://raceroster.com/events/2024/82940/5k-to-fight-histio/pledge/team/640152 We are excited to announce all teams participating in the 2024 5k to Fight Histio! 👏👏 Teams will be fundraising until race day, together we can #movemountains !! #LiamsLighthouseFoundation #LLF #5ktoFightHistio #HLH #LCH #histio #teammia
💙 Please help us welcome Team Carrie!! 💙 Team Carrie is joining us locally from Colorado Springs! To learn more about Team Carrie, join the team or make a donation visit their race page: https://raceroster.com/events/2024/82940/5k-to-fight-histio/pledge/team?id=14 We are excited to announce all teams participating in the 2024 5k to Fight Histio! 👏👏 Teams will be fundraising until race day, together we can #movemountains !! #LiamsLighthouseFoundation #LLF #5ktoFightHistio #HLH #LCH #histio #teamcarrie
Please join us in welcoming Team Pat’s Posse!! Team Pat’s Posse is joining us from Minnesota. To learn more about their journey, join their team or make a donation to support their run visit their race page: https://raceroster.com/events/2024/82940/5k-to-fight-histio/pledge/team/623226 We are excited to announce the teams participating in the 2024 5k to Fight Histio! Teams will be fundraising until race day, together we can #movemountains !! #LiamsLighthouseFoundation #LLF #5ktoFightHistio #HLH #LCH #LCH #histio #teampatspossee
#5ktofighthistio #liamslighthousefoundation #coloradorunner
Out in Colorado Springs to photograph one of my favorite events - the Liam’s Lighthouse Foundation 5K! I’ve been honored to shoot this event for over a decade, and this is our first time not in NYC. It’s been awesome to check out this beautiful city though, and got to explore Pikes Peak yesterday with some of the dear friends I’ve made over the years with this bunch. More to come! (Last two pics by Diane) #liamslighthousefoundation #liamslighthouse #coloradosprings #colorado #pikespeak #shotoniphone #iphone14promax #visitcolorado #summer #nature
Welcome, and many thanks to Slice420 for joining us and providing the food as a sponsor of the Post 5K Wrap Up! Through its pizzeria, Slice420 has been able to provide support and raise awareness and donate to causes and agencies that provide solutions for families with special needs children! Follow @slice420pizzawithamission to learn more about their story. And be sure to check them out while in CO. #ThankYouSponsors #5ktoFightHistio #liamslighthousefoundation #makeadiffrence
Visit the world’s highest and the world’s longest Cog railroad, the highest railroad in the United States and the entire Northern Hemisphere! Join us and make a difference! Go to 5ktoFightHistio.org! 💙🏃 #liamslighthousefoundation #5ktoFightHistio #LLF #EliteFeats #letsmovemountains #Histiocytosis #hlh
📢 Sign up today! 🏃♀️ ➡️5KtoFightHistio.org ➡️While you are joining us, be sure to check out the Broadmoor 7 Falls and all the sites while making a difference! 🗻💙 #liamslighthousefoundation #5ktoFightHistio #LLF #EliteFeats #letsmovemountains #Histiocytosis #hlh
📢Sign up and create your fundraising team today!🏃♀️ Link in Bio! ➡️While you are joining us, be sure to check out Cheyenne Mountain Park and all the sites while making a difference! 🗻💙 #liamslighthousefoundation #5ktoFightHistio #LLF #EliteFeats #letsmovemountains #Histiocytosis #hlh
JOIN TODAY! Create your fundraising team at 5ktofighthistio.org 🏃♀️💙 While you are joining us, be sure to check out Garden of the Gods Park and all the natural beauty Colorado has to offer! Visit https://gardenofgods.com/park-info/ #liamslighthousefoundation #5ktoFightHistio #LLF #EliteFeats #letsmovemountains #Histiocytosis #hlh
Register TODAY! 👟🏃♀️🏔️💙 Sign up and create your fundraising team at 5ktofighthistio.org! While you are joining us, be sure to check out Cheyenne Mountain Park and all the sites! #liamslighthousefoundation #5ktoFightHistio #LLF #EliteFeats #letsmovemountains #Histiocytosis #hlh
