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Guilty of #pushingForNextStep Posted @withregram • @theworstfword_fibromyalgia #itsallinyourhead #theworstfword_fibromyalgia #fibromyalgiaawareness #fibrowarrior💜 #fibrofighter💪 #nocure💜 #notalldisabilitiesarevisible #fightinganinvisibleillness😭 #fightinganinvisiblebattle #pain24/7 #morethanadiagnosis #theworstfword_fibromyalgia #walkamileinmyshoes #livewithmypain #youdontlookdisabled #youdontlooksick #arentyoubetteryet #mentalhealthmatters #believeme #lonely #anxiety #stress #grievingmyoldlife💜 #grievingmyoldself #grievingallmylosses #fibrowarrior💜 #chronicpain #painchangespeople #strongerthanyouknow #spooniessupportspoonies

#pots #potssyndrome #potsie #posturalorthostatictachycardiasyndrome #potsie_probs #dysautonomia #dysautonomiaawareness #spoonie #spooniewarrior #youdontlooksick #youdontlookdisabled #itoldyouiwassick #crps #chronicregionalpainsyndrome #ehlersdanlossyndrome #eds #migrainessuck #migrainewarrior #migrainelife #chronicillness #chronicallyill #chronicallyillwarrior #chronicillnesshumor

🌻🛸🛸🛸🎀KEeP MoViNg °`•°~•♡ #mondayvibes #positivemindset #jungle #arthritisawareness #versusarthritis #youdontlookdisabled #dynamicdisabilty #babeswithmobilityaids #neowalksticks #crazycatlady #gratitude #joy #arty #colourpop #mondaymotivation

Right, then...That's Co-codamol to wash the Oxycodone down, Fentanyl to pop on, a bottle of liquid feed so I can take some Ibuprofen (digestive system ain't doing too well with solid food) and my hand/wrist splints... If only #pain meds were more effective in Ehlers-Danlos bodies. How can our bodies be SO fragile, yet be like tanks when it comes to pain meds and anaesthesia? I'm walking like a 90 year-old on these #knees, I can't put a #corset on for my #spine cos my hands can't pull the lacing, and I'm ignoring the grumbling in my pelvis because I HAVE to get out of bed and do something instead of just lying there thinking. Mud = good for my mental health. Hopefully l'll be able to write 'Tired' for #YouDontLookDisabled.com in the next two weeks too, and empty my mind a bit. Some people are NOT going to like that piece of #editorial at all... But that's not my problem. 🤷‍♀️ The secrets I COULD tell... 😶🤔 #EhlersDanlosSyndrome #HEDS #EDS #DuralEctasia #Tarlovs #DegenerativeDiscDisease #FracturedSpine

Not my usual look for this account, I know... 🤓 These are my #gardening and #photography clothes that, even when freshly washed, look #filthy due to me getting down in the mud. I've been taking time to adjust to different #Epilepsy meds, and have been busy sorting out parts of my personal life. #Pain-and-brain-willing, I'll be starting work on the #website again next week - there's a LOT to be done! It'll take a while. Aside from the emotional impacts of my newly confirmed Epilepsy diagnosis, my #EhlersDanlos is getting worse quite quickly. Dealing with increases in pain and subluxations is hard mentally and physically. The increasing #spinal laxity is especially scary. I am, though, in a safer place than I was regarding my #brain and things it was doing. I REALLY hope to able to start #writing again soon too. 🤞 I hope you're all as well as you can be, and are getting some #smiles out of #life. ❤ #YDLD #YouDontLookDisabled[.com] #EDSM #Tired #Editorial #Writer #Ableism #Dysautonomia #DIK (Determination Is Key) #Disability #Disabilities

It's #Painkiller O'clock 2 now, which is good... Optimistically put my usual daily outfit on. I'm hoping to sow some #seeds or transplant some #seedlings, then wash my hair - but all of that means kneeling and using #hands, which are a bit tricky. VERY tricky. Read 'hurts like f*ck'... My #femurs do NOT want to stay in place and keep subluxing (partially #dislocating) at the knees which is eye-watering, my wrists and hands feel like they've been stamped on, and my left elbow and skull wouldn't know how to stay in if they had instructions. I'm feeling #bratty because of it all. I want #chocolate, #biscuits but I'm pretty much #fasting for a week or so to rest my digestive system and drop some weight to see if it helps my increasingly unstable #skeleton and #pain. It'd d be good to sort some seeds and seedlings out because I'm hoping to focus on #website reconstruction and legal things next week... 🤦‍♀️ My #EhlersDanlos body wants me to put it back to bed and not move or use it, but I spent a decade doing that and it's boring... 🤷‍♀️😕 72 hours of #sleep sounds tempting, though. These #Epilepsy meds...SMH... Be nice to get the #Frankincense oil out of my #hair, though. #Youdontlookdisabled[.com] #YDLD #Dysautonomia #POTS #DuralEctasia #Tarlovs #FracturedSpine #GrowingFood #OrganicGarden #WildlifeGarden #ForestGardening

This fits perfectly today. As I just rolled my ankle that is messed up since last summer with a torn tendon. If you're a dumbass and you just rolled your ankle clap your hands 👋🙋‍♀️👏 .....it's me....I rolled my ankle 🤦🏻‍♀️ I've been dealing with chronic fatigue really bad today. When I went to go pick up Kiera from the bus stop, My ankle rolled right underneath me. I apparently thought my ankle wasn't screwed up enough so..... Good thing I have my chiropractor appointment tomorrow morning!! Pain killers , homemade ice bag, and leg elevated. 🤦🏻‍♀️😓🤕 *** Tag someone who needs a laugh today! *** Much Love Stay Safe Natasha #ifyourhappyandyouknowitclapyourhands #ifyourhappyandyouknowit #rolledankle #torntendon #painkillers #icebag #frozenpees #rolledmyankle #ouch #ithurts #swelling #swollenankle #fibromyalgia #fibromyalgiaawareness #fibromyalgiacommunity #fibromyalgiasupport #fibromyalgiacanada #spoonie #spoonielife #spooniecanada #spooniecommunity #chronicpain #chronicpainawareness #chronicpaincanada #chronicillness #chronicillnessawareness #invisibleillness #invisibleillnessawareness #butyoudontlooksick #youdontlookdisabled

Human Lady has this for bad days. Does that mean if we are bad we have to stay here? How does this thing work? #invisableillness #invisabledisability #wheelchair #ambulatory #ambulatorywheelchairuser #hiddendisability #chronicillnesses #pain #fatigue #quickiewheelchairs #monkey #dolly #hinding #disabled #youdontlookdisabled #youdontlooksick #mobilityaid

Snort that quinoa🤣 Reposted from @potsie_probs . . . #ms #multiplesclerosis #spoonie #posturalorthostatictachycardiasyndrome #myms #dysautonomia #dysautonomiaawareness #spoonie #spooniewarrior #youdontlooksick #youdontlookdisabled #itoldyouiwassick #crps #chronicregionalpainsyndrome #ehlersdanlossyndrome #eds #migrainessuck #migrainewarrior #migrainelife #chronicillness #chronicallyill #chronicallyillwarrior #chronicillnesshumor

#pots #potssyndrome #potsie #posturalorthostatictachycardiasyndrome #potsie_probs #dysautonomia #dysautonomiaawareness #spoonie #spooniewarrior #youdontlooksick #youdontlookdisabled #itoldyouiwassick #crps #chronicregionalpainsyndrome #ehlersdanlossyndrome #eds #migrainessuck #migrainewarrior #migrainelife #chronicillness #chronicallyill #chronicallyillwarrior #chronicillnesshumor

