Hey, beautiful soul.
I hope you are doing well and staying hydrated; if not, this is your friendly and gentle reminder to drink some water.
Living with vulvahr lichen sclerosus (VLS) can feel incredibly isolating.
Many of us feel completely alone.
Like we can't confide in our usual support network--spouse, partners, friends, siblings, etc.
Like no one could possibly understand the inner pain we carry.
Because of stigma...
Because of shame...
It's hard. Isolation is an awful feeling. And being alone can feel extra painful when processing a VLS diagnosis.
One thing that can help is sharing your story and connecting with others with VLS in a safe space.
Everyone's versions of what constitutes a safe space will vary, but here are some options:
-1:1 peer support call (link in bio or DM me saying 'Support Call Link'
-Virtual meetups with LSSN (link in bio)
-Reddit forum
-Facebook support groups
-In-person meetups (I'm hosting on in Montreal, Canada, June 1st and will host a couple in the summer in Toronto, Canada).
-Share in the comments of this post and connect with others via DM or comment back with them.
Share your story or feelings in the comments below and feel free to comment and discuss with others.
Further, if you have other suggestions for safe spaces to share stories with others, drop that in the comments too.
You are not alone, beautiful soul <3
With love,
Jaclyn
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