📢 Get ready to conquer the trails of Colorado! Join us at Cheyenne Mountain State Park 🌄 this July as we move west and 5K to Fight Histio! Register today!! 5ktofighthistio.org #5KtoFightHistio #liamslighthousefoundation #movemountainsforhlh #conquerthetrails #whyi5ktofighthistio #HLH #HistioAware #strongertogether
📣 SAVE THE DATE - Our time in NYC has been fun, but it's time to move West and leave our mark! Histio family ... Welcome to Colorado Springs, CO! Home of Pikes Peak, Garden of the Gods, Olympic City USA, and the United States Air Force Academy! Plan to join us this summer and help us celebrate the 10th anniversary of The 5K To Fight Histio! #5ktofighthistio #10yrsstrong #letsmovemountains #liamslighthousefoundation
Happy Friday!! 🥳 This weekend is the 5K to Fight Histio in New York City! Every year, Liam's Lighthouse Foundation brings our Histio community together to raise funds for ground-breaking research, to raise Histio Awareness, and for our Histio families to come together to show support and love for one another. 🥰💙 Learn more at 5ktofighthistio.org. Dynamite the Histio Warrior Dragon Mascot will be there!! 🤗 If you're there, don't forgot to say hi and take a picture with Dynamite! It will be amazing!! Love you all!! 😍💖 💙Dynamite iFightLikeDynamite.org #5ktoFightHistio #LiamsLighthouseFoundation #WhoIsDynamite #DynamiteHistioDragon #HistioDragon #BeHistioAware #iFightLikeDynamite #HappyFriday #Love #LCH #HLH #JXG #RDD #ECD #Histio #Histiocytosis
5k yesterday morning for my friend Jessica and her family’s fight to research HLH. It was tough and humbling, but I’d rather hurt doing this virtual race for great cause than pretty much anything else. Those with HLH are usually diagnosed within the first few months or years of life. Their immune system does not work normally. Certain white blood cells attack other blood cells, build up in and damage organs, including the bone marrow, liver, and spleen. It’s a diagnosis that definitely needs more research and every little bit helps. #gotjacksback #liamslighthousefoundation @liamslighthouse #5ktoFightHistio
This Saturday (not Sunday!) kicks of our 5K off Histio week! 👟 Got your 5K plan? Let us know what it is below! The best part of this year's virtual 5K is the flexibility to do the 5K when, where and how you want! Whether its walking, wheeling or skipping - there's something for everyone! So gather your team, make your plan and get ready! #LiamsLighthouseFoundation #5KtoFightHistio #Histiocytosis
Jen creates each Dynamite with love and hope. Way to go Jen. I’m glad LLF has such a great program to support him. Posted @withregram • @dynamitehistiodragon #FunFactFriday⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Dynamite is currently in 16 countries with his Histio Warriors and Angel Families. Thank you all for helping to make this possible!! We appreciate and love you all!! 🥰⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ 💙Dynamite ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Want to help the Dynamite Program? Visit the #LinkInBio and consider making a contribution to help send Dynamites to their Histio Warriors and Angel Families around the world today. Thank you!! 🥰 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ .⠀⠀⠀⠀⠀⠀⠀⠀⠀ .⠀⠀⠀⠀⠀⠀⠀⠀⠀ .⠀⠀⠀⠀⠀⠀⠀⠀⠀ .⠀⠀⠀⠀⠀⠀⠀⠀⠀ #HistioDragon #iFightLikeDynamite #WhoIsDynamite #LiamsLighthouseFoundation #Histiocytosis #Histio #BeHistioAware #RareDisease #DynamiteHistioDragon #HistiocytosisAwareness #HistioAware
5 more days until the #5KtoFightHistio! We can't wait for you to join us from wherever you are! 👟💙 #LiamsLighthouseFoundation⠀⠀⠀⠀⠀⠀⠀⠀⠀ #BeHistioAware
#hlh #Septemberawarenessmonth #fighthistocytosis #teamkatelyndelong #liamslighthousefoundation #findacure #symptoms #signs @liamslighthouse