#pots #potssyndrome #potsie #posturalorthostatictachycardiasyndrome #potsie_probs #dysautonomia #dysautonomiaawareness #spoonie #spooniewarrior #youdontlooksick #youdontlookdisabled #itoldyouiwassick #crps #chronicregionalpainsyndrome #ehlersdanlossyndrome #eds #migrainessuck #migrainewarrior #migrainelife #chronicillness #chronicallyill #chronicallyillwarrior #chronicillnesshumor

"I'm not OK today. So, in the absence of okay, what else can I be? I can be gentle. I can be unashamed. I can turn my pain into connection. I can be a student of stillness. I can be awake to nature. I can sharpen my empathy against the stone of discomfort. I am not okay today, but I am many worthy things." ID: A picture of an orange bird in the bottom right corner with lines coming from it, beaming out. www.emotionalrespite.co.uk #ItsOkayNotToBeOkay #MentalHealth #MentalHealthMatters #EmotionalHealth #OnlineCounselling #DisabilityCounselling #CounsellingServices #DisabilitySupport #DisabilityAwareness #Disabled #InvisibleDisability #DisabledLife #Wheelchair #InvisibleIllness #ChronicIllness #Spoonie #ButYouDontLookSick #YouDontLookDisabled #DisabledCounsellor #CounsellorOfInstagram #DisabledTherapist #DisabilityAdvocate #Therapy #TherapySessions #Counselling #UK #NothingAboutUsWithoutUs

"I can be grateful for all I have While also feeling grief for all that I've lost. Dr Joanne Cacciatore" ID: A piece of paper with a strip torn away. This really resonated with me as someone who was born with a degenerative disability. It's common to be caught up in a cycle of grief whilst living with a disability or illness. Loss can be many things including loss of experiences, loss of identity, loss of your career, loss of the life you thought you'd have, loss of physical function, loss of freedom, loss of independence and loss of your mental health are just some examples. If you are struggling with processing the losses you are experiencing we here to support you. www.emotionalrespite.co.uk #OnlineCounselling #DisabilityCounselling #CounsellingServices #DisabilitySupport #DisabilityAwareness #Disabled #Loss #Grief #MentalHealth #EmotionalHealth #MentalHealthMatters #Therapy #DisabledTherapist #DisabilityAdvocate #CounsellorOfInstagram #TherapySessions #Counselling #DisabledCounsellor #UK #DisablilityLed #InvisibleDisability #InvisibleIllness #ChronicIllness #ButYouDontLookSick #YouDontLookDisabled #Spoonie #NothingAboutUsWithoutUs

: hello, it’s me and spring outside everywhere-sunday and resting in bed with my lovey weight blanket in my peanuts duvet cover i have since childhood.. it’s #livingthechronicillnesslife #disabledandcute #disabledblogger #invisibleillness #invisibleillnessawareness #youdontlookdisabled #youdontlooksick #chronicpainawareness #chronicpainwarrior #fibro #fibrowarrior #neuropathicpain #osteochondrosis #lumbardisc #lumbarspine #sciatica #spinepain #cmd #migraineawareness #pots #mecfs #asthma #longcovid #audhd #adhdwomen #spoonielife

"Emotional pain is not something that should be hidden away and never spoken about. There is truth in your pain, there is growth in your pain, but only if it's first brought out into the open." Steve Atchson A gentle reminder that your emotions are valid and important. Therapy can give you a safe space to explore your feelings. www.emotionalrespite.co.uk #EmotionalPain #YourFeelingsAreValid #CounsellingServices #DisabilitySupport #DisabilityAwareness #OnlineCounselling #MentalHealth #EmotionalHealth #InvisibleDisability #InvisibleIllness #ChronicIllness #ButYouDontLookSick #YouDontLookDisabled #DisabledCounsellor #CounsellorOfInstagram #DisabledTherapist #DisabilityAdvocate #Therapy #TherapySessions #Counselling #UK #NothingAboutUsWithoutUs

- today’s mood: tilidin-hangover met pain crash, anew painkillers won… 🥹 #livingthechronicillnesslife #disabledblogger #invisibleillness #invisibleillnessawareness #youdontlookdisabled #youdontlooksick #chronicpainawareness #chronicpainwarrior #fibro #fibrowarrior #neuropathicpain #osteochondrosis #lumbardisc #lumbarspine #sciatica #spinepain #cmd #migraineawareness #pots #mecfs #longcovid #audhd #spoonielife

: i’m in pain. i’m down. i’m stranded. i’m hating my body. i’m grieving the life i thought i would have. it’s hard to accept the state im in actually. fck pain, atm so hard to handle, i’m often crying, i’m suffering, yes, would consider this as suffering, when most of the time you can’t move or make a movement without so much pain. always. 24/7. no matter what you do. it’s the fibro but much more since some days it’s in the lumbar region, that is always hurting bc it’s quite ruined, combined with side effects like numbness of the leg and bladder issues. it got worse the last weeks so i had a mrt last week that showed little differences to the last one 2ys ago but i’ve read again how out of order this part is. have an appointment with spine surgery in 2 weeks to see what to do next… so, last weeks, did lots of exercises, creams, minerals, took muscle relaxants + different painkillers including opioids that help a bit. also have the impression my neuropathic painkillers aren’t that effective anymore although i already take a high dose. so i think omg, what would be without them?! and ask myself, as a multiple ill and disabled person: why me? why all this? hate my life, my body atm so much. and that’s ok bc i think it’s quite shitty… well, now laying on the couch, put my legs up and watching death in paradise , i like it, it always reminds me of our holiday in Guadeloupe… . . #livingthechronicillnesslife #disabledblogger #invisibleillness #invisibleillnessawareness #youdontlookdisabled #youdontlooksick #chronicpainawareness #chronicpainwarrior #fibro #fibrowarrior #neuropathicpain #osteochondrosis #lumbardisc #lumbarspine #sciatica #spinepain #cmd #migraineawareness #pots #mecfs #longcovid #adhdwomen #audhd #spoonielife

Think my tiny pup and I are both hurting today and need a quiet day. Her #burn wound is still bad and her #scarring will be severe. Can see a lot of #scars already. Hopefully the antibiotics she's on AGAIN will keep her safe from the latest infection in it. #AbbeyVet and their insurers are still dodging responsibility and being awful about it all. Burned in January, it's STILL really bad. I hate seeing her suffering. 😔😪 My #pain levels are really high again, and between that, my pup's injury, the court case I'm bringing against the #NHS, my #Epilepsy, a broken washing machine, work that needs doing in my garden that I can't do and the man I hired to do the work who I had to throw out for being inappropriate with me, I'm feeling a bit #stressed and fed-up! 🤷‍♀️🤦‍♀️ Hopefully a #cwtch with my tiny girl will make things feel a bit better. It's day 22 of quitting #cigarettes, so that's good. 👌 #DeerheadChihuahua #Chihuahuas #EhlersDanlosSyndrome #HEDS #Hypermobile #Hypermobility #Dysautonomia #POTS #FracturedSpine #Tarlov #DuralEctasia #CraniocervicalInstability #CCI #YouDontLookDisabled #YDLD

3 of 8 new sticker designs coming to my shop soon. This will be printed on a round cut paper. Preorder today by commenting and/or messaging me. Stickers will be roughly 3"x3" (slight variation in size may happen in printing) #disabilty #disabilityawareness #stupid #youdontlookdisabled #notalldisablilitiesarevisible #ada #disabiltyarts #disabiltyawarenessmonth #disabilityawarenessstickers