Sending some love to my incredible friends at @liamslighthouse . This is the first July in 8 years or so that I’m not in NYC photographing their 5K fundraising event (canceled because of Covid of course). Check them out online to learn about all they do to help find a cure for histiocytosis. Miss you all! 💙 . #histiocytosis #hlh #histio #liamslighthouse #liamslighthousefoundation #medicalresearch #nyc #5ktofighthistio #latergram
In 4 days!! 🤗 Come meet us at the virtual Histiocytosis Meet & Greet this Sunday!! 💙 www.5KtoFightHistio.org/VirtualMeetAndGreet2020 #5KToFightHistio #Histiocytosis #LiamsLighthouseFoundation #HistioDragon
Histio Awareness Month- September comes to an end and we are welcoming October month of hope , festivities and Autumn. Unplugging for sometime from Instagram.We will be back soon with more HLH updates and Awareness activities. Thank you for being with us💙😊 Remember Angel Divina’s. final Words ( koshish Karne walon ki kabhi Haar nahi Hoti ) ....untill we meet again, Stay healthy stay Aware💙 #helplivesheal #divinafoundation #divinedivina #histiostrong #histiocytosisawarenessmonth #histioconnection #histiowarrior #histioconnection #histiocytosisawareness➰ #histioangels #histio #histiocytosisassociation #hlhinindia #lightuphistio #liamslighthousefoundation #followseansjourney #liamslighthouse @histiocytosis_association @hopeforhistiocytosis @histio.aware @histiofighter
Support is still pouring 💙 Thank you @sweta.shekhar for being part of HLH Awareness regime 💙 #helplivesheal #divinafoundation #divinedivina #hlhinindia #histiostrong #histiocytosisawarenessmonth #histioconnection #histiowarrior #histioangels #histioawareness #followseansjourney #lightuphistio #liamslighthouse #liamslighthousefoundation
Thanking you all for being part of Histio Awareness Month - 2019💙 We feel Humbled , inspired, Hopeful and highly motivated towards achieving our aim, when you all show such an overwhelming support we feel absolutely charged to move on As the next eleven months pass, please Remember Angel Divina’s. final Words ( koshish Karne walon ki kabhi Haar nahi Hoti ) We SHARE because we CARE💙 #histiocytosis #histiowarrior #histioawareness #hlhs #hlhswarrior #hlhsawareness #hlherenow #hlh2020
❤️💚💙 because every effort makes a difference! #divinafoundation #divinedivina #helplivesheal #histiocytosisawareness➰ #histioawareness #histiostrong #histiostrong #histiocytosisawarenessmonth #histiocytosisawarenessmonth #histioangels #histioconnection #histiowarrior #histiocytosis #histio #histiocytosisassociation #childhoodcancerawareness #blooddiseases #blooddisorder #followseansjourney #liamslighthousefoundation @hopeforhistiocytosis @histiocytosis_association @histio.aware @histio
We SHARE because we CARE 💙 Thank you @akkheena for being part of HLH Awareness regime 💙 🎗️ #everyeffortmatters #helplivesheal #divinafoundation #divinedivina #hlhinindia #histiocytosisawareness➰ #histioawareness #histiostrong #histiostrong #histiocytosisawarenessmonth #histioangels #histioconnection #histiowarrior #histiocytosis #histio #histiocytosisassociation #followseansjourney #lightuphistio #liamslighthouse #liamslighthousefoundation
We SHARE because we CARE 💙 Thank you @mrig96 for being part of HLH Awareness regime 💙 🎗️ #everyeffortmatters #histiocytosisawareness➰ #histioawareness #histiocytosisawarenessmonth #histiostrong #histioangels #histioangels #histioconnection #histiowarrior #histiocytosis #histio #followseansjourney #divinafoundation #divinedivina #hlhinindia #lightuphistio #liamslighthousefoundation #liamslighthouse #childhoodcancerawareness #childhoodcancer #childcancer #cancersucks @histiocytosis_association @hopeforhistiocytosis @histio.aware @histiofighter
~DAY 27~ Awareness is the key💙🎗️ #helplivesheal #histiocytosisawareness➰ #histioawareness #histiostrong #histiocytosisawarenessmonth #histioangels #histiowarrior #histioconnection #histiocytosis #histio #histiocytosisassociation #followseansjourney #lightuphistio #liamslighthouse #liamslighthousefoundation @histiocytosis_association @hopeforhistiocytosis @histio.aware @histiofighter #genetics #geneticcounseling #genetictesting #geneticdisease #geneticdisorder