Thanks! It only took several layers of makeup and some heavy painkillers 💊🫤 #youdontlooksick #youdontlookdisabled #mistakenidentity #whoami #judgementalpeople #sickofit #chronicillness #chronicpain #struggle #thissucks

"The only way out is through " ID: A forest outlines a pathway to the light. Sometimes we may experience difficult and challenging experiences. Therapy can help you process your experiences so you are able move forward. If you would like support get in touch. www.emotionalrespite.co.uk #OnlineCounselling #DisabilityCounselling #CounsellingServices #DisabilitySupport #Trauma #Trigger #DisabilityAwareness #Disabled #InvisibleDisability #DisabledLife #Wheelchair #InvisibleIllness #ChronicIllness #Spoonie #ButYouDontLookSick #YouDontLookDisabled #DisabledCounsellor #DisabledTherapist #DisabilityAdvocate #CounsellorOfInstagram #TherapySessions #Counselling #Therapy #UK #NothingAboutUsWithoutUs

#pots #potssyndrome #potsie #posturalorthostatictachycardiasyndrome #potsie_probs #dysautonomia #dysautonomiaawareness #spoonie #spooniewarrior #youdontlooksick #youdontlookdisabled #itoldyouiwassick #crps #chronicregionalpainsyndrome #ehlersdanlossyndrome #eds #migrainessuck #migrainewarrior #migrainelife #chronicillness #chronicallyill #chronicallyillwarrior #chronicillnesshumor

#pots #potssyndrome #potsie #posturalorthostatictachycardiasyndrome #potsie_probs #dysautonomia #dysautonomiaawareness #spoonie #spooniewarrior #youdontlooksick #youdontlookdisabled #itoldyouiwassick #crps #chronicregionalpainsyndrome #ehlersdanlossyndrome #eds #migrainessuck #migrainewarrior #migrainelife #chronicillness #chronicallyill #chronicallyillwarrior #chronicillnesshumor

elevatorselfie heute beim BEM Gespräch… #livingthechronicillnesslife #disabledblogger #adhsfrauen #audhs #audhd #invisibleillness #invisibleillnessawareness #youdontlookdisabled #youdontlooksick #chronicpainawareness #chronicpainwarrior

Felt cute, might block some miracles later... A bit of character bounding for fun, resting now 💚 #goodomensfandom #goodomenscosplay #femalefurfur #characterbounding #goodomensfurfur #blockingmiracles #youdontlookdisabled #goodomens #goodomens2 #goodomensfan

I'm still here (just about!) and I'm still focusing on sorting out some personal things and adjusting to new #Epilepsy medications in the hope of controlling my #seizures. I've been having a LOT of those recently... I made some videos for my personal social media (and made a longer montage of them) showing how my #hypermobile joints sublux* thanks to #HEDS ( #HypermobileEhlersDanlos). Thought I'd post them here too. You might have to turn up the volume at the start to hear my spine when I'm just sitting still. Sorry for the hissing #audio in the #toe bit. #Knee bit = my spine popping about at the start. Left side of my jaw = #dislocation. My lobeless ear in the #jaw bit is another sign of EDS. Wierd, huh? Subluxing CAN hurt. Dislocating CAN be painless when you're this extra #bendy. The longer (first) video is all the shorter ones put together. You'll hear my #knees grinding then popping back in because they were out. I laugh at my right knee popping because THAT hurt!! 🤦‍♀️ I must slut drop throughout the day because the left one is always sliding out. You'll hear my #skull popping about on my neck at the end of the knee one where Mia, my precious and very #tiny #DeerheadChihuahua comes out from under the blanket on my #bed. Red light = doesn't hurt my head as white light does. All of my joints do it - aside from my fingers. They're not to bad. Thumbs are fragile and constantly hurt. Clickity-clack. Posted the videos separately too in case you don't want to hear everything. If you would like to see what my personal #Instagram feed is like, look up @skol1974. I hope you're all as well as you can be, and I hope to be working on the site again once my seizures and pelvic #pain are more under control. 🤞❤ *sublux: a partial dislocation #Hypermobility #YouDontLookDisabled[.com] #YouSeeUs[.org] #WeSeeYou[Official.org] #Ableism #AbleistBritain

Soooo...😁😬...Thought I'd show you how my #hypermobile joints sublux* thanks to #HEDS ( #HypermobileEhlersDanlos). You might have to turn up the volume at the start to hear my spine when I'm just sitting still. Sorry for the hissing #audio in the #toe bit. #Knee bit = my spine popping about at the start. Left side of my jaw = dislocation. My lobeless ear in the jaw bit is another sign of EDS. Wierd, huh? Subluxing CAN hurt. Dislocating CAN be painless when you're this extra bendy. The longer (first) video is all the shorter ones put together. You'll hear my knees grinding then popping back in because they were out. I laugh at my right knee popping because THAT hurt!! 🤦‍♀️ I must slut drop throughout the day because the left one is always sliding out. You'll hear my skull popping about on my neck at the end of the knee one where Mia comes out from under the blanket. All of my joints do it - aside from my fingers. They're not to bad. Thumbs are fragile and constantly hurt. Clickity-clack. Posted the videos separately too in case you don't want to hear everything. *sublux: a partial dislocation #Hypermobility #YouDontLookDisabled[.com] Insta: @youdontld #YouSeeUs[.org] #WeSeeYou[Official.org] #Ableism #AbleistBritain

I don't make all my posts about my illness and subsequent disability. That's been a personal choice and how I cope with it. I don't sweep it under any rug, but I don't want mnd to become the director of my life. Everyone deals with illness and/or disability differently. I can attend a hospice, but I don't want to. Sure, I can post a trillion pictures here, how I struggle physically. Hospital stays, emergencies. But that's just not me. I appreciate other disabled people hugely who use their accounts for showing all this and raising a lot of awareness. It is not a person's disability what makes them inspiring, it is who you are as a person. #alwaysbeyourself #motorneuronedisease #poweredwheelchairuser #als #idoitmyway #disabled #disability #youdontlookdisabled #assumptionsarenotfacts

On the day that only appears 1 in 4 years we truly celebrate Rare Disease Day #rarediseaseday #rarediseaseday2024 John @daddyhoggy refers to our rare diseases as Pokemon because once you have one you've got to catch them all. Be kind, compassionate and understanding. Rare Diseases impact on our life daily and we are constantly educating even our Doctors and Medical Professionals about them. Please look up our rare diseases, educate yourselves, and others. Understand that because we look ok, we really aren't. #hiddendisability #youdontlookdisabled #eds #hsd #pots #behcetsdisease #sjorgens #fibromyalgia #chronicillness #hemiplegicmigraine #autonomicnervoussystemdysfunction Ehlers Danlos Syndrome Hyper mobile Spectrum Disorder Postural Orthostatic Tachycardia Syndrome Autonomic Nervous System Disorder Behçets Disease Sjörgens Syndrome Hemiplegic Migraine

I have had the hardest week this week in so many ways, so I had some advice from @kerri_79 to help me kick start and have more progress with my weight loss post surgery and it has been invaluable, I’m so grateful as I’ve lost 5lbs this week! 😁😆🥹 so thank you so much! Then, even though I’m still on a phased return to work, I’ve had to put that on hold just for this week as we had a brand new booking and computer system installed at work and everyone, all my employees and myself have had 2 days to learn it; with a trainer before we’re all left to our own devices; just a lot going on and lots of stress! Then I still have more hospital appointments coming up, I need to go for my INR today as it’s a week overdue 🙈, although if I felt off or weird at all I would have gone straight to the hospital for a test and a check up, so I do think it’ll be fine. But I have an appointment with Dr Breen my thrombosis haematologist #Antiphospholipidantibodysyndrome specialist #doctor well one of my main ones at #stthomashospitallondon on Thursday next week face to face, with a phone call appointment with the #bariatricteam at @kingscollegehospital in the afternoon on Thursday….. so all in all I have had a hell of a week. And next week looks to be just as crazy!! I am #exhausted and also quite #snappy not helped my a monthly dose of womanhood! So this weight loss is just amazing! Im very happy! To be honest so many of my clothes are hanging off me already; it’s nice to feel 😊😘🙏🏽🙏🏽🙌 #gastricsleeve #bariatricsurgery #antiphospholipidantibodysyndrome♥️ #aps #chronicillness #autoimmunecondition #autoimmunewarrior #youdontlookdisabled #youdontlooksick🙄 #justkeepswimming #migraine #migraineawareness

hello and good evening and good night. #abouttoday did a lot, did nothing at all… hi, it’s me. trying. not matching. living. #storiesofaclutteredheart #livingthechronicillnesslife #confusedmind #brainfog #youdontlooksick #youdontlookdisabled #invisibledisabilities #covidsucks #covidrevovery #fibromyalgia #migraine #chronicpainwarrior #chronicpainawareness #asthmasucks #fibroawareness #fibrowarrior #mecfs #fatigued #longcovid #spooniesister #neuropathicpain #audhd #adhdawareness

If you have an invisible illness or disability, you've probably heard this. In the podcast this week, I want to hear from you! What does "sick" look like for you? What do people see when they look at you, and what's under the surface? Let me know in the comments ✨ Image description: yellow background with a red speech bubble in the middle. In it, text reads "you don't look sick". A graphic of a black cat sleeps in the bottom left corner of the image. Hashtags: #PodcastersOfInstagram #ChronicallyCaleigh #Chroniclllness #ChronicllnessAwareness #CrohnsDisease #Ileostomy #Ostomate #YouDontLookSick #YouDontLookDisabled

✨The Honest Truth About ME✨ TW: suicide, mental health It can be difficult to talk about sometimes, how it was in the beginning. But I want others to know they’re not alone in their experiences or emotions. #myalgicencephalomyelitis nearly broke me. It stripped away every piece of my life as I knew it. All that was left was a broken and bruised shell of a person. I genuinely didn’t know if I could carry on, how to carry on with this new life. Pain and fatigue always dominated my thoughts. My children were young at that time and it was hard to be in the moment with them and to think of all the moments I would miss out on. Several times I thought this has to end, I just can’t live like this. But instead of going down that road I got a therapist. And I started to feel like I could carry on,it just had to be in a different way. #mentalhealth is extremely important when dealing with something like this in my opinion. It doesn’t matter what classification of ME you have it takes everything from you. I’m not surprised that a leading cause of death for people with ME is suicide. It is an uncompromising, complex multi system illness. A living death, as I’ve seen it called, and it absolutely will take you to the brink. I see you and you’re not alone. 🩵💙love and positive vibes🩵💙 #iseeyou #youcanmakeit #myalgicencephalomyelitisawareness #mecfsawareness #mecfswarrior #mecfslife #mecfsblogger #mecfsfighter #pwME #postexertionalmalaise #complexillness #chronicillnessandme #chronicillnessawareness #chronicpainawareness #chronicwarrior #chronicpainsurvivor #invisible #butyoudontlooksick #youdontlookdisabled #stillsick #sickandtiredofbeingsickandtired #butyoudontlookill #wedeservebetter #disabledandproud #disabledisnotabadword #disabledlife #hiddendisability #yourstongerthanyouthink

"Dance like no one is watching. Because they're not. They're checking their phones." 😆 ID: A picture of someone dancing. Wishing you all a lovely weekend! 💜 www.emotionalrespite.co.uk #Friday #FridayFeeling #Weekend #FunnyQuote #OnlineCounselling #DisabilityCounselling #CounsellingServices #DisabilitySupport #DisabilityAwareness #Disabled #Dance #Dancer #InvisibleDisability #InvisibleIllness #ChronicIllness #Spoonie #ButYouDontLookSick #YouDontLookDisabled #DisabledCounsellor #CounsellorOfInstagram #DisabledTherapist #TherapySessions #Counselling #CounsellorOfInstagram #DisabilityAdvocate #Therapy #MentalHealth #EmotionalHealth #MentalHealthMatters #UK #NothingAboutUsWithoutUs

We end up being full time patients researching at different levels of necessity and fortitude. we know what we know because we were forced to learn it when our doctors didn’t have answers. #endometriaca #endometriosis #chronicpain #disabilityawareness #youdontlookdisabled #

✨There Is No Cure✨ As of right now there’s no cure for #myalgicencephalomyelitis do we all wish there was? Absolutely! Will we continue to fight for the funding and research needed to start looking for a cure? Undoubtedly! I’ve felt the sheer desperation of looking to anything and everything to feel better and not be ill anymore. More often than not with no effect at all and even worsening symptoms not making them better. Sadly there are people who are out there looking to make money off of us, as we’ve seen with the recent acuseeds ordeal. Unfortunately no amount of #earseeds , yoga, kale, breathing, positive thinking, changing your mindset, GET or any of the many other things I’ve heard over the years are going to cure us. Sometimes things can help ease the mental impact ME has, can help with sleeping better for instance but they are not cures. ME is a complex multi-system illness. There’s no magic potion to rid us of it. I don’t think this makes me defeatist or wanting to stay sick. It doesn’t make me a bad #chronicallyill person it makes me a realist. What we need is #research #funding and #sciencebacked treatments. It hurts me to see what our community has been through the last several weeks. We don’t deserve it, we deserve better. 🩵💙love and positive vibes🩵💙 #myalgicencephalomyelitisawareness #mecfsblogger #pwme #postexertionalmalaise #wedeservebetter #mecfsawareness #mecfsfighter #mecfslife #chronicillnessandme #chronicillnessawareness #chronicpainawareness #chronicpainsurvivor #butyoudontlooksick #youdontlookdisabled #stillsick #sickandtiredofbeingsickandtired #butyoudontlookill #bettertreatment #disabledandproud #disabledisnotabadword #disabledlife #hiddendisability #invisible #invisibledisability

The #Epilepsy Service didn't have room for all my diagnoses, apparently - it's a pretty long list. A quick update...I haven't been able to do any work on the website for a while due to almost daily #seizures interfering with life. My Epilepsy diagnosis is now official, and I start the anti-seizure meds tonight. The seizures have been interfering with my ability to #write (I'm gutted about that) and my memory...It's all a bit scary... 😔 I've been warned that these two new meds may wipe me out for a month or two as I spend the next three months slowly increasing the dose to where it needs to be. I'm due to have some tests on my brain in the next few weeks. Right now, given the results of an MRI last year, I'm just hoping this is Epilepsy and that it isn't pointing to other more scary and degenerative neurological conditions. I hope to be writing again at some point soon. I'm not sure if I can edit videos to music any more, or if that will trigger more seizures. They've been coming thick and fast recently. This, along with increasing pain as my #EhlersDanlos progresses, means I may not be able to get much done for the foreseeable. I'm focusing on sorting out things in my home life for now, and hope to be able to start working on the site again in #Spring. 🤞 Send me luck? I think I need it. 😔 #YouDontLookDisabled[.com] #NiceGuys #EDSM #Feminists #Lovers #Grower #Pain #Velvet #Wanker #CrystalBitten #Foreplay #MyCorsetStory #Compartmentalisation #Twilight #Reuptake #Succubus #EDShsd2023 #EhlersDanlosSyndrome #ysuTribe #YouSeeUs