We SHARE because we CARE 💙🎗️ Thank you @himani_jini for being part of HLH Awareness regime 💙 #helplivesheal #everyeffortmatters #histiocytosisawareness➰ #histioawareness #histiostrong #histiocytosisawarenessmonth #histioangels #histioconnection #histiowarrior #histiocytosis #histio #histiocytosisassociation @histiocytosis_association @hopeforhistiocytosis @histio.aware @histiofighter #followseansjourney #lightuphistio #liamslighthousefoundation #liamslighthouse @stan.daphne_foundation
We SHARE because we CARE 💙 Thank you @apurva_mishra_ for being part of HLH Awareness regime #everyeffortmatters #helplivesheal #divinafoundation #divinedivina #histiocytosisawareness➰ #histiostrong #histioawareness #histiocytosisawarenessmonth #histioangels #histioconnection #histiowarrior #histiocytosis #histio #histiocytosisassociation @hopeforhistiocytosis @histiocytosis_association @histio.aware @histiofighter #followseansjourney #liamslighthouse #lightuphistio #liamslighthousefoundation #divinafoundation @ganga_ram_hospital_open @westmeadkids @childrenscancerinstitute @cincychildrens @westmeadkids @fortis.healthcare @fortisgroupaze @medantathemedicity @pediatriccancerheroes @pediatric.cancer @pediatriccancerfoundation
We SHARE because we CARE💙💙, Thank you @thevarunbhakay for being part of HLH Awareness regime 💙🎗️ #everyeffortmatters #helplivesheal #divinafoundation #divinedivina #followseansjourney #lightuphistio #liamslighthouse #liamslighthousefoundation #histiocytosisawareness➰ #histioawareness #histiostrong #hlhinindia #histioangels #histioconnection #histiowarrior #histiocytosis #histiocytosisassociation @hopeforhistiocytosis @histiocytosis_association @histio.aware @histiofighter
We SHARE because we CARE 💙 Today, Divina and her sister Jinisha are here to make you Histio Aware.💙🎗️@divyajoshi700 @himani_jini #everyeffortmatters #helplivesheal #histiocytosisawareness➰ #histioawareness #histiostrong #histiocytosisawarenessmonth #histioangels #histioangels #histioconnection #histiocytosis #histio #histiowarrior #hlhinindia #divinafoundation #divinedivina #followseansjourney #lightuphistio #liamslighthouse #liamslighthousefoundation
We share because WE care💙 Thanks @varuna_joshi for being part of HLH Awareness regime 💙 #everyeffortmatters #helplivesheal #divinafoundation #histiocytosisawareness➰ #histioawareness #histiostrong #histioangels #histiocytosisawarenessmonth #histioangels #histioconnection #histiocytosisassociation #followseansjourney #liamslighthousefoundation #lightuphistio #divinedivina #neverfightalone
Histiocytosis Awareness Month Spotlight! We remember Histio Angel, Christian Castro. Read Christian's story at liamslighthousefoundation.org/news #ChristianStrong #RememberMe #HistioAware #LiamsLighthouseFoundation #HistiocytosisAwarenessMonth #Histio #HistioAngel
Znate li da je rujan mjesec svjesnosti o histiocitozi? Histiocitiza x je naziv za skupinu bolesti (LettererSiweova bolest, HandSchüllerChristianova bolest, Eozinofilni granulom) u kojima se nenormalno umnožavaju stanice čistačice (histiociti) na raznim organima, a naročito na plućima i kostima te stvaraju ožiljakasta tkiva. To je bolest koja se češće javlja kod djece nego kod odraslih. Ali, ako ste sreće kao ja dobijete ju sa 19 i u kombinaciji kakvu ni doktor House ne bi poželio 🤷🏻♀️😂. Jedinstvenog lijeka za histiocitozu još uvijek nema te je vrlo teško dijagnosticirati i samu bolest. Iz tog razloga u Americi je osnovana udruga koja promiče svijest o histiocitozi, prikuplja sredstva za pronalazak lijeka, ali i ono najvažnije, pomaže oboljelima na razne načine. I tu dolazimo do priče o mom zmajčeku (Dynamite The Histio Warrior Dragon 💙). Kako bi olakšali borbu oboljelima diljem svijeta, Liam’s Lighthouse Foundation (udruga osnovana u