"And if I ask you to name all the things that you love, how long would it take for you to name yourself?" Happy Valentines Day! This is a gentle reminder to love yourself! ❤️ www.emotionalrespite.co.uk #Valentines #ValentinesDay #OnlineCounselling #DisabilityCounselling #CounsellingServices #DisabilitySupport #DisabilityAwareness #Disabled #InvisibleDisability #InvisibleIllness #ChronicIllness #ButYouDontLookSick #YouDontLookDisabled #DisabledCounsellor #CounsellorOfInstagram #DisabledTherapist #DisabilityAdvocate #Therapy #MentalHealth #EmotionalHealth #TherapySessions #Counselling #UK #DisabledLife #Spoonie #NothingAboutUsWithoutUs

✨Thankyou✨ Valentine’s Day should be about more than celebrating with your romantic partner. It should be about celebrating all of the love you have in your life. I can’t express how happy and grateful I am to have all of you in my life. To have people that truly understand what it is like to live with #chronicillnesses and especially #myalgicencephalomyelitis is honestly priceless. So have a lovely day/evening with your valentine but also I hope you know I appreciate you, and more importantly Thankyou for being my friend ♥️♥️love and positive vibes♥️♥️ #valentine #valentineday #loveyourself #loveforfriends #friendsforlife #friendships #youguysrock #youguysarethebest #thankyouforbeingafriend #chronicillnesssupport #chronicpainwarrior #invisibleillness #invisibledisability #hiddendisability #butyoudontlooksick #youdontlookdisabled #disabledlife #disabledandproud #disabledblogger #myalgicencephalomyelitisawareness #me #mecfs #mecfslife #mecfsfighter #osteoarthritisawareness #spoonie #spooniesupport #spooniestrong

Step up your sassiness game with one of my unique Life With #EDS stick figure designs, available at my #etsy #redbubble and #teepublic shops 😊 https://linktr.ee/jesabee #ehlersdanlos #chronicillness #invisibledisability #invisibleillness #spoonie #youdontlookdisabled #youdontlooksick

How to build your self-confidence Practice positive self-talk Accept compliments Learn to say no Challenge yourself Recognise what you are you good at Embrace your flaws Set realistic goals Build positive relationships ID: A diagram showing pointers of how to increase your self-confidence in a flower shape diagram. Do you struggle with your self-confidence? As someone with a disability or chronic illness you may experience many challenges which can impact your self-confidence. We are here to support you to build your confidence. If you would like to work with one of our therapists get in touch! www.emotionalrespite.co.uk Appointments Available! #OnlineCounselling #DisabilityCounselling #CounsellingServices #DisabilitySupport #DisabilityAwareness #MentalHealth #MentalHealthMatters #SelfConfidence #SelfDevelopment #InvisibleDisability #InvisibleIllness #ChronicIllness #ButYouDontLookSick #YouDontLookDisabled #DisabledCounsellor #CounsellorOfInstagram #DisabledTherapist #DisabilityAdvocate #Therapy #TherapySessions #Counselling #UK #NothingAboutUsWithoutUs

Today you will feel many feelings Notice them Be curious about them Seek the wisdom in them Treat them with kindness Remember they are temporary. ID: A colourful chain of colours going down the page, back and forth like a snake. A gentle reminder that your feelings are like visitors. Some are more welcome than others. But they come and they go. www.emotionalrespite.co.uk Appointments Available! #Sunday #SelfCareSunday #Feelings #OnlineCounselling #DisabilityCounselling #CounsellingServices #DisabilitySupport #DisabilityAwareness #Disabled #InvisibleDisability #InvisibleIllness #ChronicIllness #ButYouDontLookSick #YouDontLookDisabled #DisabledCounsellor #DisabledTherapist #DisabilityAdvocate #CounsellorOfInstagram #TherapySessions #Therapy #Counselling #MentalHealthMatters #EmotionalHealth #MentalHealth #UK #Spoonie #SelfAwareness #SelfDevelopment #NothingAboutUsWithoutUs

Just finished writing #Tired and getting it on the website. I was going to sub it and then unlock it for you to read, but I just had another seizure and it was quite a long one, so I'm not sure I will be able to open the page today. Hopefully it'll be open and ready for you to read tomorrow - but I can't promise that right now. I'm trying, though... #YouDontLookDisabled[.com] #NiceGuys #EDSM #Feminists #Lovers #Grower #Pain #Velvet #Wanker #CrystalBitten #Foreplay #MyCorsetStory #Compartmentalisation #Twilight #Reuptake #Succubus #EDShsd2023 #EhlersDanlosSyndrome #ysuTribe #YouSeeUs

✨This Is Me.. Part 2✨ A condensed version of my #chronicillness journey. I had one more slide but I couldn’t add it on. It seems the condensed version is still long! I’ll add it below..👇🏻 “ I saw a bit of improvement last year, not a lot but something to hold onto. And that’s where I’m at now. Trying to make a new life. Again. “ If you have any questions or want to know anything in more detail just let me know! Ps. I changed the font for easier readability. 🩵💙love and positive vibes🩵💙 #myalgicencephelomyelitis #myalgicencephalomyelitisawareness #mecfsawareness #mecfsfighter #mecfsblogger #mecfslife #chronicillnessandme #chronicillnessawareness #chronicpainawareness #chronicwarrior #chronicpainsurvivor #invisible #butyoudontlooksick #youdontlookdisabled #stillsick #sickandtiredofbeingsickandtired #butyoudontlookill #bettertreatment #disabledandproud #disabledisnotabadword #disabledlife #hiddendisability #wedeservebetter #spoonie #spoonielife #spooniesupport #myjourney #thisismylife #thisisme

Introducing Tit-Bits... Intended to be shorter pop-up bits of opinion, #TitBits are things I want to say, but that aren't quite long enough to be a full #editorial feature. That said, Tit-Bit: 00 is longer than the others will be, and, of course, I've written it to be a tiny bit inflammatory. But, only to those who deserve to be prodded and poked a little... As this first one says - Shall we start as we mean to go on? Kicking off with a Tit-Bit especially for the big, brave #MenOfCulture and the sad little females who have have, apparently, lost their way - and their wits... Why using 'Feminist' as an insult is dumb and why everyone should be one. https://youdontlookdisabled.com/tit-bits-00-feminists #YouDontLookDisabled[.com] #NiceGuys #EDSM #Feminists #Lovers #Grower #Pain #Velvet #Wanker #CrystalBitten #Foreplay #MyCorsetStory #Compartmentalisation #Twilight #Reuptake #Succubus #EDShsd2023 #EhlersDanlosSyndrome #ysuTribe #YouSeeUs

I'm going to try to get a few things done on the website today - no promises, though. I have new Tit-Bit on site ready to be read, and I'm trying to finish this piece today. Can't promise my brain will let me #write...It doesn't even remember the few hundred words already there and I used to remember words I wrote 25 years ago on sight. It won't be necessarily be an easy read. It won't be an easy write. Writing has been my go-to to deal with stress in life since I was a child and started writing poems aged six...Hopefully I can get it done. All recent things considered, I'm not sure I can - thought I was exhausted in the past. Now? Now, I'm feeling a whole new level of #Tired... #YouDontLookDisabled[.com] #NiceGuys #EDSM #Feminists #Lovers #Grower #Pain #Velvet #Wanker #CrystalBitten #Foreplay #MyCorsetStory #Compartmentalisation #Twilight #Reuptake #Succubus #EDShsd2023 #EhlersDanlosSyndrome #ysuTribe #YouSeeUs

#pots #potssyndrome #potsie #posturalorthostatictachycardiasyndrome #potsie_probs #dysautonomia #dysautonomiaawareness #spoonie #spooniewarrior #youdontlooksick #youdontlookdisabled #itoldyouiwassick #crps #chronicregionalpainsyndrome #ehlersdanlossyndrome #eds #migrainessuck #migrainewarrior #migrainelife #chronicillness #chronicallyill #chronicallyillwarrior #chronicillnesshumor

The “Amazing” chronic illness club. . Life long membership to pain, fatigue, judgement, and medical gaslighting included at no extra cost! . In all seriousness though sometimes it just sucks to be diagnosed with a life long illness/disability. . You think about how different certain situations in your life could be, instead of being stuck on the sidelines clutching your pain pills. . Life is hard for everyone, it just hits a bit different when you know pain is your life and the question are you feeling ok today is always a lie. . We got this though. 1 day at a time 🌸💜. . #pain #chronic #chronicpain #chronicpainwarrior #chronicillnessawareness #spoonie #spoonies #spoonielife #spooniesupport #spooniesunite #spooniesupportnetwork #chronicfatigue #chronicdisease #fibromialgia #fibrowarrior #thisiswhatfibromyalgialookslike #fibrofog #fibrowarriors #fibroawareness #hypermobilitysyndrome #hypermobility #hypermobile #ehlerdanlossyndrome #ehlersdanlos #ehlersdanlosawareness #youdontlookdisabled #areyouok #mentalhealth #mentalhealthawareness 💜

✨It’s Not Your Fault✨ When I first became #chronicallyill in 2012 I spent a lot of time feeling like it was my fault. Like I had done something or was actively doing something that had caused it. And what also came with that was guilt and shame. Perhaps those early days could have been different or easier if someone had told me - “it’s not your fault” Doctors were reinforcing the idea, even friends and family. Except sissy who believed me and supported me. One beacon of light in sea of it must be your fault. Now I would like to be that beacon of light for someone and to tell them - it’s NOT your fault. Chronic illness is hard, it’s very hard in fact and it’s constant. Often it fluctuates but it’s always there. You don’t need the feeling like it’s your fault on top of everything else. You will get a handle on it in your own way but in the meantime it’s most definitely NOT your fault 🩵💙love and positive vibes🩵💙 #itsnotyourfault #myalgicencephalomyelitis #mefighter #pwme #myalgicencephalomyelitisawareness #wedeservebetter #mecfsawareness #mecfsfighter #mecfsblogger #mecfslife #chronicillnessandme #chronicillnessawareness #chronicpainawareness #chronicwarrior #chronicpainsurvivor #invisible #butyoudontlooksick #youdontlookdisabled #stillsick #sickandtiredofbeingsickandtired #butyoudontlookill #bettertreatment #disabledandproud #disabledisnotabadword #disabledlife #hiddendisability #spooniesupport #spooniecommunity #spooniewarrior

✨They told us we wouldn’t survive..✨ Everytime I listen to this song, this particular part, it makes me feel like this relates to what #myalgicencephelomyelitis sufferers, and other #chronicillness sufferers have to go through. The song isn’t about that of course but I keep coming back to feeling it really relates. That feeling of being abandoned after diagnosis. Just being left to have to get on with it. Out of sight, out of mind as it were. And now we are coming together in places like this, standing together, and saying “we ARE here” and demanding #research and #funding for science backed treatments not just for ourselves but for those of us who cannot #raiseawareness and put up a fight. The last bit always gives me a little smile. We know where we have to go and fight. We know where the people are who “make up the rules” and we’re coming for them. It’s alot harder to say something to a person’s face than a faceless mass. To see the effects on human being up close. Let’s see them say that shit to our face! If you can tolerate the sound I’ve put this part of the song on this post - Song is - 30/30 150 by Stone Sour 🩵💙love and positive vibes🩵💙 #myalgicencephalomyelitisawareness #wedeservebetter #mecfsawareness #mecfsfighter #mecfsblogger #mecfslife #chronicillnessandme #chronicillnessawareness #chronicpainawareness #chronicwarrior #chronicpainsurvivor #invisible #butyoudontlooksick #youdontlookdisabled #stillsick #sickandtiredofbeingsickandtired #butyoudontlookill #research #funding #bettertreatment #disabledandproud #disabledisnotabadword #disabledlife #hiddendisability #overit #wecandoit #itsnotinyourhead

✨Somedays I Don’t Want..✨ For anybody #chronicillnesses are a lot to deal with. Somedays it’s nice to hear that you’re strong and resilient, that you can get through the nightmare of the chronic illness beast. It can pump you up and make it seem doable. But somedays you just don’t want to hear that. Somedays you don’t want to wear the mask. You just CANT wear the mask. You want the world to see how bad chronic illness really is. Because that is the truth. The truth can hurt. People may want you to wear the mask all the time because THEY can’t deal with how bad you’re reality truly is. Just know you can take it off. You don’t need to wear that brave face all the time. And we, the #chronicillnesscommunity will be there for you. 🩵💙love and positive vibes🩵💙 #takeoffthemask #youdonthavetobebraveallthetime #myalgicencephelomyelitis #myalgicencephalomyelitisawareness #mecfsawareness #mecfsfighter #mecfsblogger #mecfslife #chronicillnessandme #chronicillnessawareness #chronicpainawareness #chronicwarrior #chronicpainsurvivor #invisible #butyoudontlooksick #youdontlookdisabled #stillsick #sickandtiredofbeingsickandtired #butyoudontlookill #bettertreatment #disabledandproud #disabledisnotabadword #disabledlife #hiddendisability #overit #spoonie #spooniesupport #spoonies_united

How to respond to someone disclosing their autistic/ADHD identity 🧠🌈 When I first disclosed diagnosis I was met with: ❌ “You’re mild though right?” ❌ “Which parts of you are autistic?” ❌ “No you’re not, you don’t look autistic” ❌ “I’m so sorry” None of which were helpful. So before you respond to a diagnosis disclosure, think first. Here’s some ideas… ✅ “How do you feel about it?” ✅ “That must be a lot for you to process. How are you doing?” ✅ “Where can I learn more about your experience?” ✅ “Is there anything you would like me to do to support you going forward?” What would you have liked to have heard after you disclosed diagnosis? 🫶🏻 #AutismDiagnosis #ADHDDiagnosis #Neurodivergent #DisclosingDisability #AutisticWomen #ADHDWomen #LateDiagnosedAutistic #LateIdentifiedAutistic #AutismDiagnosisJourney #AutismDiagnosisNowWhat #AuDHD #YouDontLookDisabled

✨February Check In With Me!✨ A new month means a new #checkin I’ve been having a bit of rough time recently. A lot of things have been happening and with my husband’s surgery too it all got to me. I’ve had to step up around the house until he’s fully recovered and that alone has been a lot. Finally the other night I had a #breakdown and the increased pain I’ve been in pushed me over the edge and I cried. A lot of tears. But husband is well on his way now and daughter is back home full time so I’ve been able to #rest and get back to proper #pacing so I’m feeling a bit better. 🧡 is where I’m at right now! How has everyone else been doing? Everybody is welcome to comment or DM if you wish and if you don’t or can’t that’s fine too. Just know #imhereforyou at any time 💚🩵🧡💛💖 🩵💙love and positive vibes🩵💙 #myalgicencephalomyelitisawareness #spoonie #spooniesupport #supporteachother #mecfsawareness #mecfsfighter #mecfsblogger #mecfslife #chronicillnessandme #chronicillnessawareness #chronicpainawareness #chronicwarrior #chronicpainsurvivor #invisible #butyoudontlooksick #youdontlookdisabled #stillsick #sickandtiredofbeingsickandtired #butyoudontlookill #bettertreatment #disabledandproud #disabledisnotabadword #disabledlife #hiddendisability #wecandoit