ime malenog Liama koji je 2009. nažalost izgubio bitku s histiocitozom) daruje oboljelima zmajčeka koji je simbol borbe protiv histiocitoze. Zmajčeka ručno izrađuje teta Jennifer i za svakog joj treba oko 4 sata i zato u prosjeku, treba oko 15 tjedana da Zmajček stigne na kućnu adresu. Meni je moj, napokon stigao, nakon godinu dana i odsad ćemo se dalje kotrljati zajedno, polako, ali sigurno 💙💙... Thank you, Liam’s Lighthouse Foundation 🍀🙏🏻. •••••••••••••••••••••••••••••••••••••••••••••••••••••• #septemberhistioawarenessmonth #dynamitehistiodragon #dynamitehistiowarrior #liamslighthousefoundation #histiowarrior
It's Histiocytosis Awareness Month! Let's spread awareness by sharing the stories of our Histio Heroes. Click the link to share your story and for more information on how you can help spread awareness this month! www.liamslighthousefoundation.org/news #GoBlue4Histio #HistiocytosisAwareness #LiamsLighthouseFoundation #LiamsLighthouse #BeHistioAware #HistioAwarenessMonth
Spreading awareness for Histiosytosis. #hlhhistory #liamslighthousefoundation #5ktofighthistio #5ktofighthistio2019 #ericsjourneywithhlh
February 28th is International Rare Disease Day. The rallying cry this year is Show your Stripes" in support of Rare Disease. Why do many in the Rare community identify with stripes you ask? One reason is that Zebras are rarer than horses. And another reason based on that, because in the past doctors were taught in medical school the old medical adage that "When you hear hoof beats, look for the horse not the zebra" meaning look for a common cause to an illness, not the rare. When applied it often leads to delayed or misdiagnosis. World wide there are Organizations such as NORD in the US, EURODIS in Europe, CORD in Canada, Rare Voices Australia plus many more who work with individuals and patient organizations to provide advocacy, research support, educational services, and patient assistance programs on behalf of the rare disease community. Hopefully, in the near future, all diagnosticians will know, that "zebra-type diagnoses must nonetheless be held in mind until the evidence conclusively rules them out." (wiki) . #histioconnection #histioaware #histiowarrior #histiosuperhero #behistioaware #histiofamily #liamslighthousefoundation #histiocurefoundation #givingrocks #histiouk #histiochampions #histioassociation #corbinsangelsforhistiocytosis #monkeygrins #makeawish #supertee #histiocytosis #LCH #HLH #RDD #ECD #JXG
Amelia received her Dynamite Histio Dragon yesterday. She was thrilled! Thank you #liamslighthousefoundation #dynamitehistiodragon
Check out this two new amazing pieces I got from @dangerandmayhem!!! Elyce makes coolest stuff, and special orders are no problem! •☠️• Stay tuned for your chance to get some #TeamFox #NeverFightAlone items of your own AND help @jenmitc get @dynamitehistiodragon out to a few more #histiowarriors! •🦊💙• 💙💙🖤💙💙 #BeHistioAware #NeverFightAlone #LCH #Histiocytosis #GoBlue4Histio #GoGold #FUHistio #HistioSucks #HistioAwareness2018 #MoreThanFour #ChildhoodCancer #AdultsGetHistioToo #HistioWarrior #HistioAngel #HistioMom #dynamiteoninsta #dynamitethehistiodragon #liamslighthousefoundation #awareness #cause #keyring #pins #necklace #bracelets
Dynamite the Histio Warrior Dragon ™ popped into the office this week and has been helping out for September Histio Awareness Month and to tell us what he's been up to and planning. So exciting !! 🤓💙 #Dynamite5k #Philadelphia #dynamitethehistiowarriordragon #histioconnection #histioaware #histiowarrior #histiosuperhero #behistioaware #histiofamily #liamslighthousefoundation #histiocurefoundation #givingrocks #histiouk #histiochampions #histioassociation #corbinsangelsforhistiocytosis #monkeygrins #makeawish #supertee #histiocytosis #LCH #HLH #RDD #ECD #JXG
Day 9 is is special. Today I share Histio Angel Liam! 09/09/09 is the date Liam gained his wings after battling HLH. @liamslighthouse was created in his honor, to bring awareness and raise funds for research, not only for HLH, but for all histiocytic disorders. Please keep Liam's family in your hearts today. #liamslighthousefoundation #rememberingliam #angelversary 💙💙🖤💙💙 #BeHistioAware #NeverFightAlone #LCH #Histiocytosis #GoBlue4Histio #GoGold #FUHistio #HistioSucks #DynamiteOnInsta #Lucky2point0 #HistioAwarenessMonth #HistioAwareness2018 #MoreThanFour #ChildhoodCancer #AdultsGetHistioToo #LLF #HistioWarrior #HistioAngel #HistioMom @lotus_11_rising
Levi & Kayleigh’s pic on the today show. 💙💙👼🏻👼🏻 #teamleviandkayleigh #todayplaza #todayshow #liamslighthousefoundation #ihatehlh #histiocytosis
5k to Fight Histiocytosis TEAM FORZA LUCA!!! #liamslighthousefoundation #5kforhistio #nyc #hlh #hystiocytosis
Out here raising awareness for histiocytosis #teamfightforkatelyn #hlhsucks #5ktofighthistio2018 #liamslighthousefoundation
Amber with HLH warrior Taylor & her mom Teresa. 💕💪🏻 #5ktofighthistio #histioawareness #liamslighthousefoundation #teamleviandkayleigh #nyc
@mommieamber & @sambsanders #5ktofighthistio #nyc #histioawareness #liamslighthousefoundation
#5ktofighthistio #teamleviandkayleigh #nyc #liamslighthousefoundation #histioawareness
#teamleviandkayleigh #histioawareness #5ktofighthistio #liamslighthousefoundation #todayshow #todayplaza #nyc @todayshow
#teamleviandkayleigh on #todayshow #nbc #algore #5ktofighthistio #histioawareness #liamslighthousefoundation #nbc #todayplaza @todayshow
Mark your Diaries...! Regram 📷 from @liamslighthouse . #liamslighthousefoundation #5KtoFightHistio #histioconnection #histioawareness #histiowarrior #5KtoFightHistio
Hanging behind the scenes at the @todayshow to help raise awareness for @liamslighthouse ! #liamslighthousefoundation #liamslighthouse #hlh #histiocytosis #todayshow #todayshowplaza #5ktofighthistio #nyc #newyorkcity #newyork
It's always an honor to photograph this event each year, the @liamslighthouse foundation's 5K to raise money and awareness to fight #histiocytosis . Each of those posters represents someone who has lost his/her fight against the disease or is a survivor of it. Such a good group of people. #💙 #liamslighthouse #liamslighthousefoundation #histio #hlh #5ktofighthistio2016 #nyc #newyorkcity #ny
We did it! @adpat's #HLH Avengers for the WIN! 💙💙💙 #liamslighthousefoundation #5ktofighthistio #fighthistio #ourteam @liamslighthouse
@adpat's #HLH Avengers! Because we love him. #fighthistio #5ktofighthistio #liamslighthousefoundation #ourteam #stepandrepeat
@adpat's #HLH Avengers! #ourteam @liamslighthouse #onyourmark #liamslighthousefoundation #5ktofighthistio #fighthistio
AdPat's #hlh Avengers want YOU to donate to fight histio! Just 24hrs left to support our team in the #5ktofighthistio on Sunday morning. Visit our team page by clicking on the link in my bio. #5k #fundraiser #savealife #liamslighthousefoundation #bestfriends #supergroup
#todayshow #nyc #5ktofighthistio #teamlevi #hlh #liamslighthousefoundation #todayplaza
Had a great time yesterday at the #5ktofighthistio with #teamliam! Glad to be a sponsor of such a great event! #nyc #liamslighthouse #liamslighthousefoundation #cprnj #JerseyCity #elizabethnj #jerseycitynj #physicaltherapy
#5ktofighthistio #nyc #hlh #teamlevi #todayshow #liamslighthousefoundation
Listen guys as I have said in some of my recent posts I will be running on Lacey's team for the 5k to fight histo. My goal is $500 (American dollars) and so far I have raised $200. I need your help to reach my goal, if you guys could click on the link that is in my bio and donate to my page it would mean so much. Every dollar counts. My page is under Haley Pair on Lacey's team.
My coworkers just for Today. :) Helping to get the word out for @liamslighthouse , spreading awareness about #histiocytosis . #todayshow #nbc #histio #hlh #manhattan #tvshows #newyork #liamslighthouse