I've been told I don't "look" autistic... 😂😂😂😂 I sleep with comfort toys, and a cat eye mask...and I have a collection of squishmallows! There...is that better for you? #autismacceptance #autismawareness #autistic #autisticadult #autisticwoman #autisticwomen #asd #squishmallows #thumper #youdontlookautistic #youdontlookdisabled

Happy Saturday to you! 🙂 It's been a while, eh? I HAVE been #writing and chipping away at some stuff while life and my #HEDS have been hammering my mind and body, as noth can and do... Thought I'd distract myself from life today, capitalise on my #Bratty side (which is in full effect right now) and finally get the first of my new mini-reads, #TitBits, up on youdontlookdisabled.com. I have 52 #words of notes I scribbled in the dark the other night for Tit-Bit 00, which I'm writing now for a little #WeekendRead. Yas, it's going to be a mischievous one designed to trigger the more insecure and toxic #souls out there. I mean, if my words don't apply to or represent YOU and your thoughts or behaviours, you ain't gonna get wound-up. Are you? 😶😑😶🤷‍♀️🥱 *hums a tune to herself and starts typing* 😈😁✒ #YouDontLookDisabled[.com] #NiceGuys #EDSM #Feminists #Lovers #Grower #Pain #Velvet #Wanker #CrystalBitten #Foreplay #MyCorsetStory #Compartmentalisation #Twilight #Reuptake #Succubus #EDShsd2023 #EhlersDanlosSyndrome #ysuTribe #YouSeeUs

✨Fatigue and Tiredness✨ I was talking with @ourchronicillnesstribe yesterday about chronic illness thoughts that we think often. We both felt this was a big one! What is nothing to a healthy person is a huge task for #chronicallyill people. I’ve said it before - a lot of people, society, the media even doctors(!) do not understand the difference between #fatigue and #tiredness yes everybody gets tired but most certainly not everybody gets fatigued. Simply put tiredness is a short term lack of energy that gets better with rest or sleep. Fatigue on the other hand is more like a constant physical or mental exhaustion that does not get better with rest or sleep. People with #myalgicencephelomyelitis and other #chronicillnesses experience fatigue. And let me assure you we don’t enjoy staying in bed all day, sleeping a lot or anymore of the “genius” things people say to us. It is not just a rest it’s a complete lack of ability to actually do anything else. It doesn’t help matters that Chronic Fatigue is literally used in the name of our Illness. It completely reduces everything that we have to live through down to just one symptom and it’s pretty infuriating. Our fatigue is not the same as your tiredness! 🩵💙love and positive vibes🩵💙 #myalgicencephalomyelitisawareness #changethename #wedeservebetter #mecfsawareness #mecfsfighter #mecfsblogger #mecfslife #chronicillnessandme #chronicillnessawareness #chronicpainawareness #chronicwarrior #chronicpainsurvivor #invisible #butyoudontlooksick #youdontlookdisabled #stillsick #sickandtiredofbeingsickandtired #butyoudontlookill #bettertreatment #disabledandproud #disabledisnotabadword #disabledlife #hiddendisability #overit #wecandoit

🖤💮🍕🍕🖤🐈‍⬛ No Friday vibes around here... after today's scary pain and symptom assessment my doctor (who is honestly so brilliant and always checking in) has booked me in for more bloods and ultra sounds of the tummy (I'm not preggers with twin cats haha!🙃) as there are concerns that tumours could have hooked up and made bffs with whatever variety of arthritis I have.I foolishly suggested I return to work (I have my stick I can use the lift all will be fine) and that was shut down,hit with another medical certificate for Feb// March (this is feeling loooong now) and another layer of medication 💊 (idk the name has the whole alphabet in!) which takes my pill party consumption up to 20 per day. Uncertainty continues along with swelling of my leg! Anyways so I dabbled with making this kinda vegan iSh* banana cake packed with magic anti inflammatory things °•°•turmeric, cinnamon and raspberries°•°• I made the error of folding in some peanut butter,hence why it's vegan iSh* I'm actually drowning in nutrition// science papers, books,studying and scribbling notes considering taking up a nutrition course with the free time I have as it's always nice to learn new stuff that can be shared with others♡ Crisps are staying. Have a lovely weekend everyone🌻🌈 #girlswhosupportgirls #babeswithmobilityaid #chronicpainwarrior #thisgirlcan #arthritisawareness #versusarthritis #youdontlookdisabled #theartprocess #illustrativeart #food #wellbeing #fridayvibes #strongwomen #positivemindset #creative #devonartists #educator #antiinflammatoryfood #veganlife #art #artist #wintering #neowalksticks

"May you have the courage to break the patterns in your life that are no longer serving you." ID: A symbol that is a swirl going into an arrow head facing up. It's easy to stay in your comfort zone even when old behaviours, routines, and patterns don't serve you anymore. Change can be scary, but necessary for growth. Do you feel stuck in a loop? Therapy can help! www.emotionalrespite.co.uk Appointments Available! #PersonalGrowth #SelfDevelopment #Change #Decisions #NewMe #OnlineCounselling #DisabilityCounselling #CounsellingServices #DisabilitySupport #DisabilityAwareness #Disabled #InvisibleDisability #DisabledLife #Wheelchair #InvisibleIllness #ChronicIllness #Spoonie #ButYouDontLookSick #YouDontLookDisabled #DisabledCounsellor #CounsellorOfInstagram #DisabledTherapist #DisabilityAdvocate #MentalHealth #EmotionalHealth #TherapySessions #UK #Counselling #NothingAboutUsWithoutUs

✨ME May Be Invisible..✨ We’ve all heard the classic “but you don’t look sick” so much so, that in my case, it’s often met with a hard eyeroll. But they’re right I don’t look sick at first glance that is. Look a little deeper though and it’s there for all to see. I don’t even have to show you my worst days for you to see the impact #myalgicencephelomyelitis has on me. I’m a lot paler than I used to be because I don’t leave the house much and have sensitivity to light, my mobility is bad, having a conversation can be difficult due #brainfog and you can literally see the pain I’m in constantly on my face. There’s much more to the list as you’ll be aware. Invisible illnesses/disabilities deserve to have the light shined on them because we are suffering. Just people desperate for a reprieve from the physical, emotional, and psychological trauma we’ve all lived through and continue to endure. ME impacts those around me too. I’m a wife to a husband who spends a lot of time caring for me and working full time! My children have had to live very different lives than we had hoped for them. I just wish society would look a little deeper and they would understand that #invisibleillnesses are not so invisible after all. 🩵💙love and positive vibes🩵💙 #invisibledisability #invisibleillnesswarriors #myalgicencephalomyelitisawareness #mecfslife #mecfsblogger #mecfsawareness #chronicillnesslookslikeme #chronicpainwarrior #chronicillnessawareness #chronicillnesses #chronicillnesssupport #butyoudontlooksick #youdontlookill #youdontlookdisabled #whatyoudontsee #disabledandproud #disabledlife #disabledlivesmatter #disabledisnotabadword #disabledinstagram #postexertionalmalaise #learnfromme #pwme #spooniesupport #spoonielife #spooniewarrior #hiddenillness

"And the dandelion does not stop growing, because it is told it is a weed. The dandelion does not care what others see. It says, "One day, they'll be making wishes upon me"." B. Atkinson ID: A colourful picture with many different flowers, leaves and plants. There is something powerful in us all and that is our inner potential to grow and evolve. www.emotionalrespite.co.uk #InnerSelf #PersonalGrowth #SelfDevelopment #OnlineCounselling #DisabilityCounselling #CounsellingServices #DisabilitySupport #DisabilityAwareness #Disabled #InvisibleDisability #InvisibleIllness #ChronicIllness #Spoonie #ButYouDontLookSick #YouDontLookDisabled #DisabledCounsellor #DisabledTherapist #DisabilityAdvocate #CounsellorOfInstagram #TherapySessions #Therapy #Counselling #UK

✨Why I Don’t Use The Term CFS✨ I believe the term #chronicfatiguesyndrome trivialises the all encompassing, life destroying illness that is #myalgicencephelomyelitis The only time I do use it is in hashtags because there isn’t much else. Giving ME the label of Chronic Fatigue Sydrome gives doctors, society, the media, mental health workers and even family and friends the license to assume we’re exaggerating or even out right lying about our condition. That it is within our power to get ourselves better but we just aren’t trying or are lazy. I believe CFS is a massive insult to what our lives are really like. Advocating from our beds and for those who are the most seriously ill. No amount of eating well, or CBT, or GET or freaking #earseeds is going to help us get better. But the term CFS gives the impression that that is in fact the case. A lot of people do not know the difference between fatigue and tiredness. ME is not a psychological condition and I believe CFS feeds into the idea that it is. ME is long overdue a full name change to drop the CFS part and I’m going to keep fighting for that. 🩵💙love and positive vibes🩵💙 #myalgicencephalomyelitisawareness #changethename #wedeservebetter #mecfsawareness #mecfsfighter #mecfsblogger #mecfslife #chronicillnessandme #chronicillnessawareness #chronicpainawareness #chronicwarrior #chronicpainsurvivor #invisible #butyoudontlooksick #youdontlookdisabled #stillsick #sickandtiredofbeingsickandtired #butyoudontlookill #research #funding #bettertreatment #disabledandproud #disabledisnotabadword #disabledlife #hiddendisability #overit #wecandoit

✨Another Sad Loss..✨ TW: Death, Suicide What will it take for us to be believed? Hundreds? Thousands? Millions of deaths due to #myalgicencephelomyelitis A rhetorical question but one I find myself asking more and more these days. The medical negligence suffered by our community alone should be enough for the world to say this has to stop. We’re looked down upon by doctors, society, professionals, mental health workers etc as fakers and lazy, when we’re people in desperate need! Time and time again I’ve read the leading cause of death in people with #mecfs is suicide. It’s not surprising to be honest. It takes everything. It effects everything. All the time with no breaks. Ever. We need #funding We need #research We need #sciencebacked treatments. Empathy and understanding wouldn’t be bad either. I’d also like to say #restinlove Lauren 🕯️💙 🩵💙love and positive vibes🩵💙 #mecfsawareness #mecfsfighter #mecfslife #chronicillnessawareness #awareness #invisible #chronicpaincommunity #chronicfatigue #disabled #disabledlife #disabledlivesmatter #disabledisnotabadword #empathy #understanding #mypainisreal #itsnotinyourhead #butyoudontlooksick #youdontlookdisabled #stillsick #sickandtiredofbeingsickandtired #sickandtired #socialchange #wedeservebetter #pwme

"Working on myself, by myself, for myself." ID: A person is standing on bridge between the brain and the heart. Therapy can provide you with a safe and confidential space to work on yourself. A space to be heard, seen, and understood. Therapy can help facilitate finding clarity, insight and, new found awareness as part of your self development. Appointments Available! www.emotionalrespite.co.uk #SelfDevelopment #Saturday #OnlineCounselling #DisabilityCounselling #CounsellingServices #DisabilitySupport #DisabilityAwareness #Disabled #MentalHealth #EmotionalHealth #InvisibleDisability #InvisibleIllness #ChronicIllness #ButYouDontLookSick #YouDontLookDisabled #Spoonie #DisabledCounsellor #DisabledTherapist #DisabilityAdvocate #CounsellorOfInstagram #TherapySessions #Therapy #Counselling #UK #NothingAboutUsWithoutUs

"This is dedicated to every human being who looks different, feels different, and thinks differently. I see you. I feel you. I am you. Stay different. Our world needs the difference we will make." Qasim Chauhan ID: A colourful silhouette of head with long hair. www.emotionalrespite.co.uk I loved this quote. Do you relate? This service prides itself in providing therapists who are able to empathise on a deep empathetic level. We are you. We see you! ❤️ #Seen #Different #IAmYou #OnlineCounselling #DisabilityCounselling #CounsellingServices #DisabilitySupport #DisabilityAwareness #Disabled #InvisibleDisability #DisabledLife #ChronicIllness #ButYouDontLookSick #YouDontLookDisabled #Spoonie #DisabilityAdvocate #WheelchairLife #MentalHealth #EmotionalHealth #DisabledCounsellor #DisabledTherapist #TherapySessions #Counselling #CounsellorOfInstagram #UK #Diversity #Inclusion #NothingAboutUsWithoutUs

meet me (in huge comfortable original 90s nfl jacket and lovable hoodie 🙃) after the therapy, phew. it’s ok to cry. #itsoknottobeok or to feel not ok. bc there are /were so many things in your past that weren’t ok and they still work in you. and pop up, triggered by situations. but you try, you work on it and i also smiled. smiled so often, felt happy inside as many things are good, persons are good. my cats are good. although lots of appointments, duties with a fatigued mind & body and heart, breakdowns + extra situations there i felt on deaf ears, came across people with impossible unbelievable thinking and acting, there were also good times with good beings esp in the last 2 weeks! and music that keeps me often in the loop. and that all makes me still smile and having a good feeling. thank you all! . . #livingthechronicillnesslife #chronicillnessawareness #chronicillnesswarrior #spoonielife #disabledblogger #disabilityawareness #invisbledisabilities #youdontlooksick #youdontlookdisabled #uckableism #adhdawareness #adhdwomen #audhd #chronicpain #chronischeschmerzen #migräne #neuropathischeschmerzen #skoliose #osteochondrose #lumbalgia #lws #neuropathicwarrior #fibro #fibrowarrior #potsie

bilder (m)eines tages… chronisch krank sein heißt auch das organisieren von rezepten, medikamenten, wahrnehmen von terminen bei ärzt*innen sowie physiotherapie. da ich durch covid immer noch nicht lange radeln kann, aber quer durch stadt musste, bin ich mal wieder seit langem kvb gefahren, danke deutschland-ticket, was ich diesen monat habe. und ohmy, ich habe mich erinnert, warum ich es hasse, mit der kvb zu fahren, was ich jahrelang jahre her musste wegen arbeitsstelle… . . #livingthechronicillnesslife #chronicillnessawareness #chronicillnesswarrior #spoonielife #disabledblogger #disabilityawareness #invisbledisabilities #youdontlooksick #youdontlookdisabled #uckableism #adhdawareness #adhdwomen #audhd #chronicpain #chronischeschmerzen #migräne #neuropathischeschmerzen #skoliose #osteochondrose #lumbalgia #lws #neuropathicwarrior #fibro #fibrowarrior #